Jump to content

What a week!!


Recommended Posts

During the Covid pandemic, I'd not had my normal diabetes blood check, so I asked my wife if she could book me one while she was having her blood check. this was Monday June 13th. They had a spare spot that morning. On the 15th, my daughters 14th birthday, my GP phoned to make an appointment for 11:00 the same day to discuss the results. My wife & I went to the GP's appointment where he told us that my liver levels were raised, & he wanted me to go to hospital for tests. I had slight jaundice, which we hadn't noticed. it was during Covid, & weren't seeing many people. I was admitted by 12:30pm the same same day.

I was due to have a ct scan as soon as possible, which turned out to be late on the Thursday. On Friday I was taken to a room off the ward by 2 doctors & 2 nurses. They then told me they were 95% it was cancer, pancreatic cancer. A bit of a kick in the teeth, & totally unexpected. I tried to speak to my wife, but she was on a course with work, so I had to wait till she was on her lunch. While waiting for her lunch hour, I received a text message to say the deposit had been paid on the bungalow we were moving into. Many tears were shed when I finally managed to speak to my wife. 

I then moved wards so that I was off the surgical assessment ward & into what I take was a general surgery ward. The surgeons that deal with the pancreas met on a Tuesday to review the case list, so I had over 3 days of waiting till the surgeons met. 

My wife was with me when I met up with the surgeon on the Tuesday. We were told that it was pancreatic cancer, & that due to my ongoing medical problems, it was inoperable & terminal. I was given weeks to months.

Since then I have had two stents fitted to deal with the jaundice, one metal, which is staying in, one plastic, which needs removing. I went to a follow up with the surgeon last Monday, the same one that delivered my diagnosis. He said that chemo may be a possibility, but that I would need to discuss this with the oncologist, but that it would be palliative chemo. 

So that is where I'm at. 

My wife was in her probationary period of a new job. Her new boss has been brilliant, going above & beyond, as they say. We are going ahead with moving house. The new house was really for me, as I struggle to walk after breaking my back in road traffic in December 1999, & I wondered what my wife would decide. 

Link to comment
Share on other sites

Hi Skydogg

Really sorry to read your story, it resonated so much as my husband like yourself got the shock diagnosis of stage 4 terminal and inoperable pc in Aug 19. He was given an average of 6 months but offered palliative chemo. He had no signs whatsoever and was at work on the Monday as normal, thought his wee a bit dark on the Thursday and diagnosed on the Friday although he hadn’t at this point had a biopsy to confirm this, when he had it confirmed in his case pancreatic cancer with liver mets, though he did start going yellow and had a bilary stent fitted. Very sadly he died in April this year aged 56 but he was determined to fight and in total had 21 rounds of chemo. I would think that you will have a biopsy to confirm the diagnosis and then a discussion will take place at an MDT followed in time by an oncology appointment. I totally understand your shock, confusion and disbelief- I still see us in that room being given the news. One thing I would say is don’t get hung up on timescales, my hubby was 19 months, and although we all wished for 19 years and more, everyone is different. Again it’s a personal decision about the chemo. One thing as a wife I found beneficial was to read everything I possibly could, write down questions to ask and definitely phone the nurses at PCUK. They have a wealth of knowledge and were certainly a life line to us. I wish you all the very best x

Link to comment
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Create New...

Important Information

We have placed cookies on your device to help make this website better. You can adjust your cookie settings, otherwise we'll assume you're okay to continue. By using our forums you agree to our Terms of Use and Privacy Policy.