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afc333
Posts: 6
Joined: Sun Mar 18, 2007 4:42 pm

references to pancreatic cancer in the news

Postby afc333 » Sun Mar 18, 2007 5:20 pm

My wife has inoperable pancreatic cancer and four years later can say that the chemo she receives thus far keeps it in check. She is sometimes very affected by some of the references to pancreatic cancer in the news, specially when it is about a 'celeb' either diagnosed with it ie Pavarotti or dying from it ie Gareth Hunt (d.14/03/07). There were some sentences about him in the BBC story reporting it. One of the better reports in my view.

'A statement from his agent said he died at his home in Redhill, Surrey, adding: "He fought the disease with great courage and through his strength of character and his wonderful sense of humour he continued to work right up until the end of 2006." Joanna Lumley said "he kept his illness quiet, only his family and a few close friends knew. I went out with him for his birthday in February and he was pretty frail but still hysterically funny."

What can upset her the most is when pancreatic cancer is referred to in hopeless terms. I believe journalists need to be careful how they report cancer statistics and stereotypes.

afc333

melanie w
Posts: 5
Joined: Wed Apr 11, 2007 2:16 pm

Postby melanie w » Wed Apr 11, 2007 2:26 pm

my best wishes to you and your wife.

I understand completely how she must feel, it cant do her morale much good to hear how brave these celebs are in the face of the cancer.

I lost my dad to it in 2003, it hurts me when I read how brave and defiant 'celebs' are when my dad fought with all his worth but it still beat him.

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

Postby rosieh » Sat Apr 14, 2007 12:03 pm

Hello.. I'm new to this forum. My dad was diagnosed with inoperable pancreatic cancer on 8th March and he came home on 13th March. He hasn't been offered any treatment (and doesn't want any). He is 68.
When we saw the story about Gareth Hunt in the papers, we decided not to give him the newspaper that day. He is bed bound and isn't mobile - so relies on us to take his paper in to him. We made up some story about throwing the paper out by accident. My sister did tell him that Gareth Hunt had died, and when he asked how, said it was the same as he had.

The problem was, my dad wants to die quickly (he has this "thing" about the cancer not dragging on) and we didn't want him to see the bit about a "2 year battle" as we felt that might make him very anxious that his illness would go on for years. So, AFC, I guess we were holding the story back for different reasons.... but I do understand your point. Thing is, every case is so different.... as I am finding the more I read into Pancreatic cancer.

We have no idea how long dad has, (the Registrar who told us his diagnosis said that because the cancer had spread it would be "months") and the weird thing is that my dad has no pain at all. Which makes me wonder if the cancer is as advanced as the hospital made out?

Anyway - I am veering off topic now so maybe will have a look around the forum to see if there is a better place to post questions about my dad.....

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

Mid-diagnosis Story

Postby rosieh » Mon May 07, 2007 1:23 pm

This story caught my eye this morning.

Some of the comments are really harsh - I wonder if these people have ever faced a diagnosis of "Terminally Ill" themselves!

http://www.dailymail.co.uk/pages/live/a ... ge_id=1770

looloo1
Posts: 7
Joined: Sat Mar 17, 2007 8:20 pm

misdiagnosis

Postby looloo1 » Mon May 07, 2007 9:26 pm

OMG thats such a shame but he is alive and well now and if it was me I think I would leave it at that and start again. We are only human and doctors are human too, yes there are lessons to be learned but the money he could sue for could be better spent improving treatment and diagnosis of pancreatic cancers. He probably sold his story too.

I think the paper could have better used their space and devoted a section to the figures for pancreatic cancer and how a diagnosis of it affects the family unit and changes their lives. The light needs to be shed to the world about this horrid silent killer. It upsets me that other cancers get much more publicity and funding.

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

Postby rosieh » Tue May 08, 2007 8:46 am

You should post up a comment on the Mail website to that effect, Lynn. It's a very good point.

simon

Postby simon » Tue May 08, 2007 9:31 am

hi ya. bbc breakfast was following the same story.it upset me a bit, as i dont think he realises how vauable his life is. i emailed them, and they acctually read out my message. basically i said i would swap my pancreatic cancer with being broke anyday. unfortunatly they did not mention that it was pancreatic cancer i have, just cancer ,but i think it got the message across. i have to apologise for my typing, but i am still in hospital so writing this on a crappy patient line keyboard.

should be home today :lol:

see ya

simon

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

Postby rosieh » Tue May 08, 2007 9:45 am

Hey Simon!
I'm quite impressed you're using Patient Line to get online. Yes, that's another good point you're making.
I didn't see BBC Breakfast but I'll have a look on their website to see if there is any mention of the story (and you!).
Hope you get out today....

Edited to add - here's the link to the video news clip of John Brandrick

http://news.bbc.co.uk/player/nol/newsid ... w=bb&mp=wm

looloo1
Posts: 7
Joined: Sat Mar 17, 2007 8:20 pm

Postby looloo1 » Tue May 08, 2007 7:00 pm

Hi Simon and Jan, well done youSimon! I didnt even know you could get online in the hospital it mustnt have reached dundee yet! But then again they didnt seem to know what to do when I asked about how to complain either!
So glad you emailed them, and put the other side of the story across! Im sure any of us would give up our right arm to be in his position now!
You get urself better soon Simon!
Jan I did just that and posted a comment to them! (After a few wines so I hope it reads ok)!
Lynn
:wink:

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

John Brandrick Story

Postby rosieh » Tue May 08, 2007 8:17 pm

This story was on Jeremy Vine on Radio 2 this afternoon - they were taking calls and emails, but I was driving at the time so couldn't ring up!

It was only a short piece, and JV spoke to John Brandrick, but I missed that bit. From what I can gather he said he had life insurance and that's why he wasn't worried about what his family would do after he'd gone.

I think BBC Radio has a "Listen Again" feature on the website so if I get chance I might listen to it later.

Lynn - good for you, I'll go and look for your comment later.

looloo1
Posts: 7
Joined: Sat Mar 17, 2007 8:20 pm

Postby looloo1 » Wed May 09, 2007 11:24 am

I went looking for it and they havent posted it! I wonder if they close postings after a short while?
Or maybe they have to vet them first but there were no obscenities! So I should pass that one!
Lynn

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

Postby rosieh » Wed May 09, 2007 12:39 pm

I couldn't find it either, Lynn. I wonder if they do have to be cleared first? Strange....

afc333
Posts: 6
Joined: Sun Mar 18, 2007 4:42 pm

Postby afc333 » Wed May 09, 2007 10:19 pm

The story of John Brandrick is still on the BBC site, as well as the video. The link to the story is

http://news.bbc.co.uk/1/hi/england/cornwall/6615351.stm

Yet again, there seems to be made the assumption that pancreatic cancer means terminal cancer. We need to keep up the publicity both for more research (and funding) and that already progress has been made and that some pc sufferers are being successfully managed.

afc333
Posts: 6
Joined: Sun Mar 18, 2007 4:42 pm

PC in the news on the BBC site

Postby afc333 » Tue May 15, 2007 5:57 pm

There is quite a major story on the BBC news site where it is reporting the long term plan of Cancer UK. In one sense it is a sad news story but in another it plugs very strongly that something must be done about more research on pancreatic cancer. I welcome this coverage. Here is the link
http://news.bbc.co.uk/1/hi/health/6634517.stm
Its worth following up postings and emails on the BBC site too.

rosieh
Posts: 69
Joined: Sat Apr 14, 2007 11:42 am

Postby rosieh » Tue May 15, 2007 11:09 pm

Interesting that the BBC has featured a PC patient. Thanks for the link. The lady they interviewed is very philosophical.