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  2. Vasil

    pancreatic cancer spread to abdomin

    Kingsnorth and Kerry. Haven't heard from you. Is everything OK?
  3. If you'd like to learn more about diet, nutrition and PERT, join dietitian Rachel Caddy for a free evening webinar later this month. Rachel works at the Liverpool University NHS Foundation Trust, providing specialist dietetic support to people with pancreatic cancer to help improve their quality of life. She is passionate about educating people on the parts pancreatic enzyme replacement therapy and nutrition play in living well with pancreatic cancer. The webinar will take place on Tuesday 29th June from 6 to 7.30pm, and there will be a Q&A session so you can ask any ques
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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
  8. Support Team

    Managing Chemotherapy - online support session

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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
  9. Support Team

    'Ask a Dietitian' webinar

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    Join specialist nurse Rachel Richardson and registered dietitian Rachel Caddy for a free evening webinar on diet, nutrition and PERT. There will be a Q&A. Find out more, and book, at www.pancreaticcancer.org.uk/support-for-you/ask-a-dietitian.
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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
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    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
  12. Skippy

    We're new to all this.....

    Dear Roas, I well understand your fears and that of your wife's. Perhaps informing you of my brother's first diagnosis at 74 he had no understanding of his findings, as he ate well, he had no real aches or pains, that prevented him taking his dancing classes 3 times a week, only seeing a dark thick green urine at the toilet. He did say his skin was "itchy" at nights in bed. He must have had this tumour for quite a while, without any knowledge. Each person is different. Id say take this diagnosis day at a time. Many do manage to live with this cancer for a long time. His diagnosis was only fou
  13. LisaC

    We're new to all this.....

    They just need a definitive diagnosis so they can plan the treatment, the hospital Lewis was at would have meetings with the royal free hospital who specialise in this type of cancer and they needed to know the type of cancer before they could plan treatment. We did see the oncologist before the biopsy because Lewis was in hospital already being treated for an infection caused by the cancer and the biopsy happened a few days after this the results took about a week.
  14. rogs

    We're new to all this.....

    I did look into the PALS procedure for the hospital in question, but the weblink is broken and just advises to 'report this error to the webmaster'. So I gave up on that one.... Not that it would have made any real difference. Those higher up the 'admin chain' tend to have got there by 'ducking and diving' anyway, and usually have a suitably vague response which doesn't actually change anything - but clears them legally! The Nurse Specialist has been very good - and has already arranged for Creon pills and nutrient drinks. That has already helped a lot!. The next step seems
  15. LisaC

    We're new to all this.....

    I’m sorry you were delivered the diagnosis in this way, quite shocking really. I would contact the hospital PALS department to complain, there are procedures for breaking such news and the manner in which you described is not appropriate at all. Hopefully you have heard about an appointment with oncology to discuss treatments available. I would also ask about being started on a medication called creon to help with the digestive system and hopefully enable your wife to put on some weight. When me and my fiancé had the appointment with the oncologist to discuss treatment th
  16. Kingsnorth

    Hospice

    Thank you for your reply. The local hospice here doesn’t have private rooms only bays which is a bit disappointing.
  17. rogs

    We're new to all this.....

    Many thanks for your post and thoughts. I think probably the most important point you make is about reassurance. In my case this is not an problem. My wife and I have been together for 54 years and we're very close. Caring for her is not going to be an issue. Reading my own post again, I can see that some of it is just me lashing out at the messenger. Probably a bit unfair. The poor chap had probably been 'volunteered' into being the one to let us know the diagnosis. Hopefully, whichever oncologist we are referred to will be able to explain what options we have more sympathetical
  18. Skippy

    Hospice

    As recent as March 2021. My brother was at home for care with Palliative Team attending. I was with him 24 hrs and PT popped in 3 times a day. It became difficult my tasks as no equipment was available to lift him etc. Bathe him etc. He was admitted, on his wishes to a Hospice. It was a beautiful bright setting in a private room overlooking their gardens. Huge windows and very peaceful. He absolutely was more comfortable. A beautiful room with such hands on professional care . He sat up smiling for first time in two weeks. He enjoyed his time much better. Visits were not strict and each one ha
  19. Skippy

    We're new to all this.....

    I am so sorry to hear of your wife's recent diagnosis. It sounds like the staff have not given much empathy towards this nightmare you both find yourselves in. The diagnosis now having been made its difficult to think that a Private Consultant (at a huge financial cost) would make any difference to that provided by NHS. You could change NHS Consultants? My 75 year old brother I know had on line /telephone consultations only during Covid lockdowns. In fact he spoke more to the Consultant's secretary. I did feel one consultation was very direct, delivering to him " you have months (in similar to
  20. My wife started complaining of difficulty digesting her food some 4 months ago, and the GP prescribed Omeprozole tablets, which helped for a while. She also had some abdominal bloating (not serious) .The GP ordered blood tests, and included a test for CA125 in her requests. Slightly unexpectedly, that result came back high, and the GP referred my wife to Gynaecology, for further tests for ovarian cancer. An ultrasound and subsequent CT scan revealed 2 benign ovarian cysts, but the letter received from the gynaecologist - following that result - included the apparently innocuous phrase
  21. Earlier
  22. Kingsnorth

    Hospice

    Ok thanks l presume that the palliative nurses can sort that out. I was worried about being in pain and nobody to help l didn’t know you got 24/7 help
  23. Borobi

    Hospice

    It depends on the hospice. My local one has some single rooms and some 4 bedded ones. You should also look at hospice at home though. My husband died at home, but there were daily visits from carers, the district nurses came twice a day, and if there was a problem any time of the day or night, nurses from the hospice or Marie Curie nurses would come out. They were exceptional.
  24. whykel

    pancreatic cancer spread to abdomin

    Hi kinasnorth What pain do you have when you say liver Kerry
  25. whykel

    pancreatic cancer spread to abdomin

    Hi vasil I have my ct scan in a few days I have been googling its hard not to. But it points to pc I just know in my heart they'll say yeh it is. I'm constantly watching for symptoms Did you mean your dad took 6 months to lose weight? Thankyou again Kerry
  26. Vasil

    pancreatic cancer spread to abdomin

    Kerry please do not apologize. But I am no doctor and therefore unsure what to advise you. The only thing I can judge by is my own personal experience. It is true that my father had the same pain that you are describing right under the ribs but it also tended to spread to his lower back. He lost much weight before being diagnosed but it took six months not one week. Is there a way you could consult a medical person or speed up the process of diagnosis? Have you spoken to the wonderful nurses at this forum? Best regards Vasil.
  27. Kingsnorth

    pancreatic cancer spread to abdomin

    The blood test is tomorrow and the scan is on Monday. I’m looking into hospice care, l know l don’t have a definitive diagnosis but I’m certain l do have PC. My liver area is now hurting. I’m struggling to speak to my partner about it as he is a “wait and see man” and as you know you don’t have time for wait and see with this. I’m 70 years old and l do lots of research about most things, l don’t mean Dr google I’m talking NHS and lancet.
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