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Pancreatic cancer and emotional wellbeing webinar - Tuesday 4th February 2025, 6-7pm via Zoom
By Support Team, in News from Pancreatic Cancer UK
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Forums
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Forums
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- First folfirinox experience
- By Marina123,
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- My wonderful husband
- By Nicmads,
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- CBD
- By KupapiChisan,
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- Peritoneal metastasis adter whipple advice
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- 39 year old brother's diagnosis
- By nikki345,
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- Losing my mum 💜
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Recent Posts
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By nikki345 · Posted
Hi Broju, Thank you so much for the info. We have looked at the Heidelburg but unfortunately they're at capacity Xxx -
By broju · Posted
Hello nikki345 Really sad to read your post. When my husband was diagnosed he was keen to take part in any trials but sadly it was during Covid and many were curtailed. I believe there are now some taking place. Your brother might qualify for and hopefully benefit from one? Also, we would have explored treatment abroad, mainly in Germany had travel not also been curtailed. The Heidelburg University Hospital still seems to lead the way in PC treatment. It’s all worth exploring. xx -
By nikki345 · Posted
Hi all. My brother has just turned 39 years old and has been diagnosed with Stage 4 pancreatic cancer around a week ago. He has been given 3-6 months to live. The cancer is 5cm in the head of his pancreas, and has also metastasised to his liver I believe as well as several peritoneal lymph nodes - although the medical team are not sure about the lymph nodes at the moment. (this is a medical negligence case which we will be dealing with separately). This was a huge shock for us and we are completely devastated. He has a 5 month old and 5 year old too. He has received no treatment thus far. His cytology report was inconclusive and he therefore had a liver biopsy to determine the tumour type. We will then look to start chemotherapy asap. He also has a PET-CT scan scheduled for Thursday. We've also looked into and started some alternative therapies too. We are feeling so lost. I wanted to know if anyone please please has any advice regarding next steps/what we can do to fight this? We are more than happy to pay/go private/go abroad if this will help. We are based in the UK. Any support would be greatly appreciated. Thank you so much. -
By Marina123 · Posted
Hi @kate2101 I’m just reading back on this thread, how are you doing now? Are you still sporadically on Folfirinox at the reduced dose? You’re my beacon of light on here since my mum has been diagnosed -
By KupapiChisan · Posted
I've tried different CBD options, and thc gummies were the most effective for me in terms of relaxation and sleep. I made sure to start with a low dose to see how my body reacted, then adjusted as needed. Everyone’s experience is different, so keeping track of how you feel can be helpful. It's worth checking with a doctor, especially if you're on other medications or treatments. -
By Marta92 · Posted
My uncle went through chemotherapy a few years ago and, with his oncologist’s approval, he started taking CBD oil. We weren’t expecting a miracle, but they did seem to help ease some of his nausea and made it a bit easier for him to keep food down. It didn’t eliminate all the side effects of chemo, but from my family’s perspective, every small relief counted -
By antboo-23 · Posted
Hi bluepeter, How are you after your radiotherapy? My mum was offered 5 days of palliative radiotherapy recently and hoping she will be able to start it soon Thanks -
By Support Team · Posted
Pancreatic cancer can affect every part of your life, including your emotions. Whether you’ve been diagnosed yourself, or are supporting a loved one, it’s normal to need some support. Join us as we talk openly about what to expect and share some practical tips for how to look after your emotional wellbeing. You’ll meet two of our Specialist Nurses, Lisa and Jeni, who help people affected by pancreatic cancer every day on our Support Line and we are also very excited to welcome Tara White, Centre Head of Maggie’s Swansea, who will be joining us for this session. To find out more and book your place, visit our website -
By antboo-23 · Posted
Hi Does anyone have experience with clinical trials for stage 4? My mum had several months of treatment on gemcitabine-abraxane and was swapped to folfox after progression. She's had 4 treatments of folfox which has unfortunately not worked. Her main tumour is stable but her 2 lung mets and 1 liver met have increased by a few mm's. Hoping she may be offered folfiri also. Thanks in advance -
By Luke1971 · Posted
First time I've had trouble getting Creon for quite a few months. Anyone else?
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