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Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Wed Aug 13, 2014 6:31 pm

Saw mum today and she looked so frail. She's still being sick and isn't eating. She said she has no appetite at all and no energy!
I had to go to my dr today as I have sciatica, which I don't have time for, but these things are sent to try us! I spoke to him about mum and he is going to see her tomorrow.
Worried is an understatement! I hate hate hate this cancer!
She Also said it has made her go deaf! Has anyone else experienced deafness?
Thinking of everyone going through this nightmare.
Sue x

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Mum's diagnosis

Postby brodders » Wed Aug 13, 2014 9:20 pm

Sorry to hear this Sue. Very difficult and surreal time. Nothing prepares us for it. My mum didn't lose her hearing but was so unwell in such a short time. Take care and thinking of you. Love Cate Xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Wed Aug 13, 2014 9:25 pm

Thankyou Cate I am beside myself! My sister in law just text me and said my mum has text her and said she is too unwell for a visit tomorrow. I hope the dr will sort her out and give her something for the sickness and something to give her an appetite.
I can hardly move at the moment because of sciatica so that's not helping.
Sue x

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Mum's diagnosis

Postby brodders » Wed Aug 13, 2014 9:55 pm

Sorry to hear you are not well either. My mum didn't want to see anyone either. Think this is pretty normal. If you can stay strong and cherish your mum. Lots and lots of love Cate xxxx

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Mum's diagnosis

Postby brodders » Wed Aug 13, 2014 9:58 pm

Ps my mums lovely Macmillan nurse in liaison with her district nurse gave her something for her appetite and sickness xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Thu Aug 14, 2014 9:10 pm

The doctor (GP) went to see her today and prescribed different anti sickness tablets and more drinks, she doesn't like them! Managed to get hold of the hospital and her oncologists registrar phoned her at home tonight and has arranged to see her at11a.m in the morning. She told her on the phone they may take her in but we will see! Mum doesn't want to go in to hospital. I just want them to sort her out and build her up so she at least has some strength to keep fighting!
She has also been booked in for a CT scan next week even though she has only had 3 chemos! I am worried about this.
She has gone downhill quickly from this last lot of chemo I'm not sure why!
I am in pain from my back and struggling to move but I feel guilty moaning about it!
Tomorrow's another day! sue x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Fri Aug 15, 2014 8:23 pm

Mum was admitted to hospital today. Her blood pressure was low and she was dehydrated. She is now on a potassium fluid drip and they are going to give her a CT scan . She seemed brighter this afternoon. She has lost 11LB in last week!
The oncologist said it could be the chemo that had made her so sick or the pancreas is pressing on something.
I have never witnessed such a awful evil disease as this. Sue x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Sat Aug 16, 2014 7:27 am

Im sorry your mum has been taken into hospital but its the best place to get her sorted. Glad shes a bit brighter this afternoon.
My husband was admitted to hospital on Tuesday and they found tumours in lymph nodes in the original site of his whipples, were causing a blockage and the immnense pain. Hes getting a stent fitted next week. Hope your mum gets sorted very soon and your back improves, take care x

SueH
Posts: 18
Joined: Fri Mar 21, 2014 9:33 pm

Re: Mum's diagnosis

Postby SueH » Sat Aug 16, 2014 8:49 am

Hi Sue

Sorry your Mums in hospital. Have they checked your Mums blood sugar? My husband was really sick after one of his chemo sessions. He lost 10kg in a week and was badly dehydrated. He was admitted to hospital and rehydrated but was still not better. It was on the 3rd day in hospital that his blood sugar was checked and he was off the charts. Once put on insulin he was fine. I imagine it has been checked, but it is worth checking as PC can cause diabeties. Hope your back is getting better.

Sue H

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Mon Aug 18, 2014 10:13 pm

Mum is still in hospital. She has been on a potassium drip and has had bloods and urine tests done. They keep saying she is having 2 CT scans on her head and abdomen! Not sure about the head why would they do that? She hardly eats or drinks and is very down. She said tonight she doesn't want to do anything she can't be bothered. She seems very tired. She asked the nurses if she could go home but they said she must have the scan first. I must admit I'm worried! This is not my Mum!
My back is getting better and I have physio tomorrow but I still feel guilty moaning about it...it seems insignificant!
This disease is evil and I'm not sure where we go from here there is just nothing anyone can do.
Sue x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Tue Aug 19, 2014 12:24 pm

Hi Sue,
sorry to hear your mum is so unwell, I reiterate what Sue H says, please make sure they have checked blood sugars, Trevor too lost 7 Kilos due to high blood sugar caused by the folfirinox and particularly the steroids, it made him feel truly dreadful, they put him on insulin and he felt much better. As PC is such a such a specialist disease the nurses might well not have checked blood sugar as a matter of course. take care sandrax

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Wed Aug 20, 2014 9:31 pm

Mum is still in hospital but had her CT scans this afternoon. Still not sure why they did one on her head maybe we will know tomorrow. She is still having potassium fluid. Had a good chat with the nurses on here this afternoon and received some great advice on the creons. All this information has been passed onto my mum and I even took her in some apricot jam.
Mum is scared to hear the news of her scan results and I have asked the nurses for a member of the family to be with her just in case!
I hope they let her go home tomorrow as she is just not eating in the hospital.
What a nightmare! Sue x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Thu Aug 21, 2014 12:14 pm

Just received the news I was dreading! Mum's tumor has grown and is now pressing on the bowel! They want to put in another stent. I am going to the hospital at 3p.m and I'm not sure how I am going to be. Absolutely heartbroken! What happens now?
Sue x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Thu Aug 21, 2014 12:56 pm

Sue im so sorry your mums tumour has grown,the stent should ease the pressure on her bowel
xx

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Thu Aug 21, 2014 1:57 pm

Sue, so sorry about your news, hope you cope ok this afternoon, just be strong for your mum,
thinking of you sandrax