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Marmalade

Re: Newly Diagnosed

Postby Marmalade » Sun Jan 15, 2017 9:22 am

It's lovely to know that you are having some really good quality time Elaine. So happy that your Pete is coping so well xx

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Newly Diagnosed

Postby Dandygal76 » Sun Jan 15, 2017 10:09 am

It is so lovely to hear when things are going well - enjoy these special times Elaine. Pretend that downward slope will never come. x

Marmalade

Re: Newly Diagnosed

Postby Marmalade » Sun Jan 15, 2017 9:27 pm

Was thinking of you today and smiling. Hope you had a good day

M x

Elaine123
Posts: 204
Joined: Tue Nov 29, 2016 6:49 pm

Re: Newly Diagnosed

Postby Elaine123 » Tue Jan 17, 2017 7:10 am

Thank you for all your lovely replies to my post. I am so glad that Pete had that one good day because when he awoke on Saturday he was wiped out totally and that has been pretty much the state of play since. As everyone on here advises this is very much a one day at a time life and thank goodness for the good days as they carry you through the rough times.
He has been extremely tired so fatigued he could hardly get off the sofa. Appetite vanished again but still managing to take supplements, and to top it all off his hair has started to fall out. His comment to that was " it never rains but it bloody pours "
However he is eagerly waiting on clinic day Wednesday hoping that his blood levels are okay for chemo to go ahead and that he hasn't lost any weight. He has total faith in this chemo shrinking his tumour and liver Mets and as we all know faith and hope are essential in this battle. He is still in bed as I write but I am hoping for even one more good day for him before chemo on Thursday.
Wishing everyone here the best of days . Take care
Elaine
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Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: Newly Diagnosed

Postby Proud Wife » Tue Jan 17, 2017 10:55 am

I am just rushing out now but your post brought tears to my eyes Elaine. I so know what you are going through and how wishing for just one good day means the absolute world. My hubby was so positive and confident that he could beat it, he had me believing it too right up to the end.

Pete is absolutely right to have faith in chemo - once you take that faith away, there's not a lot left.

Will chat more later but just wanted you to know I am thinking of you both xx

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Newly Diagnosed

Postby Veema » Tue Jan 17, 2017 4:07 pm

I totally agree...I'm sure Nige's positivity got him as far as it did...it helped me remain hopeful too.

Good luck with bloods.

Vx

Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: Newly Diagnosed

Postby Justamo » Tue Jan 17, 2017 8:12 pm

That is so spooky Elaine. Peter spent Saturday and most of Sunday in bed. I feel as though I was asking for trouble by wittering on about 'good' days and being smug about it.

More news in my thread in about an hour.

Love, Mo

Marmalade

Re: Newly Diagnosed

Postby Marmalade » Wed Jan 18, 2017 12:13 am

Dear Elaine,

Sorry to hear Pete is wiped out, chemo is no walk in the park or an easy option. It's good tha Pete is focussing on keeping his weight up and being well but everyone on here knows that you are ever watching and waiting and alert to the slightest change.

It's ok to feel down when things don't go to plan and to feel joy when they go well. Life is different now and there are different rules. Plan in some relaxation for yourself and if the local hospice has a caring course do it, they have lots of good practical advice for symthoms management and god support networks, it is not an admission of defeat, they are experts in dealing with chemo and all the issues that go with it mental and physical.

I send you love and prayers, I hope you both sleep well.

M xx

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Newly Diagnosed

Postby Veema » Wed Jan 18, 2017 9:52 pm

Hope everything went okay at clinic today...is chemo on for tomorrow?

Vx

Proud Wife
Posts: 740
Joined: Sun Jan 17, 2016 9:28 am

Re: Newly Diagnosed

Postby Proud Wife » Thu Jan 19, 2017 11:08 am

How's Pete doing Elaine? x

Marmalade

Re: Newly Diagnosed

Postby Marmalade » Thu Jan 19, 2017 8:32 pm

Hi Elaine,

We don't want to badger you because we know that sometimes having to respond is just another chore and at other times there is nothing to report or we are feeling too punch drunk to want to. Don't feel pressured to answer.

We ask only because we want you to know by way of us posting that we are thinking of you and that we are always here in the wings.

M xx

Elaine123
Posts: 204
Joined: Tue Nov 29, 2016 6:49 pm

Re: Newly Diagnosed

Postby Elaine123 » Fri Jan 20, 2017 8:46 am

Thank you all for your posts. It has been another up and down week. Attended clinic on Wed and thankfully Pete had put on half a pound and didn't lose any weight. Came home and had an anxious wait to see if there would be a phone call to say his bloods were too low. However no call came so he was good to go for chemo yesterday.
By that time I was so tired I felt sick , Pete has been up and down every night over the last week but then dozes off frequently during the day .....he has a really sore mouth which is not helping his poor appetite and the past few days has only taken enshakes.No matter how little sleep I get I cannot sleep during the day also our daily living chores still have to be done. By chemo day the lack of sleep and the round trips to the hospital had done me in. ( or maybe that's old age creeping in lol) the upshot was I fell asleep in the waiting room while he was getting his chemo and I was mortified that I was probably sitting with my mouth wide open and making farmyard noises while people were coming and going.
His chemo went off okay this week no long hold ups . They have given him gel satchets which I think coats his mouth and throat to aid healing. So that may help his eating. No chemo next week as that will be his weeks break before starting his second cycle so maybe he will get some quality time during those two weeks.
Fast forward to 6.30am this morning and we had been through the usual up and down all night and He was sitting at the dining room table and he announced that his plan for today was that we would go into town for a couple of beanie hats and then into the barbers to get what's left of his hair shaved off. Also he rhymed off what he was going to have to eat today. This mirrors last Friday after chemo when he was full of energy and had an appetite and felt like going out, so we intend making the best of it in case like last week he is wiped out from the second day. Well that's the plan at the minute but he is now on the sofa snoring fit to waken the neighbourhood so things could change.
Enough about my woes I hope everyone has a great day and hoping we hear good news about DG's Dad today..
Thanks for listening.
Elaine
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Justamo
Posts: 468
Joined: Sun Sep 04, 2016 10:38 pm

Re: Newly Diagnosed

Postby Justamo » Fri Jan 20, 2017 9:19 am

Identification again Elaine; last night at 10pm I announced that I was finishing 'work' for the day. I felt exhausted, my head was splitting, my back hurt, and I am beginning to feel the effects of the three prolapsed discs in my thoracic spine. So Peter was abandoned to do his own blood test, eye drops, various tablets etc and I went firmly off duty.

I've an appointment with my own GP next week to get treatment for some other issues but today Peter seems to be suffering no ill effects from my wilful neglect of last last night and I'll just catch up on a few chores and maybe get a swim to deal with this pain.

And Elaine, I have been told a really great tip for keeping your home spick and span while doing everything else as well: lower your standards.

Hope your day is as good as it can be.
DG, thinking of you. And Quickly. And everybody else!

Take care, love Mo

Elaine123
Posts: 204
Joined: Tue Nov 29, 2016 6:49 pm

Re: Newly Diagnosed

Postby Elaine123 » Fri Jan 20, 2017 5:08 pm

Mo I am going to take your welcome advice and lower my standards .....thank you for that obvious fact which should have been staring me in the face.
The deed is done and Pete has been to the barbers.....another hurdle and worry cleared. I think he suits it and it doesn't change him he is still Pete. I am beginning to realise that we tend to look too far ahead and blow future problems out of all proportion and by the time they come around we feel they will be insurmountable ........and when they come to pass we work through them and find they were not as we feared.
Thanking you all
Elaine
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Elaine123
Posts: 204
Joined: Tue Nov 29, 2016 6:49 pm

Re: Newly Diagnosed

Postby Elaine123 » Fri Jan 20, 2017 5:08 pm

Mo I am going to take your welcome advice and lower my standards .....thank you for that obvious fact which should have been staring me in the face.
The deed is done and Pete has been to the barbers.....another hurdle and worry cleared. I think he suits it and it doesn't change him he is still Pete. I am beginning to realise that we tend to look too far ahead and blow future problems out of all proportion and by the time they come around we feel they will be insurmountable ........and when they come to pass we work through them and find they were not as we feared.
Thanking you all
Elaine
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