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Narciz
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Hi everyone. 2 weeks ago my mom was diagnosed with pancreatic cancer stage 4. Today i just spoked with one doctor who said that we cannot do anything, not even chemoterapy. In all this time i read many articles and forums. Even here i read that you can use chemoterapy at stage 4. Please help me with some advices. I will go to anothet doctor anyway. Please share your experience.

Thanks in advance.

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I'm so sorry to hear about your Mam. I've been on this site grabbing as much as I can. This PC is well known as a hidden disease. My bro and my sister in laws bro were diagnosed four weeks apart. My s I laws being month earlier and Stage 4 of disease. He did try one chemo session 22 months ago and he refused to have another one. I know he was okay and reasonably getting about with a few hosp admissions which I believe were blood transfusions for 21 months. I would think it depends on each set of circumstances. I hope this may help in some way?

My bro diagnosed v early. Small tumour and was offered a fast Whipple. He survived his op glad to have obtained it then had 3 chemo sessions. But sadly the cancer has continued to spread. We can only take the advice as the blood tests pre chemo may show white/red cells not adequate where it occurred pre chemo sessions.

I was confident in the consultant and system at time if their treatment plans.

Sadly after 21 months my bro is v poorly but he's still with us. We are sharing great family stories.

Please don't give up all hope. If yr hosp specialises in PC they're so experienced but not God's. We bless the precious time. Id like to say its only been last 3 weeks my bros and sister in laws health has gone to a bed laying state. So 21 months I'm glad they're still here. Each person is diff. I'm thinking of you.

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Narciz wrote:

> Hi everyone. 2 weeks ago my mom was diagnosed with pancreatic cancer stage

> 4. Today i just spoked with one doctor who said that we cannot do anything,

> not even chemoterapy. In all this time i read many articles and forums.

> Even here i read that you can use chemoterapy at stage 4. Please help me

> with some advices. I will go to anothet doctor anyway. Please share your

> experience.

> Thanks in advance.



How was she diagnosed? What kind of symptoms does she have?


I think the problem is that sometimes pancreatic cancer is diagnosed so late that the patient would not be able to tolerate chemo. Also, does she have jaundice? Because with that she cannot have chemo, so at least scent would need to be fitted to relieve it, but it takes a few weeks until it alleviates it, which means waiting.


Going for a second opinion is definitely useful, but it would be good to know for you why the first doctor said no.

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The nurses on this site also explained to me that the person has to be able to be independent to a point also for being fit for chemotherapy, at the time Lewis was due to start chemotherapy he was not able to do his own hygiene needs or get to the bathroom. So would not of been fit for the chemotherapy. He was a lot better when he was in hospital which is what they saw but when he got home he went down hill.


It also affected his bloods and the drs were unable to treat the blood issues (High calcium, potassium, low red cell count) it as aggressively as they would have normally due to fluid retention from the liver metastases. So by the time he went to hospital for his chemo they kept him in and they were unable to give any treatment.


It’s hard because he was so young and to loose him so quickly but to live your life dependent on chemotherapy and dealing with everything that comes with it the constant blood tests, scans, covid tests, appointments, having a bottle of chemotherapy attached to him for the weekend it feels awful to say but I’m glad he did not have to go through that. To have see to him suffer all of that to me is worse than actually losing him.


Lewis’ family sought a second opinion from a private dr who said he could give Lewis 18months chemo free if he could get up and walk, it was crazy this dr never saw his scans or blood results before promising that to his family and giving them false hope.

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laci06 wrote:

> Narciz wrote:

> > Hi everyone. 2 weeks ago my mom was diagnosed with pancreatic cancer stage

> > 4. Today i just spoked with one doctor who said that we cannot do anything,

> > not even chemoterapy. In all this time i read many articles and forums.

> > Even here i read that you can use chemoterapy at stage 4. Please help me

> > with some advices. I will go to anothet doctor anyway. Please share your

> > experience.

> > Thanks in advance.

>

>

> How was she diagnosed? What kind of symptoms does she have?

>

> I think the problem is that sometimes pancreatic cancer is diagnosed so late that the

> patient would not be able to tolerate chemo. Also, does she have jaundice? Because

> with that she cannot have chemo, so at least scent would need to be fitted to relieve

> it, but it takes a few weeks until it alleviates it, which means waiting.

>

> Going for a second opinion is definitely useful, but it would be good to know for you

> why the first doctor said no.




Hi Laci,

Yes, my mom had jaundice and they needed to put a biliar stent. Now is home after 5 day from hospital and has increases abdominal pains. The doctor says we need to repet the blood test to see if she can support the chemoterapy. I am shocked..i just go with her to hospital due to jaundice and abdominal pains and first they said that she had gallstones. I was happy and after 1 hour they said to me she has pancreatic cancer stage 4, in metastasis ..spread to ther liver. She also suffer from dementia..and i thought this is worse. I never ever could think about this f.ck..g illness.

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Skippy wrote:

> I'm so sorry to hear about your Mam. I've been on this site grabbing as

> much as I can. This PC is well known as a hidden disease. My bro and my

> sister in laws bro were diagnosed four weeks apart. My s I laws being month

> earlier and Stage 4 of disease. He did try one chemo session 22 months ago

> and he refused to have another one. I know he was okay and reasonably

> getting about with a few hosp admissions which I believe were blood

> transfusions for 21 months. I would think it depends on each set of

> circumstances. I hope this may help in some way?

> My bro diagnosed v early. Small tumour and was offered a fast Whipple. He

> survived his op glad to have obtained it then had 3 chemo sessions. But

> sadly the cancer has continued to spread. We can only take the advice as

> the blood tests pre chemo may show white/red cells not adequate where it

> occurred pre chemo sessions.

> I was confident in the consultant and system at time if their treatment

> plans.

> Sadly after 21 months my bro is v poorly but he's still with us. We are

> sharing great family stories.

> Please don't give up all hope. If yr hosp specialises in PC they're so

> experienced but not God's. We bless the precious time. Id like to say its

> only been last 3 weeks my bros and sister in laws health has gone to a bed

> laying state. So 21 months I'm glad they're still here. Each person is

> diff. I'm thinking of you.



Hi Skippy,

Thanks for your message. I feel sorry for you and your brother. This is not fair. I am sorry, but i cannot believe the god exist. Is too much pain in this life. This is the only truth. Anyway this is another discussion :)

I wish you good health to your family!

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LisaC wrote:

> The nurses on this site also explained to me that the person has to be able

> to be independent to a point also for being fit for chemotherapy, at the

> time Lewis was due to start chemotherapy he was not able to do his own

> hygiene needs or get to the bathroom. So would not of been fit for the

> chemotherapy. He was a lot better when he was in hospital which is what

> they saw but when he got home he went down hill.

>

> It also affected his bloods and the drs were unable to treat the blood

> issues (High calcium, potassium, low red cell count) it as aggressively as

> they would have normally due to fluid retention from the liver metastases.

> So by the time he went to hospital for his chemo they kept him in and they

> were unable to give any treatment.

>

> It’s hard because he was so young and to loose him so quickly but to live

> your life dependent on chemotherapy and dealing with everything that comes

> with it the constant blood tests, scans, covid tests, appointments, having

> a bottle of chemotherapy attached to him for the weekend it feels awful to

> say but I’m glad he did not have to go through that. To have see to him

> suffer all of that to me is worse than actually losing him.

>

> Lewis’ family sought a second opinion from a private dr who said he could

> give Lewis 18months chemo free if he could get up and walk, it was crazy

> this dr never saw his scans or blood results before promising that to his

> family and giving them false hope.



Hi Lisa,

I am so sorry for you! These stories really makes me so sad. Even the death is a normal thing, we cannot accept it never ever.

Wish you a healty and happy life!

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