A forum for family, friends and carers of pancreatic cancer patients

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sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Thu Mar 10, 2016 10:20 pm

Steve still at home no beds available but we are coping ok .Not eating only little amounts ice cream jelly etc .He is in a better place at the moment not so down so hopefully can keep his spirits up until he can go to hospice.Dr been to see him and he asked him how long he had to carry on as he is ready to die.Dr says we are on weeks now so Will try my best to make them special.I felt a little sad that Steve wanted to go but I guess I'm being selfish and i guess would feel the same if it was me.love to you all x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: frustrated

Postby Didge » Thu Mar 10, 2016 10:24 pm

I can totally understand it if he has had enough. It must be so tough and there is no one path for all. Some feel quite well with minimal or no pain right to the end, just getting weaker - others have more to bear. I am sure I, for one, would have had enough quite early on! I do hope Steve can keep comfortable and take little pleasures from his days when he is able. It is a hard path for all. Thinking of you both xx

boa
Posts: 131
Joined: Thu Jul 09, 2015 1:13 pm

Re: frustrated

Postby boa » Fri Mar 11, 2016 7:56 am

Just to say I'm thinking of you both. It's a hard road to travel and I can understand that with pain things can be tough. Take care of yourself too.

sandraW
Posts: 1040
Joined: Thu Oct 31, 2013 5:38 pm

Re: frustrated

Postby sandraW » Sat Mar 12, 2016 8:36 am

Sheena, Its so hard for you all, sending a cyber (((hug))), love and strength thinking of you both love sandrax xx

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: frustrated

Postby jay » Sat Mar 12, 2016 10:17 am

Thinking of you Sheena
love Jayne
x

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Sat Mar 12, 2016 9:24 pm

This time last year our world shattered ,well done to my hubby who can now say I have survived p c for a year .

Fifi

Re: frustrated

Postby Fifi » Sat Mar 12, 2016 11:25 pm

Hi Sheena,

So sorry to read Steve is feeling the way he is. I can't imagine how it all must be feeling for him. I hope he gets to the Hospice soon, and hopefully things will improve for him there. My thoughts and prayers are with Steve right now.

Leila xx

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Tue Mar 15, 2016 7:24 pm

Steve a little yellow is this because stent is blocked or liver closing down ? asked palliative nurse but she just said wait till u see Dr on thurs he might run some bloods

shelda
Posts: 59
Joined: Thu Feb 04, 2016 11:41 pm

Re: frustrated

Postby shelda » Tue Mar 15, 2016 9:37 pm

Sending love to you and Steve, thinking of you xx

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: frustrated

Postby Didge » Tue Mar 15, 2016 9:42 pm

Could be either, Sheena, I guess. If they are going to try to unblock a stent I would have thought sooner the better but maybe Steve has had enough. My partner turned down a scan to see if he had a blockage shortly before he died. I am thinking of you both at this very hard time and hope Steve is comfortable. Sending you a big hug x

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Tue Mar 15, 2016 10:02 pm

Ty for quick replies Steve in pain had paracetamol not worked so given him oramorph 10mls so scared in case I overdose him says as required but how often is that .I'm blady useless at this.

sheena
Posts: 173
Joined: Sat Jun 13, 2015 8:42 pm

Re: frustrated

Postby sheena » Tue Mar 15, 2016 10:05 pm

Forgot to add not ready for hospice yet ,as he is still mobile and all the beds are full but have promised us they will do there best when Steve gets nearer to passing x

sandraW
Posts: 1040
Joined: Thu Oct 31, 2013 5:38 pm

Re: frustrated

Postby sandraW » Wed Mar 16, 2016 11:49 am

Hi Sheena,
I think 10mls is a pretty low dose, don't think that will harm him, give the nurses here a ring if you are not sure, and have no one else to ask, they are brilliant. Hope you are coping okay, when will the family be back from Australia can't be too long now. love sandrax xx

PCUK Nurse Rachel C
Posts: 61
Joined: Wed Jan 14, 2015 4:25 pm

Re: frustrated

Postby PCUK Nurse Rachel C » Wed Mar 16, 2016 12:40 pm

Dear Sheena,

My name is Rachel and I am one of the nurses that works on the support service. I just wanted to say how sorry I am to hear that Steve's pain is not well controlled at the moment.

Like Sandra has mentioned, please feel free to call through to the support line (0808 801 0707) and we can discuss any medication concerns that you might have. It is not uncommon for people to be worried about starting stronger pain relief medication, like oramorph and some of the concerns you have are completely natural.

I am aware that you also have a hospice nurse and may have already had the opportunity to discuss this with her, if not, please do get in contact.

Kindest regards,

Rachel
Pancreatic Cancer UK Specialist Nurse
Support and Information Team

Fifi

Re: frustrated

Postby Fifi » Wed Mar 16, 2016 8:08 pm

I agree with Sandra, 10ml is quite a low dose. I understand your concern though, you just want to look after him.

I hope someone has been out to see him today or at least spoken to you to give you confidence about the medications.

Leila xx