News from Pancreatic Cancer UK
Read the latest updates from Pancreatic Cancer UK and how you can help us.
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- Living with Pancreatic Cancer - new online support sessions
- By Nadia - Support Team,
65 topics in this forum
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Emotional wellbeing and pancreatic cancer - 12th December 2023 (6pm - 7.30pm)
by Nadia - Support Team- 0 replies
- 255 views
Pancreatic cancer impacts every area of life, including mental and emotional wellbeing. Whether you’ve been diagnosed with pancreatic cancer yourself, or you’re supporting someone you love, come along to our free webinar. You’ll meet two of our Specialist Nurses, Nicci and Lisa, who help people affected by pancreatic cancer every day on our Support Line. We’ll talk through some of the different emotional responses you can expect and how to get the right support – from talking to friends and family, to reaching out to us and other organisations, and thinking about when you might need more specialist help. There will be time for questions also. …
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Our new campaign has now launched!
by Nadia - Support Team- 2 replies
- 453 views
Good morning all! You might have spotted across our channels that we’ve now launched our new campaign: Don’t Write Me Off We hope you will join us in telling governments across the UK: don’t write off people with pancreatic cancer. What are we calling for? We’re calling on governments across the UK to urgently fund a faster, fairer treatment and care journey for people with pancreatic cancer – so the NHS can give them the best chance of survival. This journey must be: Faster – Diagnosis within 21 days of being sent for tests, and treatment within 21 days of diagnos…
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Pancreatic Cancer UK needs your help!
by Nadia - Support Team- 0 replies
- 331 views
Afternoon all Over the coming months, we'll be reviewing our support services and exploring the most impactful ways to reach more people. To make sure we make informed, patient-led decisions, we want to understand the experiences and opinions of pancreatic cancer patients and their families. We want to hear from those who have used the charity’s support services and those who have never been in contact with us. There are two ways you can take part. Insight Research Interviews: Share your experiences in a 1-hour, one-on-one interview. Survey: Look out for our shor…
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Our new research strategy!
by Nadia - Support Team- 0 replies
- 571 views
This week we are really pleased to be launching our new research strategy. Our vision is a world where everyone with pancreatic cancer survives to live long and well. Our new research strategy sets out our ambition to ensure that the next five years sees transformational advances in pancreatic cancer research, driving forward the research breakthroughs that will enable us to detect early, treat better, and save lives. If you would like to find out more, here is the link Best wishes, Katherine Research Communications Manager
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Get tailored information about your diagnosis
by Nadia - Support Team- 0 replies
- 511 views
If you or a loved one have recently been diagnosed with pancreatic cancer, our emails can help you get the information and support you need. The emails are tailored to the diagnosis and provide key information over several weeks. Sign up at pancreaticcancer.org.uk/emails
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Side by Side support - for those that are having/or have had surgery
by Nadia - Support Team- 0 replies
- 441 views
If you’ve been told your pancreatic cancer can be removed with surgery, or if you’ve already had the operation, our Side by Side support can connect you with someone who has been through it too. Sometimes, just knowing what to expect can be enough to put your mind at ease. Side by Side is a phone service where you can speak to a trained volunteer who has already had pancreatic cancer surgery. We will try and match you with someone who had a similar type of surgery. If you are interested, find out more here
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Quick question/poll
by Nadia - Support Team- 0 replies
- 418 views
Morning all! A quick favour from us if you have a minute. We’d like to know how many people may be supporting someone living with pancreatic cancer because our services are open to everyone affected by the disease. If you or someone you know has experienced pancreatic cancer, please take our one-question poll and tell us how many people provided practical or emotional support, the link is here As always, thank you in advance for any help you can give us Nadia
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‘Living Well to the End of Life: Palliative Care for Pancreatic Cancer’ webinar
by Nadia - Support Team- 1 reply
- 775 views
Hi all We are hosting a free and online ‘Living Well to the End of Life: Palliative Care for Pancreatic Cancer’ webinar on the 6th September 6pm - 7.30pm. We will be joined by Specialist Nurse Nicola Murphy and Consultant in Palliative Medicine Dr James Davies at this webinar for patients and carers, where we will discuss palliative care, including planning for the end of life. To find out more and book your place, click here Nadia
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‘Treatment for pancreatic cancer if you can’t have surgery’ webinar - 3rd October 6pm
by Nadia - Support Team- 0 replies
- 476 views
Hi all We have a new webinar topic ‘Treatment for pancreatic cancer if you can’t have surgery’ which will be run and hosted by two of our lovely nurses Lynne and Rachel. They will be discussing the non-surgical treatments, including chemotherapy and radiotherapy for those with pancreatic cancer. There will be a focus on how to prepare for these treatments and how to keep well during and in between treatments. They will also cover understanding clinical trials, how they might be useful for those with pancreatic cancer, common terminology and the role of genomics. There will also be a Q&A session where you can ask any questions you might hav…
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Online support sessions for July, August and September - now bookable
by Nadia - Support Team- 0 replies
- 518 views
Hi all, just a reminder that if you're based in the UK and looking for support for yourself or a loved one with pancreatic cancer, join us for online (free) support sessions on: - Managing Nutrition and Pancreatic Enzymes - Coping with Symptoms - Managing Chemotherapy We're also running a Family, Friends and Carers' Cuppa, as well as sessions for those that are living with pancreatic cancer. Our online support sessions are hosted by one of our specialist nurses on Zoom, and are small and informal. They're a chance to meet other people living with pancreatic cancer, share your experiences, ask questions and get support in a con…
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Forum suggestions
by Nadia - Support Team- 1 follower
- 3 replies
- 729 views
Hi all I was thinking about creating some additional threads within the forum, perhaps a thread about nutrition or PERT, chemo, or a thread that doesn't talk about cancer at all? Does anybody have any suggestions or any thoughts about the forum in general? Feel free to reply below or Contact Us with this link Thank you! Nadia x
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Our new App, Medli
by Nadia - Support Team- 0 replies
- 596 views
We know that a pancreatic cancer diagnosis can be overwhelming. Whether it’s you or a loved one who’s affected, there can be a lot to deal with and understand. Our app, Medli, is designed to make a diagnosis easier to navigate by providing you with personalised support and tailored information. Medli can: - Help you keep track of all the appointments and medications that you might need to organise - It’ll keep a record of everything in one place and set reminders to help you keep on top of things - Track symptoms and side effects which can help to inform conversations with your healthcare team - You’ll be able to share your data wi…
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TOMORROW - ‘Ask a Dietitian’ webinar Tuesday 28th March 2023, 6pm — 7.30pm
by Nadia - Support Team- 0 replies
- 649 views
Reminder - our free webinar is tomorrow, 28th March 6pm! It can be hard to manage the digestive problems caused by pancreatic cancer. A dietitian can help, but sadly we know not everybody with pancreatic cancer has access to one. That's why Pancreatic Cancer UK has teamed up with two specialist dietitians to run a free evening webinar on Tuesday 28th March. Rachel Caddy and Lauren Roberts will be talking about the function of the pancreas and how this is impacted by cancer/treatment, and they'll be giving practical tips on topics including: managing pancreatic enzyme replacement therapy (PERT), such as Creon® recognising symptoms of m…
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Online support sessions coming up...
by Nadia - Support Team- 0 replies
- 914 views
Hi all, just a reminder that if you're based in the UK and looking for support for yourself or a loved one with pancreatic cancer, join us for online (free) support sessions on: - Managing Nutrition and Pancreatic Enzymes - Coping with Symptoms - Managing Chemotherapy We're also running a Family, Friends and Carers' Cuppa, as well as sessions for those that are living with pancreatic cancer. Our online support sessions are hosted by one of our specialist nurses on Zoom, and are small and informal. They're a chance to meet other people living with pancreatic cancer, share your experiences, ask questions and get support in a con…
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‘Ask a Dietitian’ webinar - Tuesday 28th March 2023, 6pm — 7.30pm
by Nadia - Support Team- 0 replies
- 773 views
It can be hard to manage the digestive problems caused by pancreatic cancer. A dietitian can help, but sadly we know not everybody with pancreatic cancer has access to one. That's why Pancreatic Cancer UK has teamed up with two specialist dietitians to run a free evening webinar on Tuesday 28th March. Rachel Caddy and Lauren Roberts will be talking about the function of the pancreas and how this is impacted by cancer/treatment, and they'll be giving practical tips on topics including: managing pancreatic enzyme replacement therapy (PERT), such as Creon® recognising symptoms of malabsorption and malnutrition fortifying your food tackli…
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Cancer Cachexia Network
by Nadia - Support Team- 1 reply
- 1.9k views
Cancer cachexia is a symptom that affects people with a cancer diagnosis including people with pancreatic cancer. Cancer cachexia is known as a ‘wasting syndrome’ and causes loss of appetite, loss of weight, weakness and fatigue among other symptoms. Loss of fat and muscle may cause other symptoms for people. Cancer cachexia is not commonly seen in early stages of diagnosis - it is more common in advanced cancer disease. We have been made aware of a Cancer Cachexia Network that is available for any interested people. It's a private Facebook group and you can join it here: www.facebook.com/groups/cancercachexia.
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Webinar tomorrow — 'Living Well to the End of Life: Palliative Care for Pancreatic Cancer'
by PCUK Ellie- 0 replies
- 1.2k views
Pancreatic cancer can make planning for the future feel difficult. You may have heard of the term ‘palliative care’, but feel unsure about what this means. ‘Palliative care’ means providing specialist care to manage symptoms such as pain, as well as emotional and practical support. The aim is to help you live as well as possible for as long as possible. Some people find the thought of palliative care upsetting, but these services aren’t just for people at the end of their life. They are available at any point during treatment or care. At Pancreatic Cancer UK, we're grateful to be joined by two consultants in palliative medicine for a free evening w…
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Have you been supported with pancreatic cancer symptoms? Share your experiences.
by Nadia - Support Team- 1 reply
- 1.5k views
People with pancreatic cancer can experience a lot of problems when it comes to digesting food. Weight loss, diarrhoea and other digestion issues can all have a huge impact on daily life. If you currently have pancreatic cancer, have been affected by pancreatic cancer in the past, or have cared for someone with the disease, you can help us by taking our survey. The survey takes under 5 minutes to complete. It asks about the support you have received to help with symptoms caused by nutritional and digestive issues. We’re particularly looking to hear from you if you or a loved one has been affected by pancreat…
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‘Pancreatic Cancer and Diabetes’ webinar, 24/05/22
by PCUK Ellie- 1 reply
- 1.4k views
If you or a loved one has a diagnosis of pancreatic cancer, you may have questions about diabetes. At Pancreatic Cancer UK, we're grateful to be joined by two diabetes specialists for a free evening webinar. There will be a Q&A session at the end so you can ask any questions you might have. ‘Pancreatic Cancer and Diabetes’ webinar Date: Tuesday 24th May, 6pm - 7.30pm Location: Zoom Speakers: Rachel Richardson — specialist pancreatic cancer nurse on Pancreatic Cancer UK’s Support Line Karen Mackie — Diabetes Specialist Dietitian at Royal Surrey County Hospital Beverly Tuthill — Diabetes Specialist Nurse…
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Help us get pancreatic cancer prioritised - email your MP today
by Nadia - Support Team- 0 replies
- 1.1k views
Pancreatic cancer is the deadliest common cancer, but it's been neglected by successive government cancer plans. Now, the Health Secretary, Sajid Javid, has declared a 'War on Cancer', and he's writing a new 10-year cancer plan to back it up. If enough MPs tell the Health Secretary that pancreatic cancer should be a focus of the new cancer plan, the message will get through. Will you ask for your MP’s help to make pancreatic cancer a key part of the new plan? Click here to use our template and email your MP
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Join a workshop to transform pancreatic cancer care
by Nadia - Support Team- 0 replies
- 962 views
We’ve launched a major project to make sure everyone with pancreatic cancer has access to the best care wherever they live in the UK. We’d love to invite you to a workshop on 22nd or 23rd March to share your experiences of the biggest challenges you or your loved one have faced - and your ideas on what could be improved. Sign up for a workshop here: www.pancreaticcancer.org.uk/transforming-pancreatic-cancer-care-workshops
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Join us for our Volunteer Recruitment Fair, online on 23rd February
by Nadia - Support Team- 1 reply
- 1.1k views
Learn more about getting involved with Pancreatic Cancer UK at our Volunteer Recruitment Fair on Wednesday 23rd February. We have a variety of exciting Local Volunteer and Event Volunteer opportunities. Come along to one of our virtual sessions to find out more, hear from volunteers how they enjoy their roles, and meet our Volunteering Team. It’s an informal and relaxed event, so please be reassured that it isn’t an interview but an opportunity for you to ask questions and find out how you can make a difference in your local area. We’ll be running three virtual sessions on 23rd February via Zoom at 10 – 11am, 2 – 3pm and 6 – 7pm – please pick the t…
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‘Living Well to the End of Life: Palliative Care for Pancreatic Cancer’ webinar, 12/01/22
by PCUK Ellie- 1 reply
- 2.1k views
Pancreatic cancer can make planning for the future feel difficult. You may have heard of the term ‘palliative care’, but feel unsure about what this means. ‘Palliative care’ means providing specialist care to manage symptoms such as pain, as well as emotional and practical support. The aim is to help you live as well as possible for as long as possible. Some people find the thought of palliative care upsetting, but these services aren’t just for people at the end of their life. They are available at any point during treatment or care. At Pancreatic Cancer UK, we're grateful to be joined by two consultants in palliative medicine for a free evening w…
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Chat to others at our new online Cuppa
by PCUK Ellie- 0 replies
- 1k views
Pancreatic Cancer UK runs a Family, Friends and Carers' Cuppa every month on Zoom. They're fantastic sessions - sometimes there's laughter, sometimes there are tears, but there's always a wealth of support and understanding. We want to provide the same kind of space for people who have a diagnosis themselves, so we're starting a separate Cuppa, and the first one is this Tuesday 23rd November at 11am. An hour and a half long, on Zoom Just for people with pancreatic cancer Led by trained volunteers who have had a diagnosis themselves You can join late, leave early, have your camera on or off, and share as much or as little as you'd like - this is a…
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'Ask a Dietitian' webinar — Wednesday 3rd November, 6pm
by PCUK Ellie- 1 reply
- 1.9k views
It can be hard to manage the digestive problems caused by pancreatic cancer. A dietitian can help, but sadly we know not everybody with pancreatic cancer has access to one. That's why Pancreatic Cancer UK has teamed up with two specialist dietitians to run a free evening webinar on Wednesday 3rd November. Rachel Caddy and Lauren Roberts will be talking about the function of the pancreas and how this is impacted by cancer/treatment, and they'll be giving practical tips on topics including: managing pancreatic enzyme replacement therapy (PERT), such as Creon® recognising symptoms of malabsorption and malnutrition fortifying your food ta…