A forum for any other issues around pancreatic cancer

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
Richietosh
Posts: 3
Joined: Thu Aug 01, 2019 1:50 pm

EPI but no known cause

Postby Richietosh » Wed Oct 21, 2020 6:19 pm

Hello;

Bit of a weird one. I was diagnosed with EPI last year. Pancreas wasn’t producing the enzymes although I was found to not be diabetic so it still half works.

After a CT with contrast and an MRCP scan they found absolutely nothing.

Pancreas is normal size and shape, no sign of scarring, No masses, no sign of duct obstruction or dilation, liver and gallbladder looked ok also.

So I’m really confused, how can that be? Obvious I’m very relived that the 2 scans didn’t so anything sinister. Does it make me more likely to develop a cancer of the pancreas?

Thank you

PCUK Nurse Rachel R
Posts: 91
Joined: Thu Jan 25, 2018 10:52 am

Re: EPI but no known cause

Postby PCUK Nurse Rachel R » Thu Oct 22, 2020 11:21 am

Hi Richietosh,

It's Rachel here, one of the nurses. That is great news that your investigations have not shown any cause for concern. I'm sure this came as a massive relief to you.

PEI, or pancreatic exocrine insufficiency (or EPI!) can be associated with other conditions too, less common ones are coeliac disease, irritable bowel syndrome, or inflammatory bowel disease.

I appreciate you might be under follow-up too perhaps with a Gastroenterology team?

If you did wish to have a more private chat with one of us nurses then do please get in touch by calling our support line or sending us an email - the contact details are below.

Best wishes,

Rachel

Rachel Richardson
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707