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Palliative care for pancreatic cancer webinar - 6pm - 3rd December 24
By Support Team, in News from Pancreatic Cancer UK
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- PERT Supply
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Recent Posts
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By Luke1971 · Posted
First time I've had trouble getting Creon for quite a few months. Anyone else? -
By Nicmads · Posted
On October 12th my amazing husband went into hospital with suspected gallstones. He has always been fit and healthy and just 2 weeks before going into hospital we were enjoying an amazing holiday in the Dominican Republic. he was diagnosed with pancreatic cancer within 12 hours of going to hospital. We were so shocked, our heats were broken. We couldn’t believe that this was happening, as I’m sure everyone else who is dealing with PC feels. 2 weeks later we were told that it wasn’t good news, the cancer was to far gone. There was a possibility of chemo but that would depend on a biopsy result. If he could have chemo our prognosis was 6-12months, if not 6-8weeks. Our world was shattered but he was always saying he was going to give it everything he had! We made plans, we had tough conversations and we were brutally honest with each other. A week later, the biopsy results were back and there was nothing to be done. We had to go home and enjoy our time together. We came home on the Friday and sadly on the Tuesday morning my darling husband passed away, he was 55. I don’t know how I will ever get over losing him. I miss him everyday. We had so much planned in our lives and I feel robbed. People say it gets easier but I just can’t see how. He was my everything and I’m so lost without him -
By Skippy · Posted
I am sorry to hear of your diagnosis, but thought I'd reply. Like my brother at 74 he had no 'symptoms' only an itchy skin rash. His bloods were his only warnings. By 3 months through the examination processes ie ct scan he remained fit and active. No one really can predict as circumstances can be so different from what I read and comparing it to my friend who had PC also. He became jaundiced just prior to his admission into hospital. He had the Whipple. He took 3 good months to recover from that operation..he did well and was back on his feet as himself. He did so well for 20 months having a near normal day., but sadly the C spread. I can only say adhere to your consultants recommendations but look forward every day and to do what you feel you can do. My female friend 70wanted no surgery or chemo. She coped well -following advice - some days feeling so tired but had a year of being able to get up and on with her social life. It's so hard to predict time with any cancers I think. This site is so informative. -
By bluepeter · Posted
I had a full men's wellness check last November in Thailand and discovered my CA 19-9 was 200+ On returning to the UK in February I told my doctor and was fast-tracked for a CT and MRI. A tumour was found but because of my age, I refused chemo and surgery I did however agree to a 5-day intensive course in radiotherapy which I am recovering from to be reviewed on 20th December. Providing the results are not devastating I plan to fly back to Thailand in early January. My question is how long have I got once the symptoms start before I would be unfit to fly back to the UK. At the moment I have no symptoms apart from tiredness from the radiotherapy treatment. Any PC-UK member's timeline experiences would be very helpful. Peter -
By Nicmads · Posted
Hi Alison, I have just joined the forum and read your post. My wonderful husband was diagnosed with PC in October. He too was fit and healthy playing football and walking etc. Sadly we were to late with our diagnosis and my husband passed away just over 3 weeks later. I hope that your husband is ok and you are too. It’s such a horrible time for you both x -
By Support Team · Posted
If you or someone you know has pancreatic cancer, planning for the future might feel difficult. You may have heard the term ‘palliative care’ but feel unsure about what this means. Hosted by specialist pancreatic cancer nurses Simon and Rachel, this webinar will help you understand what palliative care is, what you can expect from it and who is there to provide palliative care and support you towards the end of life. We will also discuss planning for the future and what good end of life care should look like, with time for questions too. This session is for people with pancreatic cancer and their loved ones. We appreciate these discussions may be upsetting & difficult, and that you may wish to stay for the section on palliative care but not the section on end of life care and we’ll make sure you’re able to leave before this section if you wish. https://www.pancreaticcancer.org.uk/support-for-you/webinars/palliative-care-for-pancreatic-cancer-webinar-3-december-2024 -
By alisonrb · Posted
Hi everyone. I am really struggling to come to terms with what's happened. My husband ( together 28 years and married for 24) has always been very fit being a cycling obsessive, we've always eaten healthily, no family history of pc, he's not a big drinker and never smoked. He's also only 57. He was given a diagnosis of probable pc on October 14th. I say probable because he still hasn't had a biopsy due to him having lost weight and not being well enough ( there is a slight possibility it could be neuroendocrine ). The speed this has happened has been truly shocking. He started feeling a bit 'off' about 6 months ago ( but didn't say anything me at that point). By mid July he was complaining of chest and leg pains and shortness of breath. GP sent him to A&E. Did a few blood tests, and ECG and chest scan which found a small clot. Sent home with a follow up scan booked for September. Had been worried about heart disease ir a DVT but told he was ok. Carried on as normal and went on holiday to Croatia early to mid September, swimming in the sea and walking round the sights. About 2 weeks after getting home things take a dramatic turn for the worse. His legs are swelling and he can do longer ride his bike. GP again sends him to A&E only to be told it's muscular pain and to go home. Still thinking it's something to do with his legs, we pay for him to see a vascular surgeon. This is on October 9th. Ultrasound confirms that his veins are fine but as he is slim from all the cycling, checks hus abdomen which shows enlarged lymph glands. He has also started having bad night sweats. Private dr has contacts at the local hospital and arranges for him to be admitted as he's concerned about possible lymphoma. in hospital finally gets a CT scan of his abdomen and we get the dreaded phone call on the 14th.. It was something we were not prepared for and new little about at that point. It still takes over a week for the specialist to get back to him and a further week for an appointment. By this tine, he has deteriorated rapidly and lost weight and has been readmitted to try and get on top of his pain. He is now back in for a third tine as he is really struggling to eat and put weight on for a biopsy. I am struggling to understand hiw we can go from cycling at least 100 miles a week to this in such a short period of time. I am just not prepared to lose him so young. I've only recently come to terms with losing my mum suddenly too with pneumonia (anniversary is later this month too). Reading other people's stories, I see my story is not unique. I was the one with health problems who was supposed to go first, who was the looked after one. I am beyond heartbroken. Many thanks to Rachel, the specialist nurse here for her support. -
By broju · Posted
Hello France. Don’t despair! It’s not that no one wants to help it’s knowing how best to help. It seems you’re doing all you can by badgering your GP but maybe you should make stronger representations to your surgery than badgering? By posting on this forum you obviously believe your symptoms point to a problem with your pancreas. Have you expressed this concern and pushed for a full exploration of the area? You say you’ve had an ultrasound. Results are usually available within 2 weeks so the readings from that will hopefully guide your GP towards further action. Maybe posting on here again when you get the results will enable other members to help with what to request further from your GP. Your circumstances are incredibly stressful and my heart really goes out to you.X -
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By Support Team · Posted
Afternoon all We have launched a new support service for those who have recently been diagnosed with pancreatic cancer. Our Newly Diagnosed Video call can help you understand what is happening (whether you have pancreatic cancer or you are caring for someone with pancreatic cancer), you can ask any questions you have and nurses can help guide you through the next steps. If you would like, you can invite your loved ones along to the call too. It is your choice what we prioritise in the video call, but here are some suggestions: We can help you understand more about your/your loved one's diagnosis We can answer any questions you have We can help you navigate the healthcare system We can discuss what to expect and plan next steps For more information, and to book your call, click here Nadia x
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