Advanced pancreatic cancer
385 topics in this forum
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My mum
by Jacqueline1982- 2 replies
- 4.7k views
Hi everyone, some of you may remember I posted about a month ago to say my mum had became extremely unwell. I am today writing this as my mum passed away on the 15th February, I stayed with her in the hospital and she is no longer suffering. I will miss her dearly, she was such a brave woman, too young to die at 48. This is an awful disease and the sooner they find a way to diagnose it sooner the better!!! I wish you all the very best, take care xx
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Private Oncology Referral
by Paul Wilkinson- 1 reply
- 4.5k views
My uncle has recently been diagnosed as suffering from pancreatic cancer which has advanced to the liver and lymph glands. I understand that chemotherapy is the only option, and that it will be administered as a palliative remedy, rather than an attempted cure. We are presently waiting on an appointment at XX in Manchester. We would like to explore the possibilty of a private referral to an Oncologist in the UK, mainly to discuss the chemotherapy options (if there are any). Can anybody recommend an expert in this field? Alternatively, if anybody can give us advice from their own experience of the options available to us, we would be very grateful for your input.…
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Please Help
by Jacqueline1982- 2 replies
- 4.9k views
Hi everyone, I am new to this forum. I hope someone can help me. My mum was diagnosed with pancreatic cancer in August and chemo hasn't worked. The tumor is inoperable and she has been going downhill. A few days ago she developed severe swelling on her feet and today has woken up with swelling on her hands and face and no feeling in her hands, she also has low blood pressure. My mum didn't tell us when she was diagnosed that apparently you only have months to live once diagnosed with this type of cancer, mainly to keep us from worrying as I lost my dad in October 07 to cancer. I am extremely worried and I would like to hear from anyone who has been in this situation…
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I'm new- my grandad has just been diagnosed, so sad
by tracyann82- 2 replies
- 4.8k views
My mum called me yesterday to say that my grandad, her dad, had been to the doctor because he keep getting tummy ache and feeling full. He lives in Germany, so he was seen very quickly and had a scan (not sure what type) and he was told there and then what was wrong. My grandad is 75, runs 4 times a week 8 km, goes hiking, bowling and is super healthy and fit...!I have been crying a lot and obviously my whole family is devastated. We havent got many details yet... Initially the doc said that there is nothing that can be done at all but today he asked my grandad to come back in to discuss a referral to a specialist. This is happened next week and another appointmen…
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Are we getting the best treatment?
by svalentine21- 2 replies
- 6k views
My wife, Karen, has locally advanced inoperable adenocarcinoma in the head of the pancreas - diagnosed August 2007. It has not metastisised to any other organs as far as we know. She has gemcitabine + capecitabine in four week cycles with a week off after three sessions (although they have recently removed the capecitabine in an attempt to ensure she's fit enough for the third treatment each cycle). We know that this is the standard treatment, but it has been clear since the beginning that this is basically palliative care, containing for as long as possible. We don't want that; we want to beat this thing. Karen's only 39, very fit and her tumor shrank by up to 50% bet…
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Palliative Care
by jobby29- 11 replies
- 14.2k views
Back in May my mother had an ultra sound after suffering from what she thought was a tummy bug, she was then sent for ct and mri scans, and in mid july we were told that she would need the whipple procedure as she had a tumour in the head of her pancreas,but would need to be built up for her op( she weighed at the time just under 7 stone). After 8 weeks on a drip feed and putting on no weight what so ever we we're told that she isn't strong enough and that she would not survive the operation, chemo wasn't an option. They did tell us that her pain would be managed. Yesterday we had a visit from our local hospice, the doctor was great telling us that if my poor mother wan…
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pain relief
by Nadine- 0 replies
- 4.8k views
My 70 year old mother was diagnosed with advanced pancreatic cancer in Dec 07 (6 months after her first GP visit!). She is taking oxycondone tablets and oxycontin liquid for breakthrough pain. She is having a break from chemo and the pain has increased. Does anyone know/ recommend any alternative methods or had a nerve block. Also, we live in Manchester and wondered if anyone might like to become a 'buddy' as she has not met anyone with a similar cancer at the day hospice she visits. She is unable to communicate via email at the moment. I know she would appreciate talking to someone who really understands what she is going through. Thanks
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- 6 replies
- 18.2k views
Hi I have a question on behalf of my dad (68, diagnosed with metastatic pancreatic cancer on 8th March). Dad has always loved his food and when he started feeling poorly (end of January this year) he started to eat less as he wasn't hungry and when he did eat felt uncomfortable. He was also very constipated (which made him not want to eat much). He was then taken in to hospital in early Feb, which was when the round of investigations leading to his PC diagnosis started. Initially they were looking into his bowel as his main sympton was constipation and distended abdomen. Over the 6 weeks he was in hospital, he started to find that he couldn't eat any food wh…
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- 9 replies
- 16.6k views
Hi all. My mum went into hospital two weeks ago with 'shadows on the lungs' after a chest infection. two days ago she was told she had inoperable PC, with metastes on her lungs, liver and lymph nodes. We met the oncologist yesterday, I was horrified initially as he offered no treatment, just palliative care until I started to talk about Gemzar and Teciva. I am 7 weeks pregnant with her first and only grandchild and she is very motivated to meet him/her. The oncologist seemed to wake up a bit then (I got the strong impression he thought she should just shuffle off and die). Tomorrow consequently she is having a biopsy of a lymph gland and a mammogram as there is a very ou…
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Collapsed Veins
by Guest Barb (Canada)- 1 reply
- 7.7k views
My Mom was admitted for her biopsy yesterday prior to be scheduled for Chemo. She has Stage 4(a) PC, location is the body of the pancreas with varicose invasion (which I assume means its in the blood stream). Yesterday they spent 30 minutes trying to take blood samples from 5 different sites but couldn't. I am told by the medics in my family that its because her veins are collapsing as a result of poor circulation. Has anyone else experienced this problem and if so, can you advise how it was dealt with. Many thanks.
