A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Carls story

Postby RLF » Sat Aug 08, 2015 12:49 pm

On a side note, Carl (and I) won an award for our street food business from Theo Paphitis (ex Dragons Den Dragon) last month. We were both thrilled and since then Carl has used this to push the business forward. We got on the local Leeds TV channel called Made in Leeds and here is the segment

https://www.youtube.com/watch?v=6zlo_KU ... e=youtu.be

I know it's not cancer related but it's something he's very proud of and the video is worth a look just to laugh at Carl stirring the same bowl of coleslaw over and over. He thought the guy was going to edit it, but looks like they just use the raw footage.

Carl has also done some more filming for Pancreatic cancer action, im not entirely sure what it is but a film crew turned up at our house and spent some time talking to Carl and asking questions. That was a couple months ago and we've not heard anything since then but looking forward to seeing that video too.

Hope everyone can have as good a weekend as possible.

Rob
x

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Carls story

Postby sandraW » Sat Aug 08, 2015 2:13 pm

Thanks for that Rob, and WELL DONE Carl, had to smile at the coleslaw!! it certainly was well mixed, lovely to see Carl looking and sounding so well too. keep us posted about the other filming he's quite the star lets hope the fame doesn't go to his head!! Hope you have a great holiday love sandrax xx

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: Carls story

Postby kittycat » Sat Aug 08, 2015 2:31 pm

Wow, what an inspiring story which gives hope to us all. Wish I lived nearer to try one of his wraps, they look delicious.

Sue

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: Carls story

Postby MSH » Sat Aug 08, 2015 5:53 pm

Congratulations - Carl looks really well.

Go green sue
Posts: 38
Joined: Thu Jul 17, 2014 10:41 pm

Re: Carls story

Postby Go green sue » Sun Aug 09, 2015 4:34 pm

Well done Rob and Carl!! Keep your strength up Carl- you will need it for stirring the coleslaw!! You are an inspiration.
The dreaded disease took my grandad and mum and has tried to get me in its clutches but 1 year post distal pancreatectomy I am clear, but they have now started monitoring my daughter so we need to hear more inspiring , positive stories like yours.
Hugs to you both Sue H xxxx

LMD
Posts: 120
Joined: Tue Apr 15, 2014 10:06 pm

Re: Carls story

Postby LMD » Mon Aug 10, 2015 6:59 pm

Wow! Congratulations on the award (Those wraps look absolutely delicious!) what a great achievement. And Carl looks so well - long may it continue. Well done Carl and Rob. (I like the purple ribbon on your apron badge too.)

Inspirational

LMDxxx

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Carls story

Postby J_T » Tue Aug 11, 2015 10:09 pm

Fabulous Rob and Carl, nice touch the purple ribbon on Carl's apron.

Julia x

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: Carls story

Postby SusannaUK » Sun Aug 30, 2015 9:20 am

Hi Rob,

I've just watched the video, thanks for sharing it!
Congratulations on the award! Carl looks really good!
I am so happy for you! You are both amazing and inspirational!

Susanna x

PCUK Nurse Dianne
Posts: 285
Joined: Tue Aug 14, 2012 3:29 pm

Re: Carls story

Postby PCUK Nurse Dianne » Thu Sep 03, 2015 3:52 pm

Hi Rob and Carl,

WE have also seen the video, and great to see such a wonderful achievement, you should be so proud, Congratulations. Your story is quite inspirational and i am sure very positive for those other forum family members. We appreciate that the 'course of pancreatic cancer' can be a difficult one, but great to see people like yourself Carl and others who determinedly battle on, and with such great achievements in the face of adversity.

We are well proud and wait for the day of the 'Purple Wraps'.

Well done and keep up the good work.

Dianne and team,
Pancreatic cancer Specialist nurse
Support Team

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Carls story

Postby RLF » Mon Sep 07, 2015 1:15 pm

Hi every one ty for your comments and continual support! Sadly I come back with bad news, as it always seems to happen just after posting last time Carl started with shoulder pains again. Not as bad as before and not affecting his sleep but otherwise very similar. In the last few weeks he has been getting some belly pains, these have occasionally woken him in the night but not every night. Last week I convinced him to get another blood test done and we got the results this morning and his ca19-9 is back up to 97. It was 18 just 5 weeks ago so just goes to show how quickly things can progress.

I know it's still not that high and that we have to wait for a scan to get the full picture but it still hits hard the 4th time you're told you might have a tumour. I'm hoping it's either the tumour that vanished last time and so can be ablated properly this time, or that's it's the original liver met that's causing the issue and this time we will see if anyone would be willing to surgically remove it.

I hope everyone else is soldiering on as best they can, I was really hoping he'd be given a longer break from chemo as it really hits him hard. But time to get the boxing gloves on again!

Much love
Rob
X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Carls story

Postby J_T » Mon Sep 07, 2015 8:27 pm

Good grief Rob, how many knocks can one man take? That is so rubbish after all the good news. Still it might just be a blip and I really hope it is.

Much love to you both.

Julia x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Carls story

Postby nikkis » Mon Sep 07, 2015 11:20 pm

Lovely Rob and Carl,

I really hope this is a blip. I know only too well how hard it is to keep positive at times like this, but I know you two will pick yourselves up again and get on with whatever you need to do.

Our mammoth walk is finally here this weekend, and when my friends and I were out training at the weekend I was telling them about Carl's award winning wraps, and thinking one of them would help me get through, pity you are so far away! Will be dreaming of them though, or perhaps that will be hallucinating!

Lots of love,
Nikki

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Carls story

Postby Sueoliver » Tue Sep 08, 2015 8:55 pm

Hi Rob I really hope this is just a blip for you both! Please try and stay positive I hope the scan brings better news than you think. Take care of yourselves. Thinking of you both.
Love Sue x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Carls story

Postby jay » Wed Sep 09, 2015 8:01 am

Always here for the both of you,
love Jayne
xx

kittycat
Posts: 126
Joined: Tue Mar 31, 2015 6:37 am

Re: Carls story

Postby kittycat » Thu Sep 10, 2015 6:30 am

As others have said, I hope this is just a blip and you get better news soon. Carl is such a fighter and an inspiration to us all.

Sue