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  1. Yesterday
  2. Slim Shadey

    Stomach tightness

    Hi All My fiancée after going through the Whipple procedure in December 2019 and 12 bouts of chemotherapy was doing very well and starting to get on with her and our life and then on her last CT scan we were told that the cancer had returned and they had found spots in her abdomen and lungs. As you can imagine this was devastating news for us both and after the initial shock we discussed the options my fiancée was very reluctant to go through chemotherapy again after what it did to her last time but agreed to do this for me more than anything whilst we were awaiting the appointment she became ill and was eventually admitted to hospital meaning she missed her first chemotherapy appointment. She was in hospital with pneumonia were we could not visit due to hospital rules post pandemic as I am sure this will appreciate this was an horrendous time after nearly 3 weeks of no improvement she called me on a Friday afternoon to say that she was coming home I was ecstatic but not for long as she spoke to me I could tell something was wrong it turned out that they no longer thought the pneumonia was causing the issues with the breathing but it was the cancer being so aggressive and she stated that she wanted to come home we were both aware of what this meant but at least for me it didn't seem real. She came out on the Friday by ambulance and with oxygen she was a shadow of the women I knew, but she wanted to be with me and family as this would make her happy we put beds in the dining room and spent as much time together as possible with her just sleeping and me asking her to eat and drink these were very difficult times for us both as I knew she was in pain. Sadly she was to weak for any treatment and passed away 7 days later surrounded by family. I will never understand why this as happened she was only 52 and the love of my life and we had so much we still wanted to do right now only the boys are giving me the strength to continue. My sexy was an amazing women that I was privileged to be with, the best part of me is no longer here and that is breaking my heart but I know she fought this every step of the way and she is still the strongest, loveliest, sexiest women I will ever know. I don't know what is ahead I just know it will never be the same without you and I wish I could have saved you as I promised. RIP Sexy you will forever be in my heart and the love of my lifexxxxxxxxx
  3. Last week
  4. Rachel161080

    How to put on weight

    Thank you for the advice Lisa I will ask about the pregablin xxx
  5. LisaC

    How to put on weight

    She may be having some neuropathic pain, there is a big bundle of nerves around the pancreas and liver area and it gave Lewis like a stabbing sharp pain when he moved. They started him on some pregablin which helped, and increased his zomorph and oramorph doses.
  6. Rachel161080

    How to put on weight

    Thank you Lori and Lisa. Mom has been told she is no where near well enough for folfirinox so we are going back to the oncologist tomorrow to be told about gemcitabine/abraxane chemo and to sign some papers. She’s still struggling massively to eat and also can I ask about pain. She is on morphine but has been crying today in excruciating pain. I wanted to take her to a and e but she didn’t want to miss her appointment tomorrow. Eventually it eased a little. I’ve always been under the impression that there is no need for people with cancer to be in pain like that. She currently takes 30mg zomorph in the morning and the same on the evening and then has liquid morphine to top up during the day which she is having more so now because the pain is getting worse. Xxx
  7. Earlier
  8. Our specialist nurses are running free online support sessions over Zoom - find out more on our website. Dates for your diary: Thursday 16th September, 11am - 12.30pm – Coping with Symptoms Thursday 23rd September, 11am - 12.30pm – Managing Nutrition and Pancreatic Enzymes Tuesday 28th September, 11am - 12.30pm – Family, Friends and Carers' Cuppa Tuesday 5th October, 3pm - 4.30pm – Managing Chemotherapy
  9. LisaC

    How to put on weight

    Yes they can reduce the strength if it’s too much for people, the oncologist was going to start Lewis on 80% strength.
  10. Lori

    How to put on weight

    I just finished round 3 of folirinox, and I'm having some trouble eating. Now I'm not as small as your Mom... but what I'm trying to do is really focus on getting to the operation fighting fit. We are very lucky that an operation is an option, so we need to do all we can to get there. We also get to split the chemo - 6 rounds then 6 rounds. I was also told last 6 rounds would be at 80% strength, anyone else heard that? Best of luck with your Mom. Lori
  11. Lori

    Eus

    Sorry I haven't been on here in a while. I had a lot of complications with my EUS - I didn't immediately have any pain, but eventually developed a very servere gallbladder infection, which I'm still dealing with today, around two months later.
  12. whykel

    Eus

    Sorry Lori I forgot to ask. You had a eus didn't you? Well I had mine on tuesday.. Can you please tell me if you had stomach discomfort and low back pain for a few days? I have a dragging sensation in lower abdomen. Thankyou x
  13. whykel

    Eus

    Hi Lori Nice to hear from you.. I'm pleased to hear that you are doing ok. You are a brave lady x Sending you lots of best wishes
  14. Beristere

    Medical tourist insurance

    Health insurance for foreign travelers is the safest and most advantageous way to spend your vacation without worrying about expenses related to unforeseen situations such as trauma or sudden illness, including infection with the COVID-19 virus, within the limit of the entire amount insured. And there are different life insurance rates for different types, but we took the best and with the most opportunities to be better for our family and me and stay carefree.
  15. Does anyone have experience of severe adhesion pain months after the Whipple..has anyone tried massage therapy? Thanks
  16. Hi Lottie My advice to you is not to get hung up on time frames. I don’t think it’s particularly helpful or useful but know from experience that timescales are usually given. Some people exceed the timescales, others unfortunately not. My husband was diagnosed in August 19 , aged 54 with terminal pancreatic cancer with liver mets and was told an average of 6 months. He had 21 rounds of palliative chemo and various procedures but very sadly died in April of this year. Although 19 months exceeded the timescale, of course we all wanted more. It was especially difficult through the pandemic as we were shielding and not able to do the things we could and would have done otherwise, though thankfully we did manage a couple of short trips away in the countryside, took plenty of photographs and now cherish these memories. What I would say is try and do all the things mum wants to do if she is well enough, if you can enjoy trips out, or just be together and talk. I would say this was the most important thing, just talking, hugging and being together. We spent many days in the pandemic in the garden on our garden chairs not doing anything in particular but just being together. Does it matter if the house is untidy etc, in the big scheme of things - no. Just take one day at a time and try not to focus on what lies ahead - I know easier said than done. The nurses at pcuk are fantastic, they have a wealth of knowledge. I don’t know what we as a family would have done without them. Please make sure you get support too, as a carer it’s a tough road and your head must be filled, as mine was, with very many thoughts and emotions. I wish you all the very best x
  17. Lottie I'm so sorry to hear of your mother's diagnosis. My thoughts are with you tonight. In similar case my brother 74 had no symptoms at all other than a complaint of a body itching. He didn't even inform his Dr. It was only his regular attendance of his blood test for his Warfarin medication that they discovered with further testing he had a "small lesion on the head of the Pancreas". Within weeks of fast tracking he was in hosp preparing for a Whipple op and just the day before the op he turned jaundiced. Id like to say after he recovered from his Whipple op (3 months) he gained strength and became his fit usual self again. Jaundice free. He was up and about socialising. No pain reported by him and ate well and took Creon with all meals. His condition remained VERY stable for 12 months. Then during the year's anniversary with the consultant he revealed "a spread of cancer spots to his liver and lungs" He continued still reasonably able, walking, eating, he was informed his prognosis was poor in the ' short term' but Bro refused palliative chemo ( his choice) he also didn't wish to hear how ' long' he had. But after a further 3 weeks we began to see a lot of thickness to his legs and the weight gain was build up of fluid to the lower half of his body for a further two weeks, before his passing. Everyone is differently affected in so many different ways as you will see on the site here with people writing of their experiences.
  18. Skippy

    Weight loss

    It's good that your Dad has retained an appetite my bro did too. I'd start my bro's day off with the blender using Appro almond milk and a banana blue berries raspberries and a heaped table spoon of "protein powder " purchased on line. Then offered him a variety every couple of hours of whatever he felt like eating. He loved his Tin's of Semolina and Rice puddings with blob of strawberry jam. He took couple of Creon tablets each bite of food, and yet often suffered with diarrhea but when we increased his intake to 5 creon tablets the diarrhea stopped. It was trial and error, but it worked, Creon greatly assisted with his wind and burping. We emailed the dietician via his drs surgery about "protein shakes" and within 24 hrs received a case of 24 bottles bottles delivered to his door. I'd just say little and often whatever he feels like. My bro enjoyed his pan of mixed chopped veg boiled up and seasoned- again partially blended. Scrambled eggs on toast. Even his fish and few chips. It's hard going and I do feel for you at this time. He didn't have the strong Firenfox he had the milder one. He gave his experiences of symptoms of the chemo to the chemo nurse who I believe was able to supply further meds to assist him through it. I'm thinking of you.
  19. miraten

    Weight loss

    I'm sorry that you and your father are going through this. I think he will be like that as long as he goes through chemotherapy. Just try to support him and talk to the doctor about any changes that appear. My mom also went through chemotherapy, and we always did her shakes with yogurt and fruits, like berries and bananas. These yogurts are light, and she doesn't feel so bad after her chemo treatments. Don't do the ones you find in the videos where people talk about how they lose weight. Their shakes are good, but not in this case. I wish your father a speedy recovery!
  20. She may be stronger due to the creon she is able to absorb more of the nutrients from her meals and with the help of the stent also. It’s difficult to say how long someone can manage without treatment. my fiancé was very unwell with his symptoms and side effects of the cancer, infections, pulmonary embolism swollen legs due to enlarged liver from the metastasis and the beginning of jaundice. He managed less than 5 weeks after his diagnosis.
  21. Hello everyone. My dear mum received a shock diagnosis of pancreatic cancer at the beginning of May. She is 76 years old, previously fit, healthy and active. Her only symptom was intense itching all over for a couple of weeks. The GP told me he was worried about obstructive jaundice and ordered urgent blood tests which confirmed his thoughts. She was told to go to the Day Unit of our local hospital and may be admitted. This was the Thursday before Good Friday. They didn't seem too worried, looked at her notes and said they thought the cause of this was a previously diagnosed gallbladder polyp which she had had for about 5 years, but was left alone as no symptoms. They said she didn't need any more scans/tests etc and to come back the following Tuesday. Over that weekend her wee and poo had both changed and as I dropped her off once more at the day unit (couldn't stay with her due to COVID), I advised the nurse she had more symptoms. She was sent home again and told they would do an urgent referral to Gastro, but to go to A & E if jaundiced. I rang the hospital as so worried and got an appointment with Gastro in two weeks' time, however this was just a telephone consultation. By the Sunday, mum was feeling really unwell and severely jaundiced. I rang an ambulance and she was admitted. After 2 weeks in hospital, apparently normal ultrasounds, liver biopsy and blood tests, I was told that they had got to the bottom of her symptoms and the jaundice was caused by her cholesterol medication and she would be home in a couple of days. However, mum was told they were going to get a second opinion from a specialist liver hospital to check they were not missing anything. They ordered a CT scan and reviewed the results themselves. This unfortunately showed a mass on the head of the pancreas. An ECRP stent was inserted a few days after, after which mum developed sepsis and really deteriorated. A chest x-ray had shown lung nodules. Mum was too unwell for a PET scan and was told her cancer was terminal and she had weeks/months. She declined palliative chemo as wanted quality of life. Mum came to live with us mid-May. She was so poorly initially but now you wouldn't know she was ill. She really struggled with sickness but that is under control with medication and she has Creon with food. I'm struggling with how she can be so well now four months later and wonder if this is normal. I know the stent is keeping her stable, but think she can't be this well with this diagnosis. If anyone can help at all with their experience I would be so grateful. Are we really looking at a couple more months ? Thank you everyone.
  22. Rachel161080

    How to put on weight

    Thank you for your reply, her eating has decreased even more since I lasted posted so I shall definitely try the avocado tomorrow whether she likes it or not haha
  23. Dr. Evil

    How to put on weight

    I came home yesterday from the deli with some freshly made fishsoup for my mother. Pretty much the best restaurant in town for that dish so it`s all the way up there. The first thing she said when i met her was "if it`s food you`re hauling, i probably don`t want it" Well long story short, she consumed almost half the bowl and seemed to be very thankful afterwards. I think she mentioned she isn`t supposed to eat anything hot so i she did wait for the soup to become luke warm. Fuzzy eater eh, i say give her some ripe plain avocoado that`s food for kings. I just gave my mum four teaspoons. In addition to the Creon enzyme pills it helps lube her insides also i should think. If she says no just overrule her, lol. They say not to pressure patients into eating but what option ars there if they can`t sustain their own bodyweight? I wish you luck.
  24. Dr. Evil

    Chemo care box - GEMCAP

    My mother (71) recently went through a rather strong chemo treatment hoping to send the tumor into recession but it didn`t do any good. It literally wrecked havoc on her systems and in the span of just a couple months ruined her turning her into an old person. She was a very fit & healthy individual before chemo even after losing around 30lbs. She has lost her fine motor skills, her balance and agility, big problems eating/swallowing anything herself, tongue fungus issues and probably more. Seems her whole system has just slowed down and having problems remembering and focusing. I have to be there for her prettty much 24/7 to make sure she is ok. Too much time spent in bed is making her lethargic so i have my work cut out for me trying to motivate her in such a troubled time. I am sure there is a side to this that is psychological which is even harder to fix. Losing your appetite can take away your spark. I feed her five times a day via a feeding tube and make sure she is hydrated. I don`t hold back an inch, i tell it as it is, this is info that needs to be shared and that goes for you too! If anyone knows if genetic sequencing can help "taylor" a chemomixture specifically for an individual, please let me know. I know way too little about this terrible disease and what to do.
  25. Support Team

    Managing Chemotherapy - online support session

    until
    Find out more, and book, at www.pancreaticcancer.org.uk/onlinesupportsessions.
  26. HI Vic C Thanks for that and nice to hear from someone. Just catching up having had a weeks holiday. (ha ha) feel as though I need another one. I agree it sounds scary. Have a recall scan this Sat 4th Sept, can't say I am calm, can only see what they say after the scan. Good luck to you as well. If you cam keep in contact. Gertie
  27. sutton0607

    Chemo care box - GEMCAP

    Thanks for your responses. Unfortunately Mum is no longer strong enough to have chemo. Xxx
  28. Rachel161080

    How to put on weight

    Hi Lisa, thank you very much for your helpful advice. Yes she can tolerate soups so I will def add more calories to them with the butter /cream x
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