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Pancreatic cancer and emotional wellbeing webinar - Tuesday 4th February 2025, 6-7pm via Zoom
By Support Team, in News from Pancreatic Cancer UK
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Forums
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Forums
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- Living with uncertainty
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- My wonderful husband
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- CBD
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- Peritoneal metastasis adter whipple advice
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- Losing my mum 💜
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Recent Posts
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By Marta92 · Posted
My uncle went through chemotherapy a few years ago and, with his oncologist’s approval, he started taking CBD oil. We weren’t expecting a miracle, but they did seem to help ease some of his nausea and made it a bit easier for him to keep food down. It didn’t eliminate all the side effects of chemo, but from my family’s perspective, every small relief counted -
By antboo-23 · Posted
Hi bluepeter, How are you after your radiotherapy? My mum was offered 5 days of palliative radiotherapy recently and hoping she will be able to start it soon Thanks -
By Support Team · Posted
Pancreatic cancer can affect every part of your life, including your emotions. Whether you’ve been diagnosed yourself, or are supporting a loved one, it’s normal to need some support. Join us as we talk openly about what to expect and share some practical tips for how to look after your emotional wellbeing. You’ll meet two of our Specialist Nurses, Lisa and Jeni, who help people affected by pancreatic cancer every day on our Support Line and we are also very excited to welcome Tara White, Centre Head of Maggie’s Swansea, who will be joining us for this session. To find out more and book your place, visit our website -
By antboo-23 · Posted
Hi Does anyone have experience with clinical trials for stage 4? My mum had several months of treatment on gemcitabine-abraxane and was swapped to folfox after progression. She's had 4 treatments of folfox which has unfortunately not worked. Her main tumour is stable but her 2 lung mets and 1 liver met have increased by a few mm's. Hoping she may be offered folfiri also. Thanks in advance -
By Luke1971 · Posted
First time I've had trouble getting Creon for quite a few months. Anyone else? -
By Nicmads · Posted
On October 12th my amazing husband went into hospital with suspected gallstones. He has always been fit and healthy and just 2 weeks before going into hospital we were enjoying an amazing holiday in the Dominican Republic. he was diagnosed with pancreatic cancer within 12 hours of going to hospital. We were so shocked, our heats were broken. We couldn’t believe that this was happening, as I’m sure everyone else who is dealing with PC feels. 2 weeks later we were told that it wasn’t good news, the cancer was to far gone. There was a possibility of chemo but that would depend on a biopsy result. If he could have chemo our prognosis was 6-12months, if not 6-8weeks. Our world was shattered but he was always saying he was going to give it everything he had! We made plans, we had tough conversations and we were brutally honest with each other. A week later, the biopsy results were back and there was nothing to be done. We had to go home and enjoy our time together. We came home on the Friday and sadly on the Tuesday morning my darling husband passed away, he was 55. I don’t know how I will ever get over losing him. I miss him everyday. We had so much planned in our lives and I feel robbed. People say it gets easier but I just can’t see how. He was my everything and I’m so lost without him -
By Skippy · Posted
I am sorry to hear of your diagnosis, but thought I'd reply. Like my brother at 74 he had no 'symptoms' only an itchy skin rash. His bloods were his only warnings. By 3 months through the examination processes ie ct scan he remained fit and active. No one really can predict as circumstances can be so different from what I read and comparing it to my friend who had PC also. He became jaundiced just prior to his admission into hospital. He had the Whipple. He took 3 good months to recover from that operation..he did well and was back on his feet as himself. He did so well for 20 months having a near normal day., but sadly the C spread. I can only say adhere to your consultants recommendations but look forward every day and to do what you feel you can do. My female friend 70wanted no surgery or chemo. She coped well -following advice - some days feeling so tired but had a year of being able to get up and on with her social life. It's so hard to predict time with any cancers I think. This site is so informative. -
By bluepeter · Posted
I had a full men's wellness check last November in Thailand and discovered my CA 19-9 was 200+ On returning to the UK in February I told my doctor and was fast-tracked for a CT and MRI. A tumour was found but because of my age, I refused chemo and surgery I did however agree to a 5-day intensive course in radiotherapy which I am recovering from to be reviewed on 20th December. Providing the results are not devastating I plan to fly back to Thailand in early January. My question is how long have I got once the symptoms start before I would be unfit to fly back to the UK. At the moment I have no symptoms apart from tiredness from the radiotherapy treatment. Any PC-UK member's timeline experiences would be very helpful. Peter -
By Nicmads · Posted
Hi Alison, I have just joined the forum and read your post. My wonderful husband was diagnosed with PC in October. He too was fit and healthy playing football and walking etc. Sadly we were to late with our diagnosis and my husband passed away just over 3 weeks later. I hope that your husband is ok and you are too. It’s such a horrible time for you both x -
By Support Team · Posted
If you or someone you know has pancreatic cancer, planning for the future might feel difficult. You may have heard the term ‘palliative care’ but feel unsure about what this means. Hosted by specialist pancreatic cancer nurses Simon and Rachel, this webinar will help you understand what palliative care is, what you can expect from it and who is there to provide palliative care and support you towards the end of life. We will also discuss planning for the future and what good end of life care should look like, with time for questions too. This session is for people with pancreatic cancer and their loved ones. We appreciate these discussions may be upsetting & difficult, and that you may wish to stay for the section on palliative care but not the section on end of life care and we’ll make sure you’re able to leave before this section if you wish. https://www.pancreaticcancer.org.uk/support-for-you/webinars/palliative-care-for-pancreatic-cancer-webinar-3-december-2024
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