lurking on the fringes for 10 months

[jay]

Husband is extremely ill with biliary sepsis. he's getting moved to the regional centre tomorrow. Hes been practically unconscious today. Horrendous yellow colour and seeing things due to the toxins in his brain.
Jayne
x

[jay]

Hi Wacky, just read about your husbands infection with his stent, feel a bit better he was out of it for a few days, hope that doesn't sound awful and hope you know what I mean. x

[Didge]

Jay, hope your husband gets through this latest onslaught. Do let us know when you can. Thinking of you. x

[jay]

Still the same, except slightly more yellow the nurse said this morning. His fabulous surgeon has e mailed me back saying he will take a look at him and see what he can do today. x

[nikkis]

Dear Jayne,
You poor things. Hope the transfer goes smoothly and things start improving for you. Glad the surgeons coming, sounds like he is the man to make some decisions.
Thinking of you both,
Nikki

[sandraW]

Dear Jayne,
Glad his surgeon is taking a look at him, as Nikki said he is the man I'm sure to sort it out, thinking of you both take care sandrax

[wackywacky]

Hi Jayne I know what you mean don't worry, We were on co-amoxoclav for it morphine and loads of pain killers no wonder they are out of it x

[jay]

just phoned hes down in ultra sound, visiting is not unitl two but im going up now, hes still totally out of it, I cant stop shaking
x

[sandraW]

jayne, sending (((hugs))) sandrax

[Bowie]

Jayne, hope something not too bad is found on the ultrasound and they can fix it, so he starts to feel better really soon and you, the stress must be horrible, I really don't know how you cope. Thinking of your both and sending all my very best wishes. Fiona X

[Didge]

virtual hugs and best wishes from me, too. x

[jay]

Have put a drain in and survived the procedure, was asked four times did I want it done and did I understand the consequences,
spent night at hospital, got a rota going now, hes not in any pain now as using morphine syringe driver, pethadine buscapan, the palliative care nurse told me that sometimes people with pc cant digest the pain killers and have to be given it straight into the blood stream, no wonder hes been in agony. Consultant said in all his years at working at the hospital has never seen such a bad case of jaundice, bilirubin is over 900 !!!!
x

[nikkis]

Hi Jayne,
It must be truly horrendous, so glad he has made it through the procedure, you have never been far from my thoughts. Paul has been on a syringe driver twice now, and kept it for several weeks at a time. In fact I still give him diamorphine injections through a little port in his arm, because his absorption of oral drugs is so poor, something the hospice let me do. Buscopan in the syringe driver really helped when he was in lots of pain earlier on in the year, we were told that for anyone it is next to useless orally. So don't be too worried if he comes home with a syringe driver, the district nurses will come in every day and change it, and they make it a priority.
You obviously have a strong determined man there, to get through so much. Hopefully once he is rested and that bilirubin start to fall, he will start to feel better,
Take care,
Nikki

[jay]

ah thanks Nikki, he has a picc line in chest which was reading for his chemo but they wont use it as they say its cross contamination,

He was awake and lucid when I went in yesterday afternoon, I nearly fainted when he said hello. His bilirubin levels have gone from 990 to 500. He managed a tiny bit of yoghurt form me . They are outing a feeding tube in which hes not happy about but he has hardly eaten for 5 weeks.
xxxxxx

[sandraW]

Jayne, thank goodness he's feeling a bit better, lets hope the feeding tube helps him to gain some strength. thinking of you sandrax