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Abraxane -our experiences so far


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Sorry folks, but as you all know I am sure, you have to be in the right frame of mind to put things down sometimes.


Anyway we are still in London. They failed to unblock the duodenal stent and then they did plan to do a venting PEG, which means a tube from his stomach out to his skin, that would mean he could drink at least, and then everything could be drained out. They then realised they couldn't do that as his stomach is actually under his ribs as a result of surgery. So now he has a naso gastric tube and is being fed intravenously (which will carry on at the Hospice and then home). If I say it has been a hard few weeks that would be a bit of an understatement! We still manage to have lots of laughs though, the care has been good, quite a lot of the staff outstanding, so that has really helped.


Currently the plan is to go to our local hospice next week, and then hopefully home from there. I have been staying in London for the last 10 days, so am desperately keen to get him nearer home for at least some of half term. The Professor still thinks more chemo is an option, but we will review that in 2 to 3 weeks, not something we terribly convinced he will be up to, but we won't rule it out either.


Rob - I noticed that you and Carl are back to London in a couple of weeks, presume you are back at L.C.,which is where we are now. Paul was very disappointed that our visits won't overlap as he would have liked to have met you!


Take care all,

Nikki

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Hi Nikki,


Sorry I didn't mean to put you under pressure to post, but was just wondering how things were going. It will be so much easier when you get Paul back nearer home and I know he was settled when he was in the hospice before so that's all good, just glad to know things have improved a bit for you all.

Probably a good thing you didn't meet up with Rob and Carl they might have taken Paul out shopping with them in his dressing gown too!!!

Great to hear from you love to you all sandrax xx

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Hi Nikki,


Really hope that Paul can have some chemo, and that you get him home soon. I am sure it will pick him up being in his own home, his own bed.


How is he in himself? We are all thinking about you Nikki.


Please send Paul my best, my Dad hopes he gets home soon.


Leila xx

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Hi Nikki,


I've just read your last posts. I am so sorry to hear that you are having a very difficult time. I really hope that Paul can go back to chemo soon.


I am thinking of you all!!!


Love,

Susanna xxx

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Yes it's a massive shame we miss each other. If he's in the LC at least he's getting looked after well. We are down on the 2nd march, which I think is two weeks tomorrow. For your sakes I hope he's home by then though!


Rob

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Nikki,


I'm really worried about you and Paul. I know you can't post all the time, and that sometimes it is just so hard to do.

I don't know, just really thinking of you both.


I really hope you both get a break, and things turn round and we get to see you post.


Leila xx

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Hi,

Just a quick note to say Paul is now in the hospice, 10 minutes from home. I have been in London with him for the last fortnight, which has been incredibly hard as it is 2 hours from home and our girls. He felt happy for me to come home to sleep tonight, so I am appreciating sitting in my own bed, just wish he was with me.

Thank you all for caring so much,

Love,

Nikki

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Hi Nikki,


So glad Paul is back nearer to home for you both, it will make it so much easier for you, try to get a lovely night's sleep and then you will hopefully feel refreshed. The girls will be glad to get you back home and their dad nearer, so that they can visit, thanks for letting us know, love sandra xx

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They are struggling to get on top of his pain at the hospice at the moment, so until that is better controlled he will stay there. I desperately want to take him home, but as we know from the experience of others that is not always possible, so I am prepared for that. It is good to be able to spend time with our girls though.

Nikki

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Nikki, It is good to hear that you are able to spend some time with your girls, but no doubt Paul is never out of your thoughts. I hope they can get his pain stabilised and that he can get home soon.


Take care


Steve

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