A forum for family, friends and carers of pancreatic cancer patients

Moderator: volmod

Forum rules
Please see the messages in our "Rules" section

The posts on this discussion board are made by members of the General Public and are not intended to constitute medical advice
bubble
Posts: 8
Joined: Mon Jun 13, 2016 11:35 pm

Benign or malignant tumor?

Postby bubble » Tue Jun 14, 2016 11:08 pm

Hi all, I'm new to this forum. I read some posts, and now decided to write one. I'm confused about my mom diagnosis, so I'd like to ask for some help.
Last autumn my mom had severe stomach pain, vomiting, and soon after that jaundice, so she was admitted to hospital where they put a stent into her bile duct, and made some tests. The CT showed a lesion on her pancreas, to which they said it's malignant, and after the next examination we were told it's inoperable as it's surrounding a blood vessel. Meanwhile they did a fine-needle biopsy, and it came back negative. The doctor said that false negative result often happens. They repeated it two more times, each gave negative result. Then in January they performed a biopsy during EUS, taking samples from several places of that area, and "adenoma; benign tumor of the pancreas" was written on the report. We were extremely happy about it, of course, and the oncologist didn't even send her for further tests, just said to come back in May. My mom had cholangitis some weeks ago, because there was a biliary blockage due to the tumor. She then had liver abscesses, and was getting antibiotics in hospital. Now she is at home, still taking antibiotics pills. On her reports pancreatic cancer is still mentioned, along with that sentence that malignany is not proved. Fortunately she hasn't been feeling pain since the stent was placed in last year. She is slowly getting better now after her long hospital stay. She's weak, but she's not in pain. She's going to a scan soon, and I'm just wondering that can it be a benign tumor indeed, or even the EUS can give false negative biopsy? What do you think? And if it's benign, what are the chances of it becoming malignant? And what are treatment options, if they can't surgically remove it? Maybe Nanoknife?
I'm going to ask the doctors too, but I believe you can tell me what to expect. Thanks in advance.

Wife&Mum
Posts: 397
Joined: Thu Dec 03, 2015 3:12 pm

Re: Benign or malignant tumor?

Postby Wife&Mum » Wed Jun 15, 2016 9:40 am

Hi Bubble, welcome to the forum but sorry that you have a reason to be here. I have nothing to offer in the way of answers but the PCUK nurses offer an excellent helpline if you call freephone 0808 801 0707 during office hours.
I wish you and your mum all the very best. W&M x

PCUK Nurse Dianne
Posts: 299
Joined: Tue Aug 14, 2012 3:29 pm

Re: Benign or malignant tumor?

Postby PCUK Nurse Dianne » Wed Jun 15, 2016 3:53 pm

Hi bubble,

Welcome to the forum and thank you for posing some interesting questions. I am sorry to hear this is a difficult time with some conflicting results. It might be helpful if I respond to you in person as it may help to ask some questions and have further information. I will email you in person Bubble.

Thanks W & M for signposting to us.

Kind regards,

Dianne
Pancreatic Cancer Specialist Nurse
Pancreatic Cancer UK Support Service
Free phone: 0808 801 0707
Support@pancreaticcancer.org.uk

Marmalade

Re: Benign or malignant tumor?

Postby Marmalade » Wed Jun 15, 2016 5:08 pm

Hi Bubble,

Just wanted to say welcome and hope that the nurses have been able to help. Hope you post again and let us know how things are going M x