Forums

Forum rules
The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice

Forum

Topics

Posts

Last post

News from Pancreatic Cancer UK Read the latest updates from Pancreatic Cancer UK and how you can help us
Topics: 125

125 Topics

282 Posts

Last post Pancreatic enzyme replacement…
by PCUK Nurse Dianne View the latest post
Tue Oct 27, 2020 8:23 am
Guidance and rules Some tips on how to post on this discussion board, and terms and conditions
Topics: 3

3 Topics

3 Posts

Last post Terms of Use for our Forum
by Support Team View the latest post
Thu Oct 17, 2019 10:00 am
Patient Experience Forum A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).
Moderator: volmod
Topics: 231

231 Topics

4620 Posts

Last post Re: Nano Knife for Stage 3 in…
by mags051 View the latest post
Fri Oct 23, 2020 4:27 pm
Family, friends and carers A forum for family, friends and carers of pancreatic cancer patients
Moderator: volmod
Topics: 583

583 Topics

11923 Posts

Last post Re: Coping with the mental he…
by Borobi View the latest post
Thu Oct 29, 2020 12:18 pm
Treatment & side effects A forum to focus on treatment related issues and side effects from treatment
Moderator: volmod
Topics: 192

192 Topics

1722 Posts

Last post Re: Hair loss with abraxane
by Proud Wife View the latest post
Wed Oct 28, 2020 12:40 pm
Advanced pancreatic cancer A forum for advanced pancreatic cancer issues
Moderator: volmod
Topics: 368

368 Topics

5944 Posts

Last post Re: Life expectancy for Stage…
by PCUK Nurse Dianne View the latest post
Fri Oct 30, 2020 3:11 pm
General chat A forum for any other issues around pancreatic cancer
Moderator: volmod
Topics: 263

263 Topics

2014 Posts

Last post Re: EPI but no known cause
by PCUK Nurse Rachel R View the latest post
Thu Oct 22, 2020 11:21 am
Coping with loss/ Memorial A forum for people to support each other after the loss of a loved one
Moderator: volmod
Topics: 74

74 Topics

795 Posts

Last post Re: Dealing with loss at this…
by PCUK Nurse Dianne View the latest post
Fri Jun 12, 2020 5:33 pm
Ask the nurse Take part in live Q&As with our Pancreatic Cancer Specialist Nurses
Topics: 41

41 Topics

180 Posts

Last post Re: I don’t know what to do
by PCUK Nurse Rachel R View the latest post
Sat Oct 31, 2020 12:03 am

Active topics

Replies

Views

Last post

Registering on the forum

Last post by Support Team « Wed Mar 29, 2017 11:42 am

by Support Team » Wed Mar 29, 2017 11:42 am

0 Replies

30338 Views

Last post by Support Team View the latest post
Wed Mar 29, 2017 11:42 am
How to post messages

Last post by Support Team « Wed Mar 29, 2017 11:41 am

by Support Team » Wed Mar 29, 2017 11:41 am

0 Replies

25071 Views

Last post by Support Team View the latest post
Wed Mar 29, 2017 11:41 am
Pancreatic Cancer UK Discussion Forum & Support Line Service

Last post by Support Team « Fri Apr 29, 2016 3:01 pm

by Support Team » Fri Apr 29, 2016 3:01 pm

0 Replies

21860 Views

Last post by Support Team View the latest post
Fri Apr 29, 2016 3:01 pm
Welcome to this new sub forum

Last post by J_T « Sun Mar 23, 2014 6:53 pm
Replies: 92
1

…

3

4

5

6

7
by Support Team » Thu Nov 01, 2012 12:10 pm
92 Replies

177595 Views

Last post by J_T View the latest post
Sun Mar 23, 2014 6:53 pm
Pancreatic Cancer UK London Marathon Team

Last post by KATB « Tue Apr 02, 2013 2:05 pm
Replies: 4
by Support Team » Mon Nov 12, 2012 9:37 am

4 Replies

28497 Views

Last post by KATB View the latest post
Tue Apr 02, 2013 2:05 pm
I don’t know what to do

Last post by PCUK Nurse Rachel R « Sat Oct 31, 2020 12:03 am
Replies: 4
by JustMe1985 » Sat Oct 17, 2020 1:44 pm

4 Replies

919 Views

Last post by PCUK Nurse Rachel R View the latest post
Sat Oct 31, 2020 12:03 am
Life expectancy for Stage IV

Last post by PCUK Nurse Dianne « Fri Oct 30, 2020 3:11 pm
Replies: 1
by Vasil » Thu Oct 29, 2020 8:41 pm

1 Replies

60 Views

Last post by PCUK Nurse Dianne View the latest post
Fri Oct 30, 2020 3:11 pm
Coping with the mental health aspects of all this.

Last post by Borobi « Thu Oct 29, 2020 12:18 pm
Replies: 8
by Borobi » Thu Aug 13, 2020 2:24 pm

8 Replies

2239 Views

Last post by Borobi View the latest post
Thu Oct 29, 2020 12:18 pm
Hair loss with abraxane

Last post by Proud Wife « Wed Oct 28, 2020 12:40 pm
Replies: 2
by Marta » Fri Oct 09, 2020 1:43 am

2 Replies

2578 Views

Last post by Proud Wife View the latest post
Wed Oct 28, 2020 12:40 pm
Pancreatic enzyme replacement survey

Last post by PCUK Nurse Dianne « Tue Oct 27, 2020 8:23 am

by PCUK Nurse Dianne » Tue Oct 27, 2020 8:23 am

0 Replies

58 Views

Last post by PCUK Nurse Dianne View the latest post
Tue Oct 27, 2020 8:23 am
Nano Knife for Stage 3 inoperable PC

Last post by mags051 « Fri Oct 23, 2020 4:27 pm
Replies: 3
by Nellie656 » Sun Sep 09, 2018 5:04 pm

3 Replies

11414 Views

Last post by mags051 View the latest post
Fri Oct 23, 2020 4:27 pm
EPI but no known cause

Last post by PCUK Nurse Rachel R « Thu Oct 22, 2020 11:21 am
Replies: 1
by Richietosh » Wed Oct 21, 2020 6:19 pm

1 Replies

1015 Views

Last post by PCUK Nurse Rachel R View the latest post
Thu Oct 22, 2020 11:21 am
Numerous IPMN no cancer

Last post by mazza77 « Tue Oct 20, 2020 3:05 pm
Replies: 7
by mazza77 » Mon Oct 19, 2020 9:58 pm

7 Replies

1241 Views

Last post by mazza77 View the latest post
Tue Oct 20, 2020 3:05 pm
Loss of appetite/low mood/ severe back pains post whipple

Last post by PCUK Nurse Dianne « Tue Oct 20, 2020 11:13 am
Replies: 1
by Mini » Mon Oct 19, 2020 9:40 pm

1 Replies

968 Views

Last post by PCUK Nurse Dianne View the latest post
Tue Oct 20, 2020 11:13 am
Folfirinox experiences please

Last post by Uncle Bob « Tue Oct 20, 2020 4:16 am
Replies: 28
1

2
by Didge » Sat Aug 09, 2014 11:20 am
28 Replies

20877 Views

Last post by Uncle Bob View the latest post
Tue Oct 20, 2020 4:16 am
feeling desperate

Last post by Mini « Mon Oct 19, 2020 9:45 pm
Replies: 2
by thomasdowd » Sun Oct 18, 2020 7:57 am

2 Replies

804 Views

Last post by Mini View the latest post
Mon Oct 19, 2020 9:45 pm
feeling desperate

Last post by thomasdowd « Sun Oct 18, 2020 9:14 am

by thomasdowd » Sun Oct 18, 2020 9:14 am

0 Replies

478 Views

Last post by thomasdowd View the latest post
Sun Oct 18, 2020 9:14 am
Successful Surgery in Heidelberg Germany - Inoperable in UK

Last post by Borobi « Wed Oct 14, 2020 4:22 am
Replies: 32
1

2

3
by Amanda J » Fri Nov 08, 2013 11:55 pm
32 Replies

68157 Views

Last post by Borobi View the latest post
Wed Oct 14, 2020 4:22 am
Picc line

Last post by PCUK Nurse Rachel R « Tue Oct 13, 2020 12:51 pm
Replies: 3
by jennypennyroll65 » Fri Oct 09, 2020 3:02 pm

3 Replies

3879 Views

Last post by PCUK Nurse Rachel R View the latest post
Tue Oct 13, 2020 12:51 pm
Folfirinox..how many rounds?

Last post by RoyBoy « Mon Oct 12, 2020 9:20 am
Replies: 4
by taoofpooh » Sat Sep 26, 2020 10:50 am

4 Replies

3241 Views

Last post by RoyBoy View the latest post
Mon Oct 12, 2020 9:20 am
Beyond scared

Last post by FeeD « Fri Oct 09, 2020 9:50 pm
Replies: 6
by FeeD » Thu Oct 08, 2020 2:13 pm

6 Replies

3982 Views

Last post by FeeD View the latest post
Fri Oct 09, 2020 9:50 pm
Pancreatic cancer stage

Last post by PCUK Nurse Rachel R « Tue Oct 06, 2020 3:26 pm
Replies: 4
by Sangavasre » Tue Sep 01, 2020 5:58 pm

4 Replies

2694 Views

Last post by PCUK Nurse Rachel R View the latest post
Tue Oct 06, 2020 3:26 pm
Prostrate

Last post by PCUK Nurse Nicola « Mon Sep 28, 2020 1:54 pm
Replies: 1
by Jess » Mon Sep 28, 2020 9:48 am

1 Replies

1800 Views

Last post by PCUK Nurse Nicola View the latest post
Mon Sep 28, 2020 1:54 pm
Mistletoe therapy

Last post by Buzzbee « Mon Sep 28, 2020 10:28 am
Replies: 2
by Buzzbee » Thu Dec 05, 2019 9:58 pm

2 Replies

5258 Views

Last post by Buzzbee View the latest post
Mon Sep 28, 2020 10:28 am
Side effects of Folfirinox

Last post by PCUK Nurse Rachel R « Wed Sep 23, 2020 11:52 am
Replies: 3
by Grace15 » Mon Sep 21, 2020 12:18 pm

3 Replies

2156 Views

Last post by PCUK Nurse Rachel R View the latest post
Wed Sep 23, 2020 11:52 am
Ascites/Advanced symptoms

Last post by taoofpooh « Fri Sep 11, 2020 7:38 pm
Replies: 2
by Anna2020 » Fri Sep 04, 2020 4:57 pm

2 Replies

2474 Views

Last post by taoofpooh View the latest post
Fri Sep 11, 2020 7:38 pm
Reaction to Folfirinox, reassurance needed please.

Last post by PCUK Nurse Jeni « Wed Sep 09, 2020 4:02 pm
Replies: 3
by Clare0282 » Tue Sep 08, 2020 9:53 pm

3 Replies

2282 Views

Last post by PCUK Nurse Jeni View the latest post
Wed Sep 09, 2020 4:02 pm
Pancreatitis 3 Years After Whipple?

Last post by PCUK Nurse Jeni « Wed Sep 09, 2020 11:19 am
Replies: 6
by concerneddil » Mon Jul 13, 2020 6:56 pm

6 Replies

3282 Views

Last post by PCUK Nurse Jeni View the latest post
Wed Sep 09, 2020 11:19 am
Stages

Last post by PCUK Nurse Rachel R « Thu Sep 03, 2020 3:19 pm
Replies: 2
by Sangavasre » Wed Sep 02, 2020 5:46 pm

2 Replies

2183 Views

Last post by PCUK Nurse Rachel R View the latest post
Thu Sep 03, 2020 3:19 pm
Terrible pain, post whipple.

Last post by Jess « Wed Sep 02, 2020 8:14 am
Replies: 2
by Jess » Mon Aug 31, 2020 9:46 pm

2 Replies

2444 Views

Last post by Jess View the latest post
Wed Sep 02, 2020 8:14 am
Advice from survivors?? I need to save my dad’s life 🙏

Last post by PCUK Nurse Nicola « Tue Sep 01, 2020 3:59 pm
Replies: 6
by hopeandprayers » Sun Aug 30, 2020 11:57 am

6 Replies

2935 Views

Last post by PCUK Nurse Nicola View the latest post
Tue Sep 01, 2020 3:59 pm
Frustrations about decisions

Last post by Debbiergn « Tue Sep 01, 2020 1:16 pm
Replies: 3
by Debbiergn » Mon Aug 17, 2020 10:21 am

3 Replies

2782 Views

Last post by Debbiergn View the latest post
Tue Sep 01, 2020 1:16 pm
Stomach tightness

Last post by hopeandprayers « Mon Aug 31, 2020 7:17 pm
Replies: 4
by Slim Shadey » Tue Apr 07, 2020 11:02 am

4 Replies

5427 Views

Last post by hopeandprayers View the latest post
Mon Aug 31, 2020 7:17 pm
Pancreatic Cancer worry

Last post by Cdcmoon « Sun Aug 30, 2020 4:08 pm
Replies: 65
1

2

3

4

5
by Cdcmoon » Tue Apr 18, 2017 12:16 pm
65 Replies

70894 Views

Last post by Cdcmoon View the latest post
Sun Aug 30, 2020 4:08 pm
School reopening

Last post by PCUK Nurse Dianne « Fri Aug 28, 2020 2:59 pm
Replies: 1
by Jess » Wed Aug 26, 2020 11:35 am

1 Replies

1864 Views

Last post by PCUK Nurse Dianne View the latest post
Fri Aug 28, 2020 2:59 pm
Advise and support needed

Last post by PCUK Nurse Dianne « Fri Aug 28, 2020 2:46 pm
Replies: 1
by Leannboscarini575 » Thu Aug 27, 2020 5:12 pm

1 Replies

2115 Views

Last post by PCUK Nurse Dianne View the latest post
Fri Aug 28, 2020 2:46 pm
Thoracic, abdominal and pelvic CT Scan

Last post by BertDeBlert « Tue Aug 25, 2020 4:27 pm
Replies: 2
by BertDeBlert » Tue Aug 25, 2020 3:04 pm

2 Replies

1900 Views

Last post by BertDeBlert View the latest post
Tue Aug 25, 2020 4:27 pm
Newbie - Whipples upcoming, inconclusive biopsies

Last post by angelina27 « Sat Aug 22, 2020 6:31 pm
Replies: 8
by angelina27 » Wed Aug 05, 2020 1:31 pm

8 Replies

3018 Views

Last post by angelina27 View the latest post
Sat Aug 22, 2020 6:31 pm
Pancreatic Cancer and Whipple Procedures?

Last post by Rht123 « Mon Aug 17, 2020 5:25 pm
Replies: 2
by Rht123 » Mon Aug 17, 2020 11:02 am

2 Replies

2001 Views

Last post by Rht123 View the latest post
Mon Aug 17, 2020 5:25 pm
Pancreatic Cancer and Whipple Procedure.

Last post by Rht123 « Mon Aug 17, 2020 11:01 am

by Rht123 » Mon Aug 17, 2020 11:01 am

0 Replies

1618 Views

Last post by Rht123 View the latest post
Mon Aug 17, 2020 11:01 am
Total pancreatectomy

Last post by PCUK Nurse Rachel R « Thu Aug 13, 2020 3:24 pm
Replies: 1
by Jess » Wed Aug 12, 2020 4:10 pm

1 Replies

1924 Views

Last post by PCUK Nurse Rachel R View the latest post
Thu Aug 13, 2020 3:24 pm
Upcoming SABR radiotherapy

Last post by b9_iwish « Wed Aug 12, 2020 2:17 am

by b9_iwish » Wed Aug 12, 2020 2:17 am

0 Replies

1883 Views

Last post by b9_iwish View the latest post
Wed Aug 12, 2020 2:17 am
Does anything neutralise the taste you get as a side effect of chemo?

Last post by taoofpooh « Tue Aug 11, 2020 1:41 pm
Replies: 2
by T_pc_slogger » Fri Aug 07, 2020 1:51 pm

2 Replies

2057 Views

Last post by taoofpooh View the latest post
Tue Aug 11, 2020 1:41 pm
Can PC cause pressure near spleen?

Last post by PCUK Nurse Nicola « Tue Aug 04, 2020 10:29 am
Replies: 2
by Cdcmoon » Sat Aug 01, 2020 5:15 pm

2 Replies

1987 Views

Last post by PCUK Nurse Nicola View the latest post
Tue Aug 04, 2020 10:29 am
First folfirinox experience

Last post by Hopeforcure « Wed Jul 29, 2020 3:18 pm
Replies: 4
by Mo2020 » Thu Jun 25, 2020 4:12 pm

4 Replies

3027 Views

Last post by Hopeforcure View the latest post
Wed Jul 29, 2020 3:18 pm
Prolapse surgery with pancreatic cancer

Last post by Jo sister « Wed Jul 15, 2020 11:01 am
Replies: 2
by Jo sister » Wed Jul 08, 2020 9:04 am

2 Replies

2427 Views

Last post by Jo sister View the latest post
Wed Jul 15, 2020 11:01 am
Dad's PC - Stage 4 with liver mets

Last post by Borobi « Fri Jul 10, 2020 10:53 pm
Replies: 2
by cmorris34 » Tue Jul 07, 2020 10:58 pm

2 Replies

2958 Views

Last post by Borobi View the latest post
Fri Jul 10, 2020 10:53 pm
Online Support Sessions During Coronavirus

Last post by Support Team « Thu Jul 09, 2020 12:28 pm

by Support Team » Thu Jul 09, 2020 12:28 pm

0 Replies

3422 Views

Last post by Support Team View the latest post
Thu Jul 09, 2020 12:28 pm
Dad’s Pancreatic Cancer

Last post by PCUK Nurse Jeni « Tue Jun 23, 2020 3:16 pm
Replies: 1
by fizzylemon88 » Thu Jun 18, 2020 3:18 pm

1 Replies

2466 Views

Last post by PCUK Nurse Jeni View the latest post
Tue Jun 23, 2020 3:16 pm
First folfirinox experience

Last post by PCUK Nurse Jeni « Wed Jun 17, 2020 1:09 pm
Replies: 70
1

2

3

4

5
by kate2101 » Fri Jul 13, 2018 9:53 am
70 Replies

92931 Views

Last post by PCUK Nurse Jeni View the latest post
Wed Jun 17, 2020 1:09 pm

Return to Board Index