A forum for any other issues around pancreatic cancer

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Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Thu Aug 27, 2020 5:58 pm

I am starting to now because I went from completely not eating anything to eating things and still needing loo 3 times in the morning so it appeared anything I ate would just go straight through me and out in the morning which is not my usual toilet habit. Now I still have diarrhea however not as much albeit in still first thing in the morning. I’m cutting out caffeine and sugar and sticking to plain foods as much as I can. I use to drink 3/4 Coffees a day but I have found have 1/2 makes me need a loose stool.

laci06
Posts: 11
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Sun Aug 30, 2020 8:47 am

Well, I am sure that I do not need to say this, but being anxious can speed up things in the digestive track, so if you can cut down on anxiety maybe bowels also slow down. Although I am in a bit a same situation, so knowing it does not do any good on its own...

Did you ever had a CA 19-9 test? I had one 2 years ago and one last week and the results were 6,8 and now 17,6. I know that it is still a normal value, but man, not good to see this increase if you have anxiety. Although the MRI with contrast I just had apparently is perfectly normal without any sign (widened bile duct etc.).

By the way what is your weight if I may ask? I think the problem with the bland diet is that it does not contain much fat and sugar so gaining weight is quite difficult with it.

Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Sun Aug 30, 2020 9:17 am

I did 3 years ago it was normal but I have not had it recently. I am seeing my GP again Thursday and I have another ultrasound on Friday so maybe more answers then.

laci06
Posts: 11
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Sun Aug 30, 2020 3:53 pm

I am sure it will go fine and I am 100% that they will not find anything new.

Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Sun Aug 30, 2020 4:03 pm

Hopefully.

My last ultrasound was clear but they did not see all of pancreas because of gas just the body of pancreas was seen.

Little concerned about the Erythrocytosis but that requires further investigation.

Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Sun Aug 30, 2020 4:08 pm

laci06 wrote:
> Well, I am sure that I do not need to say this, but being anxious can speed
> up things in the digestive track, so if you can cut down on anxiety maybe
> bowels also slow down. Although I am in a bit a same situation, so knowing
> it does not do any good on its own...
>
> Did you ever had a CA 19-9 test? I had one 2 years ago and one last week
> and the results were 6,8 and now 17,6. I know that it is still a normal
> value, but man, not good to see this increase if you have anxiety. Although
> the MRI with contrast I just had apparently is perfectly normal without any
> sign (widened bile duct etc.).
>
> By the way what is your weight if I may ask? I think the problem with the
> bland diet is that it does not contain much fat and sugar so gaining weight
> is quite difficult with it.


Sorry did not see your weight question. I am currently sitting around 95kg its been fluctuating last 4 weeks between 94 & 96kg. I am a little overweight although I have been relatively fit as I am serving military. My original weight was 97.5 when i first started having problems 8-9 weeks ago.

I think at the moment according to my scales i have prob lost 2-3kg in that time so I guess not that much weight loss.

laci06
Posts: 11
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Sat Nov 14, 2020 9:14 am

How are you doing now?

Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Sat Nov 14, 2020 9:28 am

Hi,

Thank you for the message.

Still no diagnosis, usual diarrhea and additional pains on my right side now. Generally feel unwell.

I am currently waiting on a date for a CT scan.

How are you?

laci06
Posts: 11
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Sat Nov 14, 2020 9:35 am

Struggling. I have good weeks and then bad weeks. What worries me is that my diet is now really plain and still it seems that I have problem sometimes.
How is you diarrhea by the way? On the bristol chart?
Probably I will go for an MRI soon too just to calm my mind. I know that it is really unlikely that anything will show up.

Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Sat Nov 14, 2020 9:43 am

Sometimes type 4 but mainly 5/6, sometimes it floats but usually there is always lots of it and it’s always loose. I’ve tried changing my diet but whatever I eat it’s the same. I am also waking up at 4 most mornings just feeling uncomfortable in my back. I cannot see at this stage that when I have my CT scan they won’t find anything. Everything is delayed because of covid and I’m trying to go private but always slow response from the hospital. Do you go for your scans privately or through NHS? Don’t you need a referral?

laci06
Posts: 11
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Sat Nov 14, 2020 10:35 am

Can you share your mail address?

PCUK Nurse Lisa
Posts: 8
Joined: Thu Jan 16, 2020 2:49 pm

Re: Pancreatic Cancer worry

Postby PCUK Nurse Lisa » Mon Nov 16, 2020 10:27 am

Dear laci06,

I am glad to see you are getting support through the Discussion Forum from fellow users, and this is exactly the purpose of this - peer support. However, this is all posted in the public domain and thus not a secure place to be sharing email addresses. May we ask politely that you do not publically share your emails, but please do continue to share your progress here.

Hoping that you find some answers to your problematic symptoms soon.

With best wises,

Lisa
Pancreatic Cancer Specialist Nurse

Dandygal76
Posts: 763
Joined: Sat Mar 12, 2016 9:49 am

Re: Pancreatic Cancer worry

Postby Dandygal76 » Thu Nov 26, 2020 3:29 am

Have you tried the FODMAP diet. It is a medical diet and not a fad. You may feel your diet is plain but specific foods can affect you. Some interesting and tasty things wouldn't. Gastro issues do not mean you have cancer. You can have migraines without a brain tumour etc. I get the anxiety (used to have it before I found out I was severely B12 deficient) but in retrospect, ruminating on these problems creates misery. Getting out of the repetitive loop of negativity and fear is key and should be the focus. Anxiety is crap - work on that first and foremost.

laci06
Posts: 11
Joined: Wed Aug 26, 2020 9:38 am

Re: Pancreatic Cancer worry

Postby laci06 » Wed Dec 02, 2020 8:24 am

Cdcmoon wrote:
> Sometimes type 4 but mainly 5/6, sometimes it floats but usually there is
> always lots of it and it’s always loose. I’ve tried changing my diet but
> whatever I eat it’s the same. I am also waking up at 4 most mornings just
> feeling uncomfortable in my back. I cannot see at this stage that when I
> have my CT scan they won’t find anything. Everything is delayed because of
> covid and I’m trying to go private but always slow response from the
> hospital. Do you go for your scans privately or through NHS? Don’t you need
> a referral?

Did you have your new scan?

Cdcmoon
Posts: 45
Joined: Mon Apr 17, 2017 8:03 pm

Re: Pancreatic Cancer worry

Postby Cdcmoon » Wed Dec 02, 2020 8:37 am

I had a ct scan with contrast yesterday done privately and was told I would get result by the end of the week.