General chat
A forum for any other issues around pancreatic cancer.
305 topics in this forum
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Thank you Lovely people!
by Thriae- 1 reply
- 5.8k views
Well, I completed the Virgin London MArathon yesterday in memory of Dad who died in November. Many of you sponsored and supported me with good wishes and donations to Pancreatic Cancer UK and I am extremely greatful. I've not been back here really since dad's funeral as I found it very hard, but wanted to come and share the closing of this chapter with you. The training has been part of my grief journey and you guys were here with me as I began that journey. Love to you all x Aimie
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When no one understands
by Guest Fifi- 18 replies
- 14.1k views
I read on here people that have a lot of support and love from their partners, but what happens when you don't get that love and support? I don't feel that I have that with my partner. He sighs when I mention my dad. He huffs and puffs when we go and visit him. He is unsupportive of how I feel. When I cry he says what now? Both his parents are alive and well, so he has no idea how I feel. I just really don't know what to do. He is incredibly selfish anyway, but it is really showing right now. I am absolutely heartbroken. I love my dad so very very much and I don't want this for him. I can't bare what he has. I can't bare what is going to happen to him and I c…
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Mike - Cestrian 1 2
by J_T- 26 replies
- 21.9k views
I was worried about not hearing from him and I remembered he had posted a news article about his lovely daughter which I found and then subsequently found this. Only seems to take the best this wretched disease. We miss you Mike, you were so full of life and positivity. May you rest in peace. Love & Peace Julia x http://chestereasyriders.blogspot.co.uk/2014/03/mike-morley-1944-to-2014.html
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e-Petition
by MSH- 23 replies
- 16.5k views
http://epetitions.direct.gov.uk/petitions/48389 29,620 signatures and we have 2 months to get to 100,000. Can it be done? Signed.
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Disgusting doctor, was this legal?
by Guest Fifi- 10 replies
- 9.3k views
Bit of background first - The doctor that didn't diagnose my dad correctly, I have made a complaint about him. He wrote back me, or his secretary did, unsigned as well. I have also complained to NHS England, still waiting ti hear from them. Today, I went to visit my dad. When I got there, he said the said doctor was coming round to see him, to talk about his wellbeing. I wasn't very pleased. My dad told me to wait in the other room. I did, but I could hear everything. My dad told him that I wasn't coming in because I was mad with him. My dad told him he should have diagnosed him sooner, and that if it wasn't for himself ( my dad ) then he would still be going bac…
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Are there any support groups in London?
by Muzzy64- 3 replies
- 6.3k views
I have just become aware of this online support forum for people with pancreatic cancer and imagine that I will be using it a lot over the next few months/ years (hopefully). I was wondering are there any face to face support groups for people with serious life threatening illnesses such as PC in London area. I have friends who use AA to cope with their common problem with Alcohol and it can work very well indeed.
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Interesting article
by LindaH- 1 reply
- 8.5k views
I hope I'm posting on the correct part of the board, please forgive if not, but I thought this was quite a nice article. Linda http://www.social-consciousness.com/2013/02/fifteen-year-old-invents-cancer-diagnosing-method.html#!/2013/02/fifteen-year-old-invents-cancer-diagnosing-method.html
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- 6 replies
- 7.4k views
Hi everyone. I know there are lots of fundraisers out there and here is one more! My daughter Kate, and her boys, my gorgeous grandsons, are running the Manchester 10K for Pancreatic Cancer UK who were such a help to us in so many ways when Ray was ill. Some of you know her as a user of the forum (KATB). I know cash is tight for lots of people but just a little goes a long way and it all adds up. ANY amount is most welcome for such a worthy cause. We have to try to beat this blighter one way or another! Thanks in advance of any donation http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=Kateandtheboys&isTea…
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Can I get tested?
by Postmanpat- 2 replies
- 6.2k views
Hello, Just wondering if anybody can give me some advice. I'm 31 and both my mums parents passed away from pancreatic cancer just wondering if I can get tested as I don't think my mum wants to get tested as she's recently got diabetes and that's what my grandad got a few years before he died from pancreatic cancer, I keep on at her to tested but she's not budging Views and advice please Thanx
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Maestro trial
by Guest Fifi- 13 replies
- 11.9k views
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The Purple Parade Charity Walk
by Annie14- 7 replies
- 10.3k views
Hello Everyone, My husband, aged 36, has now had his third folfirinox treatment and is coping well. He feels he wants to start giving something back so we have organised a charity family walk to raise funds for Pancreatic Cancer UK. The Purple Parade walk is taking place on May 11th 2014 at 10.30am in Milton Keynes. If you are local please join us on the day to spread the message that this dreadful disease requires more attention and funding in order to improve survival rates. We hope it will be a fun filled family affair with everyone boldly parading in the purple colours of pancreatic cancer. There will also be a relaxed "after party" at a local bar to rest those wea…
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Kerry Harvey Died Today
by J_T- 11 replies
- 11.5k views
She is the young girl in the 'I Wish I Had Breast Cancer' campaign. She was 25 years old. So very, very sad. edit: Sorry, she was 24 (Pancreatic Cancer Action UK) Twitter said 25. Too soon anyway and yes Mark, I too hope some people reflect on their viciousness.
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Is it worth complaining?
by Guest Fifi- 5 replies
- 6.8k views
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15,000 VIEWS!!!! #CanCan4PanCan AMAZING :-)
by InfoForMum- 7 replies
- 8.8k views
Hi all, I've been following the #CanCan4PanCan campaign. People who normally wouldn't and possibly shouldn't high kick like loonies to a great backing track to raise awareness. If you're on Twitter or FB perhaps you can help get the #CanCan4PanCan tag trending and help this make a massive splash? Take care all Sarah XXX
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Eric Ollerenshaw MP on Radio 5 Live
by cestrian- 3 replies
- 6.7k views
Hi All Eric Ollerenshaw the MP for Fleetwood and Lancaster sadly recently lost Michael his partner of over 35 years to Pancreatic Cancer. As an MP he feels that he is in a good position to draw attention to the lack of progress in the diagnosis and treatment of of Pancreatic Cancer. He was on the Steven Nolan show at around 12.30 a.m. this morning and attempted to use this platform to publicise the problems faced by anyone suffering from this cruel illness but was shamelessly sidetracked by Nolan who seemed more interested in probing his relationship with his recently deceased partner. Obviously thought to be of more interest to his audience as Eric was probably…
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Pancreatic Cancer Action Network
by Slewis7313- 5 replies
- 7k views
I am a Facebook friend with Pancreatic Cancer Action Network in the States and today they posted a recent 1 hour webinar by an American specialist. It is amazingly informative and well worth sitting down for an hour to watch on Youtube. There are some differences in how they do things across the water, but the lady broaches on many aspects of what we regularly discuss, including Abraxane (which she refers to as Paclitaxel) Some of the information relates to very specific survival times, which are not easy reading, but overall worth a read. Steve X
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Redemption penalty for paying mortgage off
by Annie14- 0 replies
- 5.2k views
Hi everyone, I was just wondering if anyone had been in a position whereby they paid off their mortgage following their diagnosis and wether or not you had to pay the redemption charge for paying the mortgage early or did they waive it given the circumstances. I was just hoping to get an idea of if it is possible before we phone mortgage company. Thanks.x
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Roger Lloyd Pack dies of PC
by J_T- 1 reply
- 6.4k views
http://www.bbc.co.uk/news/entertainment-arts-25762006 very sad. Another lost opportunity though.
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Travel Insurance scam
by LindaH- 7 replies
- 13.6k views
Hi, Well bless my soul, they - Travel Insurance Thieves - are certainly trying to steal my money..... My hubby and I would like to travel to New York for 4 days for my 60th birthday....count them....4 days that's all....best quote to date £2764 Fantastic. The flippin' hotel & flight cost less than that for the two of us. Crazy. Have I got leprosy NO....but you would jolly well think I had, because I am being treated like a Leper. There is one company who gave me a quote of high hundreds and were actually very apologetic about it being so high, but as for the rest, they are discriminating me at a time when I am at a low ebb and vulnerable (I'm not, I'm ac…
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Dad Just Diagnosed 1 2
by Tina1975- 26 replies
- 22k views
Hi...this is the first time on the forum, although I have been reading the posts for the past few days. I am just really after some advice... My dad(64)has just been diagnosed with pancreatic cancer, but I am still unsure of alot of things really. It only started about two months ago, although for a few weeks before I noticed he started to look older and had lost weight, then I went on holiday...when I returned I could not believe his weight loss. He told me he had been for some tests, and that his diabetes had gone through the roof!! He has lost about two and half stones in the space of 4/5 weeks. Anyway he was then sent for scans, endoscopy and then ct scan, and t…
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An Evening with Suggs
by J_T- 2 replies
- 6.2k views
Thinking of going next year. http://www.pancreaticcancer.org.uk/fundraise/special-events Here is a video of the highlights of this year's event. http://www.madness.co.uk/2013/08/02/an-evening-with-suggs-and-friends-for-pancreatic-cancer-uk/
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New U.S. trial starting?
by washingtonmike- 5 replies
- 7.5k views
I've found only this scant information about a new trial using the common cold virus. Thought I would share it. Cheers, Mike http://www.nbc4i.com/story/24037701/trial-uses-common-cold-to-fight-pancreatic-cancer
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- 3 replies
- 6.3k views
Kate emailed me this link. Sounding good! http://www.telegraph.co.uk/science/science-news/10463711/Cancer-gene-not-undruggable.html
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It had to be done so I did it
by LindaH- 8 replies
- 8.4k views
I suppose it helps knowing the receptionist at the funeral directors so I knew I could ask about arranging my funeral and not come away completely confused. Actually he came to me and put me at ease straight away. In fact he laughed when I said "For goodness sake don't drop me as you're carrying me down the aisle". No-way am I being put in a box...brrr....shiver at the thought; no, I'm having a lovely Willow pink and white Casket and it looks really nice; plus I want to be cremated. The music into the chapel is going to be "Someday we'll be together" Diana Ross the Supremes & the Temptations followed by the hymn "The Day Thou Gavest Lord As Ended" then my daught…
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Trial at XX 1 2
by kwaitang- 29 replies
- 21.3k views
My husband, Keith, has been selected to start clinical trials at xx hospital in xx. He was scheduled to start next Wednesday but we have since had a call to say that it has been delayed because the previous scan was not clear enough and thay needed to do naother one (his fifth). So now we wait yet again. The treatment will run alongside chemotherapy. The drug is called VANDETARINE ( don't know how to spell it) and apparently only 50% of patients are given this drug and the other 50% are given a placebo. The doctor says that they are not involved in the selection of who will recieve the drug and that they just monitor everything and report back to whoever. Has anyone he…