General chat
268 topics in this forum
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tell us your experiences of diagnsis of pancreatic cancer
by Support Team- 1 follower
- 17 replies
- 84.7k views
Diagnosis of pancreatic cancer is difficult as symptoms may not occur until the tumour is quite large and the symptoms may be similar to many other benign digestive disorders. Not every patient gets the same symptoms as they depend on where in the pancreas the tumour first occurs or the type of tumour. Even when pancreatic cancer is suspected further tests may be required to ensure the symptoms aren't due to benign disorders such as panceatitis before decisions on appropriate treatment or surgery are made. We would like to hear your experiences of diagnosis (whether a diagnosis was made quickly or took a long time) as this will help us to raise awareness of the problem…
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Pancreatic Cancer UK London Marathon Team
by Support Team- 4 replies
- 29.2k views
Hi, We wanted to offer somewhere for our London Marathon Team to get in touch with each other, share training and fundraising tips and keep each other motivated. So please do use this thread to talk about your London Marathon activities. Thanks Pancreatic Cancer UK
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Deppressed, Scared and Ill
by metroid- 2 replies
- 285 views
Hi guys, Deep inside i feel i know the answers. I know "what i should do". I guess Im writing here because i just need to vent out. To feel i can talk to someone. To be heard. Its been hell carrying all this fear and anxiety by myself. Im writing this post after being sick for a month now. Undigested food, yellow floating stools, pain under the right ribs, sometimes on the left, sometimes on the back, itcky skin, foamy and darker urine. Yes. I know. I know. But my journey did not start 1 month ago. It actually started 7 years ago, and please hear me out, because its like i have lived with this certainty for such a long time. 7 years ago, i was very active. …
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Really worried about symptoms
by Toria- 1 reply
- 229 views
Hello everyone, I'm new here! I've been having worrying symptoms for around 3 or 4 months now. Finally dug my head out the sand and phoned GP but cant get an appointment til 19th may. I feel now I've made 1st step I'm now on fast forward and contemplating a private CT scan. Can anyone share their personal experiences with initial symptoms please? Mine started with an uncomfortable feeling in me left side, like under bottom ribs. I only felt it when laying on left side. I first thought it was a lump in my mattress or my pyjamas has twisted up. Then realised after having a snooze on the sofa that it wasnt, it was something within my body. It feels like I'm laying on …
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Are GPS worth their salt?
by b9_iwish- 5 replies
- 449 views
I was diagnosed with locally advanced PC in November 2019 but only after I had developed a bad case of jaundice. My point is, are GPS up to speed with identifying the symptoms of this pernicious cancer? I unknowingly started experiencing symptoms in June 2019 with persistent back ache. But prior to this and purely on a health whim I had a private full health check in January 2019 where it was noted that my platelets were just below 100 - where 100 is a minimum for a normal blood count. The health check was duly passed on to my GP shortly afterwards. The GP phoned me early April 2019 and went through my results but only became aware of my bloods count after I highligh…
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Difficult Decision To Make - Advice Please
by easymark- 4 replies
- 1k views
I have a life-changing decision to make. I have a 4 cm cyst on my pancreas (found by mistake while in hospital for something else). My surgeon is recommending Whipple surgery to remove it as a precaution. I'm having an endoscopy in a couple of weeks but he still thinks I should have surgery even if the results are negative. This is because I have a younger brother with stage 4 pancreatic cancer. He is 44 and I'm 58. To further complicate the matter, I'm severely disabled with polio (I've spent a lot of time in an out of hospital) and I'm being monitored for prostate cancer due to a high (ish) PSA). If the results are positive for cancer then I will have no cho…
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Genetic testing
by TannyD- 1 follower
- 2 replies
- 469 views
Hello everyone. Next week I am having my first appointment with the Wessex Clinical Genetics team at Southampton. I lost my dad, my aunt, my grandmother and great uncle to this terrible disease all approximately aged 60. I am now 53, and to be honest, I wasn’t particularly worried about the appointment, but the closer it gets the more thought I am giving it. Has anyone had any experience of genetic testing? And if it’s found that I have a faulty gene what is the process after? Monitoring, prophylactic resection? Any advice would be very helpful. Many thanks Tanny
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Advice please
by Jdfbell- 1 reply
- 674 views
Hi everyone, I'm undiagnosed, and terrified. I've been suffering fatigue and bowel changes for a year - all bloods normal. In August I developed a pain under my ribs on the left that radiates to the back. Extreme fatigue, nausea and weightloss. All bloods still fine. Some stools were yellowish grey occasionally at this time, sometimes in pieces. I cut out alcohol completely and reduced fat drastically. I convinced the doctor to refer me for a 3 area CT scan with contrast (I paid for it), it was clear. I also tried prebiotics and PPI medication. The pain is now constant. It is really wearing me down. I am extremely fatigued and can't work. Still blood work is f…
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Pancreatic Cancer worry 1 2 3 4
by Cdcmoon- 80 replies
- 80.3k views
I am a 30 year old relatively fit and healthy male. I am worried sick I have pancreatic cancer I have had the following symptoms: Back in January this year I all of a sudden lost my appetite within 3 weeks I lost 5/6kg had pale stools which floated and had a general feeling of tiredness and being unwell. Back and forth from the doctors I have had numerous blood tests a couple of which were abnormal but repeated and informed are now normal (one LFT was high bilirubin and albumin). The doctors have informed me that I have only 2 abnormal results, albumin level of 58 and a calcium level of 2.67 which have been been repeated and I have had a letter saying "no s…
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PC in a 24 year old?
by Nelsson- 1 follower
- 1 reply
- 1.2k views
Hello everyone, i’m a 24 year old male who is having multiple stomach issues that is matching pretty well with PC. I know googling symptoms is never a good idea, but i’ve become kinda desperate since things haven’t got better. Issues started this summer but it’s first now im creating a post about it. I know i can’t get diagnosed here via the forum but it would be comforting to hear your points. I’m sorry if this is provoking/ seems selfish to anyone since i don’t have an actual diagnos of PC yet. Symptoms i have/had: Diarrhea, loose stools that usually floats. More gas and stomach is also doing more gurglling noises. started in august and still have it today. At…
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EPI but no known cause
by Richietosh- 1 reply
- 1.5k views
Hello; Bit of a weird one. I was diagnosed with EPI last year. Pancreas wasn’t producing the enzymes although I was found to not be diabetic so it still half works. After a CT with contrast and an MRCP scan they found absolutely nothing. Pancreas is normal size and shape, no sign of scarring, No masses, no sign of duct obstruction or dilation, liver and gallbladder looked ok also. So I’m really confused, how can that be? Obvious I’m very relived that the 2 scans didn’t so anything sinister. Does it make me more likely to develop a cancer of the pancreas? Thank you
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feeling desperate
by thomasdowd- 0 replies
- 901 views
Is there any on line I can talkto ,when Ieat I am on toilet for a number of hours. this is blocing any chemo and I am a prisoner im my house . there seems to be no solution and I really see m no light at end of tunnel
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Beyond scared
by FeeD- 6 replies
- 4.9k views
Hi, I am at my wits end with worry- hardly able to function now. I am 49, Mum of 3 lovely teens and I have suffered from health anxiety in the past. I've been ok pretty much until recently (start September) when my stomach and abdominal issues came back again. Bloating, abdominal pain, back pain, burping non stop, no appetite, tired etc. So after a few weeks I called doc- I went for bloods- not sure what exactly he tested but 3 vials. He said that all came back normal apart from iron (which is always low for me). So he referred me for both an abdominal US and a pelvic US. I had both and the pelvic one showed a couple of fibroids but apparently not a worry. The doc…
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Stages
by Sangavasre- 2 replies
- 2.8k views
Hello, I had Wipple surgery one year ago. Post surgery I have a many complications like leak in connection so I had gone through double surgery within a week. After that I had 3 times bleeding and one month high fever. But some how I have survived my surgeon said I am very lucky. Post surgery my biopsy report came It's T2N0Mx stage. My DR said it's in early stage no need of chemotherapy. Is it's good I don't need chemotherapy?? Please advice me
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Advice from survivors?? I need to save my dad’s life 🙏
by hopeandprayers- 6 replies
- 3.7k views
Hi I’m looking for advice from survivors on what they did with their diet and anything they felt might have helped with their recovery. I’ve had advice from someone who recovered from stage 4 lung cancer who cut out all dairy, cut out red meat, reduced refined sugars, use boiled down oat milk for calories, drank eassiac tea and had mistletoe injections alternately in her chest and back. Does anyone here have experience with mistletoe injections? Because it’s a poison it’s supposed to cause an immune response to the area it’s injected? Also does anyone have any reviews about NHS vs private?? I’ve read one story about a lady who had been operated on privatel…
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Stomach tightness
by Slim Shadey- 4 replies
- 6.1k views
Hi Everyone Please forgive me if there any mistakes in this post this is my first time. I hope you are all well in these challenging times. My partner was diagnosed with Pancreatic cancer in December 2019 after various tests and 4 weeks in hospital were the initial diagnosis was gallstones she was then transferred to a bigger hospital in the region and had a the WHIPPLE procedure and spent 9 hours in surgery. Thankfully she came through this traumatic procedure and after around 3 days in intensive care and 7 days on a normal ward she was discharged just before Christmas which was the best present I have ever and will ever have. She is currently going throug…
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- 2 replies
- 2.4k views
Hello, I'm looking for any help and advice anyone can give me regarding Pancreatic Cancer, the Whipple Procedure and Chemotherapy. Last week, following a CT scan, my Dad was told he has something in his Pancreas. Whilst its not 100% confirmed, they are pretty sure its a tumour. He has a follow up scan tomorrow to confirm the situation for definite and establish the next steps. They did say they don't think it has spread outside of the Pancreas. I imagine its been there since atleast February, he went to the doctors at the time as he was losing a lot of weight, but everything was put on hold due to COVID. He's also recently been diagnosed with Diabetes which will …
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Exercise suggestions wanted
by memorris50- 2 replies
- 3.1k views
I am currently receiving fortnightly cycles of FOLFIRINOX which leave me very fatigued. We are currently being advised by the government to do regular exercise on the 'use it or lose it' principle. I live in a second floor flat and am already struggling with the stairs, but I so don't want to get housebound. Walking in my local area is not always possible - the world and his wife are walking out there, so social distancing can be tricky . I was wondering what kinds of home-based exercise other people are finding useful in these corona virus blighted times?
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Why are we waiting
by KarenR- 2 replies
- 10.6k views
Hi all This is my first post here. My husband was diagnosed with pancreatic cancer very quickly on 13 August after two visits to A&E and a couple of days in hospital. He has had several scans, camera down throat, ultrasound and a stent fitted in bile duct (this has made huge difference to the jaundice) Biopsies have been taken on gallbladder (there is a blockage) oesophagus and pancreas. We were expecting a call on Thursday to advise what operation/treatment he would have after the doctors meeting earlier that day. However the nurse rang to say his case has been sent to another hospital that specialises in cancer and that team are looking at his results tomorrow…
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New to all of this
by Sammi12- 5 replies
- 10.2k views
Hello. What a wonderful group. I have read a lot of what people have written, which has filled me with all sorts of emotions, fear, hope, love. I was admitted to hospital after numerous trips to my GP and various blood tests with the usual signs of gallstones at 34 weeks pregnant on Christmas Eve. My Christmas and New Year was therefore spent in hospital. I thought next year will be the year - with my first baby and what a Christmas it will be!! They put in a stint which helped with the jaundice, increased my appetite somewhat and helped with some of the pains I was having in my stomach and back. But following a CT scan they identified a pancreatitis mass -…
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Our wonderful nurses
by sandraW- 2 replies
- 4.7k views
A big congratulation to our wonderful nurses here on the Pancreatic Cancer UK site on their well deserved CNO award. You helped and supported me so much, and I know you have done the same for all the other posters on this site. I am so pleased your hard work has been recognised. love and best wishes sandrax
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Paranoid newby
by DJTrev- 1 reply
- 4.7k views
Paranoid newby Postby DJTrev » Sat Dec 14, 2019 7:34 am Hello Let me begin by saying I am convinced that I have PC.My father died of it and I do believe it is hereditary. I am currently being treated for neuralgia of the chest as a possible result of a previous bout of shingles which affected the left side of my chest.I have to admit that the little shocks of pain do follow the path of the area of the shingles and the itching skin and tenderness along with a pain under my shoulder blade.These are all symptoms common with this kind of neuralgia (google is your friend) but there are other apparent symptoms that concern me.Slightly extended tummy,lower back pain,severe…
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Very scared a year on
by Rjohns- 9 replies
- 25.5k views
Hi i am 55 year old female. 15 months ago i had several symptoms including rib cage pains and yellow stools with oil on water. I pushed for a private ct scan which was thankfully clear. Since then there have been the odd sharp pain in side and some heartburn along with spikes in temperature. Told by gp temperature due to menopause. Since mid April this year been getting knife like pain between left hip and rib cage plus pains at back of right rib cage. Diagnosed with type 2 diabetes about 5 weeks ago. Blood tests showed raised infection marker slightly raised liver function and potassium level. Kidney ultrasound done which was ok apart from liver cysts. I have pushed …
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Scared and desperate
by curlysue- 24 replies
- 26k views
For 2 years I’ve been suffering from prolonged bouts of bloating, indigestion and constipation. Many visits to GP kept giving diagnosis of IBS. All the usual blood results were coming back normal, and the doctors seemed to think I was just being stubborn over the diagnosis, but it never felt right. Long story short, they’ve now run tumour marker tests and CA19-9 came back elevated. GP now saying it’s out of their hands as I’ve been referred to Hepatobiliary. I have a CT scan today but I’ve already convinced myself of the outcome. I don’t get to speak to anyone until the results of the scan are in. I know you shouldn’t Google, but with no professional to currently talk to,…
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New to this
by pshirley6- 4 replies
- 13.3k views
My husband was diagnosed with pancreatic cancer metastasised to liver on Jan 2 nd. Ca 19.9 came back negative. He had been admitted with blood clots which led them to find the cancer. Since then all they have done is arrange an mri for this week. Oncologist told us he has 4 mths with no treatment and 6-12 with.... Should they not be moving faster? No treatment and we are over 6 weeks in...
