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Posts: 34
Joined: Thu May 18, 2017 8:51 pm

Re: Thanks for sharing your experiences . . .

Postby AndAde » Thu Dec 07, 2017 3:46 pm

Thinking of you, hope it all goes well xx

Posts: 475
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Thu Dec 07, 2017 7:00 pm

Peter's speech has come back. Mostly words beginning with F and B, but that's OK by me. His confusion has lessened as well, and the CT scan showed that he hadn't had a bleed.

I waited for two hours to speak to the doctor but had to give up as I was just too sore to wait around any longer and Storm Caroline was building up. A staff nurse went over Peter's notes with me which showed normal bloods and the general opinion was that maybe his blood sugar was a bit low and that caused the confusion and loss of speech. But I checked his blood sugar while I was ringing the GP and it was 8.1. No explanation has been offered for his heart misbehaving or his stats swooping up and down. Clearly I need to speak to the doctor - she talks of discharging him tomorrow.

And of course after I had parked briefly on the way to the hospital in driving sleet and gale force winds my car refused to start. Turn the ignition key and nothing. So I burst into tears but that didn't help, then I phoned a friend, then after 15 minutes I tried again and it was OK. Obviously a loose lead involving a connection to the starter motor, so I'll use Peter's car tomorrow and my phonable friend will pick my car up and give it a medical in his workshop.

Now I am going to have a long very hot shower and then Boo and I will go to bed. Neither of us slept much last night and I feel weepy and a bit shaky.

I should like to make a short speech thanking everybody for their support but it'll start another weepy episode so I won't.

Love Mo

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Joined: Tue Jan 17, 2017 10:06 pm

Re: Thanks for sharing your experiences . . .

Postby Quickasyoucan » Thu Dec 07, 2017 8:01 pm

Mo you are entitled to be weepy at any time you wish. I hope that you manage some sleep tonight and am pleased your patient has recovered his speech and the ability to cuss. Thank god for friends you can phone and for cats who keep you company. We are there with you in spirit x

Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Thanks for sharing your experiences . . .

Postby Veema » Thu Dec 07, 2017 8:40 pm

And it's times like this that we all wish we lived close by so we could give you a real hug and rally round cooking casseroles and all that wartime camaraderie (sp?).

I think words starting with F and B (especially when used together) are amongst my favourite words...I feel I'd get on with Peter like a house on fire!

Have a cry Mo...get it all out, have a good rest, then up tomorrow to start all over again. I really don't know what's worse...the awfulness of looking after someone, or the awfulness of them not being here anymore.

Much love


Posts: 475
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Fri Dec 08, 2017 7:33 am

Boo and I had a good sleep and woke at 0430 and had a nice cuppa tea and watched some silly stuff on TV about gym equipment and steam cleaners. I think that at one point the gym exercise people were working out with steam cleaners, but perhaps I dropped off for a few minutes and dreamed it.

I missed the aquarobics group Christmas Party last night which doesn't bother me too much. It was a rotten night of storms, the snow looks to be 4 - 5 inches deep this morning so there will be some interesting manoeuvres when everybody goes to work, because our cul-de-sac is on a steep slope.

Not sure what today will bring but after you've been on Planet PC for a while you accept that anything can happen.

I should also like to share with you that according to his chart, Peter's creons were given to him at 22.00. Perhaps they were planning a midnight feast ?

Have a good day.
Mo x

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Joined: Thu Dec 03, 2015 3:12 pm

Re: Thanks for sharing your experiences . . .

Postby Wife&Mum » Fri Dec 08, 2017 10:41 am

Nope, I don’t think the NHS could run to a midnight feast. More likely they’re getting Peter ready for his breakfast. Grrrr.
Hope today is a better one for you and Peter.

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Joined: Sat Mar 12, 2016 9:49 am

Re: Thanks for sharing your experiences . . .

Postby Dandygal76 » Fri Dec 08, 2017 3:46 pm

I am glad Peter is feeling better and I hope he is home soon. It is frustrating that they still cannot seem to get the creons right half the time. I had a big stash of them here but sent them all to a family abroad who needed them otherwise I would have sent them all to you. I wish I had saved them now for this type of scenario that comes up time and time again. Do you not have a stash at home you can hide in his socks or something?

Did you manage to get your car sorted? That would have made me cry in that situation as well.. you couldn't make it up sometimes. Anyway, try not to cry too much because Marmalade told me once its make you fat and ugly which made me stop straight away as I am already a little plump and ugly and so thought I would turn into worse than Shrek!

I hope today has been one of those surprising good days for you both. Let us know how things are when you can. xxx

Posts: 475
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Fri Dec 08, 2017 7:32 pm

He's home. Mind you, he would still be there if we'd waited for The Letter and The Medication. They said he could go when I phoned (and sounded quite glad about it), so I threw jeans, sweater, shoes and socks into a bag and raced up there at 10 mph. Really heavy snow which froze as soon as it landed. Cars were going up hills sideways and coming back down again boot first, engines were revving, pedestrians with a death-wish were stepping out onto the road with no warning, the local plod shut themselves up into their police station for a game of cards and chaos generally reigned.

But I got there OK, the car didn't misbehave, and Peter threw his clothes on in record time. They said we had to wait for medication and discharge letter, so we did. And waited. And waited. After an hour I went to enquire, and was told that they were 'busy'. So is Tesco, and it's a damn site more productive. By this time there were white-out conditions outside and I was seriously worried about actually locating the car, never mind driving it.

So we left sans letter and sans meds (statins) and we'll see the GP early next week. Peter is a bit shell-shocked and a wee bit confused, but he's terribly tired too, so we'll see how he is after a night's sleep.

He says that all he wanted was to come home to his family. That's Boo and me.

The last doctor he spoke to in hospital told him that he'd had a very small stroke, hence the statins. I think that talk of low blood sugar was because the consultant in charge of the ward was a diabetes specialist. They moved him last night and the new ward's consultant is a heart/stroke specialist. But we'll ask the GP to translate for us when we see him.

I'm bushed, I have a new fracture, and I need to lie down comfortably and drink gin. Or whisky. Or whatever we have most of in the cupboard. Peter is already asleep in his armchair, despite snooker on the TV, so I'll nag him to go to bed as well. It's 7.30 so we won't stay up with the grownups tonight.

Good night folks.
Love, Mo

PS - we do usually do a bit of drug - well, food supplement - smuggling anytime Peter is admitted, but this time he was too muddled up. He would probably have lost them. But good point, DG.

Posts: 59
Joined: Thu Jul 06, 2017 4:29 pm

Re: Thanks for sharing your experiences . . .

Postby Marmalade » Fri Dec 08, 2017 9:27 pm

Delighted that Peter has revived and that you are both home. It's a worry when they are away from you and worry when you are the sole carer at home. BUT, you are both home and can sleep in your own beds and there is a lot to be said for that.

Night night Mo and Peter, rest well and may you have a peaceful night.

Marmalade xxx

PS I should think Boris is pleased to have an end to the comings and goings xx

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Joined: Thu Oct 31, 2013 5:38 pm

Re: Thanks for sharing your experiences . . .

Postby sandraW » Sat Dec 09, 2017 9:05 am

Hi Mo, sorry I haven't replied to your posts but I have been away for a couple of weeks and had no internet.
As Marmalade said its good that Peter is back home, he really is going through the mill, at the moment, no wonder we say its a roller coaster ride!!
I hope you found the gin/whiskey or whatever else you had to hand and had a peaceful sleep, it does help if you can, as some one said earlier we all just wish we were round the corner and could be of more support to you, but I am sending a gentle virtual ((hug)) to you anyway, sorry it can't be a casserole. Just want you to know we are there sending much love to you all sandrax xx

Posts: 59
Joined: Thu Jul 06, 2017 4:29 pm

Re: Thanks for sharing your experiences . . .

Postby Marmalade » Mon Dec 11, 2017 10:13 am

Good Morning Mo,

I hope you and Peter are keeping comfortable, warm and cosy. The forecast has been dire for Scotland. Just wanted to let you know I was thinking of you all. Does Boris have snow boots?

Marmalade xx

Posts: 48
Joined: Sat Mar 05, 2016 7:53 pm

Re: Thanks for sharing your experiences . . .

Postby patrigib » Mon Dec 11, 2017 10:42 am

Hello Mo!
Hope you and Pete are as comfortable as possible, and Boris too. I really feel connected when I read your stories. I'm also the only caregiver as his only son died of cancer early this year and his daughter in law and grandson broke up all contact ( families are so nice!). I just don't know where all your energy comes from. I'm more and more often having afternoon sleeps with him and get exhausted by any extra thing to do.
I' m a cat lover too, and two of my '4 cats died recently, which have been replaced immediately by other stray cats begging for a nice place to stay.
My husband is battling PC for over 3 years now, and when I was told at first he'd only had a few months left, everything in your life changes and you find yourself "trapped" in a great loneliness, as all is about your patient. It can't be otherwise. My husband also got diabetes, he is more and more tired and forgetful, which is normal as he is already in his 3rd chemo line, but it means we are always in a worry.
It's really great you still manage to have a swim or a chat with your friends, and have the energy to sew, and to send us your posts.
Really hope everything is quiet for a few days, so all of you can have some "rest"

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Joined: Sun Dec 29, 2013 10:35 am

Re: Thanks for sharing your experiences . . .

Postby Didge » Mon Dec 11, 2017 12:14 pm

Pat I’m so glad your hubby has passed the 3 year mark. That’s a tremendous achievement and must give you hope that something is working. But it’s so hard being a carer for someone with PC so that 3 years will have taken a heavy toll. I do hope you manage to have a good Christmas and don’t find it too exhausting! X

Posts: 763
Joined: Sat Mar 12, 2016 9:49 am

Re: Thanks for sharing your experiences . . .

Postby Dandygal76 » Tue Dec 12, 2017 7:57 am

Hey Mo

I hope you are quiet because life is calm. I doubt there is a lot of golf going on with this weather and not sure how Bo takes to going outside. Our dog is a wuss and refuses to go walkies if it it raining but apparently he loves the snow and trying to catch a snow ball which is quite funny. Being near to 18 months now is an incredible feat by Peter and long may it continue like Pat's hubby.



Posts: 59
Joined: Thu Jul 06, 2017 4:29 pm

Re: Thanks for sharing your experiences . . .

Postby Marmalade » Wed Dec 13, 2017 9:47 pm

Hi Mo,

Glad to hear Peter was well enough to be taken to the surgery and have dropped by to say good night, make sure you stay on the opening page of posts and wish you Peter and Boris a peaceful night.

Much love M xxx