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marie souter
Posts: 198
Joined: Thu May 30, 2013 7:58 pm

Thanx Very Much Coronation Street ....

Postby marie souter » Wed Sep 04, 2013 6:24 pm

Well am not very happy, mom has made it clear that she doesn't want to know timescales for her inoperable cancer, shes 5 mths into diagnosis now ... switch on coronation street ...
Hayley .... how long .... 6 mths without Chemo 12 mths with ... WELL DONE ... am so mad .

kwaitang
Posts: 56
Joined: Fri Jul 12, 2013 8:36 pm

Re: Thanx Very Much Coronation Street ....

Postby kwaitang » Wed Sep 04, 2013 7:39 pm

That is sad if your Mother didn't want to know and must have been a shock for her.
We were not surprised as it was almost identical to what we were told. Best wishes to you and your Mum. Arlene. x

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Thanx Very Much Coronation Street ....

Postby Slewis7313 » Wed Sep 04, 2013 9:38 pm

Marie, that was a perspective I would never have thought about. I was excited when I heard about the coup of PCUK influencing a Corrie story line to publicise Pancreatic Cancer. It seemed like a massive opportunity to push home the message of how horrible this illness can be, reinforced by some stark facts to make people sit up and take notice.
I do however see how upsetting this must have been for both your Mother and you. I too have always been an ardent Corrie fan and will watch it come what may, so I assume avoiding the difficult episodes is probably not an option. However, I would equate it to a recent post which described in detail the last hours of someone suffering with Pancreatic Cancer, which I found difficult to read (it could / will be me) but it transpired to be of real use to a number of carers looking for this type of information. It appears to have been the right thing to do for the wider audience.

It's really sad that an initiative based on really good intentions has caused you pain. I do however believe it was the right thing to do as the publicity for our plight is massive.

Take care

Steve

marie souter
Posts: 198
Joined: Thu May 30, 2013 7:58 pm

Re: Thanx Very Much Coronation Street ....

Postby marie souter » Thu Sep 05, 2013 12:28 am

Oh I knew the episode was coming on ... I tried everything to deter my mom .. but she wasnt having any of it..it's Corrie after all ... I do agree 'ANY' kind of cancer does need to be publised (spellings gone lol) Coronation Street is a good platform to dramatise these things and normally I would be watching with interest ... I know its a good thing and people have no idea how aggressive Pancreatic Cancer is .. just RAWR .. I had to pick up a few pieces .. my mom isnt one of those strong people who can face things head on.. shes decided ignorance is bliss and wants no chemo, no scans, no oncologists she just wants to continue on as if nothings happening .. and she does seem to be coping well with this attitude .. it just brought mom crashing down is all .. can't stop mom watching her fav programme but I have told it could be hard viewing for her in the future .. I'm just hoping that mayeb at some point I will get some advice that will be useful there .. hope you guys are good

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Thanx Very Much Coronation Street ....

Postby Slewis7313 » Thu Sep 05, 2013 9:41 am

Thanks Marie, it sounds like Corrie is not going to be easy for you. We know that the information will at least be informed and factual, but that may not help your situation. If it's any consolation, I just know that whenever the Hayley storyline comes up I will be thinking about you both (probably won't be able to stop myself).

Good luck!

Steve

laura
Posts: 385
Joined: Thu Jul 01, 2010 1:53 pm

Re: Thanx Very Much Coronation Street ....

Postby laura » Mon Sep 16, 2013 4:19 pm

hi marie, and steve and anyone else, i dont know how your mum is or if advanced/spread, my h7bby bri, diagnosed feb 2010 stage 4, 6 mths ish was muted, 19 months chemo, tumour still there, smaller, no spread, still enjoying life, NO ONE canbe certain of time spans, can only go on averages, bri cant / wont be the only one to defy the odds, chin up keep positive. love laura xxx

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Thanx Very Much Coronation Street ....

Postby Slewis7313 » Mon Sep 16, 2013 6:03 pm

Thanks Laura.... These are the kind of stories we love to hear about. I certainly hope to be reporting the same progress 2 years down the road!

Best wishes to Bri

Steve
X

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Thanx Very Much Coronation Street ....

Postby J_T » Mon Sep 16, 2013 9:36 pm

I do understand what you are saying marie, but as Steve says it is SO important the message gets out about the awfulness of this disease and the shocking statistics.

When Ray was diagnosed I was astounded at the many references to cancer, dying death and related subjects that popped up on tv. I'd never noticed before. I remember thinking we'd be quite safe watching Escape to the Country but no, on the local information bit, it was about a wicker place. Oh yes, they said, we make all sorts of things, including coffins! When you just get that terrible news you're a bit hypersensitive to stuff like that so it was a bit of a shock.
I do think Corrie have handled the issue quite well so far but as I said I can quite see how it would difficult for patients to watch, Ray isnt watching.

LindaH
Posts: 186
Joined: Tue Jan 15, 2013 8:12 pm

Re: Thanx Very Much Coronation Street ....

Postby LindaH » Tue Sep 17, 2013 6:32 pm

I can't and won't watch it Marie. Far too upsetting for me. Linda x

cally
Posts: 3
Joined: Wed Apr 04, 2012 7:04 pm

Re: Thanx Very Much Coronation Street ....

Postby cally » Tue Sep 17, 2013 7:01 pm

I don't come on here very often as I found the forum after I lost my son to PC at 41 years. What I found distressing about Hayleys diagnosis was if I remember rightly about 10 days from visiting GP to scan and diagnosis. My son Gavin was visiting his GP for over 18 months and was fobbed off with IBS and diverticulitis before they finally sent him for colonoscopy and scan. They opened him up because they said part of his colon had twisted and died, he was fitted with a bag, told his spleen had been removed and part of his pancreas. This was August 2009 nobody told us that a biopsy was taken and the result was PC. He eventually got an appt for a scan after being told the bag would be reversed. The follow up to this was February 2010 when he was given the devastating news that he had PC and they declined to say how long "everyone is different". He took his last breath on January 10 2011.He was never given a chance, never told what was wrong he honestly thought he was going to get better untill Feb 2010.
I hate with a vengeance story lines like that.

Cath

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Thanx Very Much Coronation Street ....

Postby Slewis7313 » Wed Sep 18, 2013 12:08 am

Cath, reading your story is really difficult and to lose someone you love so young is awful. There are so many similar stories where people are fobbed off or misdiagnosed, costing valuable time. Whilst the Corrie story is unrealistic for a lot of sufferers, I have had some luck with my treatment insomuch that my GP referred me to an upper Gastro specialist immediately after my first consultation. I was diagnosed within 6 weeks of first noticing any symptoms. Had my GP not been so switched on and decisive, I dread to think where I would be now. I don't know what the future holds for me but I have obviously been given more of a chance than your Son ever was.

I can fully understand your despair at what the Corrie story has depicted with regards to speed of diagnosis and find it so sad that your Son was not treated in the manner that he should have been. There remain such discrepencies in the way people are treated in different places and it is important that the healthcare professionals are constantly reminded of this.

Whilst I personally find the Corrie story useful in promoting the cause, My Wife, like Linda finds the whole Corrie thing too painful to watch as she does not want to relive the dark days when first diagnosed.

This thing is truly horrible.

Steve

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Thanx Very Much Coronation Street ....

Postby J_T » Tue Sep 24, 2013 3:45 pm

SPOILER ALERT!!!











Well I hear Hayley is to commit suicide?! How common is that then? Can't say I'm enamoured of that scenario.

Slewis7313
Posts: 688
Joined: Sat Dec 08, 2012 8:48 pm

Re: Thanx Very Much Coronation Street ....

Postby Slewis7313 » Tue Sep 24, 2013 4:47 pm

I have found the storyline really good (in a masochistic sort of way). I too had heard about where the story might be going and think it will distract from the message and perhaps even overshadow it, which would be a shame. I also don't think it would be true reflection of the Pancreatic Cancer fighters we see on this forum.

Steve

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: Thanx Very Much Coronation Street ....

Postby InfoForMum » Wed Oct 02, 2013 11:02 pm

I do wonder, for everyone who feels able to get up and carry on, how many feel utterly overwhelmed or depressed. Probably not those who feel robust enough to post. I wonder how good the oncology community are across the board with spotting this, spotting when it's not just the usual amount of mental trauma caused by this diagnosis or treatment?

Have found at times that for mum having cancer and going to the docs is a bit like me smoking and going to the docs (don't lecture please, I quit for 12 months then started again quite recently for some reason!) EVERYTHING that's wrong is put down to either a cancer or chemo symptom, just like for me everything wrong was to do with my smoking (even, believe it or not, my sprained ankle). Guessing that's a risk for everyone, especially when it comes to mental health.

Hopefully our PC family all know its ok to contact the support line, their oncology team, their GP or the samaritans (for anonymous support - I found my self doing this once in the past and they were marvellous) if they are worried they are struggling to carry on - there's also some great advice on the Macmillan site here - http://www.macmillan.org.uk/Cancerinfor ... ssion.aspx

There's absolutely no shame in falling appart, the key is to differentiate between what's "normal" for you and when you are low for too long. Most of the population have at least one episode of depression in their lifetime, either due to things like cancer landing on them, or because some of us are more prone to lows. Don't be alone. People will understand and can help.

Sorry to hijack the thread!

Sarah

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Thanx Very Much Coronation Street ....

Postby J_T » Thu Oct 10, 2013 10:01 pm

OMG! Can't quite believe what I saw tonight! No! No! No! No!