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PCUK Nurse Jeni
Posts: 1106
Joined: Mon Jun 14, 2010 1:30 pm

Re: Mum's diagnosis

Postby PCUK Nurse Jeni » Thu Nov 12, 2015 12:08 pm

Hi Sue,

Sorry to hear all this about your mum.

Was your mum seen after the fall and cut head? As she probably should have at least been assessed.
Did she lose consciousness at all? Is the cut on her head deep at all, or superficial? Did it bleed for long?

Its probably not an issue now if she has been OK since, and don't want to add something else to this for you Sue, but just in case.

Hopefully, she has a nice weekend away. Is she going somewhere where there will be help for her should she need it?

Kind regards,
Jeni.

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Tue Nov 17, 2015 7:50 pm

Mum managed to have her weekend away and she said she had a lovely time. My stepfather came back worn out and didn't say he had a lovely time! She was happy that is the main thing!
Before she went there was no word from the Dr! I went round today and still nothing! Mum' s stomach was even bigger and her leg was leaking fluid! She also said she could feel it in her throat and she feels exhausted.
I decided to ring the G P myself which I did and he rang me back to have a chat. I told him everything and he promised to call me back which he did and he also arranged for the acute oncology team to ring me from the hospital ! They have now arranged for Mum to go in at 8 a.m tomorrow and hopefully if bloods and everything are ok they will drain the fluid. They said she will be in for a day as long as there are no complications. I am so relieved they are seeing her! I can't believe she has just been left for 10 days since her emergency GP appointment!
I must admit I am dreading the next few weeks as the deterioration is obvious now. I have read on the internet that ascities is "the beginning of the end" in pancreatic cancer and that scares me!
Throughout this whole journey Mum has remained positive and determined and she still is.
Love to everyone,
Sue xxx

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Wed Nov 18, 2015 9:26 am

Sue,
Hope they get Mum feeling a little more comfortable today, I am so glad that she enjoyed her weekend, but your poor stepfather, he would have been so worried that something might go wrong.
It is terrible that your Mum has been left as you say, but then I know all about that.
Its good that your Mum can remain positive, and lets hope she continues to kick its ass as she has managed to do so far. Sending you a hug, love sandrax xxx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Wed Nov 18, 2015 10:32 pm

Thankyou Sandra I really appreciate you keeping in touch on here. A Quick update on Mum her blood sugar levels were 27.9 + and the nurse said her reader doesn't go higher so goodness knows what the real reading is! She is anaemic and her blood is thin! They are keeping her in and she is having a blood transfusion tonight and insulin . Hopefully they will drain the fluid tomorrow. They will keep her in until her blood sugar levels stabalise!
Let's see if tomorrow is a better day.
Love to everyone,
Sue x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sat Nov 21, 2015 8:00 am

Quick update... Mum has had about 7 litres of fluid drained and her blood sugars are stabilising. She has to inject herself twice a day and check her readings! She was tucking into her dinner last night and has been told she can eat whatever she likes! She still has a smile on her face!
Love to everyone,
Sue x

Didge
Posts: 826
Joined: Sun Dec 29, 2013 10:35 am

Re: Mum's diagnosis

Postby Didge » Sun Nov 22, 2015 9:29 am

Lovely news about your amazing mum! X

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Mon Nov 23, 2015 10:12 am

Sue, That's good, that she is feeling so much better, and lovely she is still smiling and enjoying her dinner love to you all sandrax xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sun Nov 29, 2015 12:41 pm

A quick update. Mum came home on Tuesday and seemed fine on Wednesday. She was getting her head around injecting insulin and doing really well! Thursday morning at 0640 phone rings and my stepfather says he can't wake my mum! I flew round thinking the worse! She was breathing heavy when I got there but we couldn't wake her! Called the ambulance and her blood sugar was very low!
Thursday was awful we were in A and E and then emergency medical unit. I was told she could go at anytime! Anyway to cut a long story short she is now on a ward! They are stabilising her blood sugar and treating her for an infection!
I have aged 100 years and I am a total wreck! Let's see what the next few days bring!
Love to everyone out there,
Sue xxx

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Sun Nov 29, 2015 2:26 pm

Sue,
What more can your poor mum cope with, and you too, its so hard for you I am sure. Fingers crossed that they can get her stabilised, thinking of you love sandrax xx

Didge
Posts: 826
Joined: Sun Dec 29, 2013 10:35 am

Re: Mum's diagnosis

Postby Didge » Sun Nov 29, 2015 5:16 pm

Hope she is already improving. Getting the insulin right is not easy! X

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sun Nov 29, 2015 10:00 pm

Quick update... Mum seems slightly confused! Saying things that aren't quite right! She has also had 2 falls in last 24hours. She has a big bump on her head!
Has anyone else experienced confusion? Could it be because her sats are low?
What an awful illness!
Love Sue x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Mon Nov 30, 2015 7:39 am

Hi Sue, hope your mum is a little better this morning. Jem was confused but that was due to high levels of bilirubin and the infection from biliary sepsis
Thinking of you all
love Jayne
x.

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: Mum's diagnosis

Postby allyc1 » Mon Nov 30, 2015 11:42 am

Hi Sue

What a roller coaster you are all having at the moment, I know exactly what you are going through after experiencing it first hand with my dad, and just being so helpless!
My dad suffered with confusion, but I think some was the medication as he seemed to be on a high dosage, and also when he had an infection and was dehydrated too was a factor.
I hope your mum gets well she truly is a fighter, just like my dad he suffered for a year he never got any peace from that awful illness, he died 3 weeks ago peacefully in bed,which I am relieved for, even though you know its coming its still a big shock, and I think that's the hardest thing to deal with is how they will be at the end? That was my hardest thing especially as my dad had all his faculties still.
Thinking of you Sue you are sadly not alone
Alison x

PCUK Nurse Jeni
Posts: 1106
Joined: Mon Jun 14, 2010 1:30 pm

Re: Mum's diagnosis

Postby PCUK Nurse Jeni » Mon Nov 30, 2015 2:58 pm

Hi Sue,

Sorry to hear all this latest on your mum.

How are her blood sugar levels now? Are they still low? Low blood sugar levels can certainly cause confusion, and even aggression sometimes. Its just one of those things which happen when they drop.

If they were very low when she could not be woken up, then could be that they are fluctuating up and down now as well.

I am sure you have let the staff know, and perhaps impress upon them that this is not "normal" for mum.

Kind regards,

Jeni.

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Mon Nov 30, 2015 9:03 pm

Hi Jeni,
Her blood sugar was 21.9 when I left the hospital! I have told them this is not at all like my mum! The occupational therapist saw her today and had a chat.
I haven't spoken to anyone yet even though I have asked and asked! I have said I want to see a DR tomorrow! The only thing the nurse told me was her electrolytes were all over the place but I don't know what that means?
This is all very worrying!
Thankyou for your reply and reading my post.
Sue