General chat
293 topics in this forum
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tell us your experiences of diagnsis of pancreatic cancer
by Support Team- 1 follower
- 17 replies
- 92.2k views
Diagnosis of pancreatic cancer is difficult as symptoms may not occur until the tumour is quite large and the symptoms may be similar to many other benign digestive disorders. Not every patient gets the same symptoms as they depend on where in the pancreas the tumour first occurs or the type of tumour. Even when pancreatic cancer is suspected further tests may be required to ensure the symptoms aren't due to benign disorders such as panceatitis before decisions on appropriate treatment or surgery are made. We would like to hear your experiences of diagnosis (whether a diagnosis was made quickly or took a long time) as this will help us to raise awareness of the problem…
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Pancreatic Cancer UK London Marathon Team
by Support Team- 4 replies
- 32.9k views
Hi, We wanted to offer somewhere for our London Marathon Team to get in touch with each other, share training and fundraising tips and keep each other motivated. So please do use this thread to talk about your London Marathon activities. Thanks Pancreatic Cancer UK
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Results
by whykel- 1 follower
- 23 replies
- 1.3k views
Hello I've been waiting over 3 weeks for mrcp results. I'm really struggling with not knowing. Is anyone waiting?
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Side Branch IPMN
by easymark- 0 replies
- 490 views
After an incidental visit to the hospital last year I was diagnosed with a side-branch IPMN. Due to a history of PC in the family my surgeon wanted to operate as soon as possible. However, I opted for an endoscopy which showed it was benign and surveillance. My latest scan shows that the cyst has grown from 3mm to 4mm. I've had another endoscopy, the doctor said it looked fine but there may be node. Unfortunately, I will coming out of sedation when he mentioned this so my memory is a bit fuzzy. I am seeing my consultant for the results of the biopsy soon. I know he will push for surgery again but I'm wondering that my options are? - Sho…
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- 1 follower
- 6 replies
- 1.8k views
My wonderful dad was diagnosed with stage IV pancreatic cancer in Feb 2018. After 5 weeks in hospital, he was discharged and advised that he could only be offered palliative care. He has since been having chemotherapy and responded so well that he is still with us after 4 years. Thank you God! However, at Christmas he was given a break from his chemo due to a bout of diverticulitis. He was looking forward to 8 weeks off from the chemo appointments and side effects, but unfortunately didn't feel well throughout. His GP sent him for an unrelated scan on his chest which showed he has some fluid on his lung. His stomach is also incredibly swollen (after first diag…
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Mrcp
by whykel- 1 follower
- 2 replies
- 690 views
How long do mrcp results take? I'm worried because it's been 7 days since I had the scan. I wonder if they would of been looked at yet because of the jubilee Bank Holiday days. Any help please
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Convinced I have PC from symptoms
by Risinsky- 5 replies
- 901 views
Hi all, new to the site and I guess I'm wondering if anyone has been through a similar experience to me or has any input/advice. Im a 29 year old male and understand PC would be rare for my age but my symptoms speak for themselves. They started 9 months ago with floating, oily stools and then a vague, upper left abdominal pain began around a month after the stools. At that time I was unaware these were PC symptoms but went to my GP anyway who ran all the blood tests that came back clear. He said it was probably gastritis and prescribed me to Lansoprazole to see if they cleared my symptoms (they didn't). 3 months later I contact my GP and stress my …
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Well enough for Chemo?
by Leah256- 3 followers
- 9 replies
- 1.6k views
Question: If you/loved one have had chemo, what physical state where you in beforehand and did this contribute to how you coped with it/success of treatment? I have read through so many websites, forums, posts, even trawling through medical journals to find more information and answers. What I have found really helpful was those who gave a thorough background – I keep trying to find my mum, the same symptoms, positions of tumour etc. – so thought I would do the same (it is a very long post!). My mum is nearly 71. She doesn’t drink, smoke, and up until six weeks ago was going to the gym three times a week and walking the dogs for an hour each day.…
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Pros and cons for stent for ascites
by Gayle- 0 replies
- 698 views
My Mum is under the hospice for palliative care for metastatic pancreatic cancer. She had 8 litres of fluid drained from her abdomen in April, but it is back and worse than before. Mum has not sought medical advice because she is reluctant to undergo a prolonged stay in hospital again. She would like to have a stent fitted so it can be drained at home, but her oncologist is saying no. She has only heard this through the clinical nurse because she has no further appointments with the oncologist, although he still seems to be directing her care. Does anyone know why he would be against a stent and any advice on where to go from here? BTW oncologist has advised that he …
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Really worried about symptoms
by Toria- 1 follower
- 3 replies
- 5.3k views
Hello everyone, I'm new here! I've been having worrying symptoms for around 3 or 4 months now. Finally dug my head out the sand and phoned GP but cant get an appointment til 19th may. I feel now I've made 1st step I'm now on fast forward and contemplating a private CT scan. Can anyone share their personal experiences with initial symptoms please? Mine started with an uncomfortable feeling in me left side, like under bottom ribs. I only felt it when laying on left side. I first thought it was a lump in my mattress or my pyjamas has twisted up. Then realised after having a snooze on the sofa that it wasnt, it was something within my body. It feels like I'm laying on …
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Low white blood cell count
by Henny- 1 follower
- 6 replies
- 1.4k views
Hello, I was due to have my 3rd chemo session today but it has been postponed to next week as my white blood cell count was too low. I'm really upset and worried about this. Chemo is my only hope . Any advice or experience with this would be very welcome. Thank you xx
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Travelling
by DebraE- 1 reply
- 1.5k views
Good morning, I'm new to this site so apologise if this topic sound frivolous but my newly diagnosed husband is very focussed on getting away on holiday. He is due to start Chemo this coming Friday, 11th March, and his Oncologist has said that as long as he feels well enough there's no reason why we shouldn't go so I'm doing everything I can to make it happen. The stumbling block is insurance. Has anyone else had problems? Are there firms that specialise or make it easier? Thanks in advance.
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Worried
by SunshineH- 4 replies
- 2.3k views
Good morning, I am reaching out because I am looking for some support. I have lurked for around a month; reading past posts and people's experiences. Firstly, I'd like to say that this discussion forum is such a wonderful place and an amazingly supportive environment. I really don't want to offend or cause distress to those on here who have PC or have family or friends with PC. If anyone does feel in enough of an ok emotional space to read and/or reply then I thank you in advance for this. I am female, 44. Married with two children. About 18 months ago, I started with a strange moving sensation internally. It would feel like it …
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Stomach tightness
by Slim Shadey- 12 replies
- 10.5k views
Hi Everyone Please forgive me if there any mistakes in this post this is my first time. I hope you are all well in these challenging times. My partner was diagnosed with Pancreatic cancer in December 2019 after various tests and 4 weeks in hospital were the initial diagnosis was gallstones she was then transferred to a bigger hospital in the region and had a the WHIPPLE procedure and spent 9 hours in surgery. Thankfully she came through this traumatic procedure and after around 3 days in intensive care and 7 days on a normal ward she was discharged just before Christmas which was the best present I have ever and will ever have. She is currently going throug…
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Deppressed, Scared and Ill
by metroid- 3 replies
- 5.6k views
Hi guys, Deep inside i feel i know the answers. I know "what i should do". I guess Im writing here because i just need to vent out. To feel i can talk to someone. To be heard. Its been hell carrying all this fear and anxiety by myself. Im writing this post after being sick for a month now. Undigested food, yellow floating stools, pain under the right ribs, sometimes on the left, sometimes on the back, itcky skin, foamy and darker urine. Yes. I know. I know. But my journey did not start 1 month ago. It actually started 7 years ago, and please hear me out, because its like i have lived with this certainty for such a long time. 7 years ago, i was very active. …
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Very Itchy
by GrannyAnne- 1 follower
- 5 replies
- 2.8k views
Hi, this is my first post as I desperately need some advice for my husband who was diagnosed with Pancreatic Cancer two weeks ago. (Sunday 24th October 2021) He spoke to our GP about the itchiness, jaundice and weight loss. She made a face to face appointment later that day as she wanted to see him. She then sent him to our emergency hospital. That was Thursday 21st October 2021. At the hospital he had bloods taken and given Piriton for the itch. An appointment was made for the Saturday where he had an ultrasound scan. Another appointment for the Sunday when he had a CT scan. That was when they diagnosed the PC. They kept him in overnight as they had to start him o…
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Waiting on tests
by RDS1992- 1 reply
- 2.9k views
Hey everyone, Just looking for some general advice and personal experiences. I was diagnosed with pancreatic exocrine insufficiency back in October 2020 and was given enzyme replacement medication to sort that out. Problem is I am still suffering with terrible nausea and upper abdominal pain. I do not have chronic pancreatitus etc as my pancreas structure looks okay from my MRI scan and bloods okay so my doctor has put me forward to a PET-CT scan. Now in 2015 I had a carcinoid tumour on my appendix so he is wondering if there may be one growing inside my pancreas to stop the enzymes being released if that makes sense. Has anyone has the same sort of scen…
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- 1 follower
- 3 replies
- 3k views
After months of pain in stomach and back and various tests, my Mum has been told she has PC based on a CT scan and blood tests. 5 months ago the blood tests were clear. She has been referred for an endoscopic ultrasound (EUS) biopsy but is having to wait for 3 weeks from being told to the actual appointment. I know COVID is causing delays but is this a normal amount of time to wait for a prognosis? The appointment is in Southampton hospital and I wondered if all hospitals over the UK are on these kind of time frames? Is it possible to get an appointment elsewhere any sooner? Any advice much appreciated.
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Medical tourist insurance
by toodotty- 5 replies
- 13.4k views
Hi All, I am looking to travel to the USA for Nanoknife treatment to the pancreas. Can anyone recommend a company that effectively provides insurance for someone travelling abroad with the specific purpose of some form of treatment (health tourist)? I can get insurance for pre-existing condition but most policies are immediately invalidated because the purpose of my trip is surgery. I would prefer not to take the risk of invalidating my insurance. Any help much appreciated, Erika
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Peripheral Neuropathy with PC
by Birdseye- 2 replies
- 3.8k views
Does anyone have any experience of Peripheral Neuropathy or nerve entrapments with Pancreatic Cancer?
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Pancreatic Cancer Clinical Trial
by probo- 2 replies
- 3.6k views
https://www.patientwing.com/study/386687
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- 5 replies
- 4.2k views
My story is below.. if anyone could respond with what they think it could be other than cancer. It started in 2019 when I was pregnant with second child. I was found to have anemia when never had it before. Didn't think much over. Months passed and started having burning pain under both ribs. Stool solid and light brown but started having a yellow fluid with it (the water colors yellow but not oily). Smelly stool and tiny bit wet looking. Pain also started on left side with chest pains, pain under armpit etc but manageable (most is discomfort not extreme pain). Everything checked out fine with obgyn but had an abdominal ultrasound and they sa…
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Soft tissue nodule at the ampulla
by whykel- 1 follower
- 0 replies
- 3.6k views
I'm petrified... I've got to have a endoscopy on Sunday because a ct scan showed dilated ducts and a soft tissue nodule at the ampulla. So there clearly going to be looking around the area. Im terrified of what I'm actually going to be told. What if they can't help me 😢
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Consultant
by whykel- 1 follower
- 2 replies
- 3.8k views
I've just been told by the consultants secretary that I've been put on the 2 week urgent for endoscopy. So I presume they know it's cancer. Or why would I be on that? Please anyone can you help
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Fast track
by whykel- 0 replies
- 3.7k views
Hello Can anyone explain fast track to me? My journey started on the 15th of May.. Ultrasound and ct. Still got another test to come. But not seeing a consultant till July 21st So is this fast tracked? When I read you should see a specialist within 2 weeks Thankyou
