A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: So far so good!

Postby SusannaUK » Thu Mar 26, 2015 11:38 pm

Great news Steve! So glad to read this! You are a true fighter!
Keep it going!
Susanna x

Go green sue
Posts: 38
Joined: Thu Jul 17, 2014 10:41 pm

Re: So far so good!

Postby Go green sue » Sat Mar 28, 2015 10:49 pm

Great news Steve, keep us informed.
Sue xx

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: So far so good!

Postby laura » Sun Mar 29, 2015 3:23 am

Hi Steve, just been catching up on your posts. Absolutely brilliant eh!. Have also posted on "bri's progress". Love to you and your family. Well done again. Did I ever say that BRI was born in Barry Island, then lived and worked in Cardiff. Xx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Fri Apr 10, 2015 7:55 am

Apologies all for not having posted much over the last week, especially with so much going on. I have been reading the many updates and whilst catchup is impossible, I have been thinking about you all. Whilst not as bad as many here, I have had an unusually difficult week with a fair bit of ongoing sickness which now seems to have settled down.

There have been very positive developments on the Nanoknife front, with a good Liver MRI report which indicates the 12 spots seen last May are either no longer visible or less than 1/2cm, all down to Folfirinox. Armed with this information, I now have the green light for Nanoknife on 6th May. Everything is in place including payment through my insurance company. I have one more chemo session on 22nd April. We were concerned that my Tumour Marker was rising, albeit relatively slowly and I should have the latest numbers for that today (it was 325 on 9th March).

I will keep you all posted and as ever wish you well with your own personal fight with this thing.


Take care

Steve
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Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Fri Apr 10, 2015 9:56 am

Just received my tumour marker results whch have jumped from 325 to 609 in 4 weeks. My Oncologist therefore wants me to revert from the 3 week cycle back to a 2 weekly cycle. I see this happening after my Nanoknife.

Has anybody useful information regarding the effect of Nanoknife on tumour marker levels?

Steve
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MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: So far so good!

Postby MSH » Fri Apr 10, 2015 2:04 pm

I didn't have my markers checked from Dec to May when having the Nanoknife in January, so I can't say for sure. I would have expected them to go down after perhaps a post treatment flare, as the tumour shrinks. Maybe whatever was causing the vomiting has increased the marker for a while.

My best wishes for May 6th.

Mark

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: So far so good!

Postby EmmaR » Fri Apr 10, 2015 2:57 pm

All Best Steve for May 6th I'm sure Marks post will keep you feeling positive .

Emma x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Fri Apr 10, 2015 3:24 pm

Thanks Emma and yes.... Thanks Mark!

Steve
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J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: So far so good!

Postby J_T » Fri Apr 10, 2015 6:33 pm

Sorry to hear youve been feeling poorly Steve but good news on Nanoknife. Good luck for May!

Love Julia x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: So far so good!

Postby Sueoliver » Fri Apr 10, 2015 10:58 pm

Good luck for May 6th Steve I hope it all goes really well for you. Will be thinking of you and your family.
Love Sue x

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: So far so good!

Postby kittycat » Sat Apr 11, 2015 7:26 am

Good luck for the 6th - not too far away. I've read really positive things about this treatment and it looks like you're in good hands!

Sue

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: So far so good!

Postby jay » Sat Apr 11, 2015 11:07 am

loads of luck for the 6 th Steve,
love Jayne
x

sandraW
Posts: 1044
Joined: Thu Oct 31, 2013 5:38 pm

Re: So far so good!

Postby sandraW » Sat Apr 11, 2015 1:20 pm

Steve,
Hope you are feeling a bit better now, good luck for the 6th, will be thinking of you take care sandrax

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: So far so good!

Postby RLF » Sat Apr 11, 2015 6:36 pm

Shorty to hear you're being sick, but good luck for he Nanoknife.

In regards to markers carls dropped from 200 and something to 70, 2 weeks after ablation the first time then to 31 2 weeks after that and then down to 13 for 7 months. This time they dropped from 645 to 240 in 2 weeks and they've not done them in the last month for some reason. But yes they have dropped nicely each time it's been done so hopefully yours will too!
Rob

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: So far so good!

Postby Slewis7313 » Wed Apr 22, 2015 5:51 pm

Thanks all for the comments. I started cycle 20 today and all went reasonably quickly (09:15 to 15:30). A bit of good news today was that the rapid marker increase seems to have slowed down. My last reading was 609 two weeks ago (a doubling from the previous result), but today's has only risen to 635.... a big smile on my face and puts me in a really good frame of mind for my Nanoknife on 6th May. Hoping for a good Summer!

Steve
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