General chat
280 topics in this forum
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Pretty Muddy Race
by Samelia- 4 replies
- 7k views
Hi everyone I have decided to participate in a 5k muddy obstacle course and also persuaded my whole dancing team to join me. The entry fee of the race goes to cancer research uk. In addition to this I have also set up a just giving page for sponsors- this money will go directly to Pancreatic Cancer UK. I know this will be an important cause to all on here so if you could please donate. Every £ aids the research to beat this evil disease indefinitely! Thank you so much Here is the link to my page. https://www.justgiving.com/sarah-melia/
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South East Wales Support Group
by Slewis7313- 6 replies
- 7k views
Tomorrow is the first Support Group meeting in Newport (Gwent). Venue is St Davids Hospice, Malpas. Timings are 10:30 to 14:30. This has been advertised on FaceBook, but I thought I'd publicise it here as well. Steve
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Rough
by wackywacky- 4 replies
- 6.7k views
Hi to you all as I have said before we dont like to miss out beloved going through a bit of a rough patch at moment will post when I can. Keep popping in to see how we are all going and we all seem to be having our problems at the moment. Thinking of you all love wacky x
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- 1 reply
- 5.6k views
Is this because of all the stuff going on in the background?
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Christmas Wishes
by PCUK Nurse Jeni- 12 replies
- 10.6k views
Hi to all our forum users, With the Christmas season upon us, and the holiday fast approaching, we would like to extend our very best to you and yours throughout this season. We would especially like to extend our thoughts to those who are facing a first, or subsequent Christmas without a loved one, and to those recently bereaved through pancreatic cancer. We also remember those who may lose their loved ones over the Christmas. To those of you still on chemo, we hope that you can enjoy some festive treats without feeling unwell, and that the chemo breaks fall exactly when you will get the most benefit from them. Most of all, we hope that you enjoy some wonde…
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Love of my life, has secondary cancer 1 2
by knutsford4- 35 replies
- 26.6k views
Hi my name is Martine, I'm new, to the forum, my husband of 28 years (33 together) has been living with bile duct cancer (secondary) since January, he was diagnosed in sept2012, at the age of 46, had Whipples, took all complications, had a further 3 operations, in hospital 8 weeks lost 3 stone, came home with clear margins, told no cancer did preventive chemo for 6 months, was fine on it he ran a leg of the Belfast marathon while on chemo, got all clear in August 2015, life back to normal, he ran the Belfast half marathon in 2 hours in Sept, left the country 4 times, was getting his life together again, ( I need to mention, that he never once was sick in his life even on …
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Travelling abroad between treatments
by SusannaUK- 5 replies
- 7.6k views
I opened this thread to get some information from you about travelling. I have read that most of the patients travelled between treatments and would like to know what are the important things we have to be aware of. We would like to go to Hungary for approx. 12-14 days between two treatments. If my husband's pain will be sorted I will book the tickets. He takes so many medicines, morphine (liquid too, they are in 120 ml bottles)) etc. I don't know how it works at custom. Have you received an authorization from your oncologist that this patient has cancer and needs to take this and that medicines? Shall we put the medicines in our hand luggage or in checked-in bag? Wh…
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Information and advice please
by Pete12- 22 replies
- 16.5k views
Hi. My name is Pete, I am 63 years of age. Please excuse me if I "ramble on" as I've never used a Forum before. A brief history surrounding my problem.....In March this year I felt unwell and started to turn yellow. I was admitted to hospital and had an urgent MRI scan which revealed a 1cm tumour in my bile duct. They also told me at that time that the cancer had spread to my liver and that nothing could be done for me, so I went home and started to make the "necessary arrangements". However, at a further meeting with a consultant at xx I was advised that I could have a Whipple procedure, and that it was unlikely that the cancer had spread to my liver. I had my Whipple on…
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Curing Cancer Ch4
by J_T- 1 reply
- 5.2k views
just catching up with this programme that I recorded. Its fascinating and upsetting at the same time. Dennis who was terminal got an unlicensed drug, what a result in 2-9 weeks. Unfortunately it came back after that but its good to know that progress seems to be being made. How those health professionals work in that environment is beyond me but bless them all. Julia x
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NANOKNIFE
by suestebbs- 1 reply
- 5.4k views
Hello everybody. My dear Dad has been diagnosed with inoperable pancreatic cancer. The tumour is apparently 4 cm in diameter and surrounding a blood vessel. He should be starting chemo soon. I was wondering whether anybody has any experience of Nanoknife. I have done some research into it but it would be nice to hear views on it. Thank you.
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Stand up to Cancer (Channel 4)
by Slewis7313- 2 replies
- 5.5k views
I have been made aware of a series of events on Channel 4 culminating in a fund raiser tomorrow (Friday 17th). I have looked at a few programmes on catchup which have some really interesting discussions on research, treatment and life stories. Not Pancreatic Cancer specific, but 'Pauline's Story' is about a lady with Pancreatic Cancer. Well worth a look. Look out for SU2C on the programme guides. Steve PS....100% of all donations go to Cancer Research UK.
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Flu Jab ?
by wackywacky- 13 replies
- 9.1k views
Hi just thought would ask what peoples views are about PC patients being given the flu jab, just been speaking to our doctor and he asked if beloved wanted it (this caught me on the hop said I would see what beloved said.) My thoughts cant you end up with flu well a mild form if you have the jab and would that just be another thing to contend with
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Is our definition of cancer correct?
by Didge- 1 reply
- 5.3k views
Ric I do not have enough time to even read all your post as I am rushing for work but 'poking the immune system with a stick' has been long held as one of the paths to stimulating the repelling of cancer. Dr Issel's clinic (known from my youth as failing to save Lillian Board) used this method as do many today. I have long been interested in lifestyle changes and tried Gerson's therapy for my late husband 25 years ago. They have always maintained that they have better results with people whose diets were very poor than those whose diets were already very good. The assumption is that those with poor diets may have cancers which have been triggered or even caused by poor…
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B17 vitamins
by knutsford4- 0 replies
- 4.9k views
Hi everyone, is anyone here taking B17 my Allen had been taking it for 2 weeks and he's developed a itch on his hands, don't know if it's linked to it or not, because he also started creon again only one a day 40000, 1 omerprazole, 1 colpermin and his normal paracetamol, and a shot of pure wheat grass but he's been having that for about 6 months, thanks xxx
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B17 vitamins
by knutsford4- 0 replies
- 4.7k views
Hi everyone, is anyone here taking B17 my Allen had been taking it for 2 weeks and he's developed a itch on his hands, don't know if it's linked to it or not, because he also started creon again only one a day 40000, 1 omerprazole, 1 colpermin and his normal paracetamol, and a shot of pure wheat grass but he's been having that for about 6 months, thanks xxx
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Rant
by wackywacky- 3 replies
- 5.8k views
Hi third lot of chemo yesterday all went fine full day at the hospital due to waiting for bl0od results waititng for chemo you know the drill, then he decides we are going shopping, then he wants KFC, get back in about 8 last night from being out from 10 in the morning, been in half hour then he says hes shattered (not surprised but who am I to say anything)he goes to bed. Rest at last no, he must have got up every hour on the hour came down stairs * I feel strange am shattered* had a drink back to bed one o'clock this morning I ended up running bath and he laid in bath for an hour said felt better not a peep till 8 this morning. Comes down stairs saying shattered drank a…
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Purple lights for hope day
by RoyBoy- 2 replies
- 5.9k views
Hi all, I am getting confused !!! I have heard of the purple for hope day 01/11/14 and there is the Purple P selfie page on this day as well. There is some talk of a month of awareness - is that PCUK ? and then there also seems to be a worldwide P.C awareness day on 13/11/14 ?
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need some advice please
by shazzax- 11 replies
- 9.6k views
hi all, I have some worrying symptons and having checked them online i have convinced myself i have PC. I am not usually anxious or worry about symptons i just see if i feel better in a few weeks. But i dont feel right, i have had stomach acid on and off for a year or so, this is usually relieved by ranitidine. About 2 weeks i had 2 days of vomiting and tummy pain but as a stomach bug was going around i though thats what it was.I continued to feel very sick for the next week. I have diarrhea on and off and my stools are smelly and a tan colour, i have constant upper abdo pain that goes through to my back. I have had acid systems before but this feels different not so …
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need some info from experienced people
by worriedinamerica- 8 replies
- 11.6k views
ima 34y/o male ive been having oily stools for a year,weight loss of almost 20 lbs total despite having a healthy appetite,mild but constant middle upper left/side Back pain,with mild but not constant Left epigastric pain ,Constant burping/Reflux and bloated(pretty sure Its Ascties ,since i look pregnant(has been going on since November of 2013, also after getting around of food poisoning & almost got so dehydrated i thought i was going to pass out, the next day i awoke with pain in both my legs, my right hurts off & on but my left has never stopped & does hurt in the calf so ,im thinking this is a Blood Clot & that REALLY screams PC,though i have read tha…
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my husband has a tumour
by alison vickerman- 8 replies
- 6.7k views
Hi my husband who is 40 fell ill in june this year loosing weight.stomach pains etc his gp referred him to a bowel specialist and after several cameras and a ct scan they found a tumour on his tail end of pancreas he was admitted to hospital on 10th sept and has had his tumour removed and is now recovering at home se are now waiting for the results of his tumour we are praying for good results its been a very emotional and worrying few months but all health workers have acted with speed and compassion I can only keep thinking how lucky he is to have had this tumour early as this is not always the case with a lot of patients I cant even imagine how things could have been a…
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Messy Steve - Fundraising
by Annie14- 2 replies
- 5k views
Hi all Here is a great video of our daughters childminder 'getting messy' to raise Funds for PCUK. The kids loved throwing food over him as much as the adults!
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A shock
by deeh- 3 replies
- 5.6k views
Have not posted before, thought I was doing well have been feeling well etc since completing ARC 11 Clinical trial at Churchill Hospital which consisted of chemo and radiotherapy, had 6 week scan to review on Tuesday just had call from Dr think they may have seen something on liver but not clear want me now to have MRI scan to clarify.Weight has stayed same eating well and everyone says I look really well head is all over the place as no mention of liver prior to starting trial in March.
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- 10 replies
- 8.5k views
My 39 year old sister Dominique died today, quietly and without fuss, exactly as she had lived the last 5 months since diagnosis of inoperable PC. She tried Folfirinox but only managed two rounds as the vivacity of this combination was just too much for her already depleted body. Dom never complained and took on each new stage of this dreadful illness with dignity. I am so sad that she never really had a fighting chance to be close to the 3% who somehow beat it. She will be missed by us all. Our loved ones deserve more than the look of defeat that passes through the eyes of those who recognise the implications when hearing that the cancer is pancreatic. The statisti…
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Wilko Johnson gets op!
by J_T- 3 replies
- 6k views
Amazing, good for him! Sounds like a heck of an op though! http://www.independent.co.uk/news/people/wilko-johnson-diagnosed-with-terminal-cancer-undergoes-pioneering-operation-which-could-save-his-life-9307234.html
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- 8 replies
- 8k views
My family and I have decided that we are going to do the Great Wall Trek for Hope this year in October, in order to raise money for Pancreatic Cancer UK. We have decided to after my dad was diagnosed in December 2013 and sadly passed away on the 17th February 2014, at the age of just 54. My mum has been posting on the forum since my nan was diagnosed in January 2012 and passed away August 2012 and then again when my dad was diagnosed: http://forum.pancreaticcancer.org.uk/viewtopic.php?f=3&t=1269 We are determined to raise as much money between us as we can, and will be doing all sorts of different fundraising activities to get to our target. Please sponsor u…
