General chat
273 topics in this forum
-
Information and advice please
by Pete12- 22 replies
- 16.2k views
Hi. My name is Pete, I am 63 years of age. Please excuse me if I "ramble on" as I've never used a Forum before. A brief history surrounding my problem.....In March this year I felt unwell and started to turn yellow. I was admitted to hospital and had an urgent MRI scan which revealed a 1cm tumour in my bile duct. They also told me at that time that the cancer had spread to my liver and that nothing could be done for me, so I went home and started to make the "necessary arrangements". However, at a further meeting with a consultant at xx I was advised that I could have a Whipple procedure, and that it was unlikely that the cancer had spread to my liver. I had my Whipple on…
-
Curing Cancer Ch4
by J_T- 1 reply
- 5.2k views
just catching up with this programme that I recorded. Its fascinating and upsetting at the same time. Dennis who was terminal got an unlicensed drug, what a result in 2-9 weeks. Unfortunately it came back after that but its good to know that progress seems to be being made. How those health professionals work in that environment is beyond me but bless them all. Julia x
-
NANOKNIFE
by suestebbs- 1 reply
- 5.3k views
Hello everybody. My dear Dad has been diagnosed with inoperable pancreatic cancer. The tumour is apparently 4 cm in diameter and surrounding a blood vessel. He should be starting chemo soon. I was wondering whether anybody has any experience of Nanoknife. I have done some research into it but it would be nice to hear views on it. Thank you.
-
Stand up to Cancer (Channel 4)
by Slewis7313- 2 replies
- 5.4k views
I have been made aware of a series of events on Channel 4 culminating in a fund raiser tomorrow (Friday 17th). I have looked at a few programmes on catchup which have some really interesting discussions on research, treatment and life stories. Not Pancreatic Cancer specific, but 'Pauline's Story' is about a lady with Pancreatic Cancer. Well worth a look. Look out for SU2C on the programme guides. Steve PS....100% of all donations go to Cancer Research UK.
-
Flu Jab ?
by wackywacky- 13 replies
- 8.8k views
Hi just thought would ask what peoples views are about PC patients being given the flu jab, just been speaking to our doctor and he asked if beloved wanted it (this caught me on the hop said I would see what beloved said.) My thoughts cant you end up with flu well a mild form if you have the jab and would that just be another thing to contend with
-
Is our definition of cancer correct?
by Didge- 1 reply
- 5.2k views
Ric I do not have enough time to even read all your post as I am rushing for work but 'poking the immune system with a stick' has been long held as one of the paths to stimulating the repelling of cancer. Dr Issel's clinic (known from my youth as failing to save Lillian Board) used this method as do many today. I have long been interested in lifestyle changes and tried Gerson's therapy for my late husband 25 years ago. They have always maintained that they have better results with people whose diets were very poor than those whose diets were already very good. The assumption is that those with poor diets may have cancers which have been triggered or even caused by poor…
-
B17 vitamins
by knutsford4- 0 replies
- 4.8k views
Hi everyone, is anyone here taking B17 my Allen had been taking it for 2 weeks and he's developed a itch on his hands, don't know if it's linked to it or not, because he also started creon again only one a day 40000, 1 omerprazole, 1 colpermin and his normal paracetamol, and a shot of pure wheat grass but he's been having that for about 6 months, thanks xxx
-
B17 vitamins
by knutsford4- 0 replies
- 4.6k views
Hi everyone, is anyone here taking B17 my Allen had been taking it for 2 weeks and he's developed a itch on his hands, don't know if it's linked to it or not, because he also started creon again only one a day 40000, 1 omerprazole, 1 colpermin and his normal paracetamol, and a shot of pure wheat grass but he's been having that for about 6 months, thanks xxx
-
Rant
by wackywacky- 3 replies
- 5.6k views
Hi third lot of chemo yesterday all went fine full day at the hospital due to waiting for bl0od results waititng for chemo you know the drill, then he decides we are going shopping, then he wants KFC, get back in about 8 last night from being out from 10 in the morning, been in half hour then he says hes shattered (not surprised but who am I to say anything)he goes to bed. Rest at last no, he must have got up every hour on the hour came down stairs * I feel strange am shattered* had a drink back to bed one o'clock this morning I ended up running bath and he laid in bath for an hour said felt better not a peep till 8 this morning. Comes down stairs saying shattered drank a…
-
Purple lights for hope day
by RoyBoy- 2 replies
- 5.8k views
Hi all, I am getting confused !!! I have heard of the purple for hope day 01/11/14 and there is the Purple P selfie page on this day as well. There is some talk of a month of awareness - is that PCUK ? and then there also seems to be a worldwide P.C awareness day on 13/11/14 ?
-
need some advice please
by shazzax- 11 replies
- 9.4k views
hi all, I have some worrying symptons and having checked them online i have convinced myself i have PC. I am not usually anxious or worry about symptons i just see if i feel better in a few weeks. But i dont feel right, i have had stomach acid on and off for a year or so, this is usually relieved by ranitidine. About 2 weeks i had 2 days of vomiting and tummy pain but as a stomach bug was going around i though thats what it was.I continued to feel very sick for the next week. I have diarrhea on and off and my stools are smelly and a tan colour, i have constant upper abdo pain that goes through to my back. I have had acid systems before but this feels different not so …
-
need some info from experienced people
by worriedinamerica- 8 replies
- 11.3k views
ima 34y/o male ive been having oily stools for a year,weight loss of almost 20 lbs total despite having a healthy appetite,mild but constant middle upper left/side Back pain,with mild but not constant Left epigastric pain ,Constant burping/Reflux and bloated(pretty sure Its Ascties ,since i look pregnant(has been going on since November of 2013, also after getting around of food poisoning & almost got so dehydrated i thought i was going to pass out, the next day i awoke with pain in both my legs, my right hurts off & on but my left has never stopped & does hurt in the calf so ,im thinking this is a Blood Clot & that REALLY screams PC,though i have read tha…
-
my husband has a tumour
by alison vickerman- 8 replies
- 6.5k views
Hi my husband who is 40 fell ill in june this year loosing weight.stomach pains etc his gp referred him to a bowel specialist and after several cameras and a ct scan they found a tumour on his tail end of pancreas he was admitted to hospital on 10th sept and has had his tumour removed and is now recovering at home se are now waiting for the results of his tumour we are praying for good results its been a very emotional and worrying few months but all health workers have acted with speed and compassion I can only keep thinking how lucky he is to have had this tumour early as this is not always the case with a lot of patients I cant even imagine how things could have been a…
-
Messy Steve - Fundraising
by Annie14- 2 replies
- 4.9k views
Hi all Here is a great video of our daughters childminder 'getting messy' to raise Funds for PCUK. The kids loved throwing food over him as much as the adults!
-
A shock
by deeh- 3 replies
- 5.4k views
Have not posted before, thought I was doing well have been feeling well etc since completing ARC 11 Clinical trial at Churchill Hospital which consisted of chemo and radiotherapy, had 6 week scan to review on Tuesday just had call from Dr think they may have seen something on liver but not clear want me now to have MRI scan to clarify.Weight has stayed same eating well and everyone says I look really well head is all over the place as no mention of liver prior to starting trial in March.
-
- 10 replies
- 8.3k views
My 39 year old sister Dominique died today, quietly and without fuss, exactly as she had lived the last 5 months since diagnosis of inoperable PC. She tried Folfirinox but only managed two rounds as the vivacity of this combination was just too much for her already depleted body. Dom never complained and took on each new stage of this dreadful illness with dignity. I am so sad that she never really had a fighting chance to be close to the 3% who somehow beat it. She will be missed by us all. Our loved ones deserve more than the look of defeat that passes through the eyes of those who recognise the implications when hearing that the cancer is pancreatic. The statisti…
-
Wilko Johnson gets op!
by J_T- 3 replies
- 5.9k views
Amazing, good for him! Sounds like a heck of an op though! http://www.independent.co.uk/news/people/wilko-johnson-diagnosed-with-terminal-cancer-undergoes-pioneering-operation-which-could-save-his-life-9307234.html
-
- 8 replies
- 7.8k views
My family and I have decided that we are going to do the Great Wall Trek for Hope this year in October, in order to raise money for Pancreatic Cancer UK. We have decided to after my dad was diagnosed in December 2013 and sadly passed away on the 17th February 2014, at the age of just 54. My mum has been posting on the forum since my nan was diagnosed in January 2012 and passed away August 2012 and then again when my dad was diagnosed: http://forum.pancreaticcancer.org.uk/viewtopic.php?f=3&t=1269 We are determined to raise as much money between us as we can, and will be doing all sorts of different fundraising activities to get to our target. Please sponsor u…
-
Site Very Sluggish
by J_T- 15 replies
- 12.9k views
or is it just me? Quite a few days now/ Julia
-
Thank you Lovely people!
by Thriae- 1 reply
- 4.5k views
Well, I completed the Virgin London MArathon yesterday in memory of Dad who died in November. Many of you sponsored and supported me with good wishes and donations to Pancreatic Cancer UK and I am extremely greatful. I've not been back here really since dad's funeral as I found it very hard, but wanted to come and share the closing of this chapter with you. The training has been part of my grief journey and you guys were here with me as I began that journey. Love to you all x Aimie
-
When no one understands
by Guest Fifi- 18 replies
- 12.2k views
I read on here people that have a lot of support and love from their partners, but what happens when you don't get that love and support? I don't feel that I have that with my partner. He sighs when I mention my dad. He huffs and puffs when we go and visit him. He is unsupportive of how I feel. When I cry he says what now? Both his parents are alive and well, so he has no idea how I feel. I just really don't know what to do. He is incredibly selfish anyway, but it is really showing right now. I am absolutely heartbroken. I love my dad so very very much and I don't want this for him. I can't bare what he has. I can't bare what is going to happen to him and I c…
-
Mike - Cestrian 1 2
by J_T- 26 replies
- 17.9k views
I was worried about not hearing from him and I remembered he had posted a news article about his lovely daughter which I found and then subsequently found this. Only seems to take the best this wretched disease. We miss you Mike, you were so full of life and positivity. May you rest in peace. Love & Peace Julia x http://chestereasyriders.blogspot.co.uk/2014/03/mike-morley-1944-to-2014.html
-
e-Petition
by MSH- 23 replies
- 14.4k views
http://epetitions.direct.gov.uk/petitions/48389 29,620 signatures and we have 2 months to get to 100,000. Can it be done? Signed.
-
Disgusting doctor, was this legal?
by Guest Fifi- 10 replies
- 7.8k views
Bit of background first - The doctor that didn't diagnose my dad correctly, I have made a complaint about him. He wrote back me, or his secretary did, unsigned as well. I have also complained to NHS England, still waiting ti hear from them. Today, I went to visit my dad. When I got there, he said the said doctor was coming round to see him, to talk about his wellbeing. I wasn't very pleased. My dad told me to wait in the other room. I did, but I could hear everything. My dad told him that I wasn't coming in because I was mad with him. My dad told him he should have diagnosed him sooner, and that if it wasn't for himself ( my dad ) then he would still be going bac…
-
Are there any support groups in London?
by Muzzy64- 3 replies
- 4.9k views
I have just become aware of this online support forum for people with pancreatic cancer and imagine that I will be using it a lot over the next few months/ years (hopefully). I was wondering are there any face to face support groups for people with serious life threatening illnesses such as PC in London area. I have friends who use AA to cope with their common problem with Alcohol and it can work very well indeed.
