A forum for advanced pancreatic cancer issues

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Posts: 219
Joined: Fri May 03, 2013 9:39 pm

Re: My dad

Postby Bee » Tue Jul 30, 2013 10:28 pm

I can't offer any advice on the chemo regime but maybe specialist nurse on the site can, perhaps drop them an email? I am so sorry to hear your dad is so unwell and facing difficult decisions, my heart goes out to your family, it is such a cruel disease and there are no easy answers.
Good luck and keep us posted
Bee x

Posts: 788
Joined: Fri Mar 15, 2013 5:43 pm

Re: My dad

Postby Cathy » Wed Jul 31, 2013 6:16 pm

Hi Ezobor

I'm sorry to hear your Dad's disease has progressed when he seemed to be feeling better.

There is a link on this site which seems to be the trial they have suggested for your Dad. http://www.pancreaticcancer.org.uk/info ... er/napoli1

I have no experience of a line into a chest althogh I know it's not ususul. I'm sure the nurses on this site would be able to provide you with more information on it (how it's insterted, cared for etc).

All the very best

Cathy x

Posts: 9
Joined: Mon Oct 29, 2012 7:36 pm

Re: My dad

Postby Ezobor » Wed Jul 31, 2013 10:05 pm

Thanks for your replies and advice.
I will keep you updated as he goe's along.
I pray for a cure everyday :(

Posts: 9
Joined: Mon Oct 29, 2012 7:36 pm

Update on My dad's journey

Postby Ezobor » Fri Aug 30, 2013 6:40 pm

Hey Guys
Just wanted to give a little update on my dad's journey so far. It's been a pretty miserable week for him. He started his new medical trail on Tuesday last week and he's been so ill since! He couldn't keep anything down even sips of water all last week which lead him to loose a stone in a week :shock: we rushed him in a ambulance to the hospital on Sunday morning after ringing the Christie Hotline and he's been in hospital till yesteday. He has been given a permanent driver for anti sickness drug that is being adminstered through a drip 24 hours a day and he's still struggling to eat. He's also been in agony with very bad pain (which my dad is a tough cookie so the pain must be bad for it to be bothering him). We are hoping that all these ill effects will be worth it and this new drug will be our miricle that we are praying for.
I would be gratful if anyone had any tips or stories for counteracting affects of chemo that they have tried themselves as we have exhausted most areas! :roll:

Posts: 954
Joined: Sun Mar 24, 2013 8:15 am

Re: My dad

Postby J_T » Fri Aug 30, 2013 10:37 pm

Sorry to hear your dad is having such a tough time. PC is a horrible illness.

I'm afraid I've nothing useful regards the sickness. Are you in contact with Macmillan regarding the pain? They are usually very good at getting this under control.

I hope you can get your dad comfortable soon.