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Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Mon Dec 14, 2015 10:28 pm

Mum has deteriorated so much that I am shocked and constantly on edge! Her legs and feet are so swollen and both leaking! The district nurse dresses them everyday but she is struggling to get trousers on over them and certainly can't get any shoes on! She is also struggling to move around! Her stomach is large as well. Mum is also suffering from diaorrehea which is bad and she is having many accidents! She also has a dreadful cough!
She can't go on like this but she has said she will not go to hospital and I think she means it! The community hospice nurse went to see her today but I wasn't there so I'm not sure what they chatted about! I will find out tomorrow.
My Mum has fought this disease for 18 months and has been positive and determined but it looks like the disease is winning now! I cannot believe this is happening so quickly and how awful it is. I am taking it a day at a time!
Sorry for the sad post but this has been such an up and down journey which I sadly believe is coming to the end!
Love to everyone,
Sue xxx

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Tue Dec 15, 2015 1:09 am

Sorry to hear about your Mum, she has put up such a brave fight but this bloody awful disease is relentless.
It is up to your Mum where she wants to be, and no one else can make that decision for her, but I understand how worrying it must be for you Sue. I am sure you will get lots of support if she does stay at home or perhaps the nurse may have persuaded her to go to the hospice if only for a few days to see if they can help with her legs and stomach, and perhaps slow the diarrhoea too. They really are amazing places, and the staff are also very good at getting things sorted quickly if they can.
Thinking of you, try and take care of yourself too love sandrax xxx

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Mum's diagnosis

Postby brodders » Tue Dec 15, 2015 8:48 am

Xxxxxxxxxxxxx

Fifi

Re: Mum's diagnosis

Postby Fifi » Tue Dec 15, 2015 9:46 am

Sorry to read this about your Mum Sue. It must be so awful for you both. I know just alone how the diarrhoea side of it is, as Dad had severe diarrhoea all the way through his illness, which kept him housebound, and hospitalised on more than one occasion. To have everything else on top, well, it must be truly awful for you both.
From what I have read, you don't seem to have great GP's or great hospital staff. I hope the hospice nurses are much better and are looking after your Mum with the greatest care and respect.
Are you regularly in touch with Jeni and Dianne, as I do believe they can tell you who to deal with with regards to your Mum's swelling?


Leila xx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Mum's diagnosis

Postby Didge » Tue Dec 15, 2015 2:20 pm

So sorry to hear your mum is so poorly. Hospice staff should be able to allow her to stay at home if that is what she wants, and it seems it is! however, there may be some symptoms they can't handle at home. Rob was in a hospice ward (rather than an actual hospice as that is all he was offered) for the last two and a half weeks but that was his choice as he didn't want to die at home because of his children. He could have managed at home I think if that was what he wanted but all cases are different. I do hope your mum is as comfortable as she can be and that the hospice nurses are able to fulfil her wishes. As you say, particularly difficult at this time of year xxx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Wed Dec 16, 2015 7:29 am

So sorry to hear your mum is so poorly Sue,Thinking of you all
love Jayne
x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Thu Dec 17, 2015 10:00 am

Thankyou everyone I am glad you are all there! Mum is much the same and it is her wishes to stay at home as long as she can and then go to the hospice. We have a wonderful hospice community nurse and district nurses. You are right Leila the DR's need some education!
Love to everyone,
Sue xxx

belgrade
Posts: 157
Joined: Fri Jul 05, 2013 11:53 pm

Re: Mum's diagnosis

Postby belgrade » Thu Dec 17, 2015 11:09 am

Your Mum is an inspiration to all those affected by this disease.

Thinking of you and your family,
Hilary

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Fri Dec 18, 2015 9:46 am

Hi Sue,
Glad you are getting the support you need right now, thinking of you love sandrax xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Fri Dec 18, 2015 11:25 pm

Mum has been admitted to hospital this afternoon. She has a terrible cough which the DR thinks may be pneumonia and she is being sick! Bringing up brown/yellow bile! She actually said to me she doesn't want to be here anymore! Her wishes are to go to the hospice if they can't treat her!
Tough times,
Love Sue xxx

Fifi

Re: Mum's diagnosis

Postby Fifi » Sat Dec 19, 2015 10:22 am

Sue,

Very tough times. Sadly, I know your pain and I am thinking about you both often.
I hope for your Mum that she gets the care that she needs and deserves. Have you made plans at the Hospice to have a bed ready for your Mum? I know I had to wait a few days before a bed was ready for Dad, but sadly by then he was too ill to be moved.

Thinking of you and your lovely Mum.

Leila xx

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Sat Dec 19, 2015 12:57 pm

Sue,
Just wishing I could do more to help, hospital is not the best place, but if it is pneumonia or even pleurisy, its probably the best starting point. We went through the hospital palliative care team,they seem to have priority at least were we where they did. They sorted a bed out for Trevor within 24 hours, as usual you have to push push but I know you are used to that now. We were in the specialist Oncology unit though and not just the "hospital". Thinking of you all love sandrax xxx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sun Dec 20, 2015 8:26 am

Thankyou Leila and Sandra for your messages. Mum was slightly better yesterday afternoon. Her blood sugar was back within normal range and the antibiotics seemed to be kicking in! They have managed to stop the vomiting and she has a syringe driver with anti sickness drugs. Still has an awful cough!
The pallative DR visited while I was there and went through everything. She really seemed to think they could treat the symptoms although she said how frail Mum is.
Let's see what today brings. This is emotionally exhausting!
Love to everyone,
Sue xxx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Sun Dec 20, 2015 11:58 am

Glad your mum was a bit better yesterday sue .
hugs Jayne
x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Mum's diagnosis

Postby Didge » Sun Dec 20, 2015 1:13 pm

Hope your mum improves again today and that she is able to enjoy the time she has left. Sounds that you have a decent palliative care team who will work to treat they symptoms as best they can. Thinking of you every day xxx