Patient Experience Forum

Moderator: volmod

Forum rules

New Topic

236 topics

Topics

Replies

Views

Last post

Welcome to this new sub forum

Last post by J_T « Sun Mar 23, 2014 6:53 pm
Replies: 92
1

…

3

4

5

6

7
by Support Team » Thu Nov 01, 2012 12:10 pm
92 Replies

182765 Views

Last post by J_T View the latest post
Sun Mar 23, 2014 6:53 pm
Has anyone had to wait ages to see an oncologist despite having a diagnosis?

Last post by Анне « Sat Apr 17, 2021 9:17 am
Replies: 4
by Jamie » Tue Apr 13, 2021 6:38 pm

4 Replies

332 Views

Last post by Анне View the latest post
Sat Apr 17, 2021 9:17 am
Does anything neutralise the taste you get as a side effect of chemo?

Last post by Celeste « Tue Apr 13, 2021 8:45 pm
Replies: 4
by T_pc_slogger » Fri Aug 07, 2020 1:51 pm

4 Replies

2731 Views

Last post by Celeste View the latest post
Tue Apr 13, 2021 8:45 pm
Peripheral neuropathy

Last post by faylemv « Wed Mar 24, 2021 9:46 pm
Replies: 2
by faylemv » Tue Mar 23, 2021 12:05 pm

2 Replies

592 Views

Last post by faylemv View the latest post
Wed Mar 24, 2021 9:46 pm
Folfirinox..how many rounds?

Last post by JayneP « Tue Mar 23, 2021 10:27 am
Replies: 9
by taoofpooh » Sat Sep 26, 2020 10:50 am

9 Replies

5362 Views

Last post by JayneP View the latest post
Tue Mar 23, 2021 10:27 am
Referred pain

Last post by faylemv « Mon Mar 22, 2021 9:58 am

by faylemv » Mon Mar 22, 2021 9:58 am

0 Replies

264 Views

Last post by faylemv View the latest post
Mon Mar 22, 2021 9:58 am
Distal pancreatectomy and splenectomy

Last post by Daisy1112 « Thu Mar 18, 2021 6:30 am
Replies: 3
by Daisy1112 » Sun Mar 07, 2021 8:04 pm

3 Replies

558 Views

Last post by Daisy1112 View the latest post
Thu Mar 18, 2021 6:30 am
FOLFIRINOX Side Effects

Last post by Skippy « Thu Feb 11, 2021 3:27 pm
Replies: 2
by diane » Thu Feb 11, 2021 10:02 am

2 Replies

874 Views

Last post by Skippy View the latest post
Thu Feb 11, 2021 3:27 pm
Nano Knife for Stage 3 inoperable PC

Last post by mags051 « Fri Oct 23, 2020 4:27 pm
Replies: 3
by Nellie656 » Sun Sep 09, 2018 5:04 pm

3 Replies

12080 Views

Last post by mags051 View the latest post
Fri Oct 23, 2020 4:27 pm
Side effects of Folfirinox

Last post by PCUK Nurse Rachel R « Wed Sep 23, 2020 11:52 am
Replies: 3
by Grace15 » Mon Sep 21, 2020 12:18 pm

3 Replies

2754 Views

Last post by PCUK Nurse Rachel R View the latest post
Wed Sep 23, 2020 11:52 am
Reaction to Folfirinox, reassurance needed please.

Last post by PCUK Nurse Jeni « Wed Sep 09, 2020 4:02 pm
Replies: 3
by Clare0282 » Tue Sep 08, 2020 9:53 pm

3 Replies

2921 Views

Last post by PCUK Nurse Jeni View the latest post
Wed Sep 09, 2020 4:02 pm
Advise and support needed

Last post by PCUK Nurse Dianne « Fri Aug 28, 2020 2:46 pm
Replies: 1
by Leannboscarini575 » Thu Aug 27, 2020 5:12 pm

1 Replies

2500 Views

Last post by PCUK Nurse Dianne View the latest post
Fri Aug 28, 2020 2:46 pm
Newbie - Whipples upcoming, inconclusive biopsies

Last post by angelina27 « Sat Aug 22, 2020 6:31 pm
Replies: 8
by angelina27 » Wed Aug 05, 2020 1:31 pm

8 Replies

3742 Views

Last post by angelina27 View the latest post
Sat Aug 22, 2020 6:31 pm
First folfirinox experience

Last post by Hopeforcure « Wed Jul 29, 2020 3:18 pm
Replies: 4
by Mo2020 » Thu Jun 25, 2020 4:12 pm

4 Replies

3498 Views

Last post by Hopeforcure View the latest post
Wed Jul 29, 2020 3:18 pm
First folfirinox experience

Last post by PCUK Nurse Jeni « Wed Jun 17, 2020 1:09 pm
Replies: 70
1

2

3

4

5
by kate2101 » Fri Jul 13, 2018 9:53 am
70 Replies

96432 Views

Last post by PCUK Nurse Jeni View the latest post
Wed Jun 17, 2020 1:09 pm
Recently diagnosed and concerned about surgery and chemotherapy

Last post by RoyBoy « Wed May 20, 2020 9:55 am
Replies: 7
by FishNChipPapers » Tue Apr 21, 2020 8:49 pm

7 Replies

6857 Views

Last post by RoyBoy View the latest post
Wed May 20, 2020 9:55 am
Newly diagnosed - struggling with chemo

Last post by memorris50 « Sun Mar 29, 2020 5:02 pm
Replies: 6
by Nighean » Wed Jan 08, 2020 7:24 pm

6 Replies

6684 Views

Last post by memorris50 View the latest post
Sun Mar 29, 2020 5:02 pm
Newbie

Last post by dave b « Fri Mar 27, 2020 7:38 pm
Replies: 8
by dave b » Mon Mar 16, 2020 9:49 pm

8 Replies

5096 Views

Last post by dave b View the latest post
Fri Mar 27, 2020 7:38 pm
Public v private information

Last post by dave b « Mon Mar 23, 2020 7:23 pm
Replies: 2
by dave b » Fri Mar 20, 2020 10:09 am

2 Replies

3133 Views

Last post by dave b View the latest post
Mon Mar 23, 2020 7:23 pm
Pale stool/low bile production

Last post by PCUK Nurse Rachel R « Fri Feb 21, 2020 3:13 pm
Replies: 1
by JohnDoe60 » Thu Feb 20, 2020 12:30 am

1 Replies

3603 Views

Last post by PCUK Nurse Rachel R View the latest post
Fri Feb 21, 2020 3:13 pm
5 years post Whipple surgery

Last post by Sammi12 « Fri Jan 31, 2020 2:16 pm
Replies: 4
by mummy.may » Wed Aug 28, 2019 12:37 am

4 Replies

14465 Views

Last post by Sammi12 View the latest post
Fri Jan 31, 2020 2:16 pm
Newbie.

Last post by thenextmrsclooney « Mon Jan 13, 2020 1:54 pm
Replies: 7
by Pete. » Fri Nov 22, 2019 11:44 am

7 Replies

18433 Views

Last post by thenextmrsclooney View the latest post
Mon Jan 13, 2020 1:54 pm
Eating regime

Last post by Nighean « Sat Jan 11, 2020 7:37 pm

by Nighean » Sat Jan 11, 2020 7:37 pm

0 Replies

3745 Views

Last post by Nighean View the latest post
Sat Jan 11, 2020 7:37 pm
Newly diagnosed Advanced pancreatic cancer

Last post by b9_iwish « Mon Jan 06, 2020 11:55 pm
Replies: 2
by Athena » Mon Jan 06, 2020 12:45 pm

2 Replies

5430 Views

Last post by b9_iwish View the latest post
Mon Jan 06, 2020 11:55 pm
Awaiting Treatment

Last post by Myjourney « Mon Jan 06, 2020 6:24 pm

by Myjourney » Mon Jan 06, 2020 6:24 pm

0 Replies

3725 Views

Last post by Myjourney View the latest post
Mon Jan 06, 2020 6:24 pm
Tumour markers rising during chemo

Last post by thenextmrsclooney « Fri Jan 03, 2020 11:33 pm

by thenextmrsclooney » Fri Jan 03, 2020 11:33 pm

0 Replies

3387 Views

Last post by thenextmrsclooney View the latest post
Fri Jan 03, 2020 11:33 pm
Help with floating stool and weight loss

Last post by PCUK Nurse Nicola « Tue Dec 31, 2019 2:33 pm
Replies: 3
by JohnDoe60 » Fri Dec 27, 2019 12:02 pm

3 Replies

5028 Views

Last post by PCUK Nurse Nicola View the latest post
Tue Dec 31, 2019 2:33 pm
Newly diagnosed with Stage 3 locally advanced PC

Last post by Pete. « Thu Dec 05, 2019 8:22 pm
Replies: 14
by ValJean » Fri Jun 07, 2019 8:19 am

14 Replies

26848 Views

Last post by Pete. View the latest post
Thu Dec 05, 2019 8:22 pm
Intense pain

Last post by PCUK Nurse Nicola « Tue Dec 03, 2019 2:43 pm
Replies: 1
by newcopernicus » Tue Dec 03, 2019 1:47 pm

1 Replies

4105 Views

Last post by PCUK Nurse Nicola View the latest post
Tue Dec 03, 2019 2:43 pm
Locally advanced head of Pancreas Adenocarcinoma with locoregional lymphadenopathy

Last post by Borobi « Wed Nov 06, 2019 9:47 pm
Replies: 2
by besb421 » Sun Nov 03, 2019 11:36 am

2 Replies

9237 Views

Last post by Borobi View the latest post
Wed Nov 06, 2019 9:47 pm
Mom was Diagnosed with Borderline Resectable PC

Last post by JohnDoe60 « Sat Jul 27, 2019 2:58 am
Replies: 2
by JohnDoe60 » Thu Jul 25, 2019 6:28 am

2 Replies

9067 Views

Last post by JohnDoe60 View the latest post
Sat Jul 27, 2019 2:58 am
Latest CT scan - conflicting result

Last post by Desso « Wed Jul 03, 2019 4:48 pm

by Desso » Wed Jul 03, 2019 4:48 pm

0 Replies

11328 Views

Last post by Desso View the latest post
Wed Jul 03, 2019 4:48 pm
Result worries

Last post by PCUK Nurse Jeni « Fri Mar 22, 2019 4:48 pm
Replies: 10
by Mohammad » Wed Mar 06, 2019 5:03 pm

10 Replies

15504 Views

Last post by PCUK Nurse Jeni View the latest post
Fri Mar 22, 2019 4:48 pm
23, really worried about pancreatic cancer

Last post by mostu « Mon Mar 11, 2019 4:55 pm

by mostu » Mon Mar 11, 2019 4:55 pm

0 Replies

7950 Views

Last post by mostu View the latest post
Mon Mar 11, 2019 4:55 pm
Some general advice please.

Last post by PCUK Nurse Jeni « Thu Mar 07, 2019 3:28 pm
Replies: 1
by taoofpooh » Thu Mar 07, 2019 10:15 am

1 Replies

8006 Views

Last post by PCUK Nurse Jeni View the latest post
Thu Mar 07, 2019 3:28 pm
My life with pancreatic cancer

Last post by RoyBoy « Thu Mar 07, 2019 9:19 am
Replies: 2
by rowlie » Sat Feb 02, 2019 6:07 pm

2 Replies

11945 Views

Last post by RoyBoy View the latest post
Thu Mar 07, 2019 9:19 am
Celiac plexus block

Last post by Fernack45 « Fri Feb 22, 2019 8:01 pm
Replies: 1
by Ozoda » Fri Feb 22, 2019 11:14 am

1 Replies

7157 Views

Last post by Fernack45 View the latest post
Fri Feb 22, 2019 8:01 pm
Nano knife for Stage IV PC.

Last post by kate2101 « Sat Feb 02, 2019 10:53 pm
Replies: 41
1

2

3
by toodotty » Tue Jul 31, 2018 4:29 pm
41 Replies

51252 Views

Last post by kate2101 View the latest post
Sat Feb 02, 2019 10:53 pm
Any information would help

Last post by toodotty « Thu Jan 24, 2019 5:23 pm
Replies: 5
by Week20 » Fri Jan 04, 2019 7:57 am

5 Replies

11520 Views

Last post by toodotty View the latest post
Thu Jan 24, 2019 5:23 pm
CBD oil - experience

Last post by patrigib « Wed Jan 09, 2019 10:57 pm
Replies: 6
by Sparklyrebecca » Tue Dec 04, 2018 12:04 pm

6 Replies

12943 Views

Last post by patrigib View the latest post
Wed Jan 09, 2019 10:57 pm
Distal pancreatectomy operation

Last post by Desso « Mon Jan 07, 2019 3:31 pm
Replies: 3
by Lesfleur » Thu Jan 03, 2019 1:21 pm

3 Replies

8695 Views

Last post by Desso View the latest post
Mon Jan 07, 2019 3:31 pm
Folfirinox Round 7

Last post by PCUK Nurse Dianne « Fri Dec 21, 2018 2:08 pm
Replies: 40
1

2

3
by toodotty » Sun Sep 09, 2018 3:06 pm
40 Replies

43500 Views

Last post by PCUK Nurse Dianne View the latest post
Fri Dec 21, 2018 2:08 pm
Just started Folfirinox

Last post by toodotty « Wed Nov 14, 2018 6:28 pm
Replies: 16
1

2
by The_petal » Thu Oct 18, 2018 1:54 pm
16 Replies

22986 Views

Last post by toodotty View the latest post
Wed Nov 14, 2018 6:28 pm
Just diagnosed

Last post by Theresa Upton « Sat Nov 03, 2018 7:40 pm
Replies: 28
1

2
by Theresa Upton » Sat Oct 13, 2018 4:43 pm
28 Replies

31068 Views

Last post by Theresa Upton View the latest post
Sat Nov 03, 2018 7:40 pm
Just diagnosed very odd results

Last post by Janey164 « Mon Oct 22, 2018 3:05 pm

by Janey164 » Mon Oct 22, 2018 3:05 pm

0 Replies

8799 Views

Last post by Janey164 View the latest post
Mon Oct 22, 2018 3:05 pm
Just my story....Michaela1.x

Last post by kate2101 « Sun Oct 21, 2018 6:36 am
Replies: 19
1

2
by Michaela1 » Wed Aug 01, 2018 11:45 pm
19 Replies

26977 Views

Last post by kate2101 View the latest post
Sun Oct 21, 2018 6:36 am
CA19-9 importance?

Last post by toodotty « Thu Oct 04, 2018 5:41 pm
Replies: 4
by Michaela1 » Thu Oct 04, 2018 8:10 am

4 Replies

11246 Views

Last post by toodotty View the latest post
Thu Oct 04, 2018 5:41 pm
Patient View

Last post by toodotty « Tue Aug 14, 2018 3:30 pm

by toodotty » Tue Aug 14, 2018 3:30 pm

0 Replies

8041 Views

Last post by toodotty View the latest post
Tue Aug 14, 2018 3:30 pm
Battling to get treament

Last post by toodotty « Fri Aug 10, 2018 12:12 pm
Replies: 39
1

2

3
by toodotty » Mon Jun 11, 2018 5:31 pm
39 Replies

45218 Views

Last post by toodotty View the latest post
Fri Aug 10, 2018 12:12 pm
Wrong diagnosis?

Last post by toodotty « Mon Jul 02, 2018 10:42 pm
Replies: 1
by Michaela1 » Mon Jul 02, 2018 2:04 pm

1 Replies

9488 Views

Last post by toodotty View the latest post
Mon Jul 02, 2018 10:42 pm

New Topic

236 topics

Return to Board Index

Forum permissions

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot post attachments in this forum