A forum for family, friends and carers of pancreatic cancer patients

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Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: Taking the plunge!- yet another delay!

Postby Bee » Tue Oct 29, 2013 10:47 pm

Hi,
So chemo delayed again! Stent change did not go as planned this week, old one out easily via ERCP, unable to get new one in. So now PTC tomorrow and either a drain or hopefully a metal stent. One very fed up husband as stuck in hospital, tired and sore. Hoping to get pain under control as really suffering with lower abdo pain, another scan today to see if cause can be identified, so many questions and I just wish I knew the answers!!

Hope tomorrow is better !
Bee x

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: Taking the plunge!

Postby InfoForMum » Wed Oct 30, 2013 12:32 am

Aww Bee,

Another leftfield challenge for you both. I'm so sorry. I hope they find the cause of abdo pain and it's simple to resolve and that 2nd attempt to get that stent in works. How damn frustrating for you both. Always seems like craters rather than bumps in the road, when the road it's self is mostly a steep uphill slog.

Thinking of you m'dear and hoping things smooth out later today.

Sarah
XXX

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Taking the plunge!

Postby Cathy » Wed Oct 30, 2013 1:18 am

Hi Bee

I do feel for you sooooooo much. How bl**dy frustrating.

Fingers crossed things go more smoothly now. I'll be looking out for your next post and hoping for good news.

Lots of virtual hugs

Cathy xxxx

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Taking the plunge!

Postby nikkis » Wed Oct 30, 2013 8:54 am

What a nightmare for you Bee. Before Paul's surgery it took them 4 goes to get a stent in, but they got there in the end when they did a PTC. Really hope they get the pain sorted out and you can get him home asap.
Nikki

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Taking the plunge!

Postby Cathy » Wed Oct 30, 2013 10:10 am

Hi Bee

I really hope the scan throws up something positive. Let us know.

I just thought I'd just post this aswell.. maybe nothing but I remember you saying that Chris had constipation at times and pain and Jonathan has also been suffering for a few weeks with ongoing constipation and lower abdominal pain. It also affects his weeing (on occassion he struggles to do either). GP is flummoxed so we saw the Oncologist on Monday. She did an examination inc of his prostate and found it enlarged. To the extent she she believes that this is the culprit. So he has just had some more blood tests and is to have an ultrasound scan (his last CT scan done last month showed nothing on the prostate). We go back to the Oncologist shortly to discuss the results with everything crossed that it is all unrelated to the disease and can be reoslved easily. It's given Jonathan a huge boost anyway.

I hope the source of Chris's pain can be resolved easily.

Cathy xx

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: Taking the plunge!

Postby Bee » Wed Oct 30, 2013 10:52 pm

Hi everyone,
Finally a more positive day, hooray for the ptc, metal stent now in place!
I am so relieved, hopefully if all goes ok tonight he will be home tomorrow to get some sleep.
He has seen the pain team aswell who he says are really lovely and work across the hospital and our local hospice, and he can now contact them at any time. The feeling is that it is neuropathic pain and have started gabapentin, they were in agreement with all his other meds and hopefully the new one will mean less oramorph for breakthrough pain.
He is now very keen to get home and of course get back to work but true to form he has been sat in the hospital working on his laptop!!
Take care everyone

Bee xx

InfoForMum
Posts: 332
Joined: Mon Aug 19, 2013 12:01 pm

Re: Taking the plunge!

Postby InfoForMum » Wed Oct 30, 2013 11:12 pm

YEY!

Really good news Bee :-) That stent should quickly make a difference and I believe having a metal one greatly reduces the risk of infection and blockage and yey again for having the pain specialists on board. Fingers crossed they find a balance for him that works. What a trouper getting back on the work train although I'm sure you sometimes feel like strangling him for it.

Take care

Sarah
XXX

nikkis
Posts: 513
Joined: Mon Jul 08, 2013 8:29 am

Re: Taking the plunge!

Postby nikkis » Thu Oct 31, 2013 2:07 pm

Fab news, that's a big corner you have turned, keep them coming!

Nikki

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Taking the plunge!

Postby Cathy » Thu Oct 31, 2013 2:49 pm

Hi Bee

Great news!!

I hope Chris does manage to get home and get some rest (lock up that laptop).

So now it is onwards and upwards to some more treatment and give that disease a good kicking!!

Hurrah!

Cathy xx

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: Taking the plunge!

Postby Bee » Fri Nov 01, 2013 2:27 pm

Hi,
Home yesterday, and slept in his own bed last night! Was stripping the bed at 0700 yesterday before work,so all nice new sheets, silly eh?
So pleased he is home, chemo to start next Friday , hopefully we will get there this time.
Take care all

Bee xx

Cathy
Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: Taking the plunge!

Postby Cathy » Fri Nov 01, 2013 2:33 pm

Hi Bee

Great news!!

I am sure it will happen this time - fingers crossed it does. New sheets make all the difference in my book..

xxx

karen17
Posts: 157
Joined: Sun Dec 30, 2012 8:38 pm

Re: Taking the plunge!

Postby karen17 » Sat Nov 02, 2013 10:17 am

Great news Bee and of course clean sheets matter! Keep up the good work both of you
Karen xxx

cestrian
Posts: 220
Joined: Mon Jun 03, 2013 12:20 pm

Re: Taking the plunge!

Postby cestrian » Sat Nov 02, 2013 3:53 pm

Clean Sheets! Luxury!!

I'm probably the laziest member of this forum and simply love my bed where I am comfortable and can choose from reading, watching I-Player, listening to the Radio, a combination of these or just sleeping. I honestly do think my early nights help me and prevent my feeling fatigued during the day though I do sometimes retire for an hour or so during the day as well if so inclined as I was yesterday after lunch out and a glass of wine!

Made myself fall about laughing yesterday morning as when I was getting out of the shower a few minutes after getting up I found myself thinking of what I would do when I got back to bed last night!! Mind you it is the perfect antidote to a thoroughly miserable day weather-wise so no real apology!

Love and Peace

Mike

J_T
Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: Taking the plunge!

Postby J_T » Sat Nov 02, 2013 6:31 pm

Hi Bee, glad to hear things are more positive for Chris and you of course!

Hope the chemo gets started as planned.

Julia x

Bee
Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: Taking the plunge!

Postby Bee » Wed Nov 20, 2013 9:09 pm

Hi everyone,

Thought I would update as I haven't done so for a while.

Finally we got started and first cycle of folfox successfully completed. Difficult to establish the side effects as pain killer juggling has remained ongoing, so if it's not been pain it's been nausea! I think (touch wood and lots of it!) we are finally getting there.
Saw oncology team yesterday and a bit more juggling of anti emetics but nothing more than that. Constipation also ongoing which I am sure is linked to ever changing painkillers aswell. On the good days it feels like we are getting somewhere , on the rough days I just feel so useless and that's so frustrating and makes me sad. So we plod on and start the next cycle on Friday.

There has been so much loss and sadness on this site recently and my heart goes out to all of you who are having going through such difficult times. I have to count myself lucky that chris is still relatively well and things could be a lot worse but sometimes my bravery deserts me and I want to curl up and sob. I also feel so fortunate that on every level from gp receptionist to consultant the care is outstanding and I know that is not the same for everyone.

Take care everyone

Bee xxx