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Ant11
Posts: 125
Joined: Sun Dec 01, 2013 8:43 pm

Re: Mum's diagnosis

Postby Ant11 » Thu Jun 25, 2015 11:58 am

Sending you lots of Strength to both you and your Mum Sue. You are one amazing lady who not only supports your lovely Mum but so many others who are on this awful PC journey. xx

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Mum's diagnosis

Postby RLF » Thu Jun 25, 2015 1:16 pm

Glad the hospital is behaving itself this time! It's always a shock when you don't have to fight the system! Hope your mum is feeling a little better from the food!
Rob
x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Fri Jun 26, 2015 7:27 am

Thankyou for the lovely comments. Mum had the dye and it showed the stomach is swollen so food not going down properly yet! Still soft foods soup and ice cream. I think this is going to be a long process! She is weak and tired and I really hope she has some recovery from this as she has been through so much.
Sue x

Didge
Posts: 826
Joined: Sun Dec 29, 2013 10:35 am

Re: Mum's diagnosis

Postby Didge » Fri Jun 26, 2015 8:51 am

As long as she is getting nutrition one way or another! I do hope she keeps fighting on - as you say she has been through so much but her determination means she would not have done anything different. Thinking of you both, Didge x

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Fri Jun 26, 2015 12:38 pm

Sue,

Glad the procedure is over and done with, your poor mum she has been through so much bless her.
Hopefully now she can get some strength back and slowly start to eat again.

Sending you all, love and the best of wishes you are in my thoughts all the time, try to take care of yourself too, love sandrax xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sun Jun 28, 2015 9:49 pm

Visited tonight and Mum is very down. She said they don't leave her alone! While I was there they took blood which took them 15 minutes to get any, pricked her finger to check blood sugar, gave her insulin injection in her stomach and then tried to put another canula in where they tried 11 times! Then they were calling another DR to try again. Her heart was racing and her blood sugar was 26 . Does anyone know if this is dangerous when you have pancreatic cancer? Her hand is also very swollen and when I asked the nurse she said it was because she's not eating much! Is this true?
I was so upset when I got home because I felt so sorry for her. She just wants to go home.
Trying to stay strong. Sue x

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: Mum's diagnosis

Postby sheena » Sun Jun 28, 2015 10:21 pm

Ah sue so sorry to hear your mum isn't getting any peace .Steve's sugar levels have reached 30 at its highest , I'm sure her levels will go down soon keep strong so hard to watch loved ones in pain x

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Sun Jun 28, 2015 11:30 pm

Sue,

I have been wondering how you were all doing, sorry to hear Mum is still not feeling any better.
Is her hand swollen where she had previously had a canula fitted? because I know the fluid can sometimes go into the surrounding tissue, if the line gets blocked, and cause swelling. I'm not surprised her heart was racing if they tried 11 times to get a canula in place.
As for the high blood sugar it obviously isn't good, but as insulin is produced by the pancreas its bound to make it more difficult to control and being generally unwell and not eating will also affect it.

sending you love and hugs sandrax xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Tue Jun 30, 2015 10:47 am

Mum has hit rock bottom! She is exhausted and very down! Managed to get hold of a lovely oncology nurse yesterday who went to see her as I was so worried. She phoned me twice to talk to me. She thinks it is mainly due to tiredness as they woke her every hour to prick her finger throughout the night. Her blood sugar is back down to 9.1 now so hopefully they don't need to do this every hour any more.
The next couple of days are crucial to get her eating solids to see if operation has been successful. Mum doesn't want to eat! She can't go home until she eats!
This is so hard she has been through so much this isn't my full of life, lively energetic Mum any more but this is still the Mum I love with all my heart.
Love to everyone. Sue xxx

PCUK Nurse Jeni
Posts: 1107
Joined: Mon Jun 14, 2010 1:30 pm

Re: Mum's diagnosis

Postby PCUK Nurse Jeni » Tue Jun 30, 2015 11:44 am

Hi Sue,

I have emailed you separately.

Kind regards,

Jeni.

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Tue Jun 30, 2015 12:37 pm

Thinking of you all Sue

love sandrax xx

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 9:00 am

Re: Mum's diagnosis

Postby WilliamS » Tue Jun 30, 2015 7:40 pm

Sorry to read that your brave Mum isn't feeling any better. Thinking of you.

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Wed Jul 01, 2015 7:33 am

Thinking of you Sue,
love Jayne
x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Thu Jul 02, 2015 10:45 pm

Mum should be out of hospital Friday or Saturday as soon as the TPN has finished. You have to be weaned off it! The last two and a half weeks have been hard. Mum's recovery will be better at home as she has had enough of the hospital and cannot stand the food, she told me this today. She is very down and being at home will lift her spirits! She can watch the tennis next week.
The pallative nurses will be going to help her everyday with personal care while she needs it. She is very fragile. We have now been told that there is nothing else that they can do if she gets another blockage.
I hope she can have some quality time now without any issues. She told me today that she will not ever go back into hospital!
Thankyou Chris and Jeni for e mailing me it really helps to have information.
I am praying she gets to see her Granddaughter on her wedding day on the 29th August.
Love to everyone.
Sue xxx

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Fri Jul 03, 2015 12:23 am

Hi Sue,

I am sure when she gets home she will feel happier, and its better for you not having to go to the hospital, for visiting, I am not surprised she is fed up bless her, she has had a rough time.
I hope she is well enough to go to the wedding, it will be so special for you all.

Thank you for letting us know thinking of you take care love sandrax xxx