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Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Bad news

Postby Didge » Fri Jun 19, 2015 6:59 pm

Having not posted for a while, my darling has been in a lot more pain since his radiotherapy to blast one tumour, having had the other ablated. The latest scan shows that there are now livers tumours in every section of the liver so the prognosis from last summer of this July (I know they are only averages) looks horribly likely. We are both hoping we get to celebrate our big birthdays next month. Sorry that the run of good(ish) news has come to an end. In a lot of cases, chemo is like poking it with a stick and makes it more aggressive, which is what has happened to us - others find it keeps it at bay for a long time. If only we knew which was which! Hopefully individual treatments will not be too far off and we will know then for sufferers in the future. xx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Bad news

Postby jay » Fri Jun 19, 2015 7:04 pm

Ah Didge, Im so sorry, sending you an enormous cyber hug, this pc is unrelenting,
Thinking of you both, hope they can sort the pain out.
love Jayne
xx

Fifi

Re: Bad news

Postby Fifi » Fri Jun 19, 2015 7:12 pm

Didge,

Really sorry. Something else so horrible to read.

They said this is what happened with my Dad. Dreadfull.

What happens now then? What are they going to do for him? How is he feeling, and I know that is a stupid question and I'm sorry I couldn't word it better.

Leila xx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Bad news

Postby Didge » Fri Jun 19, 2015 7:20 pm

Thanks both. My dear Leila, it is not a silly question - he is feeling shellshocked - the pain is largely under control at the moment and he is going to get himself hospice sorted out. I am heartbroken though, even though I knew it would come soon enough. Having trouble holding every thing together. we were talking with the oncologist about how unrelenting it is and it seems to outwit everything which is thrown at it.
Lots of love to everyone xxx

Fifi

Re: Bad news

Postby Fifi » Fri Jun 19, 2015 8:18 pm

Oh Didge,

I really am so very sorry. It is so horrible to hear the words that chemo hasn't worked and anymore isn't an option. It's like, what do we do now.

Where is your boyfriend now? Where are you? I know there is a distance between you. I read on another post that he has young children.

How do you even process something like this? Life is cruel. They seem to pick up for a while, and then have huge shitty knock back. Wish I could say something, but I know there is nothing. Just please keep posting when you can. We are all here for you.

Leila xx

LMD
Posts: 120
Joined: Tue Apr 15, 2014 10:06 pm

Re: Bad news

Postby LMD » Fri Jun 19, 2015 8:49 pm

So sorry Didge.
Thinking of you both - there's nothing that can be said to make it any easier, I know, but please know you're not alone... X

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Bad news

Postby Didge » Fri Jun 19, 2015 9:12 pm

He is here with me until tomorrow. there is a chance he can go on a developmental drug trial - we will know in a few days if he is well enough. Otherwise he wants to try folfirinox again which they have agreed to - unfortunately, it will probably kill him, but he wants to try. Thanks all for your support x

Fifi

Re: Bad news

Postby Fifi » Fri Jun 19, 2015 9:18 pm

I hope he can get on a trial.
I really understand him wanting to try. When they told Dad he had broken bones in his spine, Dad said " I don't care about that, I want my chemo".
It makes it all the more heartbreaking. Your boyfriend has been through so much, and he's always wanted to try. You never know, there is always hope. What else have we got?

Leila xx

sandraW
Posts: 1040
Joined: Thu Oct 31, 2013 5:38 pm

Re: Bad news

Postby sandraW » Fri Jun 19, 2015 9:54 pm

Didge,

I am so sorry to hear your news, but it is good that there is the chance of more Folfirinox, as is it Rob? did well on that the last time, and the chance of a trial is good news too.

Just remember we are all here, for you, and keep looking forward to those special birthdays. sending you love and strength sandrax xx

Go green sue
Posts: 38
Joined: Thu Jul 17, 2014 10:41 pm

Re: Bad news

Postby Go green sue » Fri Jun 19, 2015 11:12 pm

Didge, I am so sorry to read your bad news.
I have not been a regular on here but you were the first to support me when I first posted.
Sending you both massive hugs and hoping he is suitable for the trial.
Keep us informed how things go.
Love Sue H

EmmaR
Posts: 197
Joined: Fri Sep 20, 2013 11:06 pm

Re: Bad news

Postby EmmaR » Sat Jun 20, 2015 1:10 am

Oh I 'am so so sorry to read your post you joined the forum a month after my hubby of 51 years passed away 8 weeks after diagnose! and I have followed your posts with hope that things would get better but unfortunely as with a lot of forum members the prognosis never seems to improve some on here are the exception but sadly not many so having walked the path that you make be takeing in the near future all I can say is for now love him to bits and be strong and know the forum family really do know what you are going through .....
Thinking of you EmmaR xx

WilliamS
Posts: 70
Joined: Sun Apr 05, 2015 9:00 am

Re: Bad news

Postby WilliamS » Sat Jun 20, 2015 8:49 am

Sorry to read your news Didge. Similar to Sue H, you were also the first to support and advise me when my Dad was diagnosed in March. Thinking of you and fingers crossed your bf is accepted for the trial.

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Bad news

Postby Sueoliver » Sat Jun 20, 2015 8:58 am

I am thinking of you Didge . Also going through tough times at the moment! Stay strong.
Love Sue x

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Bad news

Postby nikkis » Sat Jun 20, 2015 7:01 pm

My lovely Didge,

What can I say, this is all so blinking awful and unfair. I really started to hope that Rob could be one of the ones to beat this. Paul also wanted everything they could possibly throw at it, even if it made him worse, and why would you not when you have so much to live for? Not everyone understood that, but it is a decision that I have never regretted.

If you ever want to get in touch, please ask Jeni for my contact details. I really hope you get to celebrate those special birthdays,

Lots and lots of love to you both,

Nikki

RLF
Posts: 227
Joined: Tue Nov 19, 2013 9:30 am

Re: Bad news

Postby RLF » Sun Jun 21, 2015 9:09 pm

I'm sorry to hear this didge, my thoughts go out to both you and rob. Glad his pain is being managed better and I hope you manage to celebrate both your birthdays
Xx