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Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Tue Jun 16, 2015 7:33 pm

Mum was admitted to hospital this afternoon as she is very weak. The consultants are discussing what to do about the blockage and should have made a decision by tomorrow morning! I don't know yet what sort of blockage it is! I am hoping they can help her again. She is being referred to the pallative care team at the hospital as well.
Holly is your Nan being treated at a hospital? You can ask to see a dietician they can advise you. My Mum eats little and often and usually soft foods like scrambled egg. She loves chocolate! You can always ask to have fortisip drinks prescribed as well. If you open your own thread other people may support you as well. Please ask anything you need advise on. Take care.
Love to everyone,
Sue xxx

sandraW
Posts: 1040
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Tue Jun 16, 2015 8:36 pm

Sue, thinking of you, lets hope they can sort things out for your Mum and she can bounce back again, love sandrax xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Thu Jun 18, 2015 9:37 pm

Mum still in hospital and they haven't performed the endoscopy! They are now saying it might not be till Tuesday! She has a drip in each arm, a tube down her nose and they have decided nil by mouth! I questioned this but they said it was Dr's decision! I really don't understand how and why they are leaving her like this! She is fed up and getting skinnier and skinnier! This seems so cruel! I'm struggling with the waiting and not knowing what the blockage is so goodness knows how she feels! The blockage could be the tumour or the stent could have moved! We need to know!
I hope something is done tomorrow but I have an awful feeling she will have to wait till Tuesday!
Life is cruel!
Sue x

Didge
Posts: 825
Joined: Sun Dec 29, 2013 10:35 am

Re: Mum's diagnosis

Postby Didge » Thu Jun 18, 2015 9:40 pm

Oh Sue this is awful! Why are they saying nil by mouth if they are doing nothing yet? Is she getting nourishment through a tube or only hydration? I do hope you make some headway tomorrow! xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Thu Jun 18, 2015 9:52 pm

They are saying nil by mouth as they think fluid isn't going down which in my opinion is crazy! Surely water can't hurt! She has fluids in one arm and food, looks like milk, in her PIC line! The tube in the nose is draining the green bile! It truly is awful! Sue x

rsk1974
Posts: 80
Joined: Thu Jul 31, 2014 1:21 pm

Re: Mum's diagnosis

Postby rsk1974 » Fri Jun 19, 2015 3:10 pm

Sue, I'm sorry to hear of your mums decline, nil by mouth seems crazy, unless they are just wanting to monitor all fluids in and out. Will they let her such ice cubes.

Fifi

Re: Mum's diagnosis

Postby Fifi » Fri Jun 19, 2015 6:00 pm

Sue,

So sorry to come on here and read your Mum is nil by mouth. Rsk made a great suggestion with the ice cubes. Surely she can do that. At least they are giving her food.
Has anything happened today? I do hope so. Your poor Mum, she is really going through it. The waiting you both are having to do is appalling. Something needs to be done, days ago. Where is the level of care???
Really really hope you come back and post something positive before Tuesday.

Leila xx

sandraW
Posts: 1040
Joined: Thu Oct 31, 2013 5:38 pm

Re: Mum's diagnosis

Postby sandraW » Fri Jun 19, 2015 6:31 pm

Sue,

Poor you and poor Mum, the waiting is just horrendous, I really feel for you, there is just no sense of urgency, and it is urgent that it gets sorted, it was just the same with Trevor's drain, it just got put off and put off, lets hope you get something sorted.

Re the fluids, they did say when Trevor was really poorly that giving them fluid by mouth can cause problems, as the body can't absorb it as it just goes into the body, and collects didn't really take it in to be honest, but it was something on those lines. Mum should be able to have the sponge lollipops to moisten her mouth which will help to make her more comfortable.

Ask to speak to the doctor, and ask him why, at least if they explain things its easier for you to understand why things are done and you won't have that feeling of frustration.

I hope that they get things moving for her soon, love sandrax xx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sat Jun 20, 2015 8:56 am

Yesterday they suddenly decided to take Mum for an endoscopy! All I know is they have put a balloon in her stent! Not sure what that is! She is still nil by mouth and I haven't managed to speak to a DR yet! Last night they were moving her to a ward as she was on the surgical assessment unit! Hopefully the ward will be better.
She is completely and utterly fed up! Does anyone on here know anything about the balloon?
Sue x

MSH
Posts: 228
Joined: Tue Apr 30, 2013 11:03 pm

Re: Mum's diagnosis

Postby MSH » Sat Jun 20, 2015 10:28 am

It might be like a balloon angioplasty, but used to try and open a partially blocked stent.

HollyLouise
Posts: 5
Joined: Mon Jun 08, 2015 8:24 pm

Re: Mum's diagnosis

Postby HollyLouise » Sat Jun 20, 2015 10:09 pm

Thank you for your replies Sue and Leila, I have been in touch with a specialist nurse from this site who has proved to be most helpful.

Wishing the best for your Mum, Sue and I hope that things get better soon

-Holly x

jay
Posts: 407
Joined: Mon Feb 17, 2014 2:30 pm

Re: Mum's diagnosis

Postby jay » Sun Jun 21, 2015 8:14 am

Hi Sue, Hope your mum is feeling a little more comfortable today, hope the balloon works and opens the stent, thinking of you,
love Jayne
x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Sun Jun 21, 2015 2:03 pm

Thankyou for the replies sort of understand the balloon a bit better now. Been asking to see a DR for 2 days but no luck so far! Getting slightly irritated now! When I go in tonight I hope I get a few answers as to what is happening! She is allowed drinks but still on intravenous food!
Thinking of everyone today. Xxx

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Mum's diagnosis

Postby Sueoliver » Mon Jun 22, 2015 12:52 pm

Finally a DR has explained! Not good news...the cancer is blocking the stent and bowel! Her only options are to stay as she is or have an operation! They have said she might not survive the operation but if she does she could be home within a week and have some quality of life! It is Mum's decision but really she has no option . She wants to be at the wedding in August!
I think I am numb at the moment don't know what to think or feel!
Sue x

Fifi

Re: Mum's diagnosis

Postby Fifi » Mon Jun 22, 2015 12:57 pm

Hi Sue,

At least there are options. Whatever your Mum decides to do, will be the right decision. I think we both know what she will do. She is a very determined lady.

If she has the operation, when will it take place? Will it be in the same hospital?

Leila xx