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Re: lurking on the fringes for 10 months

Posted: Thu Aug 28, 2014 12:30 pm
by nikkis
So glad to hear he is improving Jayne.
Nikki

Re: lurking on the fringes for 10 months

Posted: Thu Aug 28, 2014 4:08 pm
by SusannaUK
Ah Jayne, I've just read all this. It must have been really frightening. I am glad that he feels better now. I am praying for the best! Thinking of you! Susanna x

Re: lurking on the fringes for 10 months

Posted: Thu Aug 28, 2014 10:53 pm
by jay
jems coming home after the weekend, getting 24 hour care, no more medical intervention, my heart is breaking x

Re: lurking on the fringes for 10 months

Posted: Thu Aug 28, 2014 11:25 pm
by Carole McGregor
Jayne, I don't log onto the forum much since my husband died last year and haven't posted on your thread before but just happened to read your last message and can't bear the thought of you sitting tonight with your world falling apart without knowing how many of us out there feel your pain. This is not how it is supposed to be. You are clearly a strong woman and devoted to your husband. Hang on in there and know that we are all thinking of you and sending our love and virtual support. Cxxx

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 12:28 am
by sandraW
Jayne, so sorry to hear your heartbreaking news, as Carole says we are all thinking of you, sending ((((hugs)))) take care sandrax

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 1:14 am
by belgrade
Hi Jayne,
I've been reading your posts and know exactly how you feel as my husband died last September. Just wanted you to know that there are many on this forum who will be thinking of you and your family and will support you all we can.
Take care,

Hilary

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 3:44 am
by jay
Phoning palliative care nurse at half 8 in the morning, I asked 4 times for extra pain relief this afternoon it took 1 hour and 20 mins for someone to bring something, tonight it took 30 mins to get extra pain relief and had to ask 3 times,

I woke up at 2 am as I felt he was in pain or cold so I phoned the hospital . Nurse checked him and he was in pain.
Im staying the next three nights to monitor the pain and look after him as my daughter is going on sleep overs.
Going to phone the hospital again to check on him
x

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 4:34 am
by jay
Nurse said he was asleep ! Ive just e mailed his surgeon to tell him hes still in pain and to thank him as hes been wonderful.

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 8:27 am
by nikkis
Dear Jayne,
I am so sorry, this disease is hell bent on causing maximum stress and devastation to the loveliest of people. Hope the palliative nurse can sort the pain out, they perhaps need to increase the drugs in his driver? If things are no better I would to speak to the sister on the ward today (or go higher if necessary and ask if there is a matron) and tell her how long he has had to wait for painkillers.
You are going to be exhausted over the next few days, but I would want to stay with him too, so try and rest and eat a little when you can,
Lots of love,
Nikki

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 8:32 am
by Bowie
Dear Jayne, I am so sorry yo hear your devastating news and it's just so terrible that you have to still push for care and pain relief. Thinking you all and hoping you get him home soon. Fiona X

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 8:37 am
by jay
Ive written all the times down and phoning palliative care now to complain x
xx

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 9:57 am
by nikkis
Good for you jayne

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 5:13 pm
by jay
And I phoned McMillan nurse who phoned the ward! Palliative nurse got things sorted this morning and pain now under control. Increased strength of morphine in the driver and if needs be can have an injection every hour. Hes less yellow, more with it, had a few crackers, ham and cheese for lunch and one twix finger. They have suggested an enama, which I cant spell and he said im not using a bed pan im going to the toilet. (Not sure if this has happened yet) Change in attitude of the sister in charge is amazing! I am going to live in the moment, thank you for everyones support.
x

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 6:05 pm
by nikkis
Well done Jayne,
I have a nursing background, but am now a health visitor, and I feel so let down when I read stories here of nurses not making pain relief a priority. Thank goodness you are there to fight his corner. As I have said before, if you complain you do get better care!
Good advice I was given here when Paul was poorly earlier in the year is to concentrate on making memories as a family, and that is something I always keep at the forefront of my mind. Living in the moment sounds a good plan.
Thinking of you, your husband and your little girl,
Nikki

Re: lurking on the fringes for 10 months

Posted: Fri Aug 29, 2014 7:40 pm
by jay
Thanks Nikki

They haven't stopped antibiotics, vit k, saline, glucose, etc just said no more scans !
Going to the hospital at half 8 ish for the night.so I should get more sleep than being at home.
x