A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

Moderator: volmod

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: So far so good!

Postby Sueoliver » Mon Sep 14, 2015 9:00 am

Hi Steve,
I have been thinking about you and just wondered how you are? Hope you are feeling better and the stent is doing its job!
Love Sue x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Mon Sep 14, 2015 9:47 am

Apologies for not posting for a while. I had a week in hospital with an infection after chemo. A few more admin delays, but Gem/Abraxane is finally going ahead today at 12:00(ish). As it is only approved for first line treatment and I am having third line, the insurance has had to pay. I'll let you know how it all goes later. Not sure about side effects, but fingers firmly crossed.

Steve
X

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Mon Sep 14, 2015 9:52 am

Regarding the stent, things seem better, but I have still had a few sessions of sickness so am waiting for another barium meal test to see if there are any other issues in this area. I hope the stent has not been dislodged, but the test should confirm this.

Steve
X

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Mon Sep 14, 2015 10:22 am

All the best Steve,
take care
love Jayne
x

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Mon Sep 14, 2015 3:13 pm

Hi Steve, finally you get your Gem/Abraxane! I really hope side effects are minimal and you continue to thwart the bugger!

Love
Julia x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: So far so good!

Postby Sueoliver » Mon Sep 14, 2015 4:16 pm

Hi Steve,
It is nice to hear from you. Let's hope the stent isn't dislodged! Hope the chemo does its thing!
Take care and stay positive.
Love Sue x

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Mon Sep 14, 2015 4:47 pm

Send you Best Wishes Steve !

Emma x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: So far so good!

Postby sandraW » Mon Sep 14, 2015 6:27 pm

Hi Steve,
I hope the side effects for the Gem/Abraxane are minimal Steve, and the sickness soon subsides, take care love sandrax xx

Go green sue
Posts: 38
Joined: Thu Jul 17, 2014 10:41 pm

Re: So far so good!

Postby Go green sue » Mon Sep 14, 2015 9:49 pm

Hi Steve, hope the chemo goes well for you!
Best wishes Sue H

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Thu Sep 17, 2015 4:08 pm

I had the Barium Meal test yesterday and there appears to be an issue with the stent. Whilst it is in the correct place and has expanded to it's correct size, the back end of it is sitting at the sharp junction of the Duodenum where it joins the next part of the intestine. The stent therefore seems to pushing up against the wall of the intestine, restricting food passage. It is better than before the stent was fitted, so we are going to monitor my progress with eating and if we have any concerns, I will immediately be admitted to have a second stent fitted inside the current one, but further in and around the acute bend mentioned above. Seems fair enough and I get to decide if and when the second stent is to be fitted (they had allocated me a bed today for the procedure just in case!).

Watch this space (again)

Steve
X

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: So far so good!

Postby RLF » Thu Sep 17, 2015 11:05 pm

Hi steve, hope thy don't need to mess around with the stent, you've had enough ops! Hope the eating continues to improve, and the Abraxane does the trick!
Rob

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Fri Sep 18, 2015 12:15 am

cor blimey Steve, what a palaver. Hope it gets sorted soon.

Love
Julia x

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: So far so good!

Postby belgrade » Fri Sep 18, 2015 9:27 am

So sorry to hear about these setbacks Steve but keep battling on! You are an inspiration to everyone on the forum.

Love to Margaret and the girls,
Hilary

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Wed Sep 30, 2015 6:35 pm

Well, I've now had 3 sessions of Gem/Abraxane with only 2 episodes of mild sickness to report. The Tumour Marker is 5,867 but we are giving this a good ignoring for now as the test was after only 2 chemo sessions following a total chemo break of over a month.

The tummy / stent does seem to be settling down and I am eating pretty much as normal.

However, my old friend Neuropathy lingers and has the potential to be exacerbated by Abraxane, but so far so good.

I am now on the 1 week break (it's 3 weeks on and 1 week off) and I hope to have a quiet 10 days or so. If things remain stable, we would love to get away somewhere warm in the New Year.......we can but dream!!!!

A bit of a mixed bag in this report, but it could be so much worse!

Take care all.

Steve
X

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Thu Oct 01, 2015 9:48 am

Glad you've only had 2 episodes of mild sickness with the chemo and your tummy is settling down. Take care Steve,
love Jayne
x