A forum for family, friends and carers of pancreatic cancer patients

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allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Thu Jul 30, 2015 8:08 am

I spoke to my dads oncologist today, he said nanoknife may well be an option and apparently my dads specialist hospital has just started doing the procedure. He has emailed the Consultant who does the procedures and the radiotherapist to see what is the best option. So really just waiting to see. My dad has been unwell this week, and i believe his stent may be blocked, thay have taken some bloods and they say he may get it done next week. He already has a metal one in place, do thet just put another metal one inside it? Does anyone know? Also how is the stent done? Any advice would be great

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Tue Aug 04, 2015 8:06 am

We have had a really bad weekend with my dad, he has been shivering, headaches, sick and a lot of pain in his back, he is being admitted today as they think his stent is blocked. He is on antibiotics as the Dr came out at the weekend and they said he had an infection, although they dont seem to be working. It just feels as if he is more down then up, and with having no treatment at the moment as he is waiting for Radiotherapy in a couple of weeks he should at least be feeling a bit better

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 9:00 am

Re: My Dads diagnosis

Postby WilliamS » Tue Aug 04, 2015 8:13 am

Sorry to hear your Dad isn't so well at the moment and hope they can clear the infection soon. Did the Dr check his blood sugar?

LMD
Posts: 120
Joined: Tue Apr 15, 2014 10:06 pm

Re: My Dads diagnosis

Postby LMD » Tue Aug 04, 2015 10:08 am

Thinking of you and your Dad. Fingers crossed that they will be able to sort out some medication at the hospital and that your Dad will become more settled again and can build some strength up again. My heart goes out to you - stay strong and positive xxx

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Tue Aug 04, 2015 10:33 am

Thanks fpr replying. No they havent checked his blood sugar yet, but he is going in today so hopefully they should check it while he is in.

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Wed Aug 26, 2015 8:45 pm

We have had a horrendous 3 weeks. My dad had a blocked stent so he had to have that replaced which led to an infection and he has been admitted 3 times in 2 weeks. He has lost over another stone so now he has lost over 6 stone since Nov 14. He has constant pain which is getting worse band he keeps getting told that he should have no pain. The Oncologist mentioned a nerve blocker. Does anyone know how they are given? Also he hasnt had chemo since the end of June as awaiting radiotherapy but just been too unwell. His tumour markers were raised last week so he has to have an emergency ct scan next week, the Dr thinks maybe his tumour may have grown! Or pressing on his nerves more. I hope the latter. Would appreciate any feedback

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Dads diagnosis

Postby jay » Thu Aug 27, 2015 11:48 am

so sorry your dad is in so much pain, my husband also had a blocked stent and got biliary sepsis, he was in terrible pain too, I was told some people with pc cant digest pain killers if they are given orally, my husband ended up having iv morphine, pethadine which actually worked the best to ease the pain, that was given iv also, take care and thinking of you,
love Jayne
xx

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Fri Aug 28, 2015 8:46 pm

Thanks Jayne. My dad saw the Dr from our local hospice today, she thinks he would benefit from a nerve block. Is that the same as pethidine? He needs something as its awful to see him in so much pain. He currently takes quite a large dosage of oxycodene which is making him really drowsy and he has oxynorm for breakthrough pain which leaves him drowsy, sick and confused. How's your husband now?
Thanks again
Alison

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Dads diagnosis

Postby jay » Sat Aug 29, 2015 6:29 am

Hi Alison, hopefully the nerve block will ease the pain and hope it's done soon, my husband died last September, he was 49, I , having a hawaiian party on Sunday to celebrate his life, got 50 people coming to the house,take care, love Jayne x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sat Aug 29, 2015 8:26 am

Sorry about your husband Jayne, I hope you all enjoy the Hawaiian party tomorrow x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Fri Sep 04, 2015 11:23 am

My dad has being admitted as he is in a lot of pain until he has a nerve block. Hoping that will work as don't know what other options there are? He has become very confused and can't remember things and am hoping because its the increase in medication, which they are reducing as they say its too much. He is hardly eating at all and has lost over 7 Stones since Nov so really can't afford to lose anymore!. I would really appreciate some advice as at my wits end. He lives alone and so worried when he gets discharged

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: My Dads diagnosis

Postby jay » Fri Sep 04, 2015 12:11 pm

sending you a hug Alison
love Jayne
x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: My Dads diagnosis

Postby Sueoliver » Sat Sep 05, 2015 8:33 am

Hi Alison the hospital arranged for carers to come and help my Mum. Speak to the ward staff about it. The occupational therapist should come and see you as well. We didn't have to ask they arranged it all!
I hope your Dad's pain is better today. Thinking of you.
Love Sue x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Sat Sep 05, 2015 8:23 pm

Thank you Sue The consultant mentioned the other day about palliative care nurses coming to help my dad. It's so difficult as he is so stubborn and he doesn't like people turning up,but its a case of he has to. He needs help as definitely confused and disorientated x

allyc1
Posts: 68
Joined: Tue Jul 14, 2015 7:57 pm

Re: My Dads diagnosis

Postby allyc1 » Wed Sep 09, 2015 7:18 am

After a truly awful week it doesn't get any easier. My dad was admitted to hospital on Thursday with severe abdominal pain. We have since learnt the tumour has spread to his liver they think.They said lesions?. He is on a syringe driver for the pain as nothing is taking the pain away! He is booked for a nerve block on Tues, they want him to go into a Hospice for 1-2 weeks which he isn't keen on. Has anyone else being to a Hospice for pain management? I think he is thinking of the worse which is totally understandable.