News from Pancreatic Cancer UK
Read the latest updates from Pancreatic Cancer UK and how you can help us.
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- 257
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- Living with Pancreatic Cancer - new online support sessions
- By Support Team,
70 topics in this forum
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PERT Supply
by Support Team- 5 replies
- 1.2k views
Hi all We know that there are currently problems with the supply of brands of pancreatic enzyme replacement therapy (PERT), including Creon, Nutrizym and Pancrex. We have information about what to do if you are having problems getting your PERT, including some tips for speaking to the pharmacy. https://www.pancreaticcancer.org.uk/news-and-blogs/information-about-the-supply-of-creon-25000/
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New support service launched - Newly Diagnosed Call
by Support Team- 0 replies
- 198 views
Afternoon all We have launched a new support service for those who have recently been diagnosed with pancreatic cancer. Our Newly Diagnosed Video call can help you understand what is happening (whether you have pancreatic cancer or you are caring for someone with pancreatic cancer), you can ask any questions you have and nurses can help guide you through the next steps. If you would like, you can invite your loved ones along to the call too. It is your choice what we prioritise in the video call, but here are some suggestions: We can help you understand more about your/your loved one's diagnosis We can answer any questions y…
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PCUK WhatsApp and Facebook Groups
by Support Team- 0 replies
- 387 views
Afternoon all We have been speaking to the community about the needs of people affected by pancreatic cancer and how we can meet those needs to support even more people. Excitingly, we’ve developed a new peer support service, Circles. This new pilot service will allow people affected by pancreatic cancer to connect via groups (such as WhatsApp and Facebook groups). Share the highs, the lows and everything in between with people who understand, who ‘just get it’. If you’d like to be part of this service, please let us know by emailing onlinesupport@pancreaticcancer.org.uk. We will be back in touch with furth…
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- 0 replies
- 244 views
If you or someone you know has pancreatic cancer, planning for the future might feel difficult. You may have heard the term ‘palliative care’ but feel unsure about what this means. Hosted by specialist pancreatic cancer nurses Simon and Rachel, this webinar will help you understand what palliative care is, what you can expect from it and who is there to provide palliative care and support you towards the end of life. We will also discuss planning for the future and what good end of life care should look like, with time for questions too. This session is for people with pancreatic cancer and their loved ones. We appreciate these discussions may b…
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- 0 replies
- 360 views
PERT shortages are continuing to impact people across the UK and it's more important than ever that we let people affected know that we are here to support them. To reach everyone affected, we need your help. If you have been impacted by the PERT shortages and you would be comfortable sharing your experience with the media, please get in touch: https://www.pancreaticcancer.org.uk/get-involved/share-your-story/ If you have been affected by these shortages and need support, please get in touch. You can speak to a specialist nurse on our Support Line on 0808 801 0707 or via email at nurse@pancreaticcancer.org.uk.
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Pancreatic cancer and diet webinar - Monday 20th May 2024, 6-7pm
by Support Team- 0 replies
- 711 views
What dietary issues can I expect with pancreatic cancer? What kinds of foods should I eat, and what should I try to avoid? What is PERT and why is it so important for people with pancreatic cancer? These are just a few of the questions that our expert specialist nurses are asked every day on our Support Line. If you or a friend or family member has been diagnosed with pancreatic cancer, you might have these questions too – and others. Register now to attend our free webinar on pancreatic cancer and diet on Monday 20th May at 6pm.
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- 0 replies
- 1.3k views
Pancreatic cancer impacts every area of life, including mental and emotional wellbeing. Whether you’ve been diagnosed with pancreatic cancer yourself, or you’re supporting someone you love, come along to our free webinar. You’ll meet two of our Specialist Nurses, Nicci and Lisa, who help people affected by pancreatic cancer every day on our Support Line. We’ll talk through some of the different emotional responses you can expect and how to get the right support – from talking to friends and family, to reaching out to us and other organisations, and thinking about when you might need more specialist help. There will be time for questions also. …
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Our new campaign has now launched!
by Support Team- 2 replies
- 1.3k views
Good morning all! You might have spotted across our channels that we’ve now launched our new campaign: Don’t Write Me Off We hope you will join us in telling governments across the UK: don’t write off people with pancreatic cancer. What are we calling for? We’re calling on governments across the UK to urgently fund a faster, fairer treatment and care journey for people with pancreatic cancer – so the NHS can give them the best chance of survival. This journey must be: Faster – Diagnosis within 21 days of being sent for tests, and treatment within 21 days of diagnos…
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Pancreatic Cancer UK needs your help!
by Support Team- 0 replies
- 924 views
Afternoon all Over the coming months, we'll be reviewing our support services and exploring the most impactful ways to reach more people. To make sure we make informed, patient-led decisions, we want to understand the experiences and opinions of pancreatic cancer patients and their families. We want to hear from those who have used the charity’s support services and those who have never been in contact with us. There are two ways you can take part. Insight Research Interviews: Share your experiences in a 1-hour, one-on-one interview. Survey: Look out for our shor…
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- 0 replies
- 1.1k views
If you’ve been told your pancreatic cancer can be removed with surgery, or if you’ve already had the operation, our Side by Side support can connect you with someone who has been through it too. Sometimes, just knowing what to expect can be enough to put your mind at ease. Side by Side is a phone service where you can speak to a trained volunteer who has already had pancreatic cancer surgery. We will try and match you with someone who had a similar type of surgery. If you are interested, find out more here
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Quick question/poll
by Support Team- 0 replies
- 1.2k views
Morning all! A quick favour from us if you have a minute. We’d like to know how many people may be supporting someone living with pancreatic cancer because our services are open to everyone affected by the disease. If you or someone you know has experienced pancreatic cancer, please take our one-question poll and tell us how many people provided practical or emotional support, the link is here As always, thank you in advance for any help you can give us Nadia
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- 1 reply
- 1.5k views
Hi all We are hosting a free and online ‘Living Well to the End of Life: Palliative Care for Pancreatic Cancer’ webinar on the 6th September 6pm - 7.30pm. We will be joined by Specialist Nurse Nicola Murphy and Consultant in Palliative Medicine Dr James Davies at this webinar for patients and carers, where we will discuss palliative care, including planning for the end of life. To find out more and book your place, click here Nadia
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‘Treatment for pancreatic cancer if you can’t have surgery’ webinar - 3rd October 6pm
by Support Team- 0 replies
- 1.1k views
Hi all We have a new webinar topic ‘Treatment for pancreatic cancer if you can’t have surgery’ which will be run and hosted by two of our lovely nurses Lynne and Rachel. They will be discussing the non-surgical treatments, including chemotherapy and radiotherapy for those with pancreatic cancer. There will be a focus on how to prepare for these treatments and how to keep well during and in between treatments. They will also cover understanding clinical trials, how they might be useful for those with pancreatic cancer, common terminology and the role of genomics. There will also be a Q&A session where you can ask any questions you might hav…
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Our new research strategy!
by Support Team- 0 replies
- 3k views
This week we are really pleased to be launching our new research strategy. Our vision is a world where everyone with pancreatic cancer survives to live long and well. Our new research strategy sets out our ambition to ensure that the next five years sees transformational advances in pancreatic cancer research, driving forward the research breakthroughs that will enable us to detect early, treat better, and save lives. If you would like to find out more, here is the link Best wishes, Katherine Research Communications Manager
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- 0 replies
- 1.1k views
Hi all, just a reminder that if you're based in the UK and looking for support for yourself or a loved one with pancreatic cancer, join us for online (free) support sessions on: - Managing Nutrition and Pancreatic Enzymes - Coping with Symptoms - Managing Chemotherapy We're also running a Family, Friends and Carers' Cuppa, as well as sessions for those that are living with pancreatic cancer. Our online support sessions are hosted by one of our specialist nurses on Zoom, and are small and informal. They're a chance to meet other people living with pancreatic cancer, share your experiences, ask questions and get support in a con…
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Forum suggestions
by Support Team- 1 follower
- 3 replies
- 1.3k views
Hi all I was thinking about creating some additional threads within the forum, perhaps a thread about nutrition or PERT, chemo, or a thread that doesn't talk about cancer at all? Does anybody have any suggestions or any thoughts about the forum in general? Feel free to reply below or Contact Us with this link Thank you! Nadia x
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Get tailored information about your diagnosis
by Support Team- 0 replies
- 1.1k views
If you or a loved one have recently been diagnosed with pancreatic cancer, our emails can help you get the information and support you need. The emails are tailored to the diagnosis and provide key information over several weeks. Sign up at pancreaticcancer.org.uk/emails
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- 0 replies
- 1.3k views
Reminder - our free webinar is tomorrow, 28th March 6pm! It can be hard to manage the digestive problems caused by pancreatic cancer. A dietitian can help, but sadly we know not everybody with pancreatic cancer has access to one. That's why Pancreatic Cancer UK has teamed up with two specialist dietitians to run a free evening webinar on Tuesday 28th March. Rachel Caddy and Lauren Roberts will be talking about the function of the pancreas and how this is impacted by cancer/treatment, and they'll be giving practical tips on topics including: managing pancreatic enzyme replacement therapy (PERT), such as Creon® recognising symptoms of m…
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Online support sessions coming up...
by Support Team- 0 replies
- 1.5k views
Hi all, just a reminder that if you're based in the UK and looking for support for yourself or a loved one with pancreatic cancer, join us for online (free) support sessions on: - Managing Nutrition and Pancreatic Enzymes - Coping with Symptoms - Managing Chemotherapy We're also running a Family, Friends and Carers' Cuppa, as well as sessions for those that are living with pancreatic cancer. Our online support sessions are hosted by one of our specialist nurses on Zoom, and are small and informal. They're a chance to meet other people living with pancreatic cancer, share your experiences, ask questions and get support in a con…
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- 0 replies
- 1.6k views
It can be hard to manage the digestive problems caused by pancreatic cancer. A dietitian can help, but sadly we know not everybody with pancreatic cancer has access to one. That's why Pancreatic Cancer UK has teamed up with two specialist dietitians to run a free evening webinar on Tuesday 28th March. Rachel Caddy and Lauren Roberts will be talking about the function of the pancreas and how this is impacted by cancer/treatment, and they'll be giving practical tips on topics including: managing pancreatic enzyme replacement therapy (PERT), such as Creon® recognising symptoms of malabsorption and malnutrition fortifying your food tackli…
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Cancer Cachexia Network
by Support Team- 1 reply
- 2.6k views
Cancer cachexia is a symptom that affects people with a cancer diagnosis including people with pancreatic cancer. Cancer cachexia is known as a ‘wasting syndrome’ and causes loss of appetite, loss of weight, weakness and fatigue among other symptoms. Loss of fat and muscle may cause other symptoms for people. Cancer cachexia is not commonly seen in early stages of diagnosis - it is more common in advanced cancer disease. We have been made aware of a Cancer Cachexia Network that is available for any interested people. It's a private Facebook group and you can join it here: www.facebook.com/groups/cancercachexia.
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Webinar tomorrow — 'Living Well to the End of Life: Palliative Care for Pancreatic Cancer'
by PCUK Ellie- 0 replies
- 1.9k views
Pancreatic cancer can make planning for the future feel difficult. You may have heard of the term ‘palliative care’, but feel unsure about what this means. ‘Palliative care’ means providing specialist care to manage symptoms such as pain, as well as emotional and practical support. The aim is to help you live as well as possible for as long as possible. Some people find the thought of palliative care upsetting, but these services aren’t just for people at the end of their life. They are available at any point during treatment or care. At Pancreatic Cancer UK, we're grateful to be joined by two consultants in palliative medicine for a free evening w…
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- 1 reply
- 2.1k views
People with pancreatic cancer can experience a lot of problems when it comes to digesting food. Weight loss, diarrhoea and other digestion issues can all have a huge impact on daily life. If you currently have pancreatic cancer, have been affected by pancreatic cancer in the past, or have cared for someone with the disease, you can help us by taking our survey. The survey takes under 5 minutes to complete. It asks about the support you have received to help with symptoms caused by nutritional and digestive issues. We’re particularly looking to hear from you if you or a loved one has been affected by pancreat…
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‘Pancreatic Cancer and Diabetes’ webinar, 24/05/22
by PCUK Ellie- 1 reply
- 2.2k views
If you or a loved one has a diagnosis of pancreatic cancer, you may have questions about diabetes. At Pancreatic Cancer UK, we're grateful to be joined by two diabetes specialists for a free evening webinar. There will be a Q&A session at the end so you can ask any questions you might have. ‘Pancreatic Cancer and Diabetes’ webinar Date: Tuesday 24th May, 6pm - 7.30pm Location: Zoom Speakers: Rachel Richardson — specialist pancreatic cancer nurse on Pancreatic Cancer UK’s Support Line Karen Mackie — Diabetes Specialist Dietitian at Royal Surrey County Hospital Beverly Tuthill — Diabetes Specialist Nurse…
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Help us get pancreatic cancer prioritised - email your MP today
by Support Team- 0 replies
- 1.8k views
Pancreatic cancer is the deadliest common cancer, but it's been neglected by successive government cancer plans. Now, the Health Secretary, Sajid Javid, has declared a 'War on Cancer', and he's writing a new 10-year cancer plan to back it up. If enough MPs tell the Health Secretary that pancreatic cancer should be a focus of the new cancer plan, the message will get through. Will you ask for your MP’s help to make pancreatic cancer a key part of the new plan? Click here to use our template and email your MP