General chat
278 topics in this forum
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Feeling silly!
by jacqui- 4 replies
- 8.5k views
Hi everyone..just needed to ask if I should start panicking or am I really just being paranoid as my husband thinks I'm being! My mum was diagnosed last July with pc but I sought of knew what she had weeks before the docs sent her for relevant tests...I'd known a couple of other people with this awful disease. I seem to be developing the same symptoms...pain in my back and side that started a couple of months ago, came and went and is now back all the time Although nothing seems to aggravate or alleviate it. Tried anti inflammatries, co-codamol and even diazipan but to no avail. Had indigestion the other other for the first time in years ...no other symptoms..yet. Can t…
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Mis-diagnosis
by mallet- 7 replies
- 12.4k views
My father was diagnosed with IBS (irritable bowel syndrome) back in September 2011, by his GP after a 10 minute appointment. He was referred to a counsellor, as the GP thought the IBS must be stress related, and the GP failed to identify the "red flag" signs, such as a family history of cancer (his brother died from bowel cancer), so my father was kept in Primary Care. He was asked to keep a food diary and even the counsellor was convinced my father was depressed and IBS had been brought on because of it. We all know how quickly pancreatic cancer spreads, and vital months were lost by this mis-diagnosis. He had not got any better by November 2011, so my wife, a nurse,…
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Optical Biopsy using Cellvizio
by Gblyth- 0 replies
- 5.2k views
There is a emerging technology called Cellvizio that may help patients with pancreatic cysts get a definitive diagnosis after an Endoscopic Ultrasound-guided Fine Needle Aspiration (EUS-FNA) procedure. A video of the procedure can be seen at http://www.maunakeatech.com/healthcare-professionals/1210/eusfna-procedures
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APPG Meeting - 18 June
by J_T- 2 replies
- 5.2k views
I have emailed my MP, Tim Farron details of the meeting following a tweet to him. He has already written to the DoH on my behalf and I had a reply from Anna Soubry which I posted on this forum. He is a very good MP but I suppose him being there will depend on his diary. Hope he can make it. If there is anymore information I can send him, please let me know.
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BUPA 10K
by karen17- 7 replies
- 10k views
Hi everyone, My daughter is running the Bupa 10k in London on the 27th May with all donations going to PCUK. She is doing this to raise awareness of this dreadful disease and we plan to be there cheering her on. Come on Rebecca - we are so proud of you
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Money off Gas & Elec bills ! !
by LindaH- 3 replies
- 5.9k views
I was told about British Gas who will allow a £130 discount off your Gas & Elec bill if you are suffering either a serious illness or like us, terminal illness. Brilliant. My Gas & Elec bill was high which I knew it would be because of the terrible winter we have encountered and coming out of hospital last Christmas I really felt the cold, so the gas fire and central heating was on virtually none stop. I rang the lovely lady at British Gas ready to stake my claim.... Name?.... Linda Nature of your call?.... to enquire about your Warm Home Scheme and to claim my £130 please. Nature of your illness?.....Pancreatic Cancer. Do you work?...No, I've be…
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- 1 reply
- 5.5k views
I'm not sure if it is well known, which came to me from Macmillan, if you have a terminal disease of which Pancreatic Cancer is one, you maybe able to cash your life policy in to use before you die. The catch is - perhaps not the correct terminology; sorry -, you have to be presumed to die within the year, but of course with Pancreatic Cancer being such an illness that people can die within a year of diagnoses, perhaps it might be something you wish to think about. I have applied, I don't know if I'll be eligible, but I can but try. I would just like to be able to pay for my own funeral and make sure that my family have the money in the bank to help them when I've p…
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Live Chats
by Slewis7313- 6 replies
- 6.7k views
I joined yesterday's live chat along with my Daughter and Wife and found it really useful. The format is a little less formal than the discussion boards and as serious or light-hearted as you may wish it to be. The very capable ladies from PCUK were quick to answer any questions thrown at them and the hour went very quickly. The only issue is that we were the only participants! Can I urge my fellow forum contributors to give it a try as it is different from the discussion boards with the whole dialogue being erased after the event.... It is sometimes good not to be quoted in the future! If you are able, pease join future events as PCUK are really keen to make these se…
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new members
by susikus- 11 replies
- 9.4k views
I can see from the members section that there are new members joining every week, and most don't post. I just wanted to let you know how incredibly helpful I have found it to share with others who are going through the same things as we are. To feel that you are not alone and there is understanding 'out there' is wonderful. Thank you Paul, Jools, Deb and Laura and everyone else. I check this forum first and last thing every day - and sometimes inbetween too. So if you're thinking about posting, please do be brave and make that leap, we will welcome you and help you all we can. Thinking of you all, with love, Sue xxx
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- 5 replies
- 7.2k views
New to this site, but all the posts Ive read have been very helpful and there are a lot of strong and wonderful people out there. My husband who just turned 40 last year was diagnosed with PC with spread to liver in March last year. He had 8 sessions of chemo, streptozocin, 5FU and dacarzabine and doxorubicin, tumours were shrinking when he had CT scan in August, just had another CT scan a few weeks ago and tumours are now bigger, his cancer is inoperable. They wont offer anything else, but is being offered to take part in a clinical trial, I find the consultants and drs difficult to communicate with. They keep saying that they have people who have been on clini…
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- 4 replies
- 8k views
A stent was inserted into my pancreas whilst I was hospital and whilst it alleviated the jaundice and helped a little with digestion I started at Christmas with the runs, so the doctor gave me Creon Capsules which certainly stopped the runs, but OMG the wind is awful..... I take 3 caps a day at 300mg with meals, plus I've been given a 150mg cap to take if I have a snack, which I don't really take because I rarely snack. I find I'm having to take a couple of Wind Ease tablets before bed as the tummy pain is terrible. I won't care if I could just pop to one side a get rid of the wind, but it won't go away. Has anyone had experience of the same thing and would …
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Memory loss/confusion
by Stoke- 1 reply
- 5.3k views
My husband was diagnosed with non-operable PC last summer and has been having cycles of gemcitabine. Over New Year he suffered the first period of 'confusion' and 'lost' 2 days. And again this week he had another episode but this time it passed after a few hours and he seemed back to normal the next morning. Has anyone else had similar experiences or know what may cause these? I found these quite scary.
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Diagnosed with RA
by mikejamesjhm- 2 replies
- 6.1k views
Recently my friend has been diagnosed with Rheumatoid Arthritis and Fibromyalgia What all medications do you take and how do get out of such condition?
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My mum has pancreatic cancer
by Helaine- 1 reply
- 5.1k views
Back in 2011, Dec 23rd to be exact, we were told that mum had pancreatic cancer, devastating as you will all know,my mum was the fittest person i knew, walked miles every day, never smoked, hardly drank and ate very healthy so why on earth did she get this horrible disease....Now I thought that as the tumour was in the head of the pancreas she would be able to have the Whipples procedure so I set about researching it, by the time I finished I knew so much I could have performed the operation myself, sadly in the Feb mum was told she would not be able to have the op as the tumour was 4cm (over the cut off size) and had grown around a major vessel leading to her liver, she …
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Laura and Bri
by PCUK Nurse Jeni- 7 replies
- 8.4k views
Have a fantastic and well deserved holiday both of you! Jeni.
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Christmas Tree Festival
by louiepc- 6 replies
- 7.9k views
Hi everyone, I wanted to share with you what I have been doing. My local church is holding a christmas tree festival, where 21 trees are being decorated for various groups and charities. In August I was asked if I would like to have a tree for Pancreatic Cancer UK. My mum absolutely loved Christmas and all that it meant, I said yes straight away. This morning I decorated the tree in silver and purple, lots of friends have donated items to go on the tree, I think my mum would love it. It was very emotional and tears came, but I am so happy to have done this in Mum's memory and for raising awareness to pc. On Saturday I am holding a table top sale, selli…
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second opinions
by dmc236- 4 replies
- 7.2k views
after being seen at regional specialist centre, are patients able to request a second opinion from a different specialist centre of thir choice??
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Keeping the faith...just
by DRAD3- 3 replies
- 6.7k views
Hi all I had written to my MP to ask him to attend the APPG on pancreatic cancer on 19th November and received a one liner letter saying he would try to "pop along". Not satisfied with that, I popped along to his surgery on Saturday morning to ask him face-to-face. I could have cried with the disappointment at his total lack of interest! He did remember my letter but immediately said he could no longer go as the party leader had asked him to go to Rotherham to help in a local by-election. He did allow me to give him some information and to talk about some of the issues and how important raising awareness about PC was. I was dumbfounded when he said the problem lay …
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contact a member
by dmc236- 2 replies
- 5.4k views
hi everyone,is there any way of direct messaging a member please? i am worried about someone on the forums as she hasnt posted for some time and just hopefull she remains in good health? thank you
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My Mm Has PC in the head of the pancreas
by dorabcoelho- 2 replies
- 9.2k views
First of all I think if a person has diabetes and had any kind of cancer in the past she/he must be careful! My mum had breast cancer 11 years ago, her diabetes very difficult to control. It all started in July last 2007. She started losing weight, but because she had taken some kind of tea ( I don't know if I am allowed to say the name of the tea on this website) to help her to loose weight she didn't really think she was ill. At the same time mum used to complaint about gases. She went to many doctors but she was never disgnosed . Mum lost weiht very quickly and in March she started having dihorrea; again she was misdiagnosid. They said she had intestinal disease. …
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new to this 1 2 3
by susikus- 73 replies
- 50.9k views
Hello, I have been reading all your posts on this forum and found them very interesting and amazingly helpful. Thank you. Here is our story: My husband was diagnosed with inoperable pc just over 2 weeks ago. He is 58, a strong, fit man who never takes a day off work. About the beginning of July he had noticed a change in bowel habit, thought he was a bit constipated, took some senna. He then wasn't constipated but had a bit of central abdo pain and wasn't right. So he took himself to the doctor (mainly because I said he should - that change in bowel habit for over three weeks is an important sign) where he was diagnosed with constipation and prescribed lactulose. He…
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join us in the 'Road of Hope'
by alexandrea- 2 replies
- 5.8k views
My name is Alexandrea and I lost my grandfather to pancreatic cancer in 2009. He lost his battled after 3 months of being diagnosed with it. It hit our family really hard but also brought us together. Pancreatic cancer is very deadly but not well known. Treatments are very limited and it’s hard to catch pancreatic cancer in its early stages due to its very vague symptoms. My aunt doesn't let his memory die though; we do annual silent auctions to raise money to go to helping finding a cure. This year is our 3rd annual silent auction! Our ‘Road of Hope’ Silent Auction includes a beef and beer style menu, cash bar, a fabulous silent auction, DJ and dancing. Proceeds from…
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join us in the 'Road of Hope'
by alexandrea- 0 replies
- 4.5k views
My name is Alexandrea and I lost my grandfather to pancreatic cancer in 2009. He lost his battled after 3 months of being diagnosed with it. It hit our family really hard but also brought us together. Pancreatic cancer is very deadly but not well known. Treatments are very limited and it’s hard to catch pancreatic cancer in its early stages due to its very vague symptoms. My aunt doesn't let his memory die though; we do annual silent auctions to raise money to go to helping finding a cure. This year is our 3rd annual silent auction! Our ‘Road of Hope’ Silent Auction includes a beef and beer style menu, cash bar, a fabulous silent auction, DJ and dancing. Proceeds from…
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spyglass test
by dmc236- 19 replies
- 19k views
has anyone heard of or experienced this test as part of diagnostic tools please? thank you
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The Simply Lovely Tea Party
by DRAD3- 2 replies
- 5.8k views
When my husband Gary died in April, I was humbled at the support and love I received from friends and family, work colleagues, as well as neighbours and even local shopkeepers who knew him. People were shocked and saddened to hear of his diagnosis, being just 45 at the time and at 6 foot 3, a big, strong man who looked so healthy. People just wanted to DO something to show how much they cared, to acknowledge that his courageous struggle had touched them. At his funeral, we raised over £1,000 which we donated to PCUK. In the weeks that followed, people still wanted to show their support and I forwarded money on to PCUK through Gary's muchloved.com website. A close fri…
