News from Pancreatic Cancer UK
Read the latest updates from Pancreatic Cancer UK and how you can help us.
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- Living with Pancreatic Cancer - new online support sessions
- By Support Team,
64 topics in this forum
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Free online support sessions coming up
by PCUK Ellie- 0 replies
- 1.6k views
Our specialist nurses are running free online support sessions over Zoom - find out more on our website. Dates for your diary: Thursday 16th September, 11am - 12.30pm – Coping with Symptoms Thursday 23rd September, 11am - 12.30pm – Managing Nutrition and Pancreatic Enzymes Tuesday 28th September, 11am - 12.30pm – Family, Friends and Carers' Cuppa Tuesday 5th October, 3pm - 4.30pm – Managing Chemotherapy
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Two new opportunities to get involved and have your say
by Support Team- 1 reply
- 1.6k views
We have two new opportunities to get involved with our work and help us improve the experience of people with pancreatic cancer. 1️⃣ Help shape our services We want our support services to reach as many people as possible, so that nobody feels they're facing pancreatic cancer alone. The pandemic has seen an increase in the number of people getting support online, and as we look to the future we're thinking about the role online services might play in helping us make a bigger difference to more people. If you're based in the UK and can spare a few hours to talk to us about your experiences, we'd love to hear from you. …
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Registering and posting
by Support Team- 1 reply
- 1.9k views
We're aware that some people have experienced problems with registering recently - this should be fixed now, but if you encounter any further issues please email us at discussionboard@pancreaticcancer.org.uk. We'd also like to take this opportunity to ask you for your input. The Forum attracts hundreds of visitors, but does experience quiet periods with few posts. We'd like to understand more about what might be stopping people posting, and what might encourage people to. This is your space - we want to make sure it's as welcoming and supportive as possible, and that you feel comfortable sharing here. Whether you're a registered member or a guest, if you'…
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Living with Pancreatic Cancer webinar: Ask a Dietitian
by Support Team- 0 replies
- 1.6k views
If you'd like to learn more about diet, nutrition and PERT, join dietitian Rachel Caddy for a free evening webinar later this month. Rachel works at the Liverpool University NHS Foundation Trust, providing specialist dietetic support to people with pancreatic cancer to help improve their quality of life. She is passionate about educating people on the parts pancreatic enzyme replacement therapy and nutrition play in living well with pancreatic cancer. The webinar will take place on Tuesday 29th June from 6 to 7.30pm, and there will be a Q&A session so you can ask any questions you might have. Register now: www.pancreaticcancer.org.uk/support…
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Welcome back
by Support Team- 0 replies
- 2.3k views
Welcome back to the Forum! Thank you all for your patience while we made the move. If you’re a registered user you’ll need to reset your password and choose a stronger one the first time you log back in. Please click ‘Forgot your password?’ in the Sign In panel in the top right. We hope this new Forum will be more user-friendly, and make it easier for you to find content that’s relevant to you. If you have any feedback, questions or suggestions we’d love to hear them – you can email us at discussionboard@pancreaticcancer.org.uk, or feel free to comment below. Best wishes, Support Team
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Important announcement – please read
by Support Team- 1 reply
- 3.4k views
We’re making some changes to our Discussion Forum, and this means there will be an offline period in two weeks’ time. The Forum will go offline at midday on Tuesday 27th April, and will return looking a little different on the morning of Thursday 29th April. If you are a registered user, you should have received an email about this today. You can find out more here: www.pancreaticcancer.org.uk/support-for-you/our-discussion-forum/changes-to-the-discussion-forum. What do I need to do? We will be improving the security of the Forum by making sure all registered members have strong enough passwords. This means you will need to reset your password the f…
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Did your loved one struggle to get dietary support?
by Support Team- 0 replies
- 2.6k views
All too often we read on our forum about patients who have struggled with the symptoms of problems with digestion due to their pancreatic cancer, such as weight loss or diarrhoea, but didn’t get the help they needed to manage these symptoms straight away – or at all. Pancreatic Enzyme Replacement Therapy (PERT – or you may know it as Creon) can help manage these symptoms, but we know that sadly not everyone is given access to it. At Pancreatic Cancer UK we are particularly looking to speak to family members of pancreatic cancer patients whose cancer was inoperable, yet despite struggling with these symptoms, didn’t get all of the support they needed. E.g. perhaps yo…
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Online surgery support session
by Support Team- 0 replies
- 2.1k views
If you're in the UK and undergoing surgery, recovering from it, or supporting someone who is, you may benefit from our free online support session tomorrow. The session is run by Di, one of our specialist nurses, and you'll be able to ask any questions you might have. You'll also be able to hear from Margaret, one of our Side by Side volunteers, about her experience of pancreatic surgery. When? 11am on Thursday 8th April Where? Zoom Find out more and book: www.pancreaticcancer.org.uk/support-for-you/living-with-pancreatic-cancer-support-sessions/undergoing-surgery-and-recovery
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Online support sessions
by Support Team- 0 replies
- 2.2k views
If you're based in the UK and looking for support for yourself or a loved one with pancreatic cancer, join us for online support sessions on: - Managing Nutrition and Pancreatic Enzymes - Undergoing Surgery and Recovery - Managing Chemotherapy We're also running a Family, Friends and Carers' Cuppa, as well as sessions for people who have been recently diagnosed. Our online support sessions are hosted by one of our specialist nurses on Zoom, and are small and informal. They're a chance to meet other people living with pancreatic cancer, share your experiences, ask questions and get support. For more information, to …
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- 0 replies
- 3k views
We're really keen to hear from people with pancreatic cancer, and their loved ones, about their experiences over the course of the pandemic. If you're based in the UK we'd be grateful if you would take a few minutes to fill out this survey: www.surveymonkey.co.uk/r/WM6T7YJ. By sharing your experiences, you'll be helping us to understand the impact of coronavirus on our community, learn more about its effect on treatment and care, and alert health bodies to the issues people are facing. If you have any questions or worries about coronavirus and how this may affect you and your treatment, we're here for you. You can speak to our specialist nurses on our free Supp…
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Festive Season Support line hours
by PCUK Nurse Dianne- 0 replies
- 2.9k views
Over the coming Festive period the support line opening hours are as follows: Monday 21st and Tuesday 22nd December: 9am - 4pm. Wednesday 23rd December: 10am - 2pm. Thursday 24th December: 10am - 1pm. the support line will be closed on the Public Holidays (Christmas Day, Boxing Day and New Year's Day) and weekends. Tuesday 29th December - Thursday 31st December: 10am - 2pm. Week beginning 4th January 2021: Normal hours 0900 - 4pm. Please do not hesitate to be in touch with us during this period as you may need. If calling the support phone line (0808 801 0707) you are welcome to leave a voice message that we will return as soon as possible on th…
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Scotland Living With Pancreatic cancer support session Tuesday 1st December ion.
by PCUK Nurse Dianne- 0 replies
- 2k views
Join our specialist nurses and other people living with pancreatic cancer at one of our support sessions for people living in Scotland. This session is on Tuesday 1st December 11-12.30am This is an informal session and you will have the opportunity to share your own experiences, ask questions and meet others in a similar position. This session will be online using Zoom. If you haven’t used Zoom before we can send you a simple guide when you book your session. You can register for this session via the link below: https://www.pancreaticcancer.org.uk/managing-the-symptoms-of-pancreatic-cancer-scottish-online-living-with-pancreatic-cancer-support-session/ or …
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Living with Pancreatic Cancer online sessions
by PCUK Nurse Dianne- 0 replies
- 2.1k views
We are currently running on line support sessions for those people with a diagnosis of pancreatic cancer. These are run via Zoom sessions enabling you to join from the comfort of your own home. Upcoming sessions include the following: Wednesday 11th November 11-12.30 - Managing chemotherapy with Jeni & Tracey. Tuesday 17th November 11-12.30 - Support if you are Newly Diagnosed with Rachel & Nicci Thursday 19th November 11-12.30 - Undergoing Surgery or recovery with Lisa and Di Tuesday 24th November 2-3pm - Carer's cuppa with Nicci & Tracey Thursday 26th November 11-12.30 - Managing Nutrition with Jeni & Lynne We will also be running …
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Pancreatic enzyme replacement survey
by PCUK Nurse Dianne- 0 replies
- 6.7k views
People with pancreatic cancer can experience a lot of problems when it comes to digesting food. Weight loss, diarrhoea and other digestion issues can all have a huge impact on daily life. But too few people get the support they need with these symptoms. We want to change this. If you currently have pancreatic cancer, have been affected by pancreatic cancer in the past, or have cared for someone with the disease, you can help us by taking our survey. The link to the survey is: https://r1.dotmailer-surveys.com/2cf21a80503f97526ogv896f0ee4958513b7-89b18dee322868c64ysla7969bce6e5627bd The survey asks about symptoms caused by nutritional and digestive issues, and w…
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Online Support Sessions During Coronavirus
by Support Team- 0 replies
- 5.3k views
The COVID-19 pandemic has had a big impact on everyone’s lives, and if you have pancreatic cancer we know that it has been a very difficult and challenging time. For that reason, we are running a series of free Living with Pancreatic Cancer online support sessions, to help you deal with issues you might currently be facing. The sessions will be relaxed and informal with a small group of people, and each session will last for an hour and a half. These support sessions will be run on Zoom during July and August and will be hosted by our pancreatic cancer specialist nurses and you will be able to speak to them and ask them any questions you have about dealing with pancrea…
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Discussion Forum updates on Thursday 11/6/2020
by PCUK Nurse Dianne- 0 replies
- 3.9k views
There will be some maintenance on the Discussion forum with a down time from 10.00am on Thursday 11/6/20 for approximately 2 hours. If posting around this time there will be an online message to highlight when the Forum is unavailable and again when the Forum is available for use. Should you have any queries or concerns at the time, please do not hesitate to contact the Specialist nurses via email on: nurse@pancreaticcancer.org.uk and we will attempt to rectify your problem. Dianne Pancreatic Cancer Specialist Nurse Pancreatic Cancer UK
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Sign up for regular updates about Coronavirus
by PCUK Nurse Dianne- 0 replies
- 4.4k views
If you are struggling to keep up with all the coronavirus information that’s out there and what it means for you, sign up to regular email updates from our specialist nurses, Lynne and Emma. This information can be sent directly to you by email, around once a week. You just have to sign up to receive them. Please find the link below. Whether it’s how coronavirus might affect your treatment, practical tips on coping with isolation, or digestible explanations of the NHS updates that might affect you, we’ll take the stress out of hunting for trusted information. You can also visit our coronavirus information section at any time. https://www.pancreaticcancer.org.uk/info…
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Treatment and Care during Coronavirus
by PCUK Nurse Dianne- 0 replies
- 5.4k views
We know this is a worrying time for people with pancreatic cancer, and we’re here to support you. The NHS is working hard to keep to plans for essential treatment and care for people with cancer patients, but we know the Coronavirus outbreak may have an impact on these plans. During this time we won’t stop speaking up for people with pancreatic cancer. To help us to do this, we’d like to hear from you. If your pancreatic cancer treatment or care is being affected, or if you are concerned that it might be, we’d be grateful if you could let us know through this short survey. Your feedback will help us to understand and monitor the experiences of our community, and …
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Support Line Closed over Bank Holiday Weekend
by Support Team- 0 replies
- 4.6k views
Please note that our Support Line service will be closed from Friday 10th April to Monday 13th April due to the Bank holiday. Normal hours will resume on Tuesday 14th April from 10am - 4pm. We apologise for any inconvenience caused/
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LGBTIQ+ Cancer Support from Live Through This
by Support Team- 0 replies
- 3.9k views
An update from our friends at Live Through This: Hi all, In response to the novel coronavirus preventing our usual peer support meetings and the postponement of our LGBTIQ+ Cancer Awareness Event, we are working with Maggies to provide an online peer support session. This session is a hosted video chat with multiple key safeguarding controls and a robust policy in place. The hosts are myself with Michael (ex centre head and nurse) and Lianne (head and neck cancer specialist) from Maggies. We hope to provide a space where LGBTIQ+ folk who are in isolation, as per public health and government guidance, can still have an opportunity to connect and discuss issue…
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Update on National Pancreatic Diseases PPI Forum
by Support Team- 0 replies
- 3.7k views
We have received the following udpdate regarding the National Pancreatic Diseases PPI Forum on 15th May: I need to inform you though that given the evolving COVID-19 situation it is with great regret that we have decided to postpone the planned National Pancreatic Diseases PPI Forum due to haven held at The Royal Liverpool University Hospital May 15th. The next Forum is likely to be in 2021 but will be decided at a later date. We are truly sorry that we have had to take this decision and would thank everyone for the huge support and interest shown for this year’s event. We will be in touch again to plan going forwards.
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Coronavirus Update
by PCUK Nurse Dianne- 0 replies
- 3.9k views
Pancreatic Cancer UK has worked alongside other charities called 'Once Cancer Voice' in providing some question and answers for anyone affected by a cancer diagnosis. We have some information that may be helpful to read through on the Pancreatic Cancer UK website if you or a loved one are affected by pancreatic cancer. https://www.pancreaticcancer.org.uk/our-blog/2020/march/advice-on-coronavirus-for-people-with-cancer/ If you have any specific questions relating to pancreatic cancer and impact of the Covid-19 and are unable to reach your local team, please do consider calling the Specialist Nurses on the Support Line. Pancreatic Cancer UK Specialist Nurses Supp…
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Our latest 'Diet and Pancreatic Cancer' booklet is now available
by Support Team- 0 replies
- 4k views
We’ve updated our booklet ‘Diet and pancreatic cancer’, which has lots of information about how to manage symptoms to do with problems with your digestion, such as weight loss. It also has information on how to take pancreatic enzyme replacement therapy (for example Creon®), and how to manage diabetes if you have pancreatic cancer. It also has lots of tips to help you cope with problems with diet and digestion. Order or download your free copy of this booklet: www.pancreaticcancer.org.uk/publications
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Exciting opportunity for you to help Pancreatic Cancer UK
by Support Team- 0 replies
- 7.1k views
Pancreatic Cancer UK have an exciting opportunity for people affected by pancreatic cancer to get involved and help shape their work. We are developing a new website, and would like volunteers who might be able to attend a 2-hour workshop on either Wednesday 26th or Friday 28th February, at our offices in central London. These workshops will give you an important role in designing a better website for people affected by pancreatic cancer, by sharing your own experiences. Refreshments will be provided and we can help with the cost and arrangements of your travel. If you are interested and might be able to attend on one of those dates, Chris from the Digital Team can te…
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- 0 replies
- 3.9k views
Meet Nurse Lisa at our Brighton Support Day on Thursday 27th February We warmly invite you to join us for a supportive and informative day for people living with pancreatic cancer. This free event includes refreshments and talks about various aspects of pancreatic cancer, including managing your diet and symptoms as well as information about the services we provide for people with pancreatic cancer and their families. There will also be plenty of opportunities to discuss any particular concerns with one of our pancreatic cancer specialist nurses. The day is open to anyone affected by pancreatic cancer and you are very welcome to bring a friend, carer or family…