PCUK Nurse Dianne Posted March 17, 2014 Share Posted March 17, 2014 Thanks Mandy,I am sorry to hear the outcomes of the meeting were not so supportive. Please feel free to email (support@pancreaticcancer.org.uk) if you need some advice or guidance on how to take this forward, more than happy to help you with this if that would be helpful for you.regards,DianneSupport Team Link to comment Share on other sites More sharing options...
scoobymandy Posted March 17, 2014 Author Share Posted March 17, 2014 hi diannethanks for your reply i have contacted your support team via email tonight, i just hope that something can be done. I am only challenging the nhs cause this was one of my promises to my husband the day he died.i look forward to hearing from one of your team as to what i can do really thanks mandy Link to comment Share on other sites More sharing options...
scoobymandy Posted June 3, 2014 Author Share Posted June 3, 2014 Hi everyoneThe last few days have been hard for me as i had to cope with my first wedding anniversary on my own with my children i must say it was very hard to cope with and the tears were flowing on the 19th june will,be the worst day ever as,he,will be gone a year nothing will ever feel the same again in my life i lost the only person that i ever wanted in my family i hate the pain in my heart and i know it will never go away Link to comment Share on other sites More sharing options...
jay Posted June 3, 2014 Share Posted June 3, 2014 Just to let you know im thinking of you Jayne x Link to comment Share on other sites More sharing options...
Cathy Posted June 4, 2014 Share Posted June 4, 2014 Hi MandyThere are a few of us on here in a similar position so we know what you are going through. You aren't alone.Virtual hugs and thinking of you for now and the 19thCathy xx Link to comment Share on other sites More sharing options...
Guest Posted June 7, 2014 Share Posted June 7, 2014 Thinking of you. I cannot imagine how hard it must be for you.xx Link to comment Share on other sites More sharing options...
scoobymandy Posted February 5, 2015 Author Share Posted February 5, 2015 Yet again more sad news that my dad has now only got a few days or weeks left and our family can only watch him die sadley he cancer which he had a varied amout of chemo from which also caused him to have 7 strokes in the last 18months has picked up septicemia which he is currently having antibiotics for. I have had to watch him suffer since his whipples procedure 3 half years ago and now i cant see a happy ending to any thing we have just managed to start with life without my husband now ime going to have to do this without my dad nothing prepares you for this ever as i have found out ive lost my stepbrother 3 years ago, my husdand 2 years ago and now my dad life is so unfair and cancer is an evil thing.Not only have i now got to look after my kids and now my mum who is as anyone can understand is destrought she is the only family i have left and now i am loosing my dad who i love with all my ♥ i just wish we could do more for him but all we can do is still here watchin him die and waste away life is so cruel Link to comment Share on other sites More sharing options...
Didge Posted February 5, 2015 Share Posted February 5, 2015 Thinking of you. Not much more I can say. xx Link to comment Share on other sites More sharing options...
sandraW Posted February 5, 2015 Share Posted February 5, 2015 Sending you some cyber ((hugs)) what a truly horrendous few years you have had, glad you felt you could come here and I hope we can help in some small way. I hope your poor Dad has a peaceful end to his life, whenever that might be, sending love to you all take care sandrax Link to comment Share on other sites More sharing options...
littlefairy Posted February 6, 2015 Share Posted February 6, 2015 so so sorry for your loss, I lost my mum a couple of months ago to PC, so cruel, so sad I'm still trying to come to terms with it, sending love and hugs xxx Link to comment Share on other sites More sharing options...
Guest Posted February 6, 2015 Share Posted February 6, 2015 Echo what Didge said. Thinking of you.Please keep posting if you need to.Leila xx Link to comment Share on other sites More sharing options...
scoobymandy Posted February 7, 2015 Author Share Posted February 7, 2015 Hi thankyou for all your replies. Today ive been told by my mother thst there is nothing else anyone can do to help my dad as every antibiotic they have given him has failed hes been like this for a week now hes in no pain which i am so grateful for but extremly tired and very weak they are thinking that he should be placed in a hospice to make him more comfortable before he passes away my mother has been so strong shes had to cope with this vile disease for 3 half years now and painfully watching him die it breaks my heart to think that this disease has taken not just my husband but my dad too. We are all distraught and in fairness i just wish he would go peacefully in his sleep it may sound selfish but ive already seen what it does to someone at first had and i dont wanna relive it all again but ime having day by day waiting for that phonecall to come and say goodbye. I wish this was all a dream but sadley its not Link to comment Share on other sites More sharing options...
Didge Posted February 7, 2015 Share Posted February 7, 2015 These terrible times just have to be borne, even though it is so hard. I am sure I speak for everyone here when I say that we are all thinking of you in the hard times ahead and are here for you whenever you need us. x Link to comment Share on other sites More sharing options...
SusannaUK Posted February 9, 2015 Share Posted February 9, 2015 Dear Mandy,I've just read first time your thread this morning, it is just so sad, so unfair.Thinking of you and wish you all the strength.Susanna x Link to comment Share on other sites More sharing options...
scoobymandy Posted February 19, 2015 Author Share Posted February 19, 2015 Sadley my dad passed away 15/02/2015 after his long battle with this disease and also the strokes he had caused by his chemo he was having he was so brave and fought hard he was on remission of 18months and no one could of imagined he would been taken from us over three years of battling have whipples op and 3 lots of chemo 6 strokes the last one was the major one lost all his speach his ability to swallow or comunicate with anyone my families life has been turned upside down again and the greaving process has never really left as 2 years ago i lost my husband and we have to start again this is evil disease and our family doesnt need anymore heart ache in the past 4 years we have lost 3 big family members two to cancer one a brain hemorrage youngest 45 oldest 74 Link to comment Share on other sites More sharing options...
MSH Posted February 19, 2015 Share Posted February 19, 2015 Sorry to learn your news, you've really been through the mill in recent times. As you say this disease can be so cruel.My condolences. Link to comment Share on other sites More sharing options...
Slewis7313 Posted February 19, 2015 Share Posted February 19, 2015 Really sorry to hear your very sad news. You have had a lot to contend with over the last few years and now to lose your dear Dad after a long battle with this awful disease must be so difficult.My thoughts are with you at this hard time.SteveX Link to comment Share on other sites More sharing options...
Sueoliver Posted February 19, 2015 Share Posted February 19, 2015 I am so sorry to hear your sad news. Thinking of you. Sue x Link to comment Share on other sites More sharing options...
Didge Posted February 19, 2015 Share Posted February 19, 2015 Very sorry to hear the news. I do hope there are happier times ahead for you in due course. You certainly deserve it! Thinking of you x Link to comment Share on other sites More sharing options...
sandraW Posted February 19, 2015 Share Posted February 19, 2015 Echoing every ones sentiments and sending sincere condolences to you and all your family. What a truly horrendous time you have all had, over the last few years. Thinking of you all, please take care sandrax Link to comment Share on other sites More sharing options...
PCUK Nurse Jeni Posted February 23, 2015 Share Posted February 23, 2015 So sorry to hear of the news that your dad has passed away.Sending you our condolences from all at Pancreatic Cancer UK.Take care of yourself - we are here for you should you need us.Kind regards,Jeni. Link to comment Share on other sites More sharing options...
SusannaUK Posted February 23, 2015 Share Posted February 23, 2015 Dear Mandy,I am so sorry to read that your dear Dad has passed away. It is just so cruel. You've gone through so much in the last few years, just so unfair.I am sending you and your family my condolences.Thinking of you. Please take care.Susanna xxx Link to comment Share on other sites More sharing options...
jay Posted February 23, 2015 Share Posted February 23, 2015 I am so sorry to hear of your sad news,thinking of you alllove Jaynexx Link to comment Share on other sites More sharing options...
scoobymandy Posted February 23, 2015 Author Share Posted February 23, 2015 Thankyou for all your kind words my mum is devestated he was her life for 28 years and she did all she could to help him through the tough times my mum is all i have left in my family now and it destroys me to see her so sad there is nothing i can do to try and make this any easier for her all she wants is my dad back she sits on the sofa cuddling his blanket and looking at his picture constantly crying i just dunno what to do it i jave kids of my own and my mum lives quite far away from me Link to comment Share on other sites More sharing options...
Didge Posted February 23, 2015 Share Posted February 23, 2015 We each need to grieve in our own way, in ways which are sometimes distressing to others. If this is what your mum feels she needs to do, then she must. Perhaps it brings her a little comfort. Thinking of you and your mum xx Link to comment Share on other sites More sharing options...
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