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Posted

Anyone with experience of this procedure would be most welcome As I am due to have whipple op on 28/08/2012 it has been over a year since first symptoms pain in right abdomen and considerable weight loss 3 stone now under 10 stone and after finally getting a ct scan they have booked op for end of august

PCUK Nurse Jeni
Posted

Hi Daver,


Sorry to hear you have not been well for over a year now. it is good news that you are now booked in for your operation.


Regarding your weight loss, has this been addressed with you? Have you been referred to a dietician at all? This can be a very common problem prior to a Whipples, and it can be addressed by taking enzyme supplements to aid food digestion, and to enable your body to absorb the nutrition from the food adequately.


Please let me know if this is in hand? You can also look on our diet pages on the website here: http://bit.ly/yv4Vkn


Kind regards,


Jeni.

Posted

hi daver, have just posted on a current post from davie, have a look at that and some of my earlier posts , it may help, just click on my name and it will allow you to read earlier posts.

good luck on the 28th, where are you having the op done ?

kind regards laura x

Posted

Thanks for your reply Laura I am having the whipples procedure done at the xx London and hopefully all will be well when they get inside .

Thanks David

Posted

Thanks Laura I have been reading the posts and find them encouraging and give me hope for the future , happy that your husband bri is doing well and long may it continue . I am 44 and after a dull ache I'm my ribcage and unexplained weight loss for over one year was diagnosed on 14th august big shock , ct scan seems to show that it has not spread to other organs so whipples is the 1st hurdle to overcome and me and my family will deal with whatever it brings , will post after op with updates soon as I feel ok .

Thanks David

Posted

Hi David,

Just want to wish you the best of luck with your operation on the 28th! I hope it is a big success for you.

Takecare Rachel

Posted

Dear David,


I had a Whipple op over two years ago and have recovered very well, I do all I used to do before, just have a little less energy.


Wishing you all the very best for your op tomorrow, will be thinking of you. Do keep in touch and let us know if you have any questions. I have learned so much from this website and the support staff, they are brilliant!


Good luck!


SueF

Posted

Will be thinking of you tomorrow, Dave, with fingers crossed and hoping all goes well with the op and for a good recovery. Sending love and strength. Keep us posted, your new on-line family are with you all the way!

Deb

x

Posted

Hi David,

Wishing you the very best for your op tomorrow.. and a speedy recovery.

Will be thinking of you, love

Ella xx

Posted

Thanks to everyone for all messages of support they are very much appreciated and I will post soon as I can with updates , once again thanks .

David

Posted

Hi all went for whipples today at 07.30 at XX London but due to a urgent transplant operation my procedure was cancelled got to go back tomorrow .

Thanks David

Posted

Hi all this is David's wife Maxine, Doing well after surgery on wednesday moved to a ward yesterday. He is taking sips of water and has been told they are happy with surgery.


Can anyone suggest questions we need to ask? I myself have not seen a Dr or surgeon yet???

PCUK Nurse Jeni
Posted

Hi Maxine,


Great news to hear that David had his operation and is doing well. It is great that he has been moved to the ward already.


Please feel free to email me at support@pancreaticcancer.org.uk with the specifics of what you would like to know. I will then try and help you with what questions to ask.


Kind regards,


Jeni.

Posted

Hi Maxine

So lovely to hear from you and to hear that Dave's op went well. Fingers crossed for a speedy and good recovery. Sorry, can't help with any practicalities as I know nothing of the whipple op but do contact Jeni at PCUK support - she is extremely helpful and very supportive.

Take care and pass on our best to Dave.

Deb

x

Posted

hi im a bit confused???? is daver and davie one and the same, cos ive just replied to Maxine whos the wife of one of them, whos had an op? any answers please, laura

Posted

Hi Laura

I had assumed they are one and the same? Keeping fingers crossed for them in any case!

Deb

x

PCUK Nurse Jeni
Posted

Hi all,


No, Davie and Daver are two different people.


Jeni.

Posted

thanks jeni, have just looked back at posts and located "davie". Thought i had lost it!! lol.

oh well deb, thats both of us, haha

good luck to them both anyway eh love laura xxx

  • 2 weeks later...
Posted

Hello all thanks for all the supportive messages they are appreciated had the whipples procedure 2 weeks ago today have been home one week now and am doing ok some good days some bad had problem with feeling nauseous and vomiting no appetite but on check up back at the [Name removed -moderator]( who I have to say the care I received was first class top to bottom all the way from the tea lady to the surgeon )on Monday prescribed metoclopromide and these have helped a lot still finding it hard to actually feel like eating anything though guess the body is readjusting and just needs time,off to sleep again now .

Thanks David

Posted

Wonderful to hear from you, David, and to hear your op went well. I do hope things settle down soon and you are feeling more like your old self. Glad to see you are getting lots of sleep - the best medicine!

Keep us posted.

Deb

Posted

hi there david, so pleased to hear yourover a big hurdle, your days will vary, rest and sleep have got to be good, brian was in hospital for two weeks district nurses visiting for 6 weeks or so, so you to be out of hosp is brill.

brians appetite was non existent everything tasted awful and tainted with mettallic taste!! he did get on very well with the small bottles of various youghurt flavoured replacement meals, he thrived on them for quite a while,

he also took metoclorpromide or domperidone 2 tabs 4 times daily, never really then suffered with nausea, are you taking enough, i used them as prevention rather than cure ?

all the very best david, take it slowly mind love laura xxx

  • 2 weeks later...
Posted

Hi everyone nearly a month now since my whipples operation , histology report has came back and the specialist nurse has told us that it was duodenal cancer and not PC as previously thought not sure what this means as this seems to be such a rare cancer and information is very limited, seeing the oncologist on friday to discuss my case anyone with any info would be appreciated . Also feeling much better now nearly month down the line after the whipples op nausea has gone appetite returning getting out and about everyday without fail , drove the car the weekend i am relatively pain free and have been for two and a half weeks now no painkillers required , can eat pretty much what I like lots of cakes biscuits chocolate sweets to try and put some weight back on 8st 11lbs these days down from 10st pre op . On a positive note to anyone having the whipples my personal experience is that although a major procedure there is life after whipples and the quicker you get moving around after the op the better physio made me get out of bed and sit in chair the day after op and a positive attitude aids recovery .

Thanks David

Posted

hello dave, wonderful news, so glad things have gone well for you and will continue to do so, take care love laura xxx

Posted

Hi Dave - how wonderful to hear how well you have been doing since the op and what hope you have given to others with the prospect of it to come. Do keep us posted about what next. No info to give you with regards to this new diagnosis, I'm afraid, but have my fingers crossed for you that the meeting with the oncologist goes well and that they can help you further. Keep us posted won't you? Keep looking after yourself.

Deb

x

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