A forum for advanced pancreatic cancer issues

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Nardobd
Posts: 479
Joined: Sat Feb 14, 2009 6:25 pm

Re: Stage 4 pc 3-6months to live

Postby Nardobd » Sun Jul 24, 2011 6:24 pm

Oh Mints....I wish I could be there in person to give you a hug. I'm so very sorry.

You have to take comfort in the fact that you did everything you could. None of us have the luxury of making decisions in hindsight. Much love to you my friend - I'm sending thoughts of comfort and strength your way.

Love
Nicki xx

PCUK Nurse Jeni
Posts: 1112
Joined: Mon Jun 14, 2010 1:30 pm

Re: Stage 4 pc 3-6months to live

Postby PCUK Nurse Jeni » Mon Jul 25, 2011 2:13 pm

Hi Mints,

I am very sorry to hear about your husbands sudden death. On behalf of the charity, please accept our condolences at this difficult time.
In terms of coping, then your GP may be able to offer you some bereavement counselling when the time is right for you, of course.

In the meantime, the support service is available and may be of some help to you. Can be contacted by emailing support@pancreaticcancer.org.uk.

Kind regards,

Jeni.

ali
Posts: 90
Joined: Sat Jun 25, 2011 9:22 am

Re: Stage 4 pc 3-6months to live

Postby ali » Mon Jul 25, 2011 10:30 pm

Hi Jeni
can relatives use this service --i/we lost our mum 6/52 ago and are struggling to come to terms with it all--such short time from diagnosis to actually sleeping away.
Not sure if you read all posts or any but i have posted a few since prob. end june
Thanks
Helen xx

PCUK Nurse Jeni
Posts: 1112
Joined: Mon Jun 14, 2010 1:30 pm

Re: Stage 4 pc 3-6months to live

Postby PCUK Nurse Jeni » Tue Jul 26, 2011 3:01 pm

Hi Helen,

Yes, of course you can use the service.

If you would like to drop me an email with your phone number to the email address above, then we can have a chat.

Kind regards,

Jeni.

ali
Posts: 90
Joined: Sat Jun 25, 2011 9:22 am

Re: Stage 4 pc 3-6months to live

Postby ali » Tue Jul 26, 2011 8:57 pm

Hi Jeni
Thanks i might do ,just back to work today
Thanks
Helen

mints
Posts: 32
Joined: Mon Jul 04, 2011 7:43 pm

Re: Stage 4 pc 3-6months to live

Postby mints » Wed Aug 03, 2011 4:32 pm

Thank you everyone for all your comments.
It really helps to vent feelings on a website where people know what your going through, or feeling.
The days leading upto the funeral (on monday 1st aug)were busy. My son was absolutely brilliant, helping me with all the arrangements
unfortunately he knew what to do,he lost his 3 year old daughter(my granddaughter) to lukeamea 7 years ago.
Whilst everyone is telling me what a wonderful man my husband was,and stating that he was far too young(51) it brings some comfort.
As life goes back to normal for eveyone else, my grieveing starts, I feel a bit lost at the moment, and I know it will take time, but I wish I could click my fingers and feel better.
Back to work next week, being busy seems to help me at the moment.
I know it's earlydays, but at some stage I feel I will have to get involved in something regarding raising the profile of this dreadful cancer.
Right now, I'm on the mend.

Nardobd
Posts: 479
Joined: Sat Feb 14, 2009 6:25 pm

Re: Stage 4 pc 3-6months to live

Postby Nardobd » Wed Aug 03, 2011 6:17 pm

Mints I wish there was some way to ease the pain. In time it becomes less raw. You know that you did everything you could for your husband and the most important thing he had was the support of a loving and beloved wife. Wherever you go a little piece of him goes there with you because you'll keep him in your heart.

Love
Nicki x

lynbo
Posts: 269
Joined: Sat Aug 28, 2010 6:23 pm

Re: Stage 4 pc 3-6months to live

Postby lynbo » Thu Aug 04, 2011 12:12 am

Mints
Thinking of you, sending love and prayers
Lynbo xx

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: Stage 4 pc 3-6months to live

Postby laura » Thu Aug 04, 2011 7:31 pm

dear mints,, been following your so very short story, am so sorry to hear your hubby lost his fight, thinking of you at this time
love n hugs laura xx

deb68
Posts: 35
Joined: Sat Apr 17, 2010 4:58 pm

Re: Stage 4 pc 3-6months to live

Postby deb68 » Thu Aug 11, 2011 12:29 pm

Dear Mints
I haven't been on the site for some time but was a regular user whilst my daughter was ill last year - I lost her at 27 years old to pc and we have just commemorated her first anniversary. I just wanted to let you know that after reading your posts my heart went out to you and I wanted to say how very sorry I am.

My thoughts and prayers are with you and your family

With love

Debbie.x

mints
Posts: 32
Joined: Mon Jul 04, 2011 7:43 pm

Re: Stage 4 pc 3-6months to live

Postby mints » Wed Aug 17, 2011 1:58 pm

Hello Debbie,

Have read your story also,how very unfair this disease is.
My daughter is of similar age and I couldn't imagine the pain of losing her.
I hope you spent the anniversary as you needed to.
I feel cheated that my husband was only 51,but a common theme is that this cancer needs to be recognised by GP's ealier, and it's not just for the 65 plus age group.
It is a comfort being on this web-site with people who understand.
Thank you for thoughts and prayers.

deb68
Posts: 35
Joined: Sat Apr 17, 2010 4:58 pm

Re: Stage 4 pc 3-6months to live

Postby deb68 » Thu Aug 18, 2011 2:00 pm

Hello again Mints

Thank you for your kind comments about my daughter - this site is very supportive and can help to lessen the feelings of isolation that one feels.

You are so right in that a key problem about pancreatic cancer is the lack of understanding and awareness at the early stages - my daughter went to her GP on several occasions with vague abdominal pain but the problem was that the last thing that was considered in a healthy 26 year old was a problem with the pancreas. I have also been back to meet with her consultant and have since received copies of all her medical notes during her illness and even the slightest suggestion of a tumour just wasn't mentioned as all tests came back inconclusive.
Like many who have been affected by pc I intend to do all I can and support the work of PCUK to raise the profile and awareness of this most deadly of cancers until finally - someone listens!

I hope you are being gentle on yourself and that you have good support around you - I so know what you are going through and I cannot tell you how sorry I am.

Take care

Debbie x

genie50
Posts: 1
Joined: Fri Nov 06, 2009 8:42 pm

Re: Stage 4 pc 3-6months to live

Postby genie50 » Wed Jun 27, 2012 10:37 pm

Hi Mints, Just came across your topic, and was sad hear about your Husband. My Husband is nearing the end of the same journey Ampullary Pancreatic cancer which is wrapped round a main artery, he was given 6 wks and that was 14 wks ago , he still manages to get around although somewhat slowly,
Reading your post has made me sit up and take notice ,just like yourself on his good days he tells me to nip out and get some shopping , I now realize that it is wize to have a family member sit with him at all times better still have them do the shopping ,I had been told in March that it would be quick but I guess I was waiting for him to be bedridden or showing warning signs before getting myself into panic mode. Your post has changed my way of thinking and I can try prepare myself for all events.
Sending Hugs and Kind regards xxx

mints
Posts: 32
Joined: Mon Jul 04, 2011 7:43 pm

Re: Stage 4 pc 3-6months to live

Postby mints » Thu Jun 28, 2012 11:42 am

Hi Genie,
Like you I tried to think about what to expect but,it's very difficult to predict the end.
Even the district nurse that came in on the day he died said she would (flag up) if she felt things were getting worse.
To this day without a post mortem, we don't know if it was due to the artery ruptureing or a heart attack due to organ failure.There was alot of blood in his urine at this stage, plus swelling in his ankles and tummy.
I frequently beat myself up about being out when it happened,and him being alone.
I hope you make the right decision for you at this difficult time.
Thinking of you.