General chat
288 topics in this forum
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tell us your experiences of diagnsis of pancreatic cancer
by Support Team- 1 follower
- 17 replies
- 91k views
Diagnosis of pancreatic cancer is difficult as symptoms may not occur until the tumour is quite large and the symptoms may be similar to many other benign digestive disorders. Not every patient gets the same symptoms as they depend on where in the pancreas the tumour first occurs or the type of tumour. Even when pancreatic cancer is suspected further tests may be required to ensure the symptoms aren't due to benign disorders such as panceatitis before decisions on appropriate treatment or surgery are made. We would like to hear your experiences of diagnosis (whether a diagnosis was made quickly or took a long time) as this will help us to raise awareness of the problem…
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Pancreatic Cancer UK London Marathon Team
by Support Team- 4 replies
- 32.2k views
Hi, We wanted to offer somewhere for our London Marathon Team to get in touch with each other, share training and fundraising tips and keep each other motivated. So please do use this thread to talk about your London Marathon activities. Thanks Pancreatic Cancer UK
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Well enough for Chemo?
by Leah256- 2 followers
- 8 replies
- 733 views
Question: If you/loved one have had chemo, what physical state where you in beforehand and did this contribute to how you coped with it/success of treatment? I have read through so many websites, forums, posts, even trawling through medical journals to find more information and answers. What I have found really helpful was those who gave a thorough background – I keep trying to find my mum, the same symptoms, positions of tumour etc. – so thought I would do the same (it is a very long post!). My mum is nearly 71. She doesn’t drink, smoke, and up until six weeks ago was going to the gym three times a week and walking the dogs for an hour each day.…
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- 1 follower
- 5 replies
- 829 views
My wonderful dad was diagnosed with stage IV pancreatic cancer in Feb 2018. After 5 weeks in hospital, he was discharged and advised that he could only be offered palliative care. He has since been having chemotherapy and responded so well that he is still with us after 4 years. Thank you God! However, at Christmas he was given a break from his chemo due to a bout of diverticulitis. He was looking forward to 8 weeks off from the chemo appointments and side effects, but unfortunately didn't feel well throughout. His GP sent him for an unrelated scan on his chest which showed he has some fluid on his lung. His stomach is also incredibly swollen (after first diag…
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Low white blood cell count
by Henny- 1 follower
- 6 replies
- 650 views
Hello, I was due to have my 3rd chemo session today but it has been postponed to next week as my white blood cell count was too low. I'm really upset and worried about this. Chemo is my only hope . Any advice or experience with this would be very welcome. Thank you xx
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Travelling
by DebraE- 1 reply
- 707 views
Good morning, I'm new to this site so apologise if this topic sound frivolous but my newly diagnosed husband is very focussed on getting away on holiday. He is due to start Chemo this coming Friday, 11th March, and his Oncologist has said that as long as he feels well enough there's no reason why we shouldn't go so I'm doing everything I can to make it happen. The stumbling block is insurance. Has anyone else had problems? Are there firms that specialise or make it easier? Thanks in advance.
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Worried
by SunshineH- 4 replies
- 1.5k views
Good morning, I am reaching out because I am looking for some support. I have lurked for around a month; reading past posts and people's experiences. Firstly, I'd like to say that this discussion forum is such a wonderful place and an amazingly supportive environment. I really don't want to offend or cause distress to those on here who have PC or have family or friends with PC. If anyone does feel in enough of an ok emotional space to read and/or reply then I thank you in advance for this. I am female, 44. Married with two children. About 18 months ago, I started with a strange moving sensation internally. It would feel like it …
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Really worried about symptoms
by Toria- 2 replies
- 4k views
Hello everyone, I'm new here! I've been having worrying symptoms for around 3 or 4 months now. Finally dug my head out the sand and phoned GP but cant get an appointment til 19th may. I feel now I've made 1st step I'm now on fast forward and contemplating a private CT scan. Can anyone share their personal experiences with initial symptoms please? Mine started with an uncomfortable feeling in me left side, like under bottom ribs. I only felt it when laying on left side. I first thought it was a lump in my mattress or my pyjamas has twisted up. Then realised after having a snooze on the sofa that it wasnt, it was something within my body. It feels like I'm laying on …
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Stomach tightness
by Slim Shadey- 12 replies
- 9.6k views
Hi Everyone Please forgive me if there any mistakes in this post this is my first time. I hope you are all well in these challenging times. My partner was diagnosed with Pancreatic cancer in December 2019 after various tests and 4 weeks in hospital were the initial diagnosis was gallstones she was then transferred to a bigger hospital in the region and had a the WHIPPLE procedure and spent 9 hours in surgery. Thankfully she came through this traumatic procedure and after around 3 days in intensive care and 7 days on a normal ward she was discharged just before Christmas which was the best present I have ever and will ever have. She is currently going throug…
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Medical tourist insurance
by toodotty- 6 replies
- 12.6k views
Hi All, I am looking to travel to the USA for Nanoknife treatment to the pancreas. Can anyone recommend a company that effectively provides insurance for someone travelling abroad with the specific purpose of some form of treatment (health tourist)? I can get insurance for pre-existing condition but most policies are immediately invalidated because the purpose of my trip is surgery. I would prefer not to take the risk of invalidating my insurance. Any help much appreciated, Erika
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Deppressed, Scared and Ill
by metroid- 4 replies
- 4.7k views
Hi guys, Deep inside i feel i know the answers. I know "what i should do". I guess Im writing here because i just need to vent out. To feel i can talk to someone. To be heard. Its been hell carrying all this fear and anxiety by myself. Im writing this post after being sick for a month now. Undigested food, yellow floating stools, pain under the right ribs, sometimes on the left, sometimes on the back, itcky skin, foamy and darker urine. Yes. I know. I know. But my journey did not start 1 month ago. It actually started 7 years ago, and please hear me out, because its like i have lived with this certainty for such a long time. 7 years ago, i was very active. …
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Very Itchy
by GrannyAnne- 1 follower
- 5 replies
- 2k views
Hi, this is my first post as I desperately need some advice for my husband who was diagnosed with Pancreatic Cancer two weeks ago. (Sunday 24th October 2021) He spoke to our GP about the itchiness, jaundice and weight loss. She made a face to face appointment later that day as she wanted to see him. She then sent him to our emergency hospital. That was Thursday 21st October 2021. At the hospital he had bloods taken and given Piriton for the itch. An appointment was made for the Saturday where he had an ultrasound scan. Another appointment for the Sunday when he had a CT scan. That was when they diagnosed the PC. They kept him in overnight as they had to start him o…
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Waiting on tests
by RDS1992- 1 reply
- 2.2k views
Hey everyone, Just looking for some general advice and personal experiences. I was diagnosed with pancreatic exocrine insufficiency back in October 2020 and was given enzyme replacement medication to sort that out. Problem is I am still suffering with terrible nausea and upper abdominal pain. I do not have chronic pancreatitus etc as my pancreas structure looks okay from my MRI scan and bloods okay so my doctor has put me forward to a PET-CT scan. Now in 2015 I had a carcinoid tumour on my appendix so he is wondering if there may be one growing inside my pancreas to stop the enzymes being released if that makes sense. Has anyone has the same sort of scen…
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- 1 follower
- 3 replies
- 2.2k views
After months of pain in stomach and back and various tests, my Mum has been told she has PC based on a CT scan and blood tests. 5 months ago the blood tests were clear. She has been referred for an endoscopic ultrasound (EUS) biopsy but is having to wait for 3 weeks from being told to the actual appointment. I know COVID is causing delays but is this a normal amount of time to wait for a prognosis? The appointment is in Southampton hospital and I wondered if all hospitals over the UK are on these kind of time frames? Is it possible to get an appointment elsewhere any sooner? Any advice much appreciated.
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Peripheral Neuropathy with PC
by Birdseye- 2 replies
- 3k views
Does anyone have any experience of Peripheral Neuropathy or nerve entrapments with Pancreatic Cancer?
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Pancreatic Cancer Clinical Trial
by probo- 2 replies
- 2.9k views
https://www.patientwing.com/study/386687
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- 5 replies
- 3.3k views
My story is below.. if anyone could respond with what they think it could be other than cancer. It started in 2019 when I was pregnant with second child. I was found to have anemia when never had it before. Didn't think much over. Months passed and started having burning pain under both ribs. Stool solid and light brown but started having a yellow fluid with it (the water colors yellow but not oily). Smelly stool and tiny bit wet looking. Pain also started on left side with chest pains, pain under armpit etc but manageable (most is discomfort not extreme pain). Everything checked out fine with obgyn but had an abdominal ultrasound and they sa…
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Soft tissue nodule at the ampulla
by whykel- 1 follower
- 0 replies
- 3k views
I'm petrified... I've got to have a endoscopy on Sunday because a ct scan showed dilated ducts and a soft tissue nodule at the ampulla. So there clearly going to be looking around the area. Im terrified of what I'm actually going to be told. What if they can't help me 😢
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Consultant
by whykel- 1 follower
- 2 replies
- 3.1k views
I've just been told by the consultants secretary that I've been put on the 2 week urgent for endoscopy. So I presume they know it's cancer. Or why would I be on that? Please anyone can you help
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Fast track
by whykel- 0 replies
- 3k views
Hello Can anyone explain fast track to me? My journey started on the 15th of May.. Ultrasound and ct. Still got another test to come. But not seeing a consultant till July 21st So is this fast tracked? When I read you should see a specialist within 2 weeks Thankyou
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Scans. Ultrasound and ct.
by whykel- 2 replies
- 3.2k views
Hello all. Can anyone please offer any advice I don't know what is going on. So after an ultrasound I was told I have dilated pancreatic duct. Then 3 weeks later have a CT scan.. Last week the gp rings me and says the ct didn't show enough. You need a endoscopy (not had it yet) then two days ago the gp rings again he says he heard from the hospital and they are looking at my scans imminently. But said I have a fullness in the pancreas. And a multi disaplinary meeting will decide the next steps SO HAVE I GOT CANCER? this is awful please can anyone help
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pancreatic cancer spread to abdomin 1 2
by Kingsnorth- 2 followers
- 34 replies
- 6.4k views
has anybody had PC spread to their abdomin if so can you feel it. is there any pain in that region
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Advice? Pointers on what else I could maybe do?
by irnbru1980- 1 reply
- 3.4k views
Hi there. I've posted on one other forum before, after building up the strength to do so because it's almost like if I venture onto a forum like this then it makes things real - which of course is nonsense but somehow my addled brain makes me think that way! Brief intro. I'm a 40 yo man with 2 young girls. Since mid-March, toward the end of a covid isolation period (in which I was pretty much symptom free bar some loss of smell toward the end) I've had consistent abdominal pain. Initially down my right flank, sometimes with a 'pinging' feeling in my right shoulder. The pain was initially like a kind of squeezing feeling, and quite incapacitating without ever being a …
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Hospice
by Kingsnorth- 1 follower
- 6 replies
- 3.3k views
Has anybody any experience of end of life in a hospice. Are they wards or do you have your own room.
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still fighting
by Lynne- 1 follower
- 4 replies
- 3.4k views
Hello Everyone I was diagnosed with Pancreatic Cancer in June 2019 got through the op chemo (which was nearly ended when covid struck) I just wanted to get in contact with others out there who I can obtain useful information/guidance/general chat(s) - I live on my own and have I think coped quite well but recently have found it overwhelming in fact I have quite literally had an emotional and physical breakdown. It would be great to hear from others about their experiences how they are coping and most of all to be reassured that the things that have happened and are happening not only with my body but my mental state isnt me making it up or exaggerating…
