General chat
293 topics in this forum
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- 4 replies
- 9.5k views
Hi everyone. As we all know abraxane has been taken off the nhs in England and there is a petition to get it back on. Well Carl has been interviewed and it will be shown at 7pm on channel 4 tonight. He's nervous he's made an idiot of himself but hopefully they got something useful lol Just thought I'd let you know so you could catch it if you're interested Rob X
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Reaching out 1 2
by Lisa Kelly- 37 replies
- 32.6k views
Hi all, My dad (72) was diagnosed with advanced pancreatic cancer in Sept 2014. He had a stent fitted as the tumour was blocking his bile duct. The cancer was inoperable due to its location, wrapped around the artery and vein... 4 months of chemo did nothing to the tumour so my dad opted to stop treatment. He was more concerned with quality as opposed to quantity. He has his families' full support. Just before Christmas he had a rocket drain fitted to allow the Acites to be drained off of his abdominal cavity. This has been being managed by mum, taking 2l every 3-4 days. Recently, the colour of the fluid has become darker and cloudier. He has also started to experien…
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Second Folfirinox on reduced dose
by Kaye 19- 1 reply
- 6.6k views
Well after 3 horrendous weeks of in and out of hospital after initial dose of Folfirinox ...the reduced dosage seems to be more tolerable..thank goodness....early days...but hopeful!
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Essex Pancreatic Cancer Support Network
by Robert_H- 6 replies
- 11.7k views
I'd like to make everyone aware that I have helped set up a new group in Essex for anyone affected by Pancreatic cancer in some way - either having been diagnosed with pancreatic cancer themselves or as a relative, friend, spouse or partner of someone with pancreatic cancer. We're meeting for a chat over coffee and a cake in Chelmsford this coming Saturday 25th April and we would welcome anyone who would like to come along. Please pass this on to anyone you know who might be interested and ask them to contact us through the Essex Pancreatic Cancer Support Network Facebook page or by emailing EssexPancreas@gmail.com for details. Many thanks. Robert
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- 7 replies
- 11.9k views
I aren't at all religious but the Thought for the Day section from the Today program touched on pancreatic cancer and I think the described transfiguration is what we should all perhaps aim for. http://www.bbc.co.uk/programmes/p02ys8b7
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Creon 40000
by Johnnathan- 3 replies
- 9.3k views
I have recently been informed by my pharmacist (and confirmed by my pharmacist son) that Creon 40000 (400mg) are not being made for the indefinite future. 25000 and 10000 are still available though. Your GP will need to change your repeat prescription if you are on the 40000 dose, which many people are. I think we all should contact Abbott Healthcare and lobby them to keep producing the 40000 strength capsules. It now means that I will be taking about 11-16 capsules a day instead of about 6-9.
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- 1 reply
- 8k views
http://www.sciencedaily.com/releases/2015/04/150430082151.htm?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+sciencedaily%2Ftop_news%2Ftop_health+%28ScienceDaily%3A+Top+Health+News%29
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- 1 reply
- 7.7k views
http://www.bbc.co.uk/news/entertainment-arts-33151261?post_id=10153432989604066_10153432989599066#_=_ http://www.dailymail.co.uk/news/article-3126482/Sir-John-Hurt-says-diagnosed-early-stage-pancreatic-cancer.html
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- 10 replies
- 12.1k views
Hi, Just had the most awful time waiting to hear what happens next after my mum was diagnosed with pancreatic cancer. It seems like excellent news, they are going to remove the pancreas and it hasn't spread anywhere else - happy days. We have been told that she will have a normal life expectancy afterwards, as long as she is fit enough to have the op. It all sounds like excellent news but I have read online that there is still a small percentage live for a further 5 years, is this correct or am I trying to find a negative in the positive? I really hope I'm wrong.
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Lessons from the New World.
by MSH- 0 replies
- 7.3k views
Some right wing politicians have claimed that the money for healthcare has been protected in the recent austerity measures. It is true that the budget has been ring-fenced, but effectively has seen major cuts because of advances in medical technology and treatment and because of the ageing population. I read recently that the NHS needs in excess of £8 billion, http://www.thetimes.co.uk/tto/health/news/article4443469.ece Which predictably led to commentators suggesting root and branch reform generally in favour of a market based system. Some would claim that we are already moving in that direction. The problem is that our current system is one of the most efficient …
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- 6 replies
- 9.3k views
MODERATORS I THINK THIS NEEDS REPORTING AND OF COURSE REMOVING
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- 4 replies
- 8.9k views
http://www.standard.co.uk/news/celebritynews/errol-brown-hot-chocolate-singer-dies-aged-71-after-losing-his-battle-with-pancreatic-cancer-10229773.html
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Pancreaze
by theeeliteladyd- 2 replies
- 7k views
My mother just died recently from complications of pancreatic cancer. She has boxes and boxes of pancreaze - brand new, unopened, not expired. Does anyone know where I can donate these to?
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Pretty Muddy Race
by Samelia- 4 replies
- 7.4k views
Hi everyone I have decided to participate in a 5k muddy obstacle course and also persuaded my whole dancing team to join me. The entry fee of the race goes to cancer research uk. In addition to this I have also set up a just giving page for sponsors- this money will go directly to Pancreatic Cancer UK. I know this will be an important cause to all on here so if you could please donate. Every £ aids the research to beat this evil disease indefinitely! Thank you so much Here is the link to my page. https://www.justgiving.com/sarah-melia/
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South East Wales Support Group
by Slewis7313- 6 replies
- 7.4k views
Tomorrow is the first Support Group meeting in Newport (Gwent). Venue is St Davids Hospice, Malpas. Timings are 10:30 to 14:30. This has been advertised on FaceBook, but I thought I'd publicise it here as well. Steve
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Rough
by wackywacky- 4 replies
- 7.2k views
Hi to you all as I have said before we dont like to miss out beloved going through a bit of a rough patch at moment will post when I can. Keep popping in to see how we are all going and we all seem to be having our problems at the moment. Thinking of you all love wacky x
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- 1 reply
- 5.9k views
Is this because of all the stuff going on in the background?
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Christmas Wishes
by PCUK Nurse Jeni- 12 replies
- 11.2k views
Hi to all our forum users, With the Christmas season upon us, and the holiday fast approaching, we would like to extend our very best to you and yours throughout this season. We would especially like to extend our thoughts to those who are facing a first, or subsequent Christmas without a loved one, and to those recently bereaved through pancreatic cancer. We also remember those who may lose their loved ones over the Christmas. To those of you still on chemo, we hope that you can enjoy some festive treats without feeling unwell, and that the chemo breaks fall exactly when you will get the most benefit from them. Most of all, we hope that you enjoy some wonde…
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Love of my life, has secondary cancer 1 2
by knutsford4- 35 replies
- 28.1k views
Hi my name is Martine, I'm new, to the forum, my husband of 28 years (33 together) has been living with bile duct cancer (secondary) since January, he was diagnosed in sept2012, at the age of 46, had Whipples, took all complications, had a further 3 operations, in hospital 8 weeks lost 3 stone, came home with clear margins, told no cancer did preventive chemo for 6 months, was fine on it he ran a leg of the Belfast marathon while on chemo, got all clear in August 2015, life back to normal, he ran the Belfast half marathon in 2 hours in Sept, left the country 4 times, was getting his life together again, ( I need to mention, that he never once was sick in his life even on …
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Travelling abroad between treatments
by SusannaUK- 5 replies
- 7.9k views
I opened this thread to get some information from you about travelling. I have read that most of the patients travelled between treatments and would like to know what are the important things we have to be aware of. We would like to go to Hungary for approx. 12-14 days between two treatments. If my husband's pain will be sorted I will book the tickets. He takes so many medicines, morphine (liquid too, they are in 120 ml bottles)) etc. I don't know how it works at custom. Have you received an authorization from your oncologist that this patient has cancer and needs to take this and that medicines? Shall we put the medicines in our hand luggage or in checked-in bag? Wh…
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Information and advice please
by Pete12- 22 replies
- 17.3k views
Hi. My name is Pete, I am 63 years of age. Please excuse me if I "ramble on" as I've never used a Forum before. A brief history surrounding my problem.....In March this year I felt unwell and started to turn yellow. I was admitted to hospital and had an urgent MRI scan which revealed a 1cm tumour in my bile duct. They also told me at that time that the cancer had spread to my liver and that nothing could be done for me, so I went home and started to make the "necessary arrangements". However, at a further meeting with a consultant at xx I was advised that I could have a Whipple procedure, and that it was unlikely that the cancer had spread to my liver. I had my Whipple on…
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Curing Cancer Ch4
by J_T- 1 reply
- 5.5k views
just catching up with this programme that I recorded. Its fascinating and upsetting at the same time. Dennis who was terminal got an unlicensed drug, what a result in 2-9 weeks. Unfortunately it came back after that but its good to know that progress seems to be being made. How those health professionals work in that environment is beyond me but bless them all. Julia x
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NANOKNIFE
by suestebbs- 1 reply
- 5.7k views
Hello everybody. My dear Dad has been diagnosed with inoperable pancreatic cancer. The tumour is apparently 4 cm in diameter and surrounding a blood vessel. He should be starting chemo soon. I was wondering whether anybody has any experience of Nanoknife. I have done some research into it but it would be nice to hear views on it. Thank you.
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Stand up to Cancer (Channel 4)
by Slewis7313- 2 replies
- 5.8k views
I have been made aware of a series of events on Channel 4 culminating in a fund raiser tomorrow (Friday 17th). I have looked at a few programmes on catchup which have some really interesting discussions on research, treatment and life stories. Not Pancreatic Cancer specific, but 'Pauline's Story' is about a lady with Pancreatic Cancer. Well worth a look. Look out for SU2C on the programme guides. Steve PS....100% of all donations go to Cancer Research UK.
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Flu Jab ?
by wackywacky- 13 replies
- 9.9k views
Hi just thought would ask what peoples views are about PC patients being given the flu jab, just been speaking to our doctor and he asked if beloved wanted it (this caught me on the hop said I would see what beloved said.) My thoughts cant you end up with flu well a mild form if you have the jab and would that just be another thing to contend with
