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A forum for any other issues around pancreatic cancer.
305 topics in this forum
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Our new App, Medli
by Nadia - Support Team- 2 replies
- 1.2k views
We know that a pancreatic cancer diagnosis can be overwhelming. Whether it’s you or a loved one who’s affected, there can be a lot to deal with and understand. Our app, Medli, is designed to make a diagnosis easier to navigate by providing you with personalised support and tailored information. Medli can: - Help you keep track of all the appointments and medications that you might need to organise - It’ll keep a record of everything in one place and set reminders to help you keep on top of things - Track symptoms and side effects which can help to inform conversations with your healthcare team - You’ll be able to share your data wi…
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Too young for all this
by hopethereisnothing- 1 reply
- 2.2k views
I started to feel pity for myself for being all the time on PC sites and forums, trying to find some answers and experiences while waiting for tests to rule out possible PC. Most posts and stories are about people in their 70's and 80's ,those in their 50's and 60's considered (too young). Some people refer to their spouses, to whom they have been married for more years than my age😭. Being just 39, and instead of spending my time building my career or having fun with family or friends or preparing for marriage, I am putting my life on hold for more than 7 months, from test to test and from scan to scan with no answers.This makes me feel like I am in a nightmare …
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So worried
by Strawberrylady- 0 replies
- 875 views
Hi everyone, I hope it’s ok to post here as I’ve not been diagnosed with PC at the moment, but I am out of my mind with worry. I’ve had worrying symptoms coming on gradually since the end of June. Most notably Nausea, lack of appetite, weight loss and indigestion symptoms (burping, some diarrhoea etc.). I recently had an abdominal CT scan which found some varicose veins around my stomach. The report said my other organs, including my pancreas and liver looked normal. Despite this I’ve done what I know you shouldn’t do and looked on Dr Google. It seems that pancreatic cancer can be a cause of these varicose veins due to putting pressure on the splenic vein or som…
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- 1 follower
- 2 replies
- 3.7k views
Hello everyone, Not really sure if this is the right room to be posting in but here goes... I'm a 45 year old male (type 2 diabetic). Currently a bit worried about having pancreatic cancer or some other pancreatic issue and currently being investigated. I had a recent elevated lipase reading (79 u/l - the lab upper reference level was 60) and have had quite a lot of possibly coincidental symptoms: - Fatigue on and off for the last year or so although much worse in the last month or so (I previously had burnout from work so I assumed the fatigue was that but then I finished the job that gave me the burnout, the fatigue didn't really improve m…
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- 1 follower
- 1 reply
- 1.1k views
Hello, I have yet to share my heart breaking personal story on here - I am sure you can imagine what it entails. However, I have come across a consultation from the government asking for responses and ideas when thinking about major conditions and illnesses causing bad health and early death in England. I have filled it in noting pancreatic cancer as a crucial focus for the strategy within cancer and how there needs to be more investment, funding, research, early detection etc. I wondered if anyone had 5 minutes to do the same to strengthen our voice for change? Here is the link to complete online: Easy Read - A new plan to deal with illnesses causing bad …
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reliability of CT scans
by fifi- 15 replies
- 27.2k views
Hi everyone. I know I'm perhaps being paranoid but I am so worried that I have pancreatic cancer. Over the last 2 months I have had a significant loss of appetite, weight loss( about 5kg) some nausea and a strange burning discomfort in epigastric area. Bowels also have been really up the creek with multiple trips to the loo (brown but quite loose), and a constant feeling of needing to go almost. At first I suspected bowel cancer but the results from my colonoscopy were fine. So then I started fixating on pancreatic cancer as there is some cross-over in the symptoms. Eventually I ended up in A&E with pain and nausea ( was it all in my head?) and they kept me in overni…
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Did this happen to anyone please tell me
by hopethereisnothing- 1 follower
- 1 reply
- 1.2k views
Hello everyone..I am new here and actually, like everyone, I don't wish to stay 😅I have not yet been diagnosed with anything but have symptoms and am currently having tests to rule out PC. I am a 39-year-old female, previously healthy but somewhat overweight, never smoked or drank alcohol. My question for everyone, patient or relative is: did anyone of you or your relatives have symptoms of PC for several months (like diarrhea, flatulence, burping and weight loss) then developed pain which became very severe and debilitating for the last few weeks, and is typical for PC ( upper abdominal pain refereed to the back, worse after eating...) ..despite all this,2 CT s…
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Need help please!
by nyk73- 3 replies
- 1.5k views
I am 49 yrs ol male caucasian, around 2 weeks ago i developed upper abdominal dull pain afler eating , i stared to notice the urine is brown and smelly and stool looks pale, recently i started to have back pain in the middle and upper left side really annoying pain also i have nasal discharge green colur i dont have apetite , feel sick and lost 4kg in 6 days , GP sent me for blood test and he said everything is fine only the BILURIBIN is borderline high and is not convinced that this is serious and gave me Omeparzol for Gastritis,i know something is wrong here because i know myself i am usually very energetic and i always had apetite , it affects my job i cant even conce…
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Really worried about symptoms
by Toria- 1 follower
- 4 replies
- 11.4k views
Hello everyone, I'm new here! I've been having worrying symptoms for around 3 or 4 months now. Finally dug my head out the sand and phoned GP but cant get an appointment til 19th may. I feel now I've made 1st step I'm now on fast forward and contemplating a private CT scan. Can anyone share their personal experiences with initial symptoms please? Mine started with an uncomfortable feeling in me left side, like under bottom ribs. I only felt it when laying on left side. I first thought it was a lump in my mattress or my pyjamas has twisted up. Then realised after having a snooze on the sofa that it wasnt, it was something within my body. It feels like I'm laying on …
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New to Creon
by Angieannie- 1 follower
- 1 reply
- 3.3k views
Hi what do you guys do if you’re on Creon and feel constipated?
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- 0 replies
- 3.3k views
Terry Hall front man of the brilliant 70-80s band the Specials who gave us some great songs such as Ghost town and many more passed away on the18 December 2022 from pancreatic cancer at age 63
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- 1 follower
- 0 replies
- 3.6k views
Hi, I’ve been having problems with bloating and recently floating + greasy stools. Consultant thought SIBO so we tried tetracycline which didn’t really help. So onto Elastase test which came back as severely low <50 no particular reason for this either. Consultant has put me on Creon and it has made a difference to almost all symptoms especially those mentioned earlier. So should I be chasing the consultant/gp re cause? Thanks for any responses/experiences.
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Abdominal pain deep inside on the left side
by iceriverice- 2 replies
- 4.8k views
My partner has had persistent abdominal pain deep inside the abdomen for a long time now. It's on the left side. He does have GI issues but he has had many of these for years. He has noticed some bowel changes though. Wondering if the pain deep inside the abdomen on the left side could be pancreatic cancer?
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Results
by whykel- 24 replies
- 7k views
Hello I've been waiting over 3 weeks for mrcp results. I'm really struggling with not knowing. Is anyone waiting?
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Can someone please help so worried x
by Sukisue- 2 replies
- 4.8k views
Hi my name is Susan and i am new to the forum and was wondering if anyone could help please. I have had my blood test results back they are testing me for possible problems with my pancreas as my diabetic levels have risen i am a type 2 and i have had to start insulin plus my metformin and everything else came back normal but the lipase test came back at 88 u/l and was flagged on the report should i be worried or is that normal. I had a CT scan last week with contrast but still waiting on the result. Im so worried as i have tried to look up the number but its all so confusing can someone help please x
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Stomach tightness
by Slim Shadey- 13 replies
- 16.3k views
Hi Everyone Please forgive me if there any mistakes in this post this is my first time. I hope you are all well in these challenging times. My partner was diagnosed with Pancreatic cancer in December 2019 after various tests and 4 weeks in hospital were the initial diagnosis was gallstones she was then transferred to a bigger hospital in the region and had a the WHIPPLE procedure and spent 9 hours in surgery. Thankfully she came through this traumatic procedure and after around 3 days in intensive care and 7 days on a normal ward she was discharged just before Christmas which was the best present I have ever and will ever have. She is currently going throug…
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Side Branch IPMN
by easymark- 0 replies
- 5.5k views
After an incidental visit to the hospital last year I was diagnosed with a side-branch IPMN. Due to a history of PC in the family my surgeon wanted to operate as soon as possible. However, I opted for an endoscopy which showed it was benign and surveillance. My latest scan shows that the cyst has grown from 3mm to 4mm. I've had another endoscopy, the doctor said it looked fine but there may be node. Unfortunately, I will coming out of sedation when he mentioned this so my memory is a bit fuzzy. I am seeing my consultant for the results of the biopsy soon. I know he will push for surgery again but I'm wondering that my options are? - Sho…
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- 6 replies
- 7.1k views
My wonderful dad was diagnosed with stage IV pancreatic cancer in Feb 2018. After 5 weeks in hospital, he was discharged and advised that he could only be offered palliative care. He has since been having chemotherapy and responded so well that he is still with us after 4 years. Thank you God! However, at Christmas he was given a break from his chemo due to a bout of diverticulitis. He was looking forward to 8 weeks off from the chemo appointments and side effects, but unfortunately didn't feel well throughout. His GP sent him for an unrelated scan on his chest which showed he has some fluid on his lung. His stomach is also incredibly swollen (after first diag…
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Mrcp
by whykel- 2 replies
- 5.7k views
How long do mrcp results take? I'm worried because it's been 7 days since I had the scan. I wonder if they would of been looked at yet because of the jubilee Bank Holiday days. Any help please
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Convinced I have PC from symptoms
by Risinsky- 5 replies
- 6.3k views
Hi all, new to the site and I guess I'm wondering if anyone has been through a similar experience to me or has any input/advice. Im a 29 year old male and understand PC would be rare for my age but my symptoms speak for themselves. They started 9 months ago with floating, oily stools and then a vague, upper left abdominal pain began around a month after the stools. At that time I was unaware these were PC symptoms but went to my GP anyway who ran all the blood tests that came back clear. He said it was probably gastritis and prescribed me to Lansoprazole to see if they cleared my symptoms (they didn't). 3 months later I contact my GP and stress my …
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Well enough for Chemo?
by Leah256- 2 followers
- 9 replies
- 6.8k views
Question: If you/loved one have had chemo, what physical state where you in beforehand and did this contribute to how you coped with it/success of treatment? I have read through so many websites, forums, posts, even trawling through medical journals to find more information and answers. What I have found really helpful was those who gave a thorough background – I keep trying to find my mum, the same symptoms, positions of tumour etc. – so thought I would do the same (it is a very long post!). My mum is nearly 71. She doesn’t drink, smoke, and up until six weeks ago was going to the gym three times a week and walking the dogs for an hour each day.…
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Pros and cons for stent for ascites
by Gayle- 0 replies
- 5.8k views
My Mum is under the hospice for palliative care for metastatic pancreatic cancer. She had 8 litres of fluid drained from her abdomen in April, but it is back and worse than before. Mum has not sought medical advice because she is reluctant to undergo a prolonged stay in hospital again. She would like to have a stent fitted so it can be drained at home, but her oncologist is saying no. She has only heard this through the clinical nurse because she has no further appointments with the oncologist, although he still seems to be directing her care. Does anyone know why he would be against a stent and any advice on where to go from here? BTW oncologist has advised that he …
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Low white blood cell count
by Henny- 6 replies
- 6.7k views
Hello, I was due to have my 3rd chemo session today but it has been postponed to next week as my white blood cell count was too low. I'm really upset and worried about this. Chemo is my only hope . Any advice or experience with this would be very welcome. Thank you xx
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Travelling
by DebraE- 1 reply
- 6.8k views
Good morning, I'm new to this site so apologise if this topic sound frivolous but my newly diagnosed husband is very focussed on getting away on holiday. He is due to start Chemo this coming Friday, 11th March, and his Oncologist has said that as long as he feels well enough there's no reason why we shouldn't go so I'm doing everything I can to make it happen. The stumbling block is insurance. Has anyone else had problems? Are there firms that specialise or make it easier? Thanks in advance.
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Worried
by SunshineH- 4 replies
- 7.7k views
Good morning, I am reaching out because I am looking for some support. I have lurked for around a month; reading past posts and people's experiences. Firstly, I'd like to say that this discussion forum is such a wonderful place and an amazingly supportive environment. I really don't want to offend or cause distress to those on here who have PC or have family or friends with PC. If anyone does feel in enough of an ok emotional space to read and/or reply then I thank you in advance for this. I am female, 44. Married with two children. About 18 months ago, I started with a strange moving sensation internally. It would feel like it …