A forum specifically for patients only to use (e.g. newly diagnosed, recovering from surgery, having chemotherapy or patients in follow up).

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Joined: Wed Apr 25, 2018 8:41 pm

Feeling frightened

Postby suzyma61 » Thu Apr 26, 2018 2:47 pm

Hi, my husband was diagnosed with pancretic cancer on February 14th. It has been a very frightening time for us. When he had his biospy he was really ill afterwards and caught an infection. The cancer has spread to his lung and part of his spine. The hospital have offered him a clinical trial via iv. It is continuous with just a weeks break.
Can I ask in people's experience,if they have had good shrinkage of tumour size and pain relief? I know everyone is an individual so just clinging on to hope at the moment.
Thanks Sue

PCUK Nurse Jeni
Posts: 1107
Joined: Mon Jun 14, 2010 1:30 pm

Re: Feeling frightened

Postby PCUK Nurse Jeni » Thu Apr 26, 2018 3:37 pm

Hi Sue,

Welcome to the forums - a place where nobody wants to end up of course.

I am sure that you will get great support on this forum.

I am sorry to hear about your husbands diagnosis Sue.

I have sent you an email.

Kind regards,


Jeni Jones
Pancreatic Cancer Specialist Nurse
Support Team
Pancreatic Cancer UK
email: nurse@pancreaticcancer.org.uk
support line: 0808 801 0707

Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Feeling frightened

Postby Veema » Fri Apr 27, 2018 7:42 am

So sorry to hear the diagnosis Sue, it must be a scary time. It's hard to comment on the outcomes of clinical trials as it's new territory. My husband's tumour shrunk with folfirinox, but it hadn't spread outside the pancreas at that time.

Your husband will be entitled to PIP payments if he's under 65 or attendance allowance if he's over 65. I would also apply for a blue badge. I would get a referral to the palliative care team if you haven't already as they are a godsend, liaising between all the medical professionals, sorting out pain relief and any equipment you might need in the future.

Keep us posted.