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Re: Pancreatic Cancer worry

Posted: Fri May 19, 2017 10:42 am
by Cdcmoon
Had a follow up appointment after my Endoscopy all clear including biopsy. The Dr wanted to review me in a couple of months but i said it's been going on for so long now i really need to get somewhere with it now and i have been booked in for a CT Scan on Friday 26th. I really hope this is going to be clear.

I have booked a follow up for 2 weeks later, if they find something would they call me in sooner?

Atm I have diahrhea everyday sometimes tan coloured sometimes grey but dr said this is normal? I just have general uncomfortable feeling when I sit up in my upper abdomen and my weight is stable.

Re: Pancreatic Cancer worry

Posted: Fri May 19, 2017 12:25 pm
by PCUK Nurse Jeni
Hello CDC,

Its good news to hear that you have a CT scan booked.

Two weeks is the usual wait to have the CT scan fully reported on, and be seen back in the clinic - this is the normal expected period of time for a review appointment.

Kind regards,
Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

Re: Pancreatic Cancer worry

Posted: Mon Jun 05, 2017 9:34 am
by Cdcmoon
If I had steatorrhea what would this look like? I am currently passing large stools (they come out with ease and seems to be loads of it. They are soft but always sink. I can't really find any pictures.

Re: Pancreatic Cancer worry

Posted: Mon Jun 05, 2017 10:52 am
by Didge
As far as I am aware they would be very pale and floating.

Re: Pancreatic Cancer worry

Posted: Mon Jun 05, 2017 12:38 pm
by Cdcmoon
I've prob ha 3/4 of pale looking stools in past 6 months it's mostly just large amounts which are light brown snake like just seems to be loads of it.

Re: Pancreatic Cancer worry

Posted: Mon Jun 05, 2017 4:26 pm
by PCUK Nurse Jeni
Hi there,

Have you ever been tested for Coeliac disease? Helicobacter Pylori also?
If not, it might be worth asking about these at your gp surgery.

Kind regards,
Jeni.

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: support@pancreaticcancer.org.uk
support line: 0808 801 0707

Re: Pancreatic Cancer worry

Posted: Mon Jun 05, 2017 5:50 pm
by Cdcmoon
Yea I had blood tests and biopsy taken on endoscopy all negative.

I spoke with the hospital earlier my results are back however I can't bring my appointment forward I have to wait till Thursday :( don't feel good about it all right now.

Re: Pancreatic Cancer worry

Posted: Thu Jun 08, 2017 1:55 pm
by Cdcmoon
Had my results today pancreas looked normal so I've been told I have ibs. The scan did show that I had 2 small shadows on my right liver 1cm and 1.5cm so I have another ultrasound scan with contrast next week.

Re: Pancreatic Cancer worry

Posted: Sun Jun 11, 2017 6:22 pm
by joanna1975
Hello CDcmoon,

Do let us know what they found out; I've been having similar symptoms and drs can't find out what is wrong with me. I'm following your posts and wonder if we suffer from the same thing?
Kind Regads,
Joanna

Re: Pancreatic Cancer worry

Posted: Sun Jun 11, 2017 7:14 pm
by Cdcmoon
I will. Like I say I've got another ultrasound because of the shadows found on my liver and I have been told I have ibs as pancreas looked normal and so are all my other tests. The dr said these shadows are nothing to do with my symptoms however. Hopefully these will be benign.

Re: Pancreatic Cancer worry

Posted: Thu Jun 15, 2017 4:15 pm
by Cdcmoon
My scan revealed they are henangiomas and the dr was pretty confident with that today after I was injected with fluid.

Re: Pancreatic Cancer worry

Posted: Tue Jun 20, 2017 6:19 pm
by joanna1975
Hi CDCmoon,

are all the symptoms caused by then henangiomas then? Are you going to have any more tests?

Re: Pancreatic Cancer worry

Posted: Tue Jun 20, 2017 7:21 pm
by Cdcmoon
I have a follow up on Thursday my symptoms are nothing to do with what was found in my liver they were found by chance and are common. My gastro dr said he thinks I have ibs as everything else is normal but I will find out Thursday what happens next.

Re: Pancreatic Cancer worry

Posted: Wed Jul 05, 2017 10:09 pm
by joanna1975
Hi Cdcmoon, I guess you've seen a doctor yet- what did he say?

Re: Pancreatic Cancer worry

Posted: Wed Jul 05, 2017 11:08 pm
by Cdcmoon
He said there is no more tests they can do and I am to limit my diet to see what triggers my ibs I now have apparently