-
Recent Topics
-
- 0 replies
- 20 views
-
- 1 reply
- 1444 views
-
Diet and Nutrition webinar - Tuesday 20th May, 6-7pm
By Support Team, in News from Pancreatic Cancer UK
- 0 replies
- 257 views
-
- 2 replies
- 571 views
-
- 74 replies
- 120238 views
-
Forums
-
Forums
-
- 349
- posts
-
- Diet and Nutrition webinar - Tuesday 20th May, 6-7pm
- By Support Team,
-
- 4.8k
- posts
-
- Post-chemotherapy neuropathy - how long?
- By Luke1971,
-
- 12.5k
- posts
-
- My wonderful husband
- By Nicmads,
-
- 1.8k
- posts
-
- CBD
- By KupapiChisan,
-
- 6.2k
- posts
-
- Peritoneal metastasis adter whipple advice
- By jessie18x,
-
- 2.3k
- posts
-
- Need a second opinion
- By coelio,
-
- 868
- posts
-
- Losing my mum 💜
- By rhi,
-
-
Recent Posts
-
By coelio · Posted
Hello, I'm a 30-year-old woman, and I'm sorry to ask my question on this forum, but I need a second opinion. I've been having yellow and light brown diarrhoea for three weeks and for just over a week I've had severe back pain (middle/upper back, central and left) and I sometimes have pain under the solar plexus and the left ribs. Sometimes I feel nauseous. I've had a general abdominal scan three weeks ago and an ultrasound, both of which are normal. I'd like to have an MRI to make sure I don't miss any lesions/tumours, but my doctor doesn't see the point. Do you think I should insist? -
By Luke1971 · Posted
In the absence of any replies, I'll share my experience in case it's of any use to anyone. The neuropathy and fatigue took a long time to go completely - about nine months - but go they did, and now (14 months post-end of treatment) I'm fit, working and happy. There can be light at the end of that tunnel, in case anyone's reading. -
By Support Team · Posted
Hello all! Our webinars team has a new event coming up if you would like to join; Whether you’ve been diagnosed yourself or are supporting a loved one, join this free session on Tuesday, 20th May, 6-7 pm to hear from a dietitian and two of our specialist nurses. They’ll talk about common symptoms you may experience linked to your diet and digestion. You’ll learn why these symptoms happen and tips to help you manage them, including foods to eat or avoid. Find out more and sign up on our website now: https://www.pancreaticcancer.org.uk/support-for-you/webinars/pancreatic-cancer-diet-and-you-20may25 -
By nikki345 · Posted
Hi Broju, Thank you so much for the info. We have looked at the Heidelburg but unfortunately they're at capacity Xxx -
By broju · Posted
Hello nikki345 Really sad to read your post. When my husband was diagnosed he was keen to take part in any trials but sadly it was during Covid and many were curtailed. I believe there are now some taking place. Your brother might qualify for and hopefully benefit from one? Also, we would have explored treatment abroad, mainly in Germany had travel not also been curtailed. The Heidelburg University Hospital still seems to lead the way in PC treatment. It’s all worth exploring. xx -
By nikki345 · Posted
Hi all. My brother has just turned 39 years old and has been diagnosed with Stage 4 pancreatic cancer around a week ago. He has been given 3-6 months to live. The cancer is 5cm in the head of his pancreas, and has also metastasised to his liver I believe as well as several peritoneal lymph nodes - although the medical team are not sure about the lymph nodes at the moment. (this is a medical negligence case which we will be dealing with separately). This was a huge shock for us and we are completely devastated. He has a 5 month old and 5 year old too. He has received no treatment thus far. His cytology report was inconclusive and he therefore had a liver biopsy to determine the tumour type. We will then look to start chemotherapy asap. He also has a PET-CT scan scheduled for Thursday. We've also looked into and started some alternative therapies too. We are feeling so lost. I wanted to know if anyone please please has any advice regarding next steps/what we can do to fight this? We are more than happy to pay/go private/go abroad if this will help. We are based in the UK. Any support would be greatly appreciated. Thank you so much. -
By Marina123 · Posted
Hi @kate2101 I’m just reading back on this thread, how are you doing now? Are you still sporadically on Folfirinox at the reduced dose? You’re my beacon of light on here since my mum has been diagnosed -
By KupapiChisan · Posted
I've tried different CBD options, and thc gummies were the most effective for me in terms of relaxation and sleep. I made sure to start with a low dose to see how my body reacted, then adjusted as needed. Everyone’s experience is different, so keeping track of how you feel can be helpful. It's worth checking with a doctor, especially if you're on other medications or treatments. -
By Marta92 · Posted
My uncle went through chemotherapy a few years ago and, with his oncologist’s approval, he started taking CBD oil. We weren’t expecting a miracle, but they did seem to help ease some of his nausea and made it a bit easier for him to keep food down. It didn’t eliminate all the side effects of chemo, but from my family’s perspective, every small relief counted -
By antboo-23 · Posted
Hi bluepeter, How are you after your radiotherapy? My mum was offered 5 days of palliative radiotherapy recently and hoping she will be able to start it soon Thanks
-