News from Pancreatic Cancer UK
Read the latest updates from Pancreatic Cancer UK and how you can help us.
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- Living with Pancreatic Cancer - new online support sessions
- By Support Team,
70 topics in this forum
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LGBTIQ+ Cancer Support from Live Through This
by Support Team- 0 replies
- 4.2k views
An update from our friends at Live Through This: Hi all, In response to the novel coronavirus preventing our usual peer support meetings and the postponement of our LGBTIQ+ Cancer Awareness Event, we are working with Maggies to provide an online peer support session. This session is a hosted video chat with multiple key safeguarding controls and a robust policy in place. The hosts are myself with Michael (ex centre head and nurse) and Lianne (head and neck cancer specialist) from Maggies. We hope to provide a space where LGBTIQ+ folk who are in isolation, as per public health and government guidance, can still have an opportunity to connect and discuss issue…
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Update on National Pancreatic Diseases PPI Forum
by Support Team- 0 replies
- 4k views
We have received the following udpdate regarding the National Pancreatic Diseases PPI Forum on 15th May: I need to inform you though that given the evolving COVID-19 situation it is with great regret that we have decided to postpone the planned National Pancreatic Diseases PPI Forum due to haven held at The Royal Liverpool University Hospital May 15th. The next Forum is likely to be in 2021 but will be decided at a later date. We are truly sorry that we have had to take this decision and would thank everyone for the huge support and interest shown for this year’s event. We will be in touch again to plan going forwards.
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Coronavirus Update
by PCUK Nurse Dianne- 0 replies
- 4.1k views
Pancreatic Cancer UK has worked alongside other charities called 'Once Cancer Voice' in providing some question and answers for anyone affected by a cancer diagnosis. We have some information that may be helpful to read through on the Pancreatic Cancer UK website if you or a loved one are affected by pancreatic cancer. https://www.pancreaticcancer.org.uk/our-blog/2020/march/advice-on-coronavirus-for-people-with-cancer/ If you have any specific questions relating to pancreatic cancer and impact of the Covid-19 and are unable to reach your local team, please do consider calling the Specialist Nurses on the Support Line. Pancreatic Cancer UK Specialist Nurses Supp…
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Our latest 'Diet and Pancreatic Cancer' booklet is now available
by Support Team- 0 replies
- 4.3k views
We’ve updated our booklet ‘Diet and pancreatic cancer’, which has lots of information about how to manage symptoms to do with problems with your digestion, such as weight loss. It also has information on how to take pancreatic enzyme replacement therapy (for example Creon®), and how to manage diabetes if you have pancreatic cancer. It also has lots of tips to help you cope with problems with diet and digestion. Order or download your free copy of this booklet: www.pancreaticcancer.org.uk/publications
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Exciting opportunity for you to help Pancreatic Cancer UK
by Support Team- 0 replies
- 7.4k views
Pancreatic Cancer UK have an exciting opportunity for people affected by pancreatic cancer to get involved and help shape their work. We are developing a new website, and would like volunteers who might be able to attend a 2-hour workshop on either Wednesday 26th or Friday 28th February, at our offices in central London. These workshops will give you an important role in designing a better website for people affected by pancreatic cancer, by sharing your own experiences. Refreshments will be provided and we can help with the cost and arrangements of your travel. If you are interested and might be able to attend on one of those dates, Chris from the Digital Team can te…
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- 0 replies
- 4.1k views
Meet Nurse Lisa at our Brighton Support Day on Thursday 27th February We warmly invite you to join us for a supportive and informative day for people living with pancreatic cancer. This free event includes refreshments and talks about various aspects of pancreatic cancer, including managing your diet and symptoms as well as information about the services we provide for people with pancreatic cancer and their families. There will also be plenty of opportunities to discuss any particular concerns with one of our pancreatic cancer specialist nurses. The day is open to anyone affected by pancreatic cancer and you are very welcome to bring a friend, carer or family…
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- 0 replies
- 4.1k views
We warmly invite you to join us for a supportive and informative day for people living with pancreatic cancer. This free event includes refreshments and talks about various aspects of pancreatic cancer, including managing your diet and symptoms as well as information about the services we provide for people with pancreatic cancer and their families. There will also be plenty of opportunities to discuss any particular concerns with one of our pancreatic cancer specialist nurses. The day is open to anyone affected by pancreatic cancer and you are very welcome to bring a friend, carer or family member with you. The event will be run by our Pancreatic Cancer Speci…
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- 0 replies
- 4k views
We warmly invite you to join us for a supportive and informative day for people living with pancreatic cancer. This free event includes refreshments and talks about various aspects of pancreatic cancer, including managing your diet and symptoms as well as information about the services we provide for people with pancreatic cancer and their families. There will also be plenty of opportunities to discuss any particular concerns with one of our pancreatic cancer specialist nurses. The day is open to anyone affected by pancreatic cancer and you are very welcome to bring a friend, carer or family member with you. The event will be run by our Pancreatic Cancer Speci…
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- 0 replies
- 4.2k views
We warmly invite you to join us for a supportive and informative day for people living with pancreatic cancer. This free event includes refreshments and talks about various aspects of pancreatic cancer, including managing your diet and symptoms as well as information about the services we provide for people with pancreatic cancer and their families. There will also be plenty of opportunities to discuss any particular concerns with one of our pancreatic cancer specialist nurses. The day is open to anyone affected by pancreatic cancer and you are very welcome to bring a friend, carer or family member with you. The event will be run by our Pancreatic Cancer Speci…
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- 0 replies
- 9.5k views
The Macmillan LGBT Cancer Programme Merseyside is engaging with LGBT people living with cancer and their carers to learn from their experiences and influence services. We run a LGBT Cancer User Involvement Group, which meets regularly with the aim of providing peer support and advocating the needs of LGBT people with cancer to services. The group meets on the second Monday of the month between 12:00 Noon and 2:00pm. If you access cancer services in Merseyside or Halton and would like to share your experiences or wish to get involved please contact: joe.lavelle@sahir.uk.com or clare.carter@sahir.uk.com Tel: 0151 237 3989. Write: Sahir House, 2nd Floor, 151 Dale Street, Li…
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Updated chemotherapy information
by Support Team- 0 replies
- 8.5k views
We have updated our information on Chemotherapy for pancreatic cancer. This information covers how chemotherapy is used for pancreatic cancer, and how it can affect you. There is information on what to expect during your treatment, and how the possible side effects can be managed. Read more, or order your free copy, at: https://www.pancreaticcancer.org.uk/chemotherapy Pancreatic Cancer UK Information Team
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Peer to peer support for people having surgery
by Support Team- 0 replies
- 7.5k views
Having surgery for pancreatic cancer can be a difficult and worrying time, and it can help to talk things through with someone who knows what it is like. Side by Side is a telephone support service for people with pancreatic cancer who have had, or are likely to have, surgery to remove their cancer, for example a Whipple's operation. It gives you the chance to speak to a trained volunteer who has been in a similar situation to your own. If you're interested in using our Side by Side service, or would like some more information about the service please visit our website where you can read FAQs and complete our online form to get in touch: https://www.pancreaticcancer.o…
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Important information about the supply of Creon 40,000
by Support Team- 0 replies
- 8.7k views
We would like to let you know that Mylan, the company that makes Creon, will not be making Creon 40,000 from June 2019. This is because they can't get enough of the enzymes used to make the 40,000 capsules. These are different to the enzymes used for the 10,000 and 25,000 capsules. The 10,000 and 25,000 capsules will still be available, and the company will now be making more of these. There is currently supply of Creon 40,000 available, so this change will happen in the next few months. If you take Creon 40,000 at the moment, you can still get enough enzymes using Creon 25,000 which are slightly smaller capsules. For example: if you normally take one 40,000 capsule…
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Sharing your story with others
by Support Team- 0 replies
- 9k views
We are keen to hear from people who are interested in sharing their story on our website. Sharing your experience can help others understand what it’s like to have pancreatic cancer, or care for someone with pancreatic cancer. It can help others realise they are not alone, and that other people have been through similar experiences. You can write your story in your own words, or we can speak to you over the telephone and write up your story for you. We may edit your story slightly, but you will be able to see the story before it’s published on our website, to make sure you are happy with it. If you are interested in sharing your story, please fill …
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- 0 replies
- 9.6k views
This year, the National Institute for Health and Care Excellence (NICE) produced the first ever guidelines for the diagnosis and management of pancreatic cancer. We have updated our patient charter to include these guidelines. The patient charter explains the care you should expect and receive during diagnosis and treatment, including managing symptoms and the emotional impact of pancreatic cancer. It’s based on all UK guidelines for treating pancreatic cancer. The NICE guidelines are aimed at health professionals. Because we think it’s important that people with pancreatic cancer understand what the guidelines mean for them, we have produced a version for patients and…
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New booklet about end of life care
by Support Team- 0 replies
- 12k views
You may have already seen on social media and our website that we have recently produced a new booklet, Pancreatic cancer and end of life care. We have produced this because people have told us that they struggle to find specific information about what might happen in the last few months of life and how to deal with this. The booklet includes information about the symptoms people with pancreatic cancer may get towards the end of their life and how to manage these. There is also information about how to access the care and support they might need, dealing with the emotional impact of dying from pancreatic cancer, and specific information for family members. We hope it …
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Access to Abraxane granted in England
by Support Team- 0 replies
- 14.3k views
We are delighted to announce that the National Institute for Health and Care Excellence (NICE) has today [4 August] notified us of their landmark decision to grant access to the life-extending drug, Abraxane, for people with advanced pancreatic cancer in England. This news is a major success for everyone affected by pancreatic cancer, especially given the lack of treatment options currently available. At the moment, people diagnosed with advanced pancreatic cancer in the UK will typically live for just two to six months after diagnosis. Patients who are eligible for Abraxane will have been diagnosed too late for surgery to be an option. Surgery is the only treatment fo…
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Discussion forum feedback survey
by Support Team- 0 replies
- 12.5k views
Dear All, We are always interested to hear what our forum users think and would really appreciate it if you could take a moment to complete our discussion forum feedback survey. Whether you use the forum to post or contact others on the forum, or if you read the forum without posting, we are very keen to hear your comments and feedback. Your feedback will help us ensure that we are providing a high quality service and further improve how we run the discussion forum. The survey should take no more than 15 minutes to complete and is anonymous. Any information you provide in this survey will remain confidential. You can take this survey at…
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Upcoming support group meetings
by Support Team- 0 replies
- 13.5k views
Have you seen our Support Groups map on our website? Our map allows you to search for pancreatic cancer Support Groups near you: https://www.pancreaticcancer.org.uk/information-and-support/get-support/support-groups/support-groups-map/ You can also keep up-to-date with any forthcoming meetings here: https://www.pancreaticcancer.org.uk/information-and-support/get-support/support-groups/forthcoming-meetings/
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Pancreatic Cancer UK Discussion Forum & Support Line Service
by Support Team- 1 follower
- 0 replies
- 24.5k views
On occasion we do need to remind all discussion forum users of the guidance and rules of the discussion forum. The registration information makes it clear that information on the forum does not constitute medical advice. The information contained in these discussion forums is shared in a supportive manner among those affected by pancreatic cancer. It is not intended to constitute medical advice and should not be used to replace advice given by health professionals. You are strongly advised to consult a doctor or other health professional in your/ your family member or friends care before taking action on information contained on these forums. As point 5 of our commu…