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Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Thanks for sharing your experiences . . .

Postby Dandygal76 » Sat Oct 21, 2017 3:02 am

One day at a time Mo and I am sure you will get the gonorr... I mean logorrea under control. In the meantime... perhaps a quiet word to reduce the clinics? x

Justamo
Posts: 473
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Sat Oct 21, 2017 4:35 pm

I'm completely with you on the clinics thing DG, but Peter actually wants to attend them. The eye clinic is for Macular Degeneration in one eye which is currently being held at bay with bi-monthly injections, and the Diabetic appointment is for his annual Diabetic Retinopathy check. I think that checking an 85 year-old for retinopathy is pretty stupid too, but I imagine it ticks a vital box on somebody's spreadsheet. Mine not to reason why . . . .

Peter can't see the point is struggling to 'get better' (his words, not mine) from PC if he can't see to hit a golf ball. Attending these clinics is routine for him and if he wants to attend I'll go along with it. I find it very frustrating to form an orderly queue in these ghastly places when there are so many other things that we could be doing, but if he wants to be treated like a pin cushion so be it.

He really does know that his PC is terminal, but concentrating on other things helps him deal with it. Not my way at all, but we'll do his his way for now. Sometimes I want to bang my head on the wall with all these silly time-wasting and non-productive appointments, and sometimes I want to bang his head on the wall too, but I'll go along with it all for now.

I've finished the Native American costume, now I'm going to make a few more butcher aprons. My Patient is doing a jigsaw (without his glasses - he likes to live on the edge) and Boris is asleep in one of his sleeping bags somewhere. I think he may be hibernating. Boris, not Peter.

Take care folks,
Love Mo

Justamo
Posts: 473
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Sat Oct 21, 2017 8:32 pm

Later . . . .

I left Boris and My Patient looking after each other while I went to Vigil Mass, and have come home to find them both fast asleep, and there are little bits of chewed up jigsaw puzzle all over the floor. It was a 400 piece puzzle, and I've only found 382 bits so far . . . . .

It was the cat wot did it.

M

Dandygal76
Posts: 762
Joined: Sat Mar 12, 2016 9:49 am

Re: Thanks for sharing your experiences . . .

Postby Dandygal76 » Mon Oct 23, 2017 1:29 pm

I reckon it was Peter out of frustration without his glasses. I haven't done a puzzle for years and might just go and treat myself actually now you have put the thought in my head. I hope Peter is well today and that the weather is not as dire as it has been here this weekend. Definitely not good golfing weather - even the dog refused to go for a walk this morning. He is definitely on par with Boris with that stubbornness gene. Raining... not walking... cold... not waking... too windy... not walking... mum cooking dinner... not walking... ya de ya. Never known a dog like it. When we got him he was not even allowed on the sofa, upstairs etc etc. Now the blinking things sleeps under the duvet cover with me and rules the house. They chip away at you and the kids just let him run riot when I am not here so I gave up. x

Justamo
Posts: 473
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Sat Oct 28, 2017 11:06 pm

Well, here we go again.

Feel good. Go out. Enjoy.
Come home. Feel exhausted.
Stay in bed all next day.
Repeat.

It was the Annual Prize Giving at the Golf Club last night. I haven't been to it for years, because there's nothing more boring than watching golfers get presented with assorted lumps of metal (hope they've all got big mantelpieces) and listening to repetitive speeches. Even when one's husband is responsible for one of the speeches. He hadn't actually won anything, he had to present some prizes, so he was allowed to be even more boring than the ones going off with the loot. I went with him because he's been a bit off-colour all week, and in my role as Carer/Nurse/Minder/Chauffeur I graciously accompanied him because he said he would buy me a meal afterwards.

So we got ponced up a bit, I found the missing earring so I was even a bit glittery, and off we went. Peter said his bit, the Lady Captain presented the prizes, (I was very impressed with her - she even kissed the ugly ones), and after the smug recipients had all said exactly the same things, more or less in the same order, and we had clapped them, it was all over by 8.30pm.

And by 8.31pm My Patient was cold, sweating and distinctly unwell. I stuffed a couple of toffees into his mouth and rushed him to the car for a quick blood check. 2.9 TWO POINT NINE. That's a record. I don't understand it, because I checked his blood before we came out at 7pm and it was 6-ish or so. It took 6 sugar lumps, a small can of Coke, a glucose sweet and half a bag of crisps before his blood came up a bit and he stopped sweating, so we abandoned the idea of candlelit dining and settled on picking up a Kentucky Fried Something on the way home. When we got to Kentucky there was a queue, so I just drove straight home and My Patient put himself smartly to bed. Once he'd had a hot drink he felt a bit better so we polished off a ham sandwich and Boris had to make do with bits of ham instead of half a Kentucky Fried Something with the breadcrumbs washed off.

Part of the off-colour stuff earlier in the week was a day when I would have sworn that he was tipsy, having the drink taken, as we used to say in Ireland. He hadn't had any alcohol, but he was acting and sounding a bit tiddly, and it was all rather alarming. It lasted all day, even when the MacMillan nurse visited, and it made me feel a bit panicky. He was absolutely fine the next day, and even referred to being "a bit silly" the previous day, and it's not been repeated. Otherwise he's had a quiet week; he went out with his buddy for coffee - Buddy can't drive because now that he's in remission from his cancer he's had an operation on his shoulder so he's got his arm in a sling for 6 weeks. His consumption of painkillers has risen a bit, and we are due to see his GP next week for a routine chat.

I've managed two aquarobic classes and two swims this week. Quite enjoyable, because you will all understand that you can get a bit isolated at these times, so talking nonsense with the girls was nice. I've continued the sewing, but have had a blow about the Crafte Fayre. The organiser e-mailed and asked me for a copy of my Public Liability Insurance Certificate. I do not consider myself Publicly Liable for anything, so I haven't got one, so my Guest Appearance at the Crafte Fayre will not happen. A bit like Adele and Beyonce, I shall have to disappoint my public due to circumstances beyond my control. So I've booked a table at an indoor car boot sale instead because I shall have to get rid of all this stuff somehow. And I think the Crafte Fayre organisers may have shot themselves in both feet because surely none of the Lavatory Roll Cover crocheters or Matinee Jacket knitters will have Public Liability insurance ?
And my hairdresser has offered me an empty window to display stuff for sale so it's not the drama it may have been.

I hope you are all OK-ish. Clocks back tonight.
Try explaining that to a cat when he's demanding breakfast at normal hungry-time.

Love, Mo

Sandiemac
Posts: 69
Joined: Tue May 10, 2016 11:27 am

Re: Thanks for sharing your experiences . . .

Postby Sandiemac » Sun Oct 29, 2017 12:28 am

What a shame you missed your meal out. Very surprising about that quick drop in the blood sugar. Did you mention it to the Macmillan nurse? And did s/he notice the tiddly thing? I know you are soldiering on looking after "your patient" but do ask for advice/backup from Macmillan.
YOU ARE NOT ALONE. Good to know you are seeing the GP next week.

Very pleased to see you had some "me" time. You are dead right, it is isolating - just going out to do the essentials and then dashing back to check they are OK.

It's the Craft Fayre's loss. Stephen was an insurance broker for 50 years so I know about Public
Liability insurance. They are probably afraid someone will have left a needle in a piece of craft work or something! The nanny state again. I hope you sell every single thing!
Love, Sandie x

Justamo
Posts: 473
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Sun Oct 29, 2017 9:33 am

Sandiemac, I don't think any of the Liable Public could be harmed by a needle, but the more sensitive among them may need counselling after being forced to look at crocheted lavatory roll covers in two slashing shades of pink and red . . . . .

Marmalade
Posts: 59
Joined: Thu Jul 06, 2017 4:29 pm

Re: Thanks for sharing your experiences . . .

Postby Marmalade » Mon Oct 30, 2017 3:03 pm

Dearest Mo,

For reasons beyond me I have stopped being notified when you post and I am unreliable at checking. I am astounded about the Crafte Fayre and having done many many risk assessments and public events I feel that someone somewhere has misinterpreted the guidelines although anything which saves us from crocheted loo roll covers must be applauded. Such a shame for you though! If you can't shift the stock let me know, I know a group of ladies who would love to purchase one of your items and I can arrange distribution.

I'm glad that you and Peter are managing the odd social engagement. I am in awe of you that you manage to get to some of these social events, ditto hospital appointments, there came a time for us when we had to say if this or that isn't making things better or it's proving too exhausting then it is time to knock them on the head and conserve the energy for something we both like doing instead. I think we lose track of just how much our lives are consumed by this disease and at it can overwhelm us which is why your aquarobics, swimming and other ordinary things are so important.

I can't say it enough Mo, you are doing a top class job for Peter. I hope you tell yourself that sometimes...

Sorry that Boris had to make do with ham bits. I think warm chicken is every cats idea of heaven far more so than fish which my daughters cat is very so so about.

Love and hugs Mo, its always good to hear from you

M xx

Justamo
Posts: 473
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Sun Nov 05, 2017 4:07 pm

Where have all the flowers gone ? Gone to Facebook, every one. Or maybe not.

It’s been an moderately grim week. We saw the GP on Tuesday for a little catch-up. Mostly about golf. I’m glad it wasn’t Wednesday or Thursday because he would have taken My Patient away from me and shut him up in a high-security retirement home with searchlights and boundaries patrolled by big men with walkie-talkies and aggressive guard dogs.

Peter seems to be very drowsy and a bit confused and muddled. The ‘tipsy’ episode 10 days or so ago was because, I have now discovered, he took his slow-release medication twice one morning. I am tempted to confiscate all medication and dish it out at appropriate intervals, but I am loathe to do this because I think he should be responsible for his medication for as long as possible. Boris and I will have a meeting about it to see what we can do to tighten things up a bit. He spent Thursday, Friday and yesterday in bed, mostly sleeping (Peter, not Boris. Boris was in the cupboard). He complained of feeling very cold, but there was no evidence of rigor and his temperature was normal.

His appetite is poor, of course, and today’s cheese and ham toastie was rejected because I had ‘put too much salt on it’. I never salt Peter’s food. I have reduced the insulin dose to take account of his diminished food intake because we don’t need hypos along with dizziness and confusion.

The good news is that the pain seems to have decreased quite a lot. That was the whole point of the radiotherapy of course; the lovely Consultant (Getrost – Google it to see why) said she wanted to ‘put this tumour in a box and stop it from hurting you and spoiling your good days’.

Tomorrow Peter has an AGM to Chair and so he has got up today and is messing around with paperwork. He is not a paperwork person, whereas I am, and it drives me nearly nuts to watch him pick up the same bit of paper over and over again and then file it at random in any one of about 10 files, none of which is labelled and all of which contain more bits of paper which are probably photocopies of the bit of paper he lost in the first place. And of course all of these bits of paper can easily be printed off from my PC where they are readily accessible. But he likes bits of paper, and I suppose it’s harmless enough. But very frustrating to watch.

So I hope that tomorrow we don’t have a dizzy and confused day or I will have to drive him to the perishing meeting and attend it too. And I’m not a member. I’ll phone the MacMillan nurse tomorrow when I get a chance just to see if any of the medication he’s taking can cause the confusion and tiredness. We see Dr Feelgood in December.

Meantime, Boris has shut himself in the kitchen cupboard and I don’t know why. He seems a bit under the weather; didn’t want his breakfast, didn’t want mine either, and he’s quite partial to yoghurt. Possibly there’s a visit to the Vet on the cards and I’m praying it isn’t toothache. And I got the result of my MRI scan – evidence of further insufficiency fractures, but no treatment effective available. They used to inject a kind of cement to fill up the gaps, but don’t do that anymore. So put up and shut up. And get on with it.

Hope the rest of you on Planet PC are OK ?
Love, Mo

sandraW
Posts: 1047
Joined: Thu Oct 31, 2013 5:38 pm

Re: Thanks for sharing your experiences . . .

Postby sandraW » Sun Nov 05, 2017 5:54 pm

Mo I am sure you must feel quite lonely on here at the moment, I wish it was because no one was suffering from PC anymore but I know that's not true.
I do check every day to read the posts, ad I am keeping up to date with you and Peter and of course Boris's antics too, sorry he is under the weather, you have enough to worry about with Peter without and more problems.
I have a bad knee, evidently its "shot" I am waiting to see an orthopaedic consultant about having it replaced, but I know they are going to tell me I am morbidly obese and I can't have it done. But I did go for a steroid/pain killer injection on Friday I can't believe how much it has helped, I am now sleeping so much better and feel so much brighter already. My youngest son, who is living with me at the moment with his family, is busy telling me that he was so right insisting I go to see the GP, and I might have to agree with him. The doctor that did the injection was so lovely I felt I had gone back in time 30 - 40 years to the good old days when Drs really cared about their patients and treated them as real people.
Poor Peter I hope he has a good day tomorrow and can get to chair his AGM, the blood sugars are a real pain in the butt, and it must be really difficult to keep them under control, when Peter's appetite is so up and down. I understand how you feel about him being in charge of his meds, but when he is feeling rotten its so easy to get mixed up, so perhaps it might be better if you did take over, just a thought. Glad to hear the pain is reduced any thing that can help is a godsend.
You sound a bit down my love, why wouldn't you be, its certainly not the happiest of times
wondering what the next thing this shitty disease is going to throw at you, I just hope you get some good days soon love sandrax xx

Veema
Posts: 503
Joined: Mon Feb 02, 2015 5:35 pm

Re: Thanks for sharing your experiences . . .

Postby Veema » Sun Nov 05, 2017 8:15 pm

Hey Mo...two things...firstly the meds...get him one of those pill organiser boxes and dish him out his quota for each day. I got one where you could take out each day on its own, so he can carry it with him...it's still giving him control, but giving you a bit too. Secondly the confusion and tiredness could be his sodium levels, might be worth getting them checked.

Loads of love

Vx

Quickasyoucan
Posts: 112
Joined: Tue Jan 17, 2017 10:06 pm

Re: Thanks for sharing your experiences . . .

Postby Quickasyoucan » Sun Nov 05, 2017 9:54 pm

Mo sending all good thoughts and hope for a few 'diamond days' amongst the not so good ones. Hope Mr Boris is also on the improve soon. X

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thanks for sharing your experiences . . .

Postby Wife&Mum » Mon Nov 06, 2017 11:36 am

Dearest Mo

Love and good wishes are on their way from one purple flower to another. Although I don’t post often these days (PC forum burnout) I always read your updates and think how lucky Peter is to have you by his side.

Hoping very much that this week is better than the last

W&M xxx

Justamo
Posts: 473
Joined: Sun Sep 04, 2016 10:38 pm

Re: Thanks for sharing your experiences . . .

Postby Justamo » Tue Nov 07, 2017 9:47 pm

WaM, Quickly, Veema, Sandra and Marmalade. Thanks for your support. I did get a pill-box organiser thingy but it was treated with contempt, as was I for even thinking about suggesting it. It's the Neanderthal Syndrome again - pill box organisers aren't for Real Men. No, Real Men usually have some downtrodden and earnest little woman behind them remembering things on their behalf. And meekly accepting the blame when they get forgotten. But even the meekest worm turns eventually and before long I shall confiscate the pharmacy and lock it up and dish it out as necessary. That'll learn him.

THE FOLLOWING ITEM IS NOT FAKE NEWS.

BOTH My Patients are comfortable. One of them is sitting just outside my study door waiting for me to tuck him up in his sleeping bag, and the other one has been flat out in bed with his telly and his toffees for two hours, with the former item blasting out at an unacceptable volume, and the latter congealing on his pillow.

The furrier of the two Patients has been to the Vet and had EIGHT teeth out. Yes, 8. I feel like a bad mother and am wracked with guilt. Boris has always been touchy about his mouth and has never let me clean his teeth, although he does hold his paws out nicely for me to clip his claws. Unfortunately, attention to his claws doesn't help his teeth, and the Vet pulled out 4 bad ones and 4 which were likely to go bad within the next few months. I am absolutely mortified and despite being assured that Some Cats Get Plaque I feel awful about it. He usually has crunchy food but this evening he had a dish of mashed up tuna. That's a treat reserved for birthdays and the birth of a Royal baby or something equally important, but I felt that the occasion warranted it this evening.

The Other Patient is snoring his head off and I'm about to collapse into the sheets myself. I am worn out with the pair of them.

Tomorrow is another day.

WaM, speaking as a purple flower, do you go out in your slippers too, or am I thinking of the wrong poem ? (When I am old I shall wear purple . . . .)

Enough.
Love, Mo

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Thanks for sharing your experiences . . .

Postby Wife&Mum » Wed Nov 08, 2017 11:19 am

Thank you Mo for introducing me to a new poem. No purple slippers in the rain yet but I may have let slip the odd swear word on the street. On Planet PC it’s sometimes hard not to.
W&M xx