General chat
280 topics in this forum
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tell us your experiences of diagnsis of pancreatic cancer
by Support Team- 1 follower
- 17 replies
- 87.1k views
Diagnosis of pancreatic cancer is difficult as symptoms may not occur until the tumour is quite large and the symptoms may be similar to many other benign digestive disorders. Not every patient gets the same symptoms as they depend on where in the pancreas the tumour first occurs or the type of tumour. Even when pancreatic cancer is suspected further tests may be required to ensure the symptoms aren't due to benign disorders such as panceatitis before decisions on appropriate treatment or surgery are made. We would like to hear your experiences of diagnosis (whether a diagnosis was made quickly or took a long time) as this will help us to raise awareness of the problem…
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Pancreatic Cancer UK London Marathon Team
by Support Team- 4 replies
- 30k views
Hi, We wanted to offer somewhere for our London Marathon Team to get in touch with each other, share training and fundraising tips and keep each other motivated. So please do use this thread to talk about your London Marathon activities. Thanks Pancreatic Cancer UK
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Stomach tightness
by Slim Shadey- 5 replies
- 6.5k views
Hi Everyone Please forgive me if there any mistakes in this post this is my first time. I hope you are all well in these challenging times. My partner was diagnosed with Pancreatic cancer in December 2019 after various tests and 4 weeks in hospital were the initial diagnosis was gallstones she was then transferred to a bigger hospital in the region and had a the WHIPPLE procedure and spent 9 hours in surgery. Thankfully she came through this traumatic procedure and after around 3 days in intensive care and 7 days on a normal ward she was discharged just before Christmas which was the best present I have ever and will ever have. She is currently going throug…
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Medical tourist insurance
by toodotty- 5 replies
- 9.7k views
Hi All, I am looking to travel to the USA for Nanoknife treatment to the pancreas. Can anyone recommend a company that effectively provides insurance for someone travelling abroad with the specific purpose of some form of treatment (health tourist)? I can get insurance for pre-existing condition but most policies are immediately invalidated because the purpose of my trip is surgery. I would prefer not to take the risk of invalidating my insurance. Any help much appreciated, Erika
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Peripheral Neuropathy with PC
by Birdseye- 2 replies
- 587 views
Does anyone have any experience of Peripheral Neuropathy or nerve entrapments with Pancreatic Cancer?
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Pancreatic Cancer Clinical Trial
by probo- 2 replies
- 650 views
https://www.patientwing.com/study/386687
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- 5 replies
- 909 views
My story is below.. if anyone could respond with what they think it could be other than cancer. It started in 2019 when I was pregnant with second child. I was found to have anemia when never had it before. Didn't think much over. Months passed and started having burning pain under both ribs. Stool solid and light brown but started having a yellow fluid with it (the water colors yellow but not oily). Smelly stool and tiny bit wet looking. Pain also started on left side with chest pains, pain under armpit etc but manageable (most is discomfort not extreme pain). Everything checked out fine with obgyn but had an abdominal ultrasound and they sa…
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Soft tissue nodule at the ampulla
by whykel- 1 follower
- 0 replies
- 806 views
I'm petrified... I've got to have a endoscopy on Sunday because a ct scan showed dilated ducts and a soft tissue nodule at the ampulla. So there clearly going to be looking around the area. Im terrified of what I'm actually going to be told. What if they can't help me 😢
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Consultant
by whykel- 1 follower
- 2 replies
- 834 views
I've just been told by the consultants secretary that I've been put on the 2 week urgent for endoscopy. So I presume they know it's cancer. Or why would I be on that? Please anyone can you help
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Fast track
by whykel- 0 replies
- 787 views
Hello Can anyone explain fast track to me? My journey started on the 15th of May.. Ultrasound and ct. Still got another test to come. But not seeing a consultant till July 21st So is this fast tracked? When I read you should see a specialist within 2 weeks Thankyou
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Scans. Ultrasound and ct.
by whykel- 2 replies
- 982 views
Hello all. Can anyone please offer any advice I don't know what is going on. So after an ultrasound I was told I have dilated pancreatic duct. Then 3 weeks later have a CT scan.. Last week the gp rings me and says the ct didn't show enough. You need a endoscopy (not had it yet) then two days ago the gp rings again he says he heard from the hospital and they are looking at my scans imminently. But said I have a fullness in the pancreas. And a multi disaplinary meeting will decide the next steps SO HAVE I GOT CANCER? this is awful please can anyone help
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pancreatic cancer spread to abdomin 1 2
by Kingsnorth- 2 followers
- 34 replies
- 2.7k views
has anybody had PC spread to their abdomin if so can you feel it. is there any pain in that region
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Advice? Pointers on what else I could maybe do?
by irnbru1980- 1 reply
- 1.1k views
Hi there. I've posted on one other forum before, after building up the strength to do so because it's almost like if I venture onto a forum like this then it makes things real - which of course is nonsense but somehow my addled brain makes me think that way! Brief intro. I'm a 40 yo man with 2 young girls. Since mid-March, toward the end of a covid isolation period (in which I was pretty much symptom free bar some loss of smell toward the end) I've had consistent abdominal pain. Initially down my right flank, sometimes with a 'pinging' feeling in my right shoulder. The pain was initially like a kind of squeezing feeling, and quite incapacitating without ever being a …
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Hospice
by Kingsnorth- 1 follower
- 6 replies
- 1.1k views
Has anybody any experience of end of life in a hospice. Are they wards or do you have your own room.
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still fighting
by Lynne- 2 followers
- 4 replies
- 1.2k views
Hello Everyone I was diagnosed with Pancreatic Cancer in June 2019 got through the op chemo (which was nearly ended when covid struck) I just wanted to get in contact with others out there who I can obtain useful information/guidance/general chat(s) - I live on my own and have I think coped quite well but recently have found it overwhelming in fact I have quite literally had an emotional and physical breakdown. It would be great to hear from others about their experiences how they are coping and most of all to be reassured that the things that have happened and are happening not only with my body but my mental state isnt me making it up or exaggerating…
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Very scared a year on
by Rjohns- 10 replies
- 26.6k views
Hi i am 55 year old female. 15 months ago i had several symptoms including rib cage pains and yellow stools with oil on water. I pushed for a private ct scan which was thankfully clear. Since then there have been the odd sharp pain in side and some heartburn along with spikes in temperature. Told by gp temperature due to menopause. Since mid April this year been getting knife like pain between left hip and rib cage plus pains at back of right rib cage. Diagnosed with type 2 diabetes about 5 weeks ago. Blood tests showed raised infection marker slightly raised liver function and potassium level. Kidney ultrasound done which was ok apart from liver cysts. I have pushed …
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New here
by Kingsnorth- 1 follower
- 1 reply
- 1.1k views
I’m going through the process of diagnosis. I diverticulitis and l have been having left sided pain which spreads to my back. I also get a really weird feeling under my left ribs, night sweets and lost loads of weight. My consultant sent me for an endoscopy as l had very bad dyspepsia including constant burping, she thought perhaps l had a hiatus hernia. The endoscopy came back normal. I’m still getting stomach and back pain as well as night sweats. My stool is very bulky and sticky. I’m certain it’s pancreatic cancer as l feel so unwell. I have found a swollen hard lump in my belly area which l thought might be a lymph node. I’m really scared. I do have liver diseas…
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Deppressed, Scared and Ill
by metroid- 2 replies
- 1.5k views
Hi guys, Deep inside i feel i know the answers. I know "what i should do". I guess Im writing here because i just need to vent out. To feel i can talk to someone. To be heard. Its been hell carrying all this fear and anxiety by myself. Im writing this post after being sick for a month now. Undigested food, yellow floating stools, pain under the right ribs, sometimes on the left, sometimes on the back, itcky skin, foamy and darker urine. Yes. I know. I know. But my journey did not start 1 month ago. It actually started 7 years ago, and please hear me out, because its like i have lived with this certainty for such a long time. 7 years ago, i was very active. …
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Really worried about symptoms
by Toria- 1 reply
- 1.3k views
Hello everyone, I'm new here! I've been having worrying symptoms for around 3 or 4 months now. Finally dug my head out the sand and phoned GP but cant get an appointment til 19th may. I feel now I've made 1st step I'm now on fast forward and contemplating a private CT scan. Can anyone share their personal experiences with initial symptoms please? Mine started with an uncomfortable feeling in me left side, like under bottom ribs. I only felt it when laying on left side. I first thought it was a lump in my mattress or my pyjamas has twisted up. Then realised after having a snooze on the sofa that it wasnt, it was something within my body. It feels like I'm laying on …
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Are GPS worth their salt?
by b9_iwish- 1 follower
- 5 replies
- 1.4k views
I was diagnosed with locally advanced PC in November 2019 but only after I had developed a bad case of jaundice. My point is, are GPS up to speed with identifying the symptoms of this pernicious cancer? I unknowingly started experiencing symptoms in June 2019 with persistent back ache. But prior to this and purely on a health whim I had a private full health check in January 2019 where it was noted that my platelets were just below 100 - where 100 is a minimum for a normal blood count. The health check was duly passed on to my GP shortly afterwards. The GP phoned me early April 2019 and went through my results but only became aware of my bloods count after I highligh…
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Difficult Decision To Make - Advice Please
by easymark- 4 replies
- 1.9k views
I have a life-changing decision to make. I have a 4 cm cyst on my pancreas (found by mistake while in hospital for something else). My surgeon is recommending Whipple surgery to remove it as a precaution. I'm having an endoscopy in a couple of weeks but he still thinks I should have surgery even if the results are negative. This is because I have a younger brother with stage 4 pancreatic cancer. He is 44 and I'm 58. To further complicate the matter, I'm severely disabled with polio (I've spent a lot of time in an out of hospital) and I'm being monitored for prostate cancer due to a high (ish) PSA). If the results are positive for cancer then I will have no cho…
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Genetic testing
by TannyD- 1 follower
- 2 replies
- 1.3k views
Hello everyone. Next week I am having my first appointment with the Wessex Clinical Genetics team at Southampton. I lost my dad, my aunt, my grandmother and great uncle to this terrible disease all approximately aged 60. I am now 53, and to be honest, I wasn’t particularly worried about the appointment, but the closer it gets the more thought I am giving it. Has anyone had any experience of genetic testing? And if it’s found that I have a faulty gene what is the process after? Monitoring, prophylactic resection? Any advice would be very helpful. Many thanks Tanny
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Advice please
by Jdfbell- 1 reply
- 1.5k views
Hi everyone, I'm undiagnosed, and terrified. I've been suffering fatigue and bowel changes for a year - all bloods normal. In August I developed a pain under my ribs on the left that radiates to the back. Extreme fatigue, nausea and weightloss. All bloods still fine. Some stools were yellowish grey occasionally at this time, sometimes in pieces. I cut out alcohol completely and reduced fat drastically. I convinced the doctor to refer me for a 3 area CT scan with contrast (I paid for it), it was clear. I also tried prebiotics and PPI medication. The pain is now constant. It is really wearing me down. I am extremely fatigued and can't work. Still blood work is f…
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Pancreatic Cancer worry 1 2 3 4
by Cdcmoon- 80 replies
- 83.2k views
I am a 30 year old relatively fit and healthy male. I am worried sick I have pancreatic cancer I have had the following symptoms: Back in January this year I all of a sudden lost my appetite within 3 weeks I lost 5/6kg had pale stools which floated and had a general feeling of tiredness and being unwell. Back and forth from the doctors I have had numerous blood tests a couple of which were abnormal but repeated and informed are now normal (one LFT was high bilirubin and albumin). The doctors have informed me that I have only 2 abnormal results, albumin level of 58 and a calcium level of 2.67 which have been been repeated and I have had a letter saying "no s…
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PC in a 24 year old?
by Nelsson- 1 follower
- 1 reply
- 1.9k views
Hello everyone, i’m a 24 year old male who is having multiple stomach issues that is matching pretty well with PC. I know googling symptoms is never a good idea, but i’ve become kinda desperate since things haven’t got better. Issues started this summer but it’s first now im creating a post about it. I know i can’t get diagnosed here via the forum but it would be comforting to hear your points. I’m sorry if this is provoking/ seems selfish to anyone since i don’t have an actual diagnos of PC yet. Symptoms i have/had: Diarrhea, loose stools that usually floats. More gas and stomach is also doing more gurglling noises. started in august and still have it today. At…
