A forum for family, friends and carers of pancreatic cancer patients

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brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Need some advice if possible !

Postby brodders » Wed Oct 22, 2014 10:16 pm

It's a very surreal time. You will get an inner strength from somewhere - call it Mother Nature - it's weird!! Sending you lots of love and give your dad lots of cuddles. I kept telling my mum I loved her - I take comfort now in that I could say that. Loads of love Xxxx

SusannaUK
Posts: 112
Joined: Wed Aug 20, 2014 3:32 pm

Re: Need some advice if possible !

Postby SusannaUK » Thu Oct 23, 2014 12:04 am

I am so sorry to read that you and your Dad are going through this hard time.
I know this smell too. I had this smell in my nose when my Grandmother was ill with pancreatic cancer and the smell stayed in my nose even when I was not with her. I called it ill smell too.

I am thinking of you in these hard times, keep strong!
Susanna x

Sueoliver
Posts: 519
Joined: Thu May 22, 2014 8:22 pm

Re: Need some advice if possible !

Postby Sueoliver » Thu Oct 23, 2014 7:12 am

I find these threads so hard to read because of my mum. It is such an awful time. Stay strong if you can and cherish every moment with your Dad. Sue x

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Thu Oct 23, 2014 7:44 pm

Thank you to everyone that takes time to read my updates. I just want to share what is happening in my life to let other people know that what they are going through is what I am also going through. I don't feel alone any more as others seem to concur with the thoughts I have and the feelings and emotions I am going through. Dad has been asleep all day today. He has had one small drink but he said he just wanted to sleep. I managed to get 2 mins with him to ask him how he was and to tell him that I loved him. He always tells me he loves me too which is lovely but also breaks my heart as soon there will be a day when my beloved pops won't be able to say it...but I know how he feels x

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Mon Oct 27, 2014 8:33 am

Remarkably pops is still with us! He now hasn't eaten for 3 weeks and 4 days and fluid has been minimal....not even a cup per day. He is terribly thin and has slept virtually continuously for 5 days now. Last nite was extremely emotional. I gave him a cuddle and put my head next to his and he put his arm around me and rubbed my back like when I was a child. Like he knew he was leaving me but just not sure when. He speaks very little now so his actions meant the absolute world and I didn't want to move to ruin the moment we both shared for that briefest of moments he was my beloved daddy. Every morning brings that dread that he has left us over nite and we count each day as a blessing. X

sandraW
Posts: 1039
Joined: Thu Oct 31, 2013 5:38 pm

Re: Need some advice if possible !

Postby sandraW » Mon Oct 27, 2014 11:38 am

Sending you ((hugs)) sandrax

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Need some advice if possible !

Postby brodders » Mon Oct 27, 2014 3:50 pm

Thinking of you Xxx

Bowie
Posts: 115
Joined: Sat May 03, 2014 10:35 pm

Re: Need some advice if possible !

Postby Bowie » Mon Oct 27, 2014 11:38 pm

Thinking of you and your dad and happy that you are managing to share special little moments, despite this most wicked of diseases. Fiona X

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Thu Oct 30, 2014 9:23 am

Dad is much the same still. 4 weeks now since he had any food. Still extremely sleepy and is quite confused. His speech is very poor but he still knows exactly what he wants. Heart breaking just watching and waiting now. Sounds heartless but I hope it's not too long. We have said all we need to say to him. We always tell him we love him and I also told him that I will look after mum and it's ok if he wants to go. As hard as that sounds I'm sure if anyone else were in this position they would not want to prolong things either. His breathing is slow now and he breathes with his mouth open which is fine but when it all goes quiet it's eerie and we check that he is still with us. X

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Need some advice if possible !

Postby brodders » Thu Oct 30, 2014 11:28 am

I know exactly how you are feeling. My mum's illness did not go on for so long, but her last day was painful to watch. Take care and lots of love Xx

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Thu Oct 30, 2014 1:13 pm

The nurse came in this morning and they are coming back later to put a morphine driver in so that dad can have medication put in automatically. Is this the last stage for him now? Can any one help me with any advice at all?

Birchen
Posts: 77
Joined: Thu Sep 05, 2013 1:53 pm

Re: Need some advice if possible !

Postby Birchen » Thu Oct 30, 2014 2:17 pm

Hello this is what happened to my husband when he was in the hospice. I think they do it so that they feel more comfortable but he only stayed in bed for the very last day. I do hope that he is peaceful and thinking of you at this very sad time. Take care x

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Thu Oct 30, 2014 2:30 pm

Thank you ..We are caring for dad at home so it's very tough. Dad has been in bed for about 6 weeks now. He has been quite uncomfortable today and can't seem to sleep peacefully hopefully this driver should help him x

brodders
Posts: 65
Joined: Fri Jun 20, 2014 7:51 pm

Re: Need some advice if possible !

Postby brodders » Thu Oct 30, 2014 7:47 pm

My precious precious mums syringe driver was put in hours before she very peacefully passed away. Crying now - please take care. Stay strong and believe me when I say I whatever happens next is for the best. My mum LOVED her life and in the end she didn't have a great one . Take care xxxx

Dcoleman
Posts: 38
Joined: Wed Apr 30, 2014 10:46 pm

Re: Need some advice if possible !

Postby Dcoleman » Thu Oct 30, 2014 7:57 pm

I didn't mean to upset anyone I'm so sorry. It's just so hard knowing what happens next and the support on here has been so lovely and has helped me massively. We are going to have a night sitter come in soon as I think it's not much longer now. Thank you to everyone. Xx Big hugs to you all X X