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Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Abraxane -our experiences so far

Postby Cathy » Thu Oct 16, 2014 9:28 pm

Hi Nikki

Good on you both!!

Im tempted by the walk myself. At the moment I have another hair brained fundraising idea of doing a sponsored bike ride from London to Swanage. Bear in mind I haven't been on a bike in 20 years. Am getting a bike on Monday! If you see someone dangerously wobbling all over the shop next time you are in London that will be me.

Take care

Cathy xxx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Thu Oct 16, 2014 10:49 pm

No Cathy! I am terrified of the cyclist when I have to drive into London. I will let you know when I am coming so you can stay in. Sounds like a challenging but fun(?) idea, and like me if you do lots of training you will need to eat lots of cake!
Love,
Nikki

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Abraxane -our experiences so far

Postby jay » Fri Oct 17, 2014 8:58 am

sorry ive not been on the forum much this last month, just caught up on your thread Nikki, fab about renewing your wedding vows and great news about paul not being as sick on the reduced chemo. We raised over a thousand pounds for PCUK at Jems funeral which im over the moon about.
take care
love Jayne
x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Fri Oct 17, 2014 3:17 pm

Thank you Jayne it's really lovely to hear from you.
That's a wonderful amount of money to raise, which shows how well loved Jem was. I think about you and Jessica all the time,
and hope you have days when things are a little easier,
Lots of love,
Nikki

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Mon Dec 08, 2014 5:33 pm

We have recently had some relatively good weeks, when we have been able to get out and about, and keep Paul's pain under control, but of course the good times never last with this bliming thing do they?

Paul has just had a spell in hospital due to a bleed (he had dark blood in his stools) last week. They have done a colonoscopy,endoscopy and scan but couldn't find the cause, but have put it down to the cancer, his surgery and then this is all aggravated by the Clexane he has to prevent clots. However, they cant stop the clexane, as the risk of clots remains, so its a bit of a case of between a rock and a hard place, we just have to wait and see which causes the most problems. He went ahead and had his chemo after the bleed, and as a result, perhaps, had a very hard week, lots of pain, resulting in him not eating and losing weight he can't afford to lose.

I know how incredibly lucky we are that it looks like we will be having another Christmas. Since this started for us, so many have lost precious people to this nasty disease, and another Christmas is something last year I wouldn't have thought possible, but at times it's so very, very hard, and so difficult to keep positive.

Oh and then to top it all off the dog had a fit last week (he is 7), so we are taking him for an MRI scan at a specialist vets. Very worried how we will all cope if it's bad news. I might ask if they can do Paul at the same time to cut down on some appointments!

Take care all,
Nikki

Didge
Posts: 826
Joined: Sun Dec 29, 2013 10:35 am

Re: Abraxane -our experiences so far

Postby Didge » Mon Dec 08, 2014 7:17 pm

Ha ha, good idea! Do hope the dog is ok, though. You can do without something else to worry about. I hope they manage to get the balance right with the clots and the medication and you manage to get your Christmas and are able to enjoy it. Sometimes these problems sort themselves out even when you are thinking the worst. Thinking of you x

sandraW
Posts: 1044
Joined: Thu Oct 31, 2013 5:38 pm

Re: Abraxane -our experiences so far

Postby sandraW » Mon Dec 08, 2014 8:32 pm

Hi Nikki, I do hope Paul improves again soon, it is such a worry for you, lets hope it all settles down soon. I certainly understand the thing about staying positive, I had a really bad week last week, was in tears about some stupid thing or other most days, nothing remotely serious in the scheme of things, but did for me anyway. As for your poor dog, I hope he is ok too, people that don't have animals just don't understand that they are such a big a part of our family, but the vets can do so much to help now. Our little Shih- tzu is just a year old, she is Trevor's little cuddle bunny, and she gets snuggled down with him when he has a nap, and keeps us entertained too.
We are blessed, just like yourselves, to have the chance of another Christmas with our loved one, when so many others will struggle through the holidays due to their loss, as you say so many have lost loved ones recently.
Please take care and lets know how they are, sandrax xx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Tue Dec 09, 2014 5:45 pm

Thanks Didge and Sandra,
You always have wise words and understanding which is a comfort. The dog had his MRI today and it was good news, no masses seen. If only all the scans our loved ones went for had equally good results. Paul felt they dog had a better deal than him when it came to his specialist, the dog got an attractive Italian lady, and her communication skills were definitely an improvement on our oncologist's!
Nikki

sandraW
Posts: 1044
Joined: Thu Oct 31, 2013 5:38 pm

Re: Abraxane -our experiences so far

Postby sandraW » Tue Dec 09, 2014 10:39 pm

Glad the dog got good news at least! I think the only reason Trevor goes for his treatment, is he gets to cuddle all the nurses, old and young, slim or chubby, makes no difference, they all get the same treatment, as soon as they see him now, they all come straight across for their cuddle, gets a bit embarrassing to be honest. Shame about your oncologist ours is lovely, male from Greece, but been in the UK years, he has all the time in the world for his patients, found out the other day Jenni knows him from a few years ago when she worked for the NHS, small world isn't it. Hope Paul is feeling a bit better , and hope you have got your positivity back a bit now too, you have done so well not only supporting Paul and your family but all us on here too, take care sandrax xx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Abraxane -our experiences so far

Postby jay » Wed Dec 10, 2014 8:23 am

Hi Nikki, hope paul continues to improve and you have a fab Christmas,and glad your dog is ok. We are thinking of getting a dog after the summer.
We are all going out for Christmas lunch as wanted something totally different, I have put loads of Christmas lights outside for Jessica who is truly an inspiration, love to everyone
Jayne
x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Wed Dec 10, 2014 7:17 pm

Shows you what a lovely man you have there Sandra, if all the nurses want to hug him! We have been talking about changing consultants, as Paul's is such hard work, but he has kept him here so far, which makes us reluctant to change. We also know he is at the forefront of any new developments in treatment and considered a genius, but am still not sure if that is enough to compensate for having to see someone who at times is just darn rude!

Jayne having your Christmas lunch out sounds like a really good idea. I am sure you will be spoiling Jessica rotten, something she totally deserves. Will be thinking of you, and wishing you the strength to get through your first Christmas without Jem.

Lots of love,
Nikki

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Abraxane -our experiences so far

Postby nikkis » Wed Dec 31, 2014 1:18 pm

Just wanted to wish everyone a peaceful New Year. This time last year Paul's oncologist wished us a cheery "happy 2014", he had recently told us that Paul would never be never be cancer free, Paul was an inpatient in the hospice, and they were struggling to get his pain under control, plus he couldn't keep anything down, it seemed unlikely he would make it to Easter - I could have punched him!

Well our year didn't turn out as bad as I had expected, perhaps he knew something we didn't. We have managed 2 holidays, seen our eldest daughter do amazingly well in her GCSE's, and had many good days as a family. Some how Paul has survived clots and bleeds, put up with pain and sickness, so many times I have thought we are at the end of the road, but we are both so glad he is still here. It will be 2 years in January that a mass was first found (I can't say that is when he was diagnosed as we were told by our local hospital it wasn't malignant for 3 months and not to worry), the hardest 2 years of my life, but at the risk of sounding corny, years that have been made easier by sharing with you here.

So may 2015 bring some happy moments for everyone who is fighting this disease or who has lost someone they love to it, as Ronan Keating sung " life is a rollercoaster, you just gotta ride it".

Love,
Nikki
Last edited by nikkis on Wed Dec 31, 2014 1:53 pm, edited 1 time in total.

Didge
Posts: 826
Joined: Sun Dec 29, 2013 10:35 am

Re: Abraxane -our experiences so far

Postby Didge » Wed Dec 31, 2014 1:43 pm

Lovely post, Nikki. Happy 2015 to you and the rest of us! xx

Annie14
Posts: 60
Joined: Tue Dec 03, 2013 5:19 pm

Re: Abraxane -our experiences so far

Postby Annie14 » Wed Dec 31, 2014 2:28 pm

Happy New Year to you too! X

sandraW
Posts: 1044
Joined: Thu Oct 31, 2013 5:38 pm

Re: Abraxane -our experiences so far

Postby sandraW » Wed Dec 31, 2014 7:14 pm

Thanks Nikki,
for your unwavering support, I understand when you say it makes it easier somehow by being able to come on here, it is so true.
Paul has done amazingly well, what a fighter he is, I hope he can continue to beat the odds and show this disease that it has met its match. You too are amazing, keeping on picking him up and putting him back together, and staying so positive. Hope you have the best year possible in 2015 love to you both and your family too, sandrax XX