39 year old brother's diagnosis

[nikki345]

Hi all. 

 

My brother has just turned 39 years old and has been diagnosed with Stage 4 pancreatic cancer around a week ago. He has been given 3-6 months to live. The cancer is 5cm in the head of his pancreas, and has also metastasised to his liver I believe as well as several peritoneal lymph nodes - although the medical team are not sure about the lymph nodes at the moment. (this is a medical negligence case which we will be dealing with separately). 

 

This was a huge shock for us and we are completely devastated. He has a 5 month old and 5 year old too. 

 

He has received no treatment thus far. His cytology report was inconclusive and he therefore had a liver biopsy to determine the tumour type. We will then look to start chemotherapy asap. He also has a PET-CT scan scheduled for Thursday. We've also looked into and started some alternative therapies too.

 

We are feeling so lost. I wanted to know if anyone please please has any advice regarding next steps/what we can do to fight this? We are more than happy to pay/go private/go abroad if this will help. We are based in the UK.

 

Any support would be greatly appreciated. 

Thank you so much. 

 

[broju]

Hello nikki345

 

Really sad to read your post. When my husband was diagnosed he was keen to take part in any trials but sadly it was during Covid and many were curtailed. I believe there are now some taking place.  Your brother might qualify for and hopefully benefit from one? Also, we would have explored treatment abroad, mainly in Germany had travel not also been curtailed. The Heidelburg University Hospital still seems to lead the way in PC treatment. It’s all worth exploring.

xx

 

[nikki345]

Hi Broju, 

 

Thank you so much for the info. We have looked at the Heidelburg but unfortunately they're at capacity  

Xxx