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timefortiffin
Posts: 5
Joined: Tue May 29, 2018 12:25 pm

Fundraising for treatment - any advice

Postby timefortiffin » Thu Aug 02, 2018 11:42 am

Hi, I'm trying to work out how best to raise the funds to pay for Nanoknife, if it is suitable, for my brother. Every time i search for tips and help on how to go about this i come up with American websites or fundraising for charities.
Has anyone come across blogs or websites that offer tips on what type of events and any legalities/financial issues.

PCUK Nurse Jeni
Posts: 1021
Joined: Mon Jun 14, 2010 1:30 pm

Re: Fundraising for treatment - any advice

Postby PCUK Nurse Jeni » Thu Aug 02, 2018 4:52 pm

Hi there,

Perhaps email our fundraising team, and they may be able to help you?

The details are: fundraise@pancreaticcancer.org.uk

Kind regards,

Jeni

Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Michaela1
Posts: 53
Joined: Sat Jun 30, 2018 11:16 pm

Re: Fundraising for treatment - any advice

Postby Michaela1 » Thu Aug 02, 2018 11:57 pm

The only advice I can give is a go fund me page....but I Don't really know how successful they are. Maybe as it is such nice weather summer bbq/fete where people and local can donate brick a brac....local supermarkets may donate food. Do you have a lions club around you, they can be very good at fund raising advice? Sorry cannot be of more help..... I too would like to think nanoknife could be a good option, but I don't think they can do mine as it is stage 4 and spread to liver and around cavity.
Michaela

timefortiffin
Posts: 5
Joined: Tue May 29, 2018 12:25 pm

Re: Fundraising for treatment - any advice

Postby timefortiffin » Fri Aug 03, 2018 9:28 am

Hi Michaela1,
Thanks for your reply. I had not thought of the Lions Club as I've no experience with them. I'll add them to the list :-)

On a different thread on here i mentioned that the PA to Prof Edward Leen, who does Nanoknife at Princess Grace Hospital in London, can review your CT scan for free to assess if you would be suitable, and also he will talk to people who have questions about their suitability. I don't know how much you know about his work but he does do work on Stage 4 and when it's in the liver too, but obviously i have no idea of the details as to what extent he can and can't do work on.

Michaela1
Posts: 53
Joined: Sat Jun 30, 2018 11:16 pm

Re: Fundraising for treatment - any advice

Postby Michaela1 » Fri Aug 03, 2018 4:14 pm

Hi,

Thanks for that, I have only read from what I've picked up on here really, but good to know that he will look for free and give advice! I think will do 6 sessions first and get the next scan, then he can have a comparison from the folrinox treatment, what do you think? I guess at my stage anything is worth looking at. Very much the same as you though, I would have absolutely no way of paying for it privately!

timefortiffin
Posts: 5
Joined: Tue May 29, 2018 12:25 pm

Re: Fundraising for treatment - any advice

Postby timefortiffin » Sat Aug 04, 2018 2:45 pm

Michaela1 - It does appear that Nanonkife is usually done after you've had a certain amount of chemo, or mid way though. Perhaps you could have a chat with one of the nurses on here to see what they know, and then contact Prof Leen. Probably best to comment or create a thread on here other than this if you want to compare notes about potential treatment with people.
Having to try and raise money for treatment is a horrid position to be in. If you go ahead with it have a chat to friends, colleagues, etc colleagues and workplaces, family to see if they can come up with ideas and are willing to help.

toodotty
Posts: 147
Joined: Sat Jun 09, 2018 4:17 pm

Re: Fundraising for treatment - any advice

Postby toodotty » Tue Aug 14, 2018 3:06 pm

Hi both,
I have Stage IV PC as well including on the liver and other organs. I am due to have Nanoknife imminently, first to the liver and then to the pancreas. I may also have a shadow on my lung which requires further investigation. I am paying for my treatment out of my life insurance, which also covered terminal illness (life expectancy of less than one year). Check your cover, they paid up with no argument.
I have created a thread for Nanoknife so you can follow my progress there.

toodotty