Did your loved one struggle to get dietary support?

[Support Team]

All too often we read on our forum about patients who have struggled with the symptoms of problems with digestion due to their pancreatic cancer, such as weight loss or diarrhoea, but didn’t get the help they needed to manage these symptoms straight away – or at all.

Pancreatic Enzyme Replacement Therapy (PERT – or you may know it as Creon) can help manage these symptoms, but we know that sadly not everyone is given access to it.

At Pancreatic Cancer UK we are particularly looking to speak to family members of pancreatic cancer patients whose cancer was inoperable, yet despite struggling with these symptoms, didn’t get all of the support they needed. E.g. perhaps your loved one wasn’t initially prescribed Creon, but should have been, which resulted in weight loss.

Did this happen to your loved one? Do you feel strongly that they should have been given the opportunity to manage their symptoms better? And do you want to help us raise awareness? If so, we’d be hugely grateful if you could let us know using the link below. Filling in the story form just means someone from the charity will contact you for an initial chat and give you some more info on what would be involved. You can opt out at any time.

https://www.pancreaticcancer.org.uk/get-involved/make-a-difference/share-your-story-with-the-media/

We know this won’t be for everyone, but if you think you might be able to help please do get in touch. Thank you.